adrenal fatigue Archives - Stop The Thyroid Madness

Feel better on T4 than you did on Natural Desiccated Thyroid?

Occasionally, hypothyroid patients will exclaim with conviction and truth that they outright feel better on Synthroid or Levothyroxine (T4-only meds) than they did when they tried Natural Desiccated Thyroid (NDT) or even T3-only. And we believe them.

But…there is an explainable reason which does not mean T4-only is better for you. It really isn’t. Bear with me and read on…

Years ago, as many of us were starting on NDT after being on T4, we were seeing our lives change in a huge way, far more than T4 did! It was like a miracle! Those five hormones really made a difference.

But some others were having problems when raising something so miraculous for others. Huh?? We didn’t get that.

It took awhile longer to finally see why and to answer the “huh?” i.e. we began to see that there were three strong and correctible reasons why someone was not seeing the miracle of NDT as others were, and instead, were blaming the NDT (or T3) and moving back to T4-only…

The three main and correctible reasons why NDT, which gives all five thyroid hormones, seems to fail…

1) NOT BEING “OPTIMAL” WITH YOUR NDT DOSE (it’s NOT about just being in range and not about being held hostage to the TSH)

We all have had a tendency to believe that our doctors know what they are doing with NDT or T3. But, the majority do not. They tend to leave you on too-low doses, and/or pay attention to the lousy TSH. Thus, due to the natural suppression of the feedback loop (hypothalamus to pituitary to thyroid), you will get worse on those lower doses, sooner or later. i.e. you will get more hypo, and/or have rising adrenaline, cortisol, anxiety or other. And because of that, some exclaim “NDT didn’t work for me!” and they rush back to T4-only. But NDT, with all five thyroid hormones, could have worked well IF you had known to be more optimal. Optimal puts the free T3 towards the top of the range and the free T4 mid-range, and puts the TSH below range…all three…and removes all symptoms. What amount does that is very individual—some start to achieve that in mid-2 grains, others are in the 3-5 grain area, others may be higher.

What if you tried to raise to be optimal, but had worsening problems? Read #2 and #3 below.

2) NOT BEING OPTIMAL WITH YOUR IRON LEVELS (it’s not about just being in range)

When this is brought up to patients who once tried NDT and failed, they will exclaim with all sincerity “But my iron levels were great”. We know that a very small percentage may have had good iron. But what is common with the majority is they did NOT have good levels “Falling in the normal range” does not equal a good level of iron. It’s WHERE one falls that tells the story.

For example, with two types of ranges for serum iron (NOT ferritin):

a) When the range is approx. 40?155: women who have optimal serum iron tend to be close to 110, or 109, or 108, etc. They are NOT in the 90’s and definitely not lower when optimal. Men tend to be in the upper 130’s.
b) When the range is approx. 7-27: women are optimal around 23ish; men are towards the top.

If they are lower than the latter examples, it messes up the ability to raise NDT and feel great without issue. Why? Inadequate iron levels tend to raise the reverse T3 (RT3) as one is raising their NDT. As the RT3 goes up due to inadequate iron, you will feel worse. And because of that, some exclaim “NDT didn’t work for me!” and they rush back to T4-only…but if they had had optimal iron, NDT WOULD have worked…as long as they also had optimal cortisol (See #3 below) and were working to find their optimal dose of NDT (see #1)

See more details about iron here: https://stopthethyroidmadness.com/ferritin

3) NOT BEING OPTIMAL WITH YOUR CORTISOL LEVELS (it’s not about just being in range, and it’s NOT about blood cortisol)

We noted years ago that at least 50% of those with hypothyroidism had a cortisol issue as revealed by saliva, not blood. What does a cortisol issue mean? Either their cortisol was too high (due to the stress of being undiagnosed, poorly treated, or being on T4) or was too low (due to the stress of being undiagnosed, poorly treated, or being on T4), or had both high and low (due to the stress of being undiagnosed, poorly treated, or being on T4).

And what happens with a cortisol issue when you are trying to work with NDT? Either RT3 will go too high (the inactive hormone), or one’s T3 will pool in the blood and not make it to the cells, or both…and you won’t feel well or have bad reactions like excess adrenaline, anxiety, shakiness, feel-bads.

And because of having a cortisol issue, some exclaim “NDT didn’t work for me!” and they rush back to T4-only…but if they had…

a) done the 4-point saliva test, not blood
b) compared the saliva results it to the lab-values page (it’s not about that normal range)
c) CORRECTLY treated it (see this page, plus Chapter 6 in the updated revision STTM book if saliva is VERY low, which also applies to Adrenal Cortex),

….they would have soared on NDT…along with good iron and being OPTIMAL on NDT (or T3)

Note: it’s always about the results of a saliva test, NOT blood cortisol.

Bottom line, it’s not as simple as “feeling better on T4”. It’s more about that you are NOT experiencing the side effects that you did on NDT from any of the above three problems, which were all correctible. That is different.

“That all sounds like too much trouble–I’m staying on T4-only!”, you may be exclaiming….

There is a big problem with that reasoning that I hope you will be open to….Namely, T4-only outright…

CAUSES low iron
CAUSES a cortisol problem
CAUSES many other issues like lowered B12, lowered Vitamin D, rising blood pressure, rising cholesterol, depression, anxiety, heart issues, bone thinning, chronic pain….and more. The individuality is in who gets which…but T4 users do get problems of their own kind, sooner or later.

