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The Scandal: Thyroid Patients are Speaking Out, Wall Street Journal, and a new video!

STTM photos of people from video UPDATEDThe push continues, fellow thyroid patients. And it’s getting louder and more widespread.

This week, Wall Street Journal columnist Melinda Beck, who writes a weekly health column, hit an important gong with her wonderful attention-getting article titled “Doctors Hear Patients’ Calls for New Approaches to Hypothyroidism.”

“Doctors and patients have been at each other’s throats for decades over how to treat a little gland in the neck–and patients may be gaining ground.” ~Melinda Beck

Beck underscored the sad reality that doctors have been relying “on a single form of treatment for hypothyroidism”, aka T4-only like Levothyroxine or Synthroid. And it’s been travesty.

Why T4-only as a sole treatment is a scandal

As I explained in detail in the revised Stop the Thyroid Madness (STTM) book, a healthy thyroid produces five hormones: T4, T3, T2, T1 and calcitonin, with T4 being the storage hormone, and T3 being the powerhouse of all the thyroid hormones. In that healthy thyroid, T4 will convert to T3, but the gland also produces “direct” T3. That is an important distinction.

Yet this “single form of treatment” with simply a storage hormone, which was thrust upon thyroid patients by 1960 (see Chapter 1 in the revised STTM book for excellent historical details), has forced us all to live for conversion alone…and hundreds of millions of us over the past five decades have a paid a hefty price. There are simply too many reasons why the conversion of T4 to T3 can be impaired, ranging from genetic factors, to diet, to stress, to illness, to age.

That is exactly what compelled me, in 2002, to start what is now the largest active thyroid group still on Yahoo, and later, the largest “system of thyroid groups” on Facebook, called the FTPO (For Thyroid Patients Only) groups–the only system of patient groups endorsed by Stop the Thyroid Madness.

How patients are dismissed

In addition to quoting a few doctors, Beck interviewed thyroid patient/advocate Mary Shomon, who stated “It’s so much easier to tell a woman to get up off the couch or hand her a prescription for antidepressants.” Also interviewed was thyroid patient/advocate Dana Trentini, who feels her second pregnancy ended in miscarriage due to only being dosed by the TSH, which in her case was left high–another hefty problem in the treatment of thyroid patients.

Major kudos to Antonio Bianco, president of the American Thyroid Association

When the American Thyroid Association (ATA) has been the height of disappointment for informed thyroid patients with it’s strong emphasis on “synthetic thyroxine” as well as its poor details about NDT, it was extremely refreshing to see him quoted as stating: “I credit this to patients pushing doctors and saying, ‘You don’t know what you’re talking about. I don’t feel fine’.” followed by Beck’s words that Bianco ‘has refocused the research to search for answers for such patients’. You give us a light of hope, Dr. Bianco.

Seven areas that patients beseech their practitioners to be wiser about…

1. Levothyroxine, Synthroid and all other T4-only medications

They have failed far too many of us. It’s not about exercising more, eating less, seeing a therapist or putting us on a myriad of other medications to treat conditions which are actually the results of that failure. Learn from us.

2. Natural Desiccated Thyroid (NDT)

What has been vividly changing lives is Natural Desiccated Thyroid (NDT), not T4-only medications. NDT has been around since the 1890’s–it worked then and it works now. Learn from us.

And to the contrary, NDT’s T4 to T3 ratio of 80/20 (as compared to the human ratio of 93/7) has not been a problem for the vast majority. Instead, problems are usually “revealed” on NDT due to a cortisol issue and/or low iron–both common problems that arise with patients who have been put on T4-only, or who have been left undiagnosed.

3. The TSH lab test

The TSH lab test is and has been as much a failure for thyroid patients as has T4-only. To be held hostage to a “pituitary hormone” has been a complete **nightmare** for thyroid patients. Even one of your own esteemed colleagues, Jeffrey Dach MD, as well as many others, know the travesty of the TSH as explained in chapter 4 of the practitioner-written book Stop the Thyroid Madness II. Learn from us.

