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Join the OPRAH WINFREY LETTER-WRITING CAMPAIGN

oprah-at-theoscars-in-2007-updated(This blog post was originally written in 2007, and informed thyroid patients at the time were disappointed in Oprah for not being informed or a good spokeswoman about the horrific way hypothyroid was being treated. Nothing changed. So we as patients just kept trodding along, chatting with each other.)

I have had many folks email me about their concern that Oprah is not only failing to get the message about her thyroid issue, but thyroid advocates and interviews are not sending the message about what information is needed out there…and the media has STILL not caught on to this HUGE treatment scandal of the use of T4-only meds and the TSH lab. So, by request, I have created a letter template that you can use to be part of a massive letter-writing campaign to Oprah.

Yes, I’m sure she’s very distracted by the heartsick tragedy of her Leadership Academy for Girls in South Africa, but it may also worsen her thyroid condition, as well as create a potential adrenal problem. So THIS is the TIME to make a MOUNTAIN in her mail room. Go here: www.stopthethyroidmadness.com/letter-to-oprah-winfrey/

Please note that you can also use the above template letter to email her, but if we can ALSO send REAL LIVE letters as outlined in the above page, that can make a HUGE VISUAL difference as to what we are trying to tell her.

You can now donate to the hosting fees of STTM

Screen Shot 2015-08-31 at 10.17.13 AMThis page has been updated to the current date and time. Enjoy!

Since I first started to create this Stop the Thyroid Madness site around November/December of 2005, I’ve had several of you ask if you could donate, somehow, somewhere. At first, I wasn’t sure how to do that. What I did know is that millions of patients have suffered, and still suffer…and this site was to help educate you on what we have learned…and that education, in turn, could be taken to your doctors on how to stop the madness.

And now there is a way to donate!

Your donation goes towards the hosting fees to keep this site up. No, it does NOT go into Janie’s pocket in any way. Instead, it goes towards the monthly fees that are charged to host this site. And the larger the STTM website has become over the years, the larger those monthly fees. And since this is not Janie’s website, per se, but YOUR website of your experiences and wisdom, contributing to those hosting fees is a good thing.

At the bottom of any page on Stop the Thyroid Madness, just like this one, you will see this under the heading “Story and Support”: STTM needs your help to stay up. Please donate to the hosting fee! Under that is the icon you click on. The smaller amounts aren’t anywhere near enough to even pay for a month. But every little bit helps towards the whole. And for those who are able to give much bigger amounts, that’s very helpful, too.

Your donation assures that STTM will stay up. It’s “everyones” site. So for those of you who have really wanted to help, and to feel a part of an important worldwide patient revolution, there it is. And thanks. 🙂

JanieSignature SEIZE THE WISDOM

Oh..oh..oh..do you think the Endrocrine Society is going to understand FACTS???

NO.

The Endocrine Society’s 89th Annual Meeting is going to occur in Toronto, Canada, June 2-5th this year. And one of the scheduled presentations is titled: Thyroid Hormone Therapy: Why Some Patients Are Unhappy.

Now based on that title, you can be an optimist and decide that yes…a presentation is going to be given that will give a clue why MILLIONS of us are unhappy, unhealthy and reeking of hypothyroid symptoms with a “normal” TSH….and have been for FIVE DECADES!! It’s enough to get your hopes flying.

But below is what was said by the speaker:

Today, pure synthetic T4 is the medication that the vast majority of hypothyroid patients use. Most physicians now consider desiccated thyroid and the combinations of synthetic T4 and T3 to be obsolete. Since they contain both T4 and T3, and T3 is absorbed and used by the body more quickly than T4, their T3 content can cause some patients to develop temporary symptoms of hyperthyroidism (palpitations, nervousness) after a tablet is taken. Also, desiccated thyroid, derived from slaughterhouse animals, may have variable potency from batch to batch, depending on the animals’ diet, the season of the year, and the species of animal used to make the tablets.