Please note that the above is not an empty strong opinion. It’s based on years of reported patient experiences from many who were on T4! i.e. most of the following hypothyroid symptoms were experienced by T4 users!! They were still hypo!

Now you may state “But I know people on T4 who do not have those problems!”.

First, some outright DO have some of those problems, but don’t realize it or they deny it (while others see it in them). Adrenal issues, even those denied, can make certain people awash with defensiveness, argumentativeness, denial, anger, paranoia towards others observations, low patience, moodiness, etc.

Yes, some on T4 do, in fact, do better than others. But you know what we have observed? The longer they stay on T4-only, the more problems WILL, in fact, raise their ugly heads eventually…like either adrenal issues, or low iron, or low B12, or depression, or rising cholesterol, or rising blood pressure, or heart problems, or dry skin and hair, or chronic pain, or bone loss, or rising illnesses…..on and on. Forcing the body to live for conversion alone backfires….sooner or later.

Summary: A working Natural Desiccated Thyroid, or adding T3 to that T4 as a second choice and getting those frees optimal, is a much better way to go than being on nothing but T4, according to years of worldwide patient experiences

A working NDT gives you all five thyroid hormones, and does NOT force you to live for conversion of T4 to T3 alone, i.e. some of NDT is direct T3. Additionally with T4-only, some people have genetic mutations which hinder the conversion of T4 to T3 and may not realize it.

There is a good reason that millions of patients found out that T4-only is not the way to go for many reasons, and NDT is the way to go if you correct the reasons you did NOT to do well...or even adding T3 to your T4 in an OPTIMAL amount. But you will still need optimal iron and cortisol!

P.S. The above three reasons are the most common for not doing well on NDT (or T3) and should be considered first. A 4th less common reason: chronic inflammation of any cause. Read about inflammation. If this is true for you, the sad part is that T4-only will also backfire, as it raises RT3.

Mold exposure can also effect conversion.

Click on the graphic to order an excellent saliva cortisol test.

January 3rd 2018 102 replies

Janie: The High Copper Detox Queen

Even though this Stop the Thyroid Madness blog, website and the books pertain to thyroid patients and their issues, it’s been observed that many thyroid patients have also found themselves with high copper, whether from low zinc due to illness, the MTHFR or other methyl mutations, chronic high stress, mold exposure (which can tank zinc), high estrogen, the use of a copper IUD, or other causes.

I am one who found myself with high copper.

*****************

My story

Looking back, I’m fairly certain my high copper was manifesting itself in Fall of 2014 by suddenly developing very weird iron labs. My serum iron plummeted from 103 down to 55 in just one week of high physical activity. Huh?? I’d get it back up, then down it would fall.

Turns out that high heavy metals can mess with your iron levels—others might see low ferritin with high iron. I also started to notice movement headaches in the Fall of 2014, and I’m not a headache person, so that was new. In October of 2014, I did hair testing and though copper was midrange, It should not have even been mid-range, but I didn’t understand the significance.

In early 2015, I was seeing my hair come out in clumps, yet I had gotten my iron back up once again. Finally in March of 2015, I was noticing I had ruminating negative thoughts--not at all like me!! What the heck was this about??

How my labs revealed a copper problem

First, the clue that a problem was brewing was shown in October 2014, but I didn’t understand the significance. i.e. it was the metals hair testing, called an HTMA, showing Copper was going up at 23 (11-37). This is the one I ordered and did: https://www.directlabs.com/sttm/OrderTests.aspx

By April of 2015, my symptoms were so horrible in my BRAIN that I did serum testing of copper and zinc. And there it was: high copper, relatively low serum zinc—they have a see-saw relationship! Another important test is hair testing, also since not everyone is lucky with blood testing as I was. Finally, a good indication is high calcium, which I had and is called the calcium shell, but didn’t know the connection to high copper!

Additionally, a Calcium result was SUPER high 1840 (300-1200) which correlates to rising copper. It’s called a Calcium Shell, meaning a high tissue level that that forms to protect against stress. That should have screamed at me, but I wasn’t informed.

Here are my lab results in April 2015.

Copper, Serum: 1.36 mcg/mL (.75 — 1.45) HIGH
Zinc, Serum: .81 mcg/mL (.66 — 1.10) LOW (And if only I had done the RBC zinc!!)
Ratio: 1.68 (should be .7 — 1.0) TOO HIGH
Ceruloplasmin: 40.5 mg/dL (16 — 45) (this is the protein that binds and carries copper around)

Bound Cu: 121.5, Unbound Cu: 14.5 (optimal unbound Cu: 5-15)
% Unbound Cu: 10.7% (optimal 5-15%)

*** Note that I did serum copper and zinc—some will say it needs to be plasma, but serum confirmed it anyway as did my symptoms. Others recommend Copper RBC and Zinc RBC, and I would now do the RBC zinc, not the serum.

What caused my high copper

I’m fairly certain it was because 2014 was a year of constant and unrelenting high stress, both good and bad. I was editor of the STTM II book, plus had many other things going on in my life—good things, but chronic and stressful. And turns out that chronic high stress can deplete your zinc, which in turn can cause copper to rise.