4. Lab tests that count, and how to read them

It’s the free T3 and free T4 lab tests which have been superior for either diagnosis or dosing, not the TSH. And a key observation noted by informed thyroid patients is “where” a result falls in the so-called “normal” range that has meaning. Many key lab tests have helped us in our journey towards feeling wonderful again. Learn from us.

5. Symptoms that go along with hypothyroidism

To the contrary, there are clear symptoms that go along with the right lab tests to reveal hypothyroidism. Depression is overtly common in an undiagnosed or poorly treated hypothyroid state, as is afternoon fatigue, poor stamina, dry skin, hair loss, rising cholesterol, rising blood pressure, painful joints, and/or others. How do we know as informed patients? Because they go away when optimally treated on Natural Desiccated Thyroid. Learn from us.

6. T3 added to T4

Adding T3 to T4 has proven to also be far superior to T4-only, and to the contrary, it has NOT been “difficult to sustain therapeutic levels” if practitioners will simply learn from their patients how to use T3-only with T4. The same goes for the even more superior Natural Desiccated Thyroid. Learn from us.

7. Listening to your patients instead of dismissing them

Finally and most importantly, though we appreciate the intense medical training that all our doctors have received, it’s time to consider that we, as informed patients, might have something valuable for our doctors or practitioners to consider and open their minds to. It’s not just about clinical trials. It’s time to RESPECT AND LISTEN TO YOUR PATIENTS, THEIR EXPERIENCES, CLINICAL PRESENTATION, AND THEIR OWN INNATE WISDOM. Learn from us.

ANNOUNCING: A new powerful YouTube video in honor of thyroid patients worldwide: https://www.youtube.com/watch?v=2n0NfAUyOKo Please share this video to your blogs, private Facebook pages, groups, Twitter, email. Join the PUSH!

JanieSignature SEIZE THE WISDOM

 

 

 

 

 

 

 

 

– Head on over the Stop the Thyroid Madness Facebook page and Like it for daily inspiration and information!

10 Rockin’ Thyroid Patient New Year Resolutions just for you!

10 RESOLUTIONSHIP HIP!! As we head into a New Year, here are 10 resolutions to potentially help you feel better and stay better as a thyroid patient…and informed patients everywhere will back you all the way, thyroid friends!!

check mark in square1. I WILL GIVE UP THE PATIENT PASSIVITY AND BECOME EDUCATED AND PROACTIVE!

It’s on purpose that this is the first resolution! Why? Informed thyroid patients achieve better results plus become more confident and proactive in their doctor’s office. Both the latter are IMPORTANT to getting well and staying well, say informed patients. Let the wisdom of thyroid patients in the Stop the Thyroid Madness books and the patient-to-patient website information be your key towards finding your better thyroid treatment spot. (The STTM II book is even written by medical practitioners!)

check mark in square2. I WILL EXERCISE MY RIGHT TO FIRE MY DOCTOR AND FIND A MUCH BETTER ONE IF I CAN.

If attempting to educate our doctor doesn’t work, there’s the option to find a better one. In the United States, thyroid patients do have choice, and they can exercise it. They work to find a better informed or more open-minded doctor. In the UK, patients choose a clinic…and believe it or not, they do have the right to choose a specialist, but they need to fight for their rights to find a good replacement doctor. Says an informed UK patient: if you hear of good Endo, ask for a referral and ensure you contact them to say you only want to see that Endocrinologist. No one else. In Canada like elsewhere, patients can do the work to find a better doctor, but may have to call to make sure someone is taking new patients. Every province has different rules.

It’s not always easy depending on where you live, but it’s possible!

check mark in square3. I WILL RETHINK THE SYNTHROID/LEVOTHYROXINE BALONEY.

