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Category: Patients

Celebrities with hypothyroidism–where are you?

I often wonder how many celebrities MUST have hypothyroidism, yet we don’t know it. Tonite, I just found out that Jillian Michaels, the tough and muscular fitness buff on the TV show Biggest Loser, has hypothyroidism.

And you’re left to wonder: is she, and are others, on Armour, Naturethroid, Westhroid?? Have they found out about the superior treatment of desiccated thyroid over a T4-only treatment with Synthroid, Levoxyl, et al?

Other celebrities with hypo include Kim Alexis, Linda Ronstadt, Kim Cattrall, Kelly Osbourne, Oprah Winfrey and others. We can only hope that one day, someone will figure out that desiccated thyroid is a superior treatment, and help us spread the word. So far, Oprah has let us down. Maybe…maybe…someone with the ability to spread the word will step up to the plate. 🙂

p.s. Prefer a book to a website? STTM is now in book form, with even more information than you can find on this site, and waiting to be in your hands.

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Good grief! Stop the judgment!

Six years ago, when I got involved in thyroid patient advocacy by starting the Natural Thyroid Hormone Users group on Yahoo, I did it because I was amazed and shocked what switching to desiccated natural thyroid did for me! There I was, on the brink of applying for Social Security Disability after YEARS of misery & lack of answers, and simply changing to a different thyroid treatment completely turned my life around. I owe some of that change on what I found out on Mary Shomon’s Thyroid group in early 2002.

And it dawned on me: if desiccated thyroid with its T4, T3, T2, T1 and calcitonin did this for ME, what could it do for others?!I A group was NEEDED with a direct focus on desiccated natural thyroid.

And over time, as NTH grew and other fine internet patient groups evolved and grew, other patients were just as amazed at what it was doing for them, as well. This wasn’t coming across at ALL as a treatment only for “some”. It was coming across as a treatment that might just benefit quite a large body on individuals! We also learned by the seat of our collective pants about low ferritin, low cortisol, low B-12, Celiac and gluten intolerance–you name it.

From all the above came the STTM movement: a patient-to-patient compilation of all we have learned–and then the book with even more information. The STTM movement was created because “internet groups” were NOT enough to get the word out about the efficacy of desiccated thyroid, nor were they enough to change the huge and rigid medical establishment. Change had to come from the bottom up–in other words, educate patients, who in turn can take the new information into their doctor’s offices.

But sadly, with the success of patient information about the amazing results of desiccated thyroid treatment has come veiled criticism and overblown misconceptions within our own ranks. And it’s a sad thing to behold!

Namely, we can now read a September 10th internet blog “conversation” by so-called thyroid patient advocates who imply that it is “dogma and narrow-minded” if anyone dares state there just might be a thyroid treatment which JUST MIGHT BE better for most all thyroid patients. IMAGINE the audacity!! I guess it was just as “dogmatic and narrow-minded” when it was first suggested there were better ways to deal with certain health conditions than bloodletting. I can hear it now: “To deny bloodletting is just boxing people in!” “Offering bloodletting as a choice is helping people expand.”

And contrary to the self-righteous tone, condescending misrepresentations, and veiled criticisms towards certain patient groups, this patient movement is not a one size fits all movement. Instead, it’s a “one size JUST MIGHT BE a better alternative” than the other available alternatives, and we strongly encourage that each patient consider finding a doctor to help them give it a try. And, if something about desiccated thyroid isn’t working, we strongly encourage patients to look at particular reasons that can underlie problems.

If you think T4 is working for you, go for it! The same goes for the use of T3 only, or synthetic T4/T3, or certain ratios of T4 and T3. Choice is a blessing we can all respect. Just keep an eye out for depression, rising cholesterol, less stamina than others, adrenal issues and/or a myriad of other continuing hypo symptoms that just might creep up on you as you age on these treatments. Or, consider that we’ve seen many people on these treatments, who, when they switched to desiccated thyroid like Armour, Naturethroid, Westhroid, etc, they reported even better results. (The use of T3-only for high RT3 is a different issue and is where T3-only may be absolutely needed and good. We also respect those who have ethical issues with animal products.)