Additionally, I was recovering from mold inhalation, which left me quite sick the year before. Not only is mold stated to lower zinc, but my immune system was in high gear battling it, and that can also tank nutrients like zinc. (You will see later in this article that only in 2017 did I discover my RBC zinc was BELOW range)

On top of the stress/mold zinc fact, I was eating a huge amount daily of stevia-sweetened dark chocolate daily as my way of self-comforting myself through the unrelenting stress. And chocolate is high copper! I was unknowingly feeding my internal levels of copper that were destined to climb in the face of my low zinc.

Additionally, I found out later the next year via hair testing that I had low levels of both manganese and chromium–another inducement of rising copper. Some literature states that deficient levels of B-vitamins and vitamin C can also promote rising copper levels–I had both deficiencies but didn’t know it at the time.

How I started the detox

This is where there is all sorts of strong opinions in groups, so I had to do careful reading make a decision for myself.

The most important step I took is to get off of all high copper foods. That especially included all the stevia dark chocolate I had been consuming to self-treat stress. Bad mistake when zinc was so low. (I initially left this step off when I created this page, and shouldn’t have. It’s the most most important step!)
I got on Manganese and Molybdenum (not even knowing I was low in both, as I found out later). Manganese is stated to help remove copper, especially from the liver. Molybdenum is stated to bind to copper and greatly facilitates its excretion.
I also got on B-vitamins, especially b6 and zinc to start detoxing. But I had to learn the hard way that the b’s heightened the speed of my detoxing (and fatigue misery) and I had to take MUCH lower amounts. I may be a fast metabolizer.
Some will say take no zinc whatsoever, but my experience is that low levels were fine.
I was also taking curcumin and astaxanthin for inflammation
To support my liver and kidneys (the detoxing glands), I used Milk Thistle (but use iron with it–it can lower iron levels) plus Dandelion Root, plus Swanson’s Kidney glandular. P.S. I also detoxed a second time starting June, 2016)

My detoxing experience

I started detoxing in late April 2015, and it ended on its own by October 2015. And frankly for ME (though it may not be this bad for you), it was absolutely miserable with fatigue and weakness. I was completely exhausted the entire time in an extreme way—much worse than I read in others.

BUT, I later figured out that for whatever reason, I wasn’t breaking down carbs well to give me energy to endure the detox. And the latter was due to the fact that my pancreas wasn’t releasing enough of the enzyme called amylase which breaks down starches and carbs for energy! My situation was probably rare.

But one thing did help back then before I knew about my low-amylase caused low energy: CoQ10! I got on 1500 mg liquid Ubiquinol daily. That did help! Because all the stress I was going through at the time also caused super high Succinate, Fumarate, Malate and a-ketoglutarate in my urine as revealed by an Organic Acids Test (OAT)–implying I had an energy metabolism disorder.

Ironically, though my body stopped detoxing on its own as I neared six months, and though my serum zinc levels were fabulous now, my serum copper was still a little too high. But I redid hair testing, and things were good enough there in my mind i.e. 16 (11 — 37). That was far better than the previous mid-range of 23–and which I have no doubt got MUCH higher before I caught it all (In hindsite, I found out my probably should have detoxed more. That came in 2016)

Did the high copper affect my emotions and brain?

It sure did. I had movement headaches in late 2014 before I ever knew about my rising copper i.e. if I bent down to pick up something, there it was. Right before I started to detox the first time in April 2015, and when my copper had to be sky high, I noticed I had ruminating fearful negative thoughts. My brain must have been loaded with copper by then, as copper is a known neurotoxin. The second time around in 2016, and as I was entering the third month of detoxing, I noticed depression was creeping in, irritability, impatience. I can imagine that the latter is related to the copper moving around to be released.

Did the high copper and especially the detox effect my thyroid?

Yup. It sent my reverse T3 (RT3) up, which is probably due to the inflammation levels it pushed up. I had to be on mostly T3 instead of the natural desiccated thyroid (NDT) I had been on.

Was I able to keep my copper levels down after detoxing?

Unfortunately, no. There was evidence that it went back up. Because in the Spring of 2016, I was seeing more hair loss than normal again, yet my iron was great. No, I didn’t have the movement headaches or the ruminating negative thoughts like I did the year before, but the hair loss was a sign. Then at the beginning of June 2016, my body started detoxing copper again! I wasn’t trying to do so—it happened from taking phospholipids, known to help heal the mitochondria (of which I had a problem as revealed by the Organic Acids Test and symptoms—not everyone does). But it turns out that phospholipids induce detoxing! So here I was, once again detoxing copper with the exact same symptoms I had in 2015—copper-colored stools, adrenal stress, fatigue. It all lasted nearly 6 months again. The two phospholipids were NT Factor and Body Bio—one in the morning and one in the evening. Some just use NT Factor.

Then it happened again in 2017, but luckily only a month. And you know what started the detox this time? Trying out 10 mg of lithium instead of 5. I was using low dose lithium to help get B12 to my cells better.

And then, again in April 2018–very strongly as revealed by the stools and fatigue. But this time, I was prepared, and taking many adrenal-calming supplements helped a lot in that area. I also went back up on my ubiquinol.

Why the continual copper detoxing? One clue is the excessively high amount I had–some literature says it can take a few years to get it all out. That seems true to my experience.