A healthy thyroid makes five hormones, not just one. T4 is a storage hormone meant to convert to the active T3 hormone. It’s T3 which does the trick in removing hypothyroid symptoms. But a healthy thyroid also gives you direct T3 and doesn’t force you to only get it from conversion. There are plenty of reasons why you won’t get enough T3 from conversion, sooner or later, even if at first, some do feel better. That’s why patients all over the world are switching to natural desiccated thyroid (NDT), or adding synthetic T3 to their synthetic T4 and raising the T3 or NDT to find their optimal dose.

check mark in square4. I WILL KEEP TRACK OF MY IRON LEVELS

Informed patients, whether female or male, found out the hard way in groups associated with STTM that their iron levels are important. If iron gets too low, we’ve noticed we might have hyper-like symptoms with NDT or T3 on top of feeling poorly from low iron. Or we just might feel pretty darn awful from inadequate levels of iron. And we know that there are important iron labs we pay attention to, as well as learning where our iron should fall.

check mark in square5. I WILL PAY ATTENTION TO MY GUT HEALTH AS WELL AS WHAT I CONSUME.

The “gut” refers to the journey and bodily activity from what goes into your mouth all the way down to where what’s left comes out. And for those with Hashimoto’s, the majority do better by avoiding gluten. It helps decrease antibodies for many, and lowers the problem of inflammation caused by the gluten. Removing gluten has also improved nutrient levels. Some need additional help with LDN, or selenium, or iodine–it’s individual as to what will work best for any one patient.

Our intestinal bacteria is also important and believe it or not, can have a major role in a strong immune system and even our brain health, besides good thyroid function. Informed thyroid patients nourish their microbiome with fermented food like sauerkraut or kombucha, or consuming yogurt, or taking a broad-spectrum probiotic supplement–all for the good bacteria. Prebiotics are dietary fibers which will help feed the good bacteria, and include foods like asparagus, onions, garlic, dandelion greens, raw chicory root, and even bananas or beans and more. You can do a search for prebiotic supplements, too.

check mark in square6. I WILL PROTECT MY ADRENAL HEALTH.

Our adrenals are the knights that protect us and keep us going. So patients have learned to support and protect them. One important way is to avoid or lower stress the best way we can: resting, meditation, pleasure reading, music, artistic pursuits, laughing, yoga…you name it and it’s individual. When under stress, thyroid patients often use adrenal-supportive herbs, such as Ashwagandha, Rhodiola or more. If there is suspicion of a problem with our cortisol levels, informed patient do saliva testing, not blood, since they found it fit their symptoms better, besides revealed the cellular, useable levels of cortisol.

check mark in square7. I WON’T BE FOOLED BY “NORMAL” RANGES ON MY LAB WORK.

This is a huge area that thyroid patients learned about in the early patient groups and into the present. Namely, we saw that many of us fell in the so-called “normal range” result, yet clear symptoms of the particular problem. The TSH lab rest was one, but there are many other labs and their so-called normal ranges that we won’t be fooled by anymore.

check mark in square8. I WILL LEARN FROM THE MISTAKES OF OTHERS BEFORE ME!

Yes, along the way, thyroid patients and/or their doctors have made a lot of mistakes, and we can learn from them! This page outlines many of those mistakes and what was done about them.

check mark in square9. I WILL PAY ATTENTION TO MY DUCKS–quack quack.

Yes, there are first priority issues to find through testing and working with informed doctors that we need to take care of, which ranges from better thyroid medications to treating cortisol or iron issues correctly to keeping our nutrients at healthy levels. But some have to explore other issues with their doctor to find their sweet spot, ranging from h-pylori to lyme to reactivated EBV to high heavy metals and more. It’s individual and it’s all about our ducks in a row.

check mark in square10. I WILL HAVE HOPE!

There is very good reason to have hope: there are thyroid patients all over the world who have gotten better. Janie Bowthorpe, the creator of the informational Stop the Thyroid Madness website and books, went from having to apply for Social Security Disability to regaining her life again. Hang in there! Learn from worldwide patient experiences and wisdom on STTM and find a good doctor to help!