Huh?? That “obsolete” desiccated thyroid is turning lives around 180 degrees! And those “temporary symptoms of hyperthyroidism” are caused by low cortisol in some, not by a problem in the tablet. And finally, funny that those of us on dessicated thyroid aren’t noticing any issues of variability.

So, unless I hear differently, I can only presume that in early June, these Endocrinologists will only continue to be prescribing medications that do NOT work (e.g. Synthroid), and making ink spots on a piece of paper (called the TSH lab and range) far, far more important than obvious hypothyroid symptoms in their patients. i.e. they will continue the treatment which has only served to keep ALL of us SICK.

Cuiusvis hominis est errare; nullius nisi insipientis in errore perseverare

NBC, CBS, ABC, Oprah, Dr. Phil…you name it. YOU are NOT keeping up!

And to the list above, I can add any and all mainstream press media out there. Because you are ALL falling behind. There is a HUGE revolution going on among thyroid patients against DECADES of lousy treatment, and YOU are failing monstrously to see it and report it.

Instead, you believe and report hook, line and sinker the standard byline of medical news, as if what you report is the ONLY and BEST information there is (e.g. the news on Chronic Fatigue Syndrome mentioned below) and you seem to be blind as bats that there’s an outcry from millions of thyroid patients out there who are suffering due to an ignorant, rigid and malignant method of thyroid treatment with thyroxine medications and standard labs that do NOT reveal anything more than dried ink spots on a piece of paper.

So take heed. We are UNIMPRESSED with your deaf ear and dumb vision and monkey-says, monkey-do reporting. There is a LOT more going on than what the medical establishment is going to feed you. Millions of patients across the nation AND THE WORLD have been paying an appalling price for decades due to a contemptible method of thyroid treatment that involves a medication that has NOT worked, a TSH lab range that keeps patients hypothyroid, and rigid doctors who’d rather bandaid continuing hypothyroid symptoms with anti-depressants, statins, pain meds, and psychotrophic meds rather than open their eyes and think outside their Medical School Training Box. Stop the thyroid madness!

The Today Show’s lousy interview on Thyroid Problems

pills spilling outThe needle on the record player keeps skipping over the same note. News/Entertainment programs like NBC’s The Today Show continue to present the same inaccurate globbity-glook that has always been presented by news media.

The segment on today’s April 10th program, in a “Today’s Woman” interview by Katie Couric with Dr. Judith Reichman, was only more of the same flawed and toxic information that has kept potentially MILLIONS of thyroid patients sick for decades.

So what if the TSH “is a very simply blood test”, as stated by Reichman. It’s an INACCURATE blood test! The TSH test, with it’s lousy range, fails to show the problem for years, even while patients have symptoms that scream hypothyroid–which of course, doctors ignore. And when the TSH does show a problem, the patient is kept within it’s dubious range, and told that those lingering hypo symptoms have nothing to do with their thyroid. Give me a break.

Additionally, it was clear that the medication of choice referred to by Reichman is the substandard T4-only medication, commonly known by the brand names Synthroid or Levoxyl. THEY DON’T WORK, any more than an elevator that only rises to the 5th floor in a 50 story building “works”!!

This site does not exist because T4 meds have been working! This site exists because thousands upon thousands of patients have had continuing symptoms on these lousy medications for years upon years, and have been ignored and put on anti-depressants, statins, and anti-anxiety meds (to name a few) to counter the very symptoms brought on by an inferior medication and a rigid reliance on a TSH lab test.

To NBC’S TODAY SHOW: if you are simply a monstrous media machine that regurgitates the same lousy and vacant information that has always been out there, so be it. Your reputation will preceed you. Or, if you want to become known as a organization that is UP-TO-DATE and willing to HELP the millions of viewers who can potentially be watching you, GET IT RIGHT!!! Because what you presented on this segment STUNK TO HIGH HEAVEN and only serves to keep millions of thyroid patients sick.