What did 2017 reveal about my zinc?

All through 2015 and 2016, I was always doing serum zinc labs. In April of 2015, when I first understood I had a serious Copper problem, it was LOW: .81 (.7-1.10). I got it towards the top of the range by the end of 2015, and did so in 2016 and worked to maintain that.

But in the Fall 2017, I did an RBC zinc instead of serum: BELOW RANGE. RBC stands for red blood cells. Seeing BELOW range threw me against the wall in shock: I may have had below range RBC zinc ALL this time. No wonder I had a copper problem!! I was already on 30 mg zinc, and I went to 80mg zinc. THAT is one way we can all control our levels of zinc–keep it up!

What about the MTHFR mutation in all this?

Since the MTHFR mutation can contribute to high heavy metals, there is a question if my single 1298 heterozygous mutation may have contributed, or my other methyl mutations like COMT. I’ve seen that happen to others. So just in case, I stay on folate plus other B vitamins.

What are surprises I had during the entire high copper journey?

My biggest one was finding out that not only did I have high copper, I also had high lead (though not as high as the copper). Both were revealed by the hair testing I did in 2014…and both came down after those six months of detoxing in 2015 as also revealed by another hair test.

The second surprise was discovering that copper detoxing (or high copper) can cause SIBO, Small Intestinal Bacterial Overgrowth. Have never had gut problems in my life, then found myself with SIBO that I had to treat. (Turns out SIBO can happen due to a poor release of bile from the gallbladder!) The third surprise was that I started to detox again in 2016 by accident!

And the final surprise?? Finding out why this may have all happened in the first place. My RBC zinc was BELOW range in 2017, that means it had to have been horridly low by 2014—-all due to my immune system in high gear in 2013 due to mold poisoning. Immune systems need a lot of nutrients to be effective.

Copper-color stools when detoxing–really??

Absolutely! It happened when I detoxed for six months in 2015 (and went away once my body stopped), happened exactly again when I started to detox in 2016, and happened in 2017 and 2018 for shorter, but still challenging, detoxes.

If I could change/improve anything about my high copper experience, as well as detoxing, what would that be?

I find the biggest emphasis should be on supporting your natural detox organs like the liver, kidneys and skin. If you do a sauna to sweat out the metals, it’s the skin helping you. But I tended to support my liver (Milk Thistle for one) and kidneys (Swanson Kidney Extract twice a day) during the second round of detox. Why? Because I tend to naturally detox with the elimination organs!
I find it quite important to take key antioxidants when detoxing like Astaxanthin, Grape Seed Extract, Vit. C and E, etc. I didn’t get into that well enough the first time around and regret it, so I did much better using them the second time around.
It’s going to be quite important to find out if you have the MTHFR mutation causing high heavy metals and treat it. I don’t think this was my cause, but it would be for you, especially if you have the 677 MTHFR mutation.
With what I know now, I would be on high amounts of CoQ10 (ubiquinol, not ubiquinone) while detoxing to support my mitochondria. I did that for the second detox and felt a little better. But you may not have the energy metabolism issues I had as discovered via the Organic Acids Test. I also discovered via a stool test that I have an intermediate level of carbs in my stool–a carbohydrate metabolism disorder. I don’t uptake carbs well for energy! No wonder I was so exhausted with detoxing!
I should have been on glutathione…a master antioxidant in your body. It was used up by all this detoxing and exposure to toxins, and I didn’t even find THAT out until January of 2019. UGH. I used infusions to get it up. No wonder I noticed myself aging quicker!

Did detoxing effect my adrenals in any way?

Boy did it. Detoxing heavy metals can be a huge stress on one’s adrenals! Now understand that I did NOT have an adrenal issue before I started detoxing. So at the beginning of detoxing, I didn’t even think about it. But as it continued, it became clear that my cortisol was shooting high. I started to have sleep issues through the night. I felt shaky in the morning (adrenal excess can go with high cortisol just as it can with low). And around dinner time later in my detoxing, I had the internal buzzing feeling that can go with a cortisol issue.

The second six month detox I went through brought on high cortisol again—sleep issues, morning adrenaline and shakiness, evening same. What was effective for me was to take Holy Basil in the morning, again in the late afternoon if I noticed symptoms, and before bed. A side note: during the second detox, and after 4-5 weeks of my mitochondrial treatment with high-dose CoQ10 and B-vitamins, and my cortisol issue mostly went away. I also learned to take supportive adrenal supplements like Taurine, GABA, holy basil, ashwagandha, rhodiola….etc.

Want to know if your adrenals are being affected? You can order your own saliva cortisol test here.