All the above are just summaries and if more detail is needed, click on the links. For information not linked, there is plenty on the internet. 🙂

JanieSignature SEIZE THE WISDOM

 

 

 

 

 

 

– Have active Graves disease and you aren’t hypothyroid yet? Go here.

– Check out all the STTM articles on Thyroid cancer here.

– Come on over and “Like” the STTM FACEBOOK PAGE for daily inspiration and information.

– Here are patient groups for support and information: https://stopthethyroidmadness.com/talk-to-others

10 ways you can live a better life as a Thyroid Patient

STTM 10 things(This post originally appeared in 2012, but has been updated for July 2015 with more information! It’s just a poignant today as it was then. Enjoy!)

In a post I did May 21st, 2012, I showed you two examples of very poignant emails I get weekly. And the second one revealed how hard it can be when you not only have very little money, plus an uninformed doctor who ends up keeping you sick.

Yesterday, I received another email from a thyroid patient which simply blew me away, directed to the gal above. But it turns out her words are very appropriate for all of us. Read it carefully and enjoy.

Dear friend,

I am also hypothyroid. I am on Armour Thyroid, but if I couldn’t get it, I would still take the following supplements to try and give my thyroid gland the support and boost that it needs in order to make its own hormones. Please consider starting on one or more of these and see how you feel. I’m listing the most important ones first.

1. Sunlight! We all need sunlight every day. Our bodies make vitamin D3 in the skin following exposure to sunlight. People who are overweight are usually low in vitamin D3. D3 helps the thyroid. D3 from sunlight is the best kind; D3 supplements are not as good. Don’t believe the medical profession when they try to scare you off from getting sunlight, and don’t use harmful chemical sunscreens; just cover up with longer clothing after you have had your desired sun exposure. Vitamin D3 actually has a protective effect against most cancers. Best of all, it’s free.

2. Iodine — it is part of the raw material for thyroid hormone. Buy a cheap bottle of simple iodine tincture and paint a drop on your skin each day with a cotton-tipped swab. It helps in so many ways. Not only does iodine supply the thyroid gland with raw material for hormone, but it is the body’s own natural antibiotic. The neutrophils (specialized white blood cells) each contain a speck of iodine to help fight off microbes. And the eyes and ears work better if iodine is sufficient in the body. The ciliary body of the eye has a rich concentration of iodine. And the little cochlea of the inner ear contains fluids — perilymph and endolymph — which contain iodine as well.

3. Selenium — a co-nutrient with iodine. Iodine should always be taken with selenium. I get my selenium in the form of pumpkin seeds, 2 tablespoons each day.

4. Magnesium — I make my own magnesium oil and apply it to my skin daily. Janie will tell you how wonderful magnesium oil is — it helps to burn calories by supplying the “flame” for metabolism. And it’s very anti-inflammatory, with no side effects. My recipe is as follows: Stir a cup of magnesium chloride flakes and a cup of pure water together in a bowl for 5 minutes until dissolved, then pour into a clean plastic spray bottle (like what you might use for ironing). The Zechstein Sea magnesium chloride flakes are the purest; they are from a mine underneath the Netherlands, an ancient sea of 250 million years ago. A 1-kilo bag of Zechstein magnesium chloride flakes should last you more than a year. (From Janie: you can also use a good quality magnesium supplement, which I switched to sometime after 2012!)

5. Green leafy vegetables, a dietary source of magnesium — these are helpful in so many ways and are great either raw or cooked. If you cook them, top them with a little salt, a squeeze of lemon juice and a splash of olive oil.

6. Vitamin C — helps the liver to convert T4 to the active T3 hormone. I always have more energy when I remember to take 500 mg of vitamin C twice daily.