Finally, I encourage others who consider themselves thyroid patient advocates to TAKE A BIG BREATH and TAKE THE TIME to be in open-minded dialogue with all patients, including me and all of us over here, instead of openly ignoring our existence or deciding what we promote is simply narrow-minded dogma. You might find that direct communication and kindness is a far better method to help thyroid patients instead of the underhanded veiled bashings and misrepresentations within this recent blog conversation.

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The tortoise and the hare: the STTM movement is the tortoise, but we’re winning!!

Hardly a person hasn’t heard Aesop’s fable of the tortoise and the all-too-confident hare, running their I’ll-prove-to-you-who’s-boss race. The hare was FAST and certain to win the run. But the ever-so-committed tortoise, even if slow, slower and slowest…was steady…and won the race.

Until recently, I thought our thrust and determination to change the Big Pharma, zombie-doctoring medical system in the treatment of hypothyroid would be like the hare. We’d get the attention of the mass media through our great determination, shout the message of a FAR better thyroid treatment, and create huge change.

But I think I was wrong. Change has occurred, but we have been doing it like the tortoise…slow and steady.

Slowly but steadily, we are seeing more and more doctors starting to “get it”, even if they still have a way to go. Slowly but steadily, folks are finding out why they have less stamina than others, or depression, or rising cholesterol, or fibromyalgia, or thinning hair in the face of the dogged “normal” diagnosis…all due to an inadequate medication called T4, aka Synthroid, Levoxyl, Eltroxin, et. al. and a lousy lab called the TSH.

Slowly but steadily, folks are finding out about desiccated thyroid to treat their hypothyroid, and cortisol to treat their adrenal fatigue.

Even the STTM book has been like the tortoise. Literary agents didn’t get it, nor did huge publishing companies. I finally stopped counting, but I bet I had over 200 rejections. They all thought it was simply “another” thyroid book. So the fruition of the STTM book came out of true sweat and tears, and a lot of cuss words as I squirmed through my frustrations. Yet, the STTM book–a PATIENT-TO-PATIENT book of which I was only the messenger, is not only a steady seller like the tortoise was steady, but sales keep growing every month, reviews are excellent, and lives ARE changing. How can you criticize a message, whether the STTM site or the book, that is based on the positive and critical experience of thousands of patients around the world!!

Change IS happening! Like the tortoise, we’re winning the race and creating change, bit by bit, whether it’s via STTM, various internet thyroid groups, other good books, or just word of mouth. We’re all a part of it. But we can’t be complacent, because it’s truly obvious by blogs and websites I read that there’s still a huge body of hypothyroid patients still suffering on T4 who need to find out what WE have found out. But it will happen, bit by bit. 🙂

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The walking SILENT SUCKERS of Synthroid, Levoxyl & Levothyroxine treatment

It would make an incredible horror movie. The plot: stunningly convince at least hundreds of millions of individuals worldwide that what has always been obvious, isn’t. That leaves only look green because of alien filters in your eyes. That ripe apples fall because water pulls them down. That fire doesn’t really burn your skin; it’s just your imagination.

And about hundred more schizophrenic ying yangs. Because if those in authority say so, it must be so.

But the horror movie is a reality, and I see it EVERY TIME I come into contact with people and the subject of my thyroid advocacy comes up.

Like today. A couple saw my book and struck up a conversation. She was on Synthroid; he was on Levoxyl. They had each been on their T4-only treatment for 12 and 14 years respectively, felt their hypo was perfectly treated, believed their doctors…and were now dealing with other problems: his rising cholesterol, her depression, his fatigue, and her weight gain. BUT OF COURSE, THOSE HAVE NOTHING TO DO WITH THEIR T4-ONLY TREATED HYPOTHYROID AND SOME OF IT IS THEIR OWN FAULT…leaves aren’t really green, water makes ripe apples fall, and fire doesn’t really burn.