Other bits of info

Once I start detoxing, my body is simply going to continue it on its own no matter what. I must be a super detoxer.
If there is excess fatigue with detoxing, look at your mitochondrial function via an Organic Acid Test (OAT). I am thinking my mito were functioning less than optimal before my 2015 detox, and the detox plus the SIBO plus a yeast infection from hell….ruined my mito. I took a very high dose of CoQ10, and added in NADH, along with the other supplements that the OAT told me about.
I got a lot of good information from these websites: http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm and http://www.coppertoxic.com/
Use your best judgment after reading several sources. Be wise within any copper groups, as you will have to sift through strong opinion vs valid information and decide what fits you.
This is the hair testing I have used twice, also called HTMA, and I will use it again to keep track of where my metals are: https://www.directlabs.com/sttm/OrderTests.aspx (3rd test down)
Testing via blood should always be copper, RBC zinc and ceruloplasmin at the least (ceruloplasmin is the major copper-carrying protein). If ceruloplasmin is quite low or below range, might want to explore Wilson’s disease.
It’s rare, but there are some who might have Wilson’s disease, which is an autosomal recessive inherited disorder. It causes accumulation of copper in major organs like your liver (failure to filter it out), brain, and more. www.wilsonsdisease.org/ That was not my cause, but you should read about it, just in case.
About zinc and how it can be depleted: http://drlwilson.com/Articles/ZINC.htm
TEST YOUR RBC zinc!!
About ceruloplasmin: http://www.clinchem.org/content/51/8/1558.full
Since high levels of copper is usually in the unavailable unbound form, you might see problems with yeast/candida.
Also going hand-in-hand with high copper is high calcium, called the “calcium shell”. With that high calcium can be lack of emotion/apathy.
High copper can also cause excess fears or anxieties. Detoxing may create some of the same. That happened to me. Could also be related to the adrenal stress it all causes.
You will see ceruloplasmin mentioned on key copper websites—the major copper-carrying protein. Some will state that the lower it is, the quicker copper will build up in your liver and brain. Janie had high ceruloplasmin and still an obvious brain buildup! Just to show that there can be exceptions to the rule, it seems.
If you want to work with a doctor, find one who is open-minded about hair testing aka HTMA. But you may be lucky and the blood testing shows the problem anyway along with symptoms. Want to order your own HTMA?? You can! Go to the following page, scroll down and click on the DIRECT LABS icon, and the hair test is the 3rd one down: www.stopthethyroidmadness.com/recommended-labwork
Copper IUD’s have caused many women problems with rising copper levels! That can especially be true if you have the MTHFR mutation or even high stress.
It’s stated that vegetarians have a high risk of becoming copper toxic.
Foods high in copper include chocolate (darn it), avocados (darn it again) molasses, liver, oysters, shrimp, mushrooms, sesame or sunflower seeds, cashews, etc. A more comprehensive list is here.

PLEASE WORK WITH AN INFORMED DOCTOR IF YOU CAN FIND ONE.

If you found yourself with high copper, let us know your story by commenting below!

UPDATE FROM JANIE, late NOVEMBER 2016

Here is what I got down to in Sept. 2015 when I suddenly stopped detoxing following 5 1/2 months:

COPPER: 1400 (810-1990) (I was 1571 after detoxing two months)
ZINC: 1.09 (.66 — 1.10)
RATIO: 1.0 (you want it to be .7 — 1.0)

And here is where I am in late November 2016, after 5 1/2 months of detoxing high copper once again

COPPER: 1400 (810-1990)
ZINC: 130 ug/dL (60-130)
RATIO: 1.0 (you want it to be .7 — 1.0)

You can see they are nearly identical, each after detoxing 5 1/2 months. Zinc was a different measurement above, but at top of the range, just as last year.

And, with both detoxes:

1) High inflammation
2) High RT3, needing T3-only
3) Massive easy fatigue (I think both detoxes heavily messed with my mitochondria—the powerhouse of energy

Why test RBC levels of certain minerals? Because it’s measuring the intracellular levels in your body, which is even more important than serum levels. What can mess up your cellular levels? Toxic levels of other metals, for one. Those minerals which can have the RBC tested include Zinc, Copper, Potassium, Vanadium, Chromium, Manganese, Potassium, Selenium and Magnesium. The other metals need more then RBC, such as hair testing, i.e. they can be good with RBC, but high in hair. More good info here.

UPDATE FROM JANIE, late NOVEMBER 2018

Looking back, I have figured out that the stress of copper detoxing over the past few years may have contributed to gallbladder problems. The clues? The first one was having SIBO after my first detox in 2015–it’s strongly related to your gallbladder and bile levels. The second? I don’t break down fats well at all anymore. And there are other TMI clues that you can see by researching “symptoms of a sluggish gallbladder”. I have some; not all. But it’s very obvious. So I’m now taking Cholacol by Standard Process to help break down fats and which provides more bile. There are also things to be done to support a sluggish gallbladder, which you can also do an internet search for.

ADDITIONAL READING:

This is a great read about what high copper can do to you: https://healdove.com/alternative-medicine/Hypercupremia-High-Copper And also note in the latter article that high copper can mess with your Glutamate/GABA balance, i.e. resulting in high glutamate levels in your brain (causing inflammation), plus in some, impaired speech, aggressive behavior, intense irritability, anxiety, inflammation of the gastrointestinal tract (GIT), and eventually neuronal destruction.
Great website on the copper issue: https://coppertoxic.com/

August 1st 2016 83 replies

15 Things which Thyroid Patients should teach their Doctors

Many thyroid patients will tell you they have, or have had, doctors they love! I, Janie, have had many of them.

But it doesn’t take away from the fact that those in a medical profession have been sorely lacking for decades about correct knowledge on how to diagnose and treat hypothyroidism or Hashimotos, besides have inappropriate familiarity about all the issues related to being hypothyroid. Even their knowledge on how to correctly read labwork has been lazy.