7. Coconut oil — really! It supports the thyroid and helps with weight loss. Try to get raw or unprocessed coconut oil, but in a pinch any coconut oil is helpful. Take 1-3 tablespoons per day. Stir it into yogurt and chill it if you don’t like to swallow oil.

8. Avoid refined carbohydrates like the plague, please! They are not food at all. It is impossible to lose weight if one is eating refined cereal, bread, pasta, pizza and sweets. These trigger the body to produce more insulin; the insulin then triggers the cells to store the calories as fat. This is from the book by Gary Taubes, Good Calories, Bad Calories.

9. Avoid using harmful chemicals to clean your house; use vinegar and baking soda for most cleaning jobs. Bleach, ammonia and other chemicals are extremely harmful to your thyroid gland; chlorine displaces iodine in the body.

10. Simplify your personal care supplies to further reduce your toxic exposures (this saves money too). Throw away the fluoridated toothplaste, and brush with baking soda. Hydrogen peroxide 3% makes a good dental rinse. Baking soda dusted under the arms is an excellent and nontoxic deodorant. If your skin is sensitive, mix equal amounts of baking soda and cornstarch and use that as deodorant. Use a soap with a very simple formula and no chemicals. Try to find a shampoo without SLS or parabens (carcinogens). To save even more money, stop using shampoo and wash your hair with a baking soda solution and rinse with a mild vinegar solution. Many people say their hair is lovely with this treatment; google “no poo” to learn more. If you have dry skin, massage in a drop of coconut oil. Don’t use commercial creams or lotions; don’t put anything on your skin that you wouldn’t eat.

I wish you all possible success with your health. Even if you haven’t much money, there are things you can do to feel better. Please let Janie know how you are doing in a few months’ time, so she can let us know! Your sisters and brothers in the STTM community will welcome your news.

All the best, and don’t lose hope. Better days are ahead. Lots of hugs,

Yvonne in Cyprus

Yvonne is an 57-year-old American whose background is in medical transcription, writing and editing. She is constantly reading in the medical journals and websites, looking for natural and inexpensive ways to improve health. She and her husband eat a Mediterranean diet (organic when possible) with good fats from olive and coconut oils, nuts and cheeses. She thinks every family should have some type of garden, even if it’s just a few herbs in a flowerpot.

Have any other recommendations for someone who is financially poor with thyroid disease (or not–this can apply to anyone), plus has a doctor who isn’t helping? Let others know!

P.S. from Janie: I already do many of the above. Do you? I’m big into Vit. C, magnesium and selenium. I also use liquid Vitamin D. I use baking soda for deodorant and non-fluoride toothpaste. I only use organic lotions and soaps. I outright use one tablespoon vinegar in my morning drink, as well as MCT oil (it’s what’s in coconut oil). Or I use lemon juice in most of my water daily! Great for alkalinizing the body. I don’t avoid refined carbs totally, but I do avoid them in many places. I love the sun. Plus exercise when I’m able. And lately, I’ve learned the hard how important it is to avoid chronic stress, or treat myself more gently when I have to go through it!

A 11th recommendation from Janie:

I think it’s also important to add that in addition to all the wonderful ways you can live a healthier life as a thyroid patient, also consider adding T3 (Cytomel, cynomel, etc) to your T4 (aka Synthyroid, levothyroxine, eltroxin, etc), or look into natural desiccated thyroid with its five thyroid hormones, which is usually even cheaper. Updating your thyroid treatment is not based on opinion! It’s based on the experiences and wisdom of patients worldwide who found they got much better results! 🙂

Namaste Janie

 

**Join the STTM Facebook page for daily tips and inspiration: https://www.facebook.com/StoptheThyroidMadness

** Check out both STTM books here: www.laughinggrapepublishing.com

Thyroid Patient Experiences vs Medical Research: do they jive or not?

Lightning2There was a long time in my life – more than 20 years in fact – that I suffered immensely, in spite of managing to live my life. I paid hefty prices….and suffered constantly. You can read my story on STTM, and read even more details in the Introduction of the revised Stop the Thyroid Madness book.