It just struck me. And it’s struck me before. There’s just a LOT of SILENT SUCKERS walking around. I was one; my mother was one; and there are obviously millions out there, still walking around trying to live with the side effects of a treatment that their doctors say are NOT caused by their thyroid.

Sad.

(Has your cholesterol and other lipids improved since you switched to Armour and raised without using the TSH? Your story of success is welcome on the blog post below!)

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The mainstream media–monkey-see, monkey-do.

Have you ever had someone say something in JUST a way that it hits you between the eyes?? That’s what Diane did to me. She’s a thyroid and adrenal patient, and we were discussing the way a huge medical website still gives out backwards and harmful thyroid treatment information, telling patients to “raise their Synthroid” to counter their continuing hypothyroid symptoms (which doesn’t work), or pronouncing that because their TSH is “normal”, those symptoms are not related to hypothyroid (they are.) This huge website has kept patients sick for YEARS, and is one of the main reasons I created STTM!

And Diane said to me “Somehow the true message needs to get into the main stream.”

Boink! That just hit me squarely between the eyes! Sure, I’ve been saying the same in a different way for years–that our message needs to get out. But when Diane mentioned the “mainstream”, it hit me.

Here we are, victims of a medical scandal which has been going on for 50 years, and which has effected HUNDREDS OF MILLIONS all that time. Some of those victims are dead; and many more are still alive, with new victims happening DAILY. Yet, the “mainstream media” has never taken the time or interest to report on this. HUHHH??

Wikipedia defines the mainstream media as the section of the media specifically envisioned and designed to reach a very large audience, and that might include television, radio, newspapers and magazines. Yet, what do you see on any of those mediums? You see the regurgitation of the old-boy, Pollyanna methods of hypothyroid diagnosis and treatment–the use of the TSH and total T4, plus T4-only meds like Synthroid, Levoxyl, Levothyroxine, et al. And if there is mention of desiccated thyroid, it’s bare. YAWN.

Some pundants feel that there is a form of literary censorship going on in the main media…i.e. if it’s not sensational, forget it. Others will cite bias and manipulation by those that report, especially in the political arena.

But what I lean to believe is that there’s a monkey-see, monkey-do mentality in the media. Namely, the mainstream media lazily conforms itself to the loudest, longest or most financially-influential voice. And who’s had that voice in the thyroid treatment arena?? The money-grubbing pharmaceuticals, who thrust billions of dollars into medical schools, besides their bright-eyed reps, to eventually convince every doctor since the early 1960’s that the lousy T4-only medications (Synthroid, Levoxyl, et al), and the dubious TSH lab tests, are from God Almighty.

So, that lie keeps being repeated, ad nauseum, and the TRUTH, which comes from everyday patients all around the world, gets ignored by the mainstream media. Thus, millions out there still sit, miserable or compromised in their day-to-day lives, and on a myriad of other pills to counter the lingering symptoms…because their main contact with the world–the mainstream media–is deaf and dumb–and they have not yet found Stop the Thyroid Madness, and may not for years!

So….what can YOU do?? Contact the mainstream media. SCREAM at the mainstream media. DOG the mainstream media. I have worked hard to put YOUR truth up here and in the book. You can help by spreading that word, one by one, like the Lilliputians who moved the giant.

*To contact ABC, go here.
*To contact MSNBC, go here or email Health@MSNBC.com
*To contact CBS, go here. Use the drop down menu to click on a news program
*To contact Fox News, go here.
*To contact CNN, go here.
*The top 20 Women’s magazines are here.

Want to add more emails or website URL’s for contact? Just add a comment to this post below.

**Patients are reporting that the STTM book is even better than the website! Yeehaw! To order your copy, go to the publishing website here. There are also options to order one for your doctor, and one for Oprah!

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