Because of that poverty of correct knowledge, patients were forced to take the bull by the horns and figure things out for themselves! Stop the Thyroid Madness, the flagship of “patient experiences and wisdom”, represents all that wisdom!

Here are 15 things that any thyroid patient not only has to learn, but needs to teach any medical practitioner the best way they know how:

1) My fatigue and weight gain is not simply because I need to exercise more and eat less.

Granted, we know that exercise and how we eat is important! But being undiagnosed hypothyroid, or poorly treated due to Synthroid or any other T4-only medication, or being held to the TSH, keeps many of us with a low metabolism. The latter results in very easy weight gain, or the failure to do the kind of exercise which would help us!

2) Depression is strongly related to continued hypothyroidism!

We know there can be a variety of reasons for depression, but for most thyroid patients, our depression is a sure sign that we are either undiagnosed due to the lousy TSH lab test, or undertreated due to being on only one of five thyroid hormones like T4-only, or being held hostage to the TSH, a pituitary hormone.

3) The TSH lab test has been a failure for too many years.

Yes, though a seriously low TSH can detect if we have hypopituitary, for most of us, we’ve had a “normal” TSH yet obvious hypothyroid symptoms. Additionally, when we are optimally treated on Natural Desiccated Thyroid, T4/T3 or T3-only, our TSH lab test is always below range without one hint of bone loss or heart problems. We want to go by the free T3 and free T4, plus symptom removal and a good heartrate and blood pressure instead. https://stopthethyroidmadness.com/tsh-why-its-useless

4) To figure out if I have Hashimotos, BOTH antibodies labs need to be tested, not just one.

To detect if we have the autoimmune version of thyroid problems, patients saw right away that one antibody could be high, but the other one not. So we need both the anti-peroxidase AND the anti-thyroglobulin lab tests. And by the way, many Hashi’s patients soar on Natural Desiccated Thyroid if they raise it correctly. See #5.

5) Natural Desiccated Thyroid (NDT) has been changing patient lives for years now, just as it did for decades before Synthroid hit the market.

Though some patients do better on T4-only meds than others…at first..there is simply too many reported experiences by patients for 15+ years that it’s not the way to go. And those same reports show that being on the five hormones that NDT gives makes much more sense. Even adding synthetic T3 to synthetic T4 has produced better results.

6) I can’t wait six weeks before having a raise!

Thyroid patients found out the hard way that if they stay on a starting dose of NDT (which is usually one grain) longer than a few weeks, the feedback loop causes hypothyroidism to come back with a vengeance in some way or another. So we raise every two weeks and start slowing those raises in the two grain area or close to three to start finding our optimal dose. https://stopthethyroidmadness.com/natural-thyroid-101

7) My lab results are not about being in the “normal” range.

This was a huge discovery by informed thyroid patients as they kept observing each others lab results for years: it’s about “where” the lab result falls that tells the story…not just because it falls in a suspicious “normal” range based on the testing participants the lab facility chose. https://stopthethyroidmadness.com/lab-values

8) If I react poorly to NDT, it’s not because NDT isn’t right for me.

Patients who have had problems with NDT found out that there are five correctible reasons for most of them: a) being kept on lower doses far too long b) not raising high enough because of being held to the TSH range c) having low iron d) having a cortisol problem 5) having Lyme. This page explains: https://stopthethyroidmadness.com/ndt-doesnt-work-for-me

9) Yes, there really is such a thing as adrenal fatigue/adrenal insufficiency/hypocortisolism.

Easily more than 50% of thyroid patients end up with a cortisol problem, either due to being undiagnosed for years thanks to the use of the faulty TSH lab test, or being put on only one of five thyroid hormones–T4. And to learn more about it, one of your doctor’s own colleagues has written a brilliant chapter as to biologically why we get low cortisol, found in the Stop the Thyroid Madness II book, chapter 15. And this: https://stopthethyroidmadness.com/adrenal-info

10) Saliva testing for cortisol is far more accurate than blood testing

Saliva is said to be testing one’s cellular levels of cortisol, plus it does so at four key times during a 24-hour period, which is important to know. And patients found that the results (from reputable companies) fit their symptoms! Whereas blood cortisol testing is measuring both bound and unbound cortisol, and most of the time does NOT fit the symptoms, showing high cortisol when we are really low, or vice versa. //www.stopthethyroidmadness.com/adrenal-info

11) If some or most of my saliva cortisol results are low, there are safe and effective ways to treat it.

The adrenal area is one which thyroid patients took great time and care to learn, based on what we read from experts, plus our repeated experiences and wisdom. This is where our doctor, need to be open-minded enough to learn from Stop the Thyroid Madness, both on the website and in the revised STTM book, chapters 5 and 6.

12) If I have acid reflux or stomach problems, it’s usually due to low stomach acid caused by our hypothyroid state, not the need for Prilosec (Omeprazole). And some of us need to be off gluten, especially if we have Hashimotos.

i.e. what we need is to restore a better level of acid in our stomachs, which our hypothyroid state lowers–the latter which causes problems in absorbing vitamins and minerals. That’s why we need to put lemon juice or apple cider vinegar in the liquids we use to swallow our meds and supplements. And a large body of us with Hashimotos need to be off gluten.

13) I’m not stupid just because I didn’t go to medical school, plus I live in my own body. So I need you to see us as a team.