Ultimately, science-based, mainstream medicine failed me…and others.

During those 20 years, and more so during the final ten years, I went from doctor to doctor. Thank the good Lord for insurance!! I visited premier medical centers and was subjected to numerous tests and medical procedures. One in particular resulted in a scar on my left bicep that I still carry today – an attempt to see if my extreme fatigue and weakness had an answer in a muscle biopsy.

But I got NO answers, and no relief. There was no pharmacological drug, nor any physical intervention, or a lab result analysis, or any medical diagnosis that changed my misery. I was left to deteriorate on my own. And that pushed me to apply for Social Security Disability. It was only through my own drive in discovering a better treatment I finally got well.

And turns out my experience, both the negative and positive, has similarities with millions of others, to their own degree and kind, as we discovered in patient groups all over the internet.

Reported patient experiences became the gold, NOT medical science

When I started the Natural Thyroid Hormones (NTH) group on Yahoo in 2002, oh did we learn!! (See STTM’s Talk to Others page). It was NOT science that helped us get better. It was learning from each other!! And all of that reported patient experience and wisdom birthed the STTM website, the STTM book, and many more groups. Because we were now getting WELL thanks to all those reported experiences. And others still are getting well–NOT because of “medical science”, but because we have been listening to each other’s experiences and wisdom!

Does “science” support the success we have achieved?

At first, there was little science to support what we knew to be true by our combined and growing experiences in getting well. And we didn’t care. We were FINALLY getting well!

And as we’ve been getting well, we simply roll our eyes when we occasionally run into a “science snob” who looks down his or her intellectual stuffy nose with ignorant criticism like “It’s nothing more than “anecdotal BS”!! i.e. you can’t POSSIBLY know what you are talking about if there’s no rigorous scientific analysis, debate, or documentation.

**crickets chirping**

But it turns out there ARE medical scientific studies which support some of what we already know by our experiences. Many readers of Stop the Thyroid Madness may not have discovered this yet, but STTM has a page which lists medical studies which support what we already know. So take a peek.

On the other side of the coin, how science can be completely flawed

One 1993 scientific study titled Levothyroxine Therapy in Patients with Thyroid Disease” is one of MANY studies that informed patients came to realize was faulty. The concluding paragraph stated:

With proper patient monitoring, levothyroxine replacement therapy should be effective, inexpensive, and free of complications. Recommendations for thyroid-stimulating hormone suppression with levothyroxine are based on riskbenefit considerations of the biologic characteristics of the thyroid disorder and the individual patient.

Effective? Free of complications? It didn’t take long for a growing body of thyroid patients, who were comparing notes with each other (besides looking back at the experiences of their relatives) to see that this was FAR from the truth for many of us, to our own degree and kind. I started compiling plenty of non-effective results plus complications of being on T4-only medications from the mouths of patients worldwide over the years.

And the longer we’ve been talking to each other, we also discovered that even when some T4-treated patients report good results on these meds at first…or for several years…they were coming into groups to honestly report seeing more and more symptoms of a poor treatment crop up the longer they stayed on their Synthroid or any other T4-only treatment. It’s not a pretty picture overall.

(And by the way, natural desiccated thyroid is CHEAPER.)

Medical school training is just as much the problem as is flawed science

The Carnegie Foundation did a study about medical schools, and in a particular paragraph, concluded (italics mine):

Medical training is inflexible, excessively long and not learner centered. They found that clinical education is overly focused on inpatient clinical experience, supervised by clinical faculty who have less and less time to teach and who have ceded much of their teaching responsibilities to residents, and situated in hospitals with marginal capacity to support their teaching mission. They observed poor connections between formal knowledge and experiential learning and inadequate attention to patient populations, systems of health care delivery, and effectiveness. Learners have inadequate opportunities to work with patients over time and to observe the course of illness and recovery; students and residents often poorly understand non-clinical physician roles. The team observed that medical education does not adequately make use of the learning sciences. Finally, time and again the researchers saw that the pace and commercial nature of health care impede the inculcation of fundamental values of the profession.

And sadly, patients will report problems with their doctors long after they attended medical school. Common descriptions include unteachable, clueless, rigid, narrow-minded, arrogant, and/or blind to the “clinical presentation” of their patients clear symptoms of continued hypothyroidism (for example, depression, anxiety, high cholesterol or other fatty acids, rising blood pressure, aches and pain, and so much more!) These same doctors will then bandaid these symptoms with anti-depressants, statins, pain meds, blood pressure meds and more.

But to be clear: patient reports don’t equal that they feel their doctors are purposely trying to do harm! Instead, thyroid patients clarify that even their most well-liked doctors just aren’t listening, or aren’t willing to learn from patient experiences, or feel threatened if a patient wants to guide part of his or her own care, or are condescending, as if a patient couldn’t possibly have a brain of their own about what they need. So patients leave…and search for a doctor much more willing to listen to patient experiences and wisdom.

Bottom line: some of reported patient experiences and science jive to some degree. For the rest, medical research studies need to catch up with the truth of our successful experiences, or continue to look stupid.

*******

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Read these 10 things you can do to live a better life as a thyroid patient!

STTM 10 things

(This post was updated in 2015! Enjoy!)

In my most recent post of May 21st, 2012, I showed you two examples of very poignant emails I get weekly. And the second one revealed how hard it can be when you not only have very little money, but an uninformed doctor who ends up keeping you sick.

Yesterday, I received another email from a thyroid patient which simply blew me away, directed to the gal above. But it turns out her words are very appropriate for all of us. Read it carefully and enjoy.

Dear friend,

I am also hypothyroid. I am on Armour Thyroid, but if I couldn’t get it, I would still take the following supplements to try and give my thyroid gland the support and boost that it needs in order to make its own hormones. Please consider starting on one or more of these and see how you feel. I’m listing the most important ones first.

1. Sunlight! We all need sunlight every day. Our bodies make vitamin D3 in the skin following exposure to sunlight. People who are overweight are usually low in vitamin D3. D3 helps the thyroid. D3 from sunlight is the best kind; D3 supplements are not as good. Don’t believe the medical profession when they try to scare you off from getting sunlight, and don’t use harmful chemical sunscreens; just cover up with longer clothing after you have had your desired sun exposure. Vitamin D3 actually has a protective effect against most cancers. Best of all, it’s free.

2. Iodine — it is part of the raw material for thyroid hormone. Buy a cheap bottle of simple iodine tincture and paint a drop on your skin each day with a cotton-tipped swab. It helps in so many ways. Not only does iodine supply the thyroid gland with raw material for hormone, but it is the body’s own natural antibiotic. The neutrophils (specialized white blood cells) each contain a speck of iodine to help fight off microbes. And the eyes and ears work better if iodine is sufficient in the body. The ciliary body of the eye has a rich concentration of iodine. And the little cochlea of the inner ear contains fluids — perilymph and endolymph — which contain iodine as well.

3. Selenium — a co-nutrient with iodine. Iodine should always be taken with selenium. I get my selenium in the form of pumpkin seeds, 2 tablespoons each day.

4. Magnesium — I make my own magnesium oil and apply it to my skin daily. Janie will tell you how wonderful magnesium oil is — it helps to burn calories by supplying the “flame” for metabolism. And it’s very anti-inflammatory, with no side effects. My recipe is as follows: Stir a cup of magnesium chloride flakes and a cup of pure water together in a bowl for 5 minutes until dissolved, then pour into a clean plastic spray bottle (like what you might use for ironing). The Zechstein Sea magnesium chloride flakes are the purest; they are from a mine underneath the Netherlands, an ancient sea of 250 million years ago. A 1-kilo bag of Zechstein magnesium chloride flakes should last you more than a year. (From Janie: you can also use a good quality magnesium supplement, which I switched to after this date!)