Because of what Stop the Thyroid Madness gives me, both the website and the books, it’s important to me that you see us as a team–BOTH my knowledge and your own.

14) No, thyroid cancer is not the easy cancer.

Thyroid cancer patients hate their cancer as much as anyone does…plus it’s worrisome, surgery nor RAI is not a picnic, and recurrence is on our minds. https://stopthethyroidmadness.com/2015/01/31/thyroid-cancer-easy-cancer-thyroid-cancer-patients-appalled/

**15) My thyroid labwork should be done before I take my thyroid meds for the day.**

Patients discovered that the T3 is NDT will peak about two hours after meds are taken, then a slow fall. If patients are on T3-only, it’s a 4-hour peak. We want to measure what still lingers in us, not the peak or rise.

What else do you think our doctors need to learn?

* Join the STTM Facebook page for daily information, tips and inspiration!
* Get your STTM books here and become INFORMED: //www.laughinggrapepublishing.com You can also consider buying them for your favorite doctor (and perhaps get reimbursed when you check out of his or her office after a visit.)

August 7th 2015 43 replies

How Dawn healed her adrenals–an inspiring story everyone must read!

When I first had my thyroid removed in 2012 due to autoimmune destruction from Hashimoto’s disease since age 10 and Graves disease for 6 years, I did not know what to expect. And like most other post-thyroidectomy patients, I was reassured by my surgeon that all it would take is for me to take “a little pill every day and things will be much better” (i.e. my surgeon referring to the Synthroid she prescribed for my post-op thyroid replacement)

What ensued after that was a nightmare that has lasted the past two years!

I went into heart failure multiple times from the inadequate replacement with Synthroid (T4 only medication). I was MISERABLE! Dizzy, heart racing out of the blue, internal shaking as well as nausea, severe fatigue and extreme irritability! I became a monster that even my own family did not recognize!!

STTM was discovered

Fast forward 9 months, and a good friend of mine came across the Stop the Thyroid Madness website and sent it my way. I ordered the book after looking through the website and realized I knew NOTHING about thyroid disease and proper treatment for hypothyroidism, and apparently neither did my Doctor!!

I made the switch to a working Natural Desiccated Thyroid like Armour e in March 2013, and things DID improve some. But the fatigue, shakes, dizziness and irritability continued! I flew off the handle at my husband, my parents, even my dogs (poor babies did not deserve it, but I was just out of control emotionally!) I thought I must be going crazy and feared I had developed a psychiatric disorder. In fact, my Endocrinologist suggested I see a psychiatrist to “work out my frustration and anger!”

It was my adrenals!

I started reading Chapter 6 in the revised STTM book— All about ADRENALS!! I thought I was reading my life story all over again! I had 90% of the symptoms listed on the “symptoms of low cortisol” page on the STTM site. I tried Janie’s at home testing and failed them all miserably! I ordered a 24 hour adrenal saliva cortisol test, and there is where I found my answer! See the results below:

Turns out I wasn’t crazy! My adrenals were not putting out adequate cortisol to handle the increased stress of low thyroid levels and all my other life issues! I was LOW, LOW, LOW, slightly HIGH.

“How do I fix it?”

I considered using T3CM, but knowing that I was low Morning, Noon AND Evening meant that was not likely to help per other patient’s experiences.

So someone suggested I try Thorne ACE (Adrenal Cortex Extract) to replace my low cortisol at those three times of day! I got it all ordered, read through the chapters in the STTM book. I added in high doses of Vitamin C (3,000mg per day) and high doses of magnesium (800-1,200mg per day) and started supplementing with Celtic Sea Salt and the Adrenal Cocktail (salt in water, plus minerals). I started feeling better pretty quickly with the sea salt and nutritional support added.

It took me several weeks of trial and error to get my symptoms under control and get the dose of ACE correct. I had to learn to take DATs (Daily Average Temperatures) to gauge whether or not the dose was the right one. I tracked symptoms, doses and temps daily. I adjusted up every few days until my temps stabilized and my symptoms became more minimal. I was still without a good doctor at this point, so I was self-treating using the knowledge I got in the support groups and in the Stop the Thyroid Madness book.

A job change was necessary

I realized that I could not continue under the extreme stress of working the 12 hour nightshift in a busy hospital. I was burning the candle at both ends, and everything I read about adrenals said reducing stress and sleeping on a set schedule was a MUST. So, I spoke with my spouse, and we decided I would quit my job and look for something less physically and emotionally demanding, and something with day-time hours exclusively. I was off work for 3 months while searching for a new position, and though money was tight and things were stressful, changing to sleeping at night once again made a HUGE difference (I put myself on a strict 10 pm-7 am sleep schedule.) I cut caffeine, sugar and alcohol out completely – the caffeine was very tough to give up, but I did it! Being out of the high-stress work environment was extremely helpful in healing adrenals!

A saliva retest

I was feeling better little by little, but the fatigue remained, especially in the afternoons. I would just crash around 2 pm and couldn’t do much of anything until late in the evening! I would get periodic adrenaline reactions (especially late in the afternoons.) I would sweat profusely, get shaky inside, feeling like my heart would pound out of my chest! I finally got in to see my “good thyroid doctor” in November 2013. He immediately said he wanted to take me off ACE for two weeks and retest my adrenals to see if I had made progress. Here is what they showed: (the retest is the one that says “current” taken in November 2013:

As you can see, my Morning was showing improvement, but the noon and evening levels slid to a lower level than when I started ACE.