5. Green leafy vegetables, a dietary source of magnesium — these are helpful in so many ways and are great either raw or cooked. If you cook them, top them with a little salt, a squeeze of lemon juice and a splash of olive oil.

6. Vitamin C — helps the liver to convert T4 to the active T3 hormone. I always have more energy when I remember to take 500 mg of vitamin C twice daily.

7. Coconut oil — really! It supports the thyroid and helps with weight loss. Try to get raw or unprocessed coconut oil, but in a pinch any coconut oil is helpful. Take 1-3 tablespoons per day. Stir it into yogurt and chill it if you don’t like to swallow oil.

8. Avoid refined carbohydrates like the plague, please! They are not food at all. It is impossible to lose weight if one is eating refined cereal, bread, pasta, pizza and sweets. These trigger the body to produce more insulin; the insulin then triggers the cells to store the calories as fat. This is from the book by Gary Taubes, Good Calories, Bad Calories.

9. Avoid using harmful chemicals to clean your house; use vinegar and baking soda for most cleaning jobs. Bleach, ammonia and other chemicals are extremely harmful to your thyroid gland; chlorine displaces iodine in the body.

10. Simplify your personal care supplies to further reduce your toxic exposures (this saves money too). Throw away the fluoridated toothplaste, and brush with baking soda. Hydrogen peroxide 3% makes a good dental rinse. Baking soda dusted under the arms is an excellent and nontoxic deodorant. If your skin is sensitive, mix equal amounts of baking soda and cornstarch and use that as deodorant. Use a soap with a very simple formula and no chemicals. Try to find a shampoo without SLS or parabens (carcinogens). To save even more money, stop using shampoo and wash your hair with a baking soda solution and rinse with a mild vinegar solution. Many people say their hair is lovely with this treatment; google “no poo” to learn more. If you have dry skin, massage in a drop of coconut oil. Don’t use commercial creams or lotions; don’t put anything on your skin that you wouldn’t eat.

I wish you all possible success with your health. Even if you haven’t much money, there are things you can do to feel better. Please let Janie know how you are doing in a few months’ time, so she can let us know! Your sisters and brothers in the STTM community will welcome your news.

All the best, and don’t lose hope. Better days are ahead. Lots of hugs,

Yvonne in Cyprus

Yvonne is an 57-year-old American whose background is in medical transcription, writing and editing. She is constantly reading in the medical journals and websites, looking for natural and inexpensive ways to improve health. She and her husband eat a Mediterranean diet (organic when possible) with good fats from olive and coconut oils, nuts and cheeses. She thinks every family should have some type of garden, even if it’s just a few herbs in a flowerpot.

Have any other recommendations for someone who is poor with thyroid disease, plus has a doctor who isn’t helping? Let others know!

P.S. from Janie: I already do many of the above. Do you? I’m big into Vit. C, magnesium and selenium. I also use liquid Vitamin D. I use baking soda for deodorant and non-fluoride toothpaste. I only use organic lotions and soaps. I outright use one tablespoon vinegar in my morning drink, as well as MCT oil (it’s what’s in coconut oil). I don’t avoid refined carbs totally (I’m too much of a chocolate freak), but I do avoid them in many places. And I love the sun.

Additional recommendation from Janie:

I think it’s also important to add that in addition to all the ways you can live a healthier life, also consider adding T3 to your T4, or look into natural desiccated thyroid with it’s five thyroid hormones. The latter is even cheaper than T4-only. Updating your thyroid treatment is not based on opinion! It’s based on the experiences of patients worldwide who found they got much better results, and which Stop the Thyroid Madness is about–worldwide experiences and wisdom!

Namaste Janie

* Check out 12 issues that can cause issues with conversion of T4 to T3: https://stopthethyroidmadness.com/2015/01/20/12-ways-make-thyroid-treatment-worse/

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