I spoke with my good thyroid doctor, and he suggested we lower ACE in the morning, add more at the noon/evening doses and slide the times a bit earlier than what I had been taking. Things continued to improve, and I got my afternoons back! By then I was back working full time up to 50 hours per week. The new job was emotionally stressful, but not physically so. I continued to get adrenaline reactions in the late afternoon, but they became less and less as time went on. I started feeling completely recovered by Feb 2014. I still had low thyroid levels due to hormone resistance, but adrenals symptoms had completely resolved. I weaned off ACE and did just fine. I kept up with the nutritional support of high dose Vitamin C and Magnesium and did the adrenal cocktail and celtic sea salt if I needed it, but it was rare for me to need those at this point.

Victory!

We waited three months of me being off of ACE and retested to see where I stand! Here are the new, post-treatment levels. Taken end of April, 2014:

As you can see, my levels are now VERY close to optimal! I did notice that my nighttime level has gone up some, so my doctor had put me on Zinc to help reduce that, and Melatonin as needed (though I don’t really take it more than once per month.)

I discovered recently that I have Lyme disease and chronic infections which is the cause of my inflammation and continued low thyroid levels, despite taking Nature-Throid and Cytomel T3 at high doses. We hope that treatment for Lyme will finally help get inflammation down and improve my thyroid levels to liveable again!

I cannot be more thankful to Stop the Thyroid Madness for helping me get my life back! There IS life after Adrenal Fatigue!! I would say healing my adrenals has been the single most important thing I have done to feel better and function better on a daily basis. My family and my dogs no longer fear me and I have my laidback personality back once again, and my house is now at PEACE!! Don’t give up hope!! STTM will help you get better if you follow it!

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* Are you signed up to receive notifications of these blog posts by email? Scroll down to the bottom right on the STTM home page to sign up: https://stopthethyroidmadness.com/

* Are your Ducks in a Row??https://stopthethyroidmadness.com/ducks-in-a-row

* Janie Bowthorpe has the first of a series of eBooks out, and the first one is on EBV:https://stopthethyroidmadness.com/sttm-ebooks/

May 13th 2014 90 replies

“A Little Natural Desiccated Thyroid” if you’re “A Little Hypothyroid? Don’t Make the Same Mistake We Did!

The following Guest Blog Post is written by Jill, who has a B.S. in Combined Sciences and is the mother six, including 22-month-old Moriah, a thyroid and adrenal patient who has Down syndrome.

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I had gone to several doctors to investigate thyroid treatment for our infant daughter Moriah, who was born with Down syndrome (Ds). From my research, I knew thyroid issues to be quite common in those with Ds, but also frequently overlooked since many of the characteristics associated with Ds are the same as those seen in congenital hypothyroidism.

Also, because many doctors do not order all the appropriate labwork but rely too heavily on the TSH, many of these children remain untreated.

I was determined not to fail my girl on thyroid, so imagine my joy to finally find a doctor willing to prescribe NDT. I happily filled our prescription for 15 mg/day of natural desiccated thyroid and scheduled a follow-up appointment for 6 weeks. What I did not know at the time is that one cannot remain on a low dose of natural desiccated thyroid. (Patient Mistake #1)

The solution to being “a little” hypothyroid is not to take “a little” NDT. As I learned from a new friend and confirmed on the STTM website, that will cause you to become even more hypothyroid than you were to begin with due to the suppression of the feedback loop.

And that is exactly what happened to Moriah.

My friend clued me in, and I felt sick to my stomach, realizing this doctor must not be aware of that since she had not mentioned anything about ever raising Moriah’s dose. Long story short, even with labwork showing a big drop in the free T3, along with multiple new-onset hypothyroid symptoms, the doctor wanted to keep Moriah on just 15 mg/day. Why? Because, she stated “The TSH is by far the most important of the thyroid levels, and her TSH is really good!”

Ugh!

Sadly, the mistaken notion about how to dose NDT is all too common, even among caring, integrative doctors such as the one I had. I read many stories of doctors prescribing “low dose” NDT or adding “just a little” to be “on the safe side” and treat “borderline” hypothyroidism. But this is not how it works with NDT! This “treatment” only makes things worse! There is even pediatric dosing information on the NDT websites, but it is meaningless to a doctor who doses according to the TSH.

What a tragedy that these caring doctors are actually making their young patients even sicker!

Thankfully, we are now working with a new doctor who understands the necessity of evaluating symptoms and all the labwork and understands that, like adults, children cannot be left on “low dose” NDT. I wish there were more doctors like her.

The STTM website has been a Godsend, and I refer everyone to it, especially to check out “Mistakes Patients Make“” so they do not make the same one I did.

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— See why going by the TSH is the WORST way to diagnose or treat hypothyroidism, here.

— For adults, here’s what we have learned about using Natural Desiccated Thyroid.

— Having what seem like bad reactions to NDT? Learn why. It’s not about NDT, but what it’s revealing!

— Have you Liked the STTM Facebook page?? Come on over for daily inspiration and information based on shared patient experiences!

March 30th 2014 22 replies

Category: adrenal fatigue