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Category: adrenal dysfunction

How Dawn healed her adrenals–an inspiring story everyone must read!

Screen Shot 2014-05-13 at 2.56.53 PMWhen I first had my thyroid removed in 2012 due to autoimmune destruction from Hashimoto’s disease since age 10 and Graves disease for 6 years, I did not know what to expect. And like most other post-thyroidectomy patients, I was reassured by my surgeon that all it would take is for me to take “a little pill every day and things will be much better” (i.e. my surgeon referring to the Synthroid she prescribed for my post-op thyroid replacement)

What ensued after that was a nightmare that has lasted the past two years!

I went into heart failure multiple times from the inadequate replacement with Synthroid (T4 only medication). I was MISERABLE! Dizzy, heart racing out of the blue, internal shaking as well as nausea, severe fatigue and extreme irritability! I became a monster that even my own family did not recognize!!

STTM was discovered

Fast forward 9 months, and a good friend of mine came across the Stop the Thyroid Madness website and sent it my way. I ordered the book after looking through the website and realized I knew NOTHING about thyroid disease and proper treatment for hypothyroidism, and apparently neither did my Doctor!!

I made the switch to a working Natural Desiccated Thyroid like Armour e in March 2013, and things DID improve some. But the fatigue, shakes, dizziness and irritability continued! I flew off the handle at my husband, my parents, even my dogs (poor babies did not deserve it, but I was just out of control emotionally!) I thought I must be going crazy and feared I had developed a psychiatric disorder. In fact, my Endocrinologist suggested I see a psychiatrist to “work out my frustration and anger!”

It was my adrenals!

I started reading Chapter 6 in the revised STTM book— All about ADRENALS!! I thought I was reading my life story all over again! I had 90% of the symptoms listed on the “symptoms of low cortisol” page on the STTM site. I tried Janie’s at home testing and failed them all miserably! I ordered a 24 hour adrenal saliva cortisol test, and there is where I found my answer! See the results below:

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Turns out I wasn’t crazy! My adrenals were not putting out adequate cortisol to handle the increased stress of low thyroid levels and all my other life issues! I was LOW, LOW, LOW, slightly HIGH.

“How do I fix it?”

I considered using T3CM, but knowing that I was low Morning, Noon AND Evening meant that was not likely to help per other patient’s experiences.

So someone suggested I try Thorne ACE (Adrenal Cortex Extract) to replace my low cortisol at those three times of day! I got it all ordered, read through the chapters in the STTM book. I added in high doses of Vitamin C (3,000mg per day) and high doses of magnesium (800-1,200mg per day) and started supplementing with Celtic Sea Salt and the Adrenal Cocktail (salt in water, plus minerals). I started feeling better pretty quickly with the sea salt and nutritional support added.

It took me several weeks of trial and error to get my symptoms under control and get the dose of ACE correct. I had to learn to take DATs (Daily Average Temperatures) to gauge whether or not the dose was the right one. I tracked symptoms, doses and temps daily. I adjusted up every few days until my temps stabilized and my symptoms became more minimal. I was still without a good doctor at this point, so I was self-treating using the knowledge I got in the support groups and in the Stop the Thyroid Madness book.

A job change was necessary

I realized that I could not continue under the extreme stress of working the 12 hour nightshift in a busy hospital. I was burning the candle at both ends, and everything I read about adrenals said reducing stress and sleeping on a set schedule was a MUST. So, I spoke with my spouse, and we decided I would quit my job and look for something less physically and emotionally demanding, and something with day-time hours exclusively. I was off work for 3 months while searching for a new position, and though money was tight and things were stressful, changing to sleeping at night once again made a HUGE difference (I put myself on a strict 10 pm-7 am sleep schedule.) I cut caffeine, sugar and alcohol out completely – the caffeine was very tough to give up, but I did it! Being out of the high-stress work environment was extremely helpful in healing adrenals!

A saliva retest

I was feeling better little by little, but the fatigue remained, especially in the afternoons. I would just crash around 2 pm and couldn’t do much of anything until late in the evening! I would get periodic adrenaline reactions (especially late in the afternoons.) I would sweat profusely, get shaky inside, feeling like my heart would pound out of my chest! I finally got in to see my “good thyroid doctor” in November 2013. He immediately said he wanted to take me off ACE for two weeks and retest my adrenals to see if I had made progress. Here is what they showed: (the retest is the one that says “current” taken in November 2013:

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As you can see, my Morning was showing improvement, but the noon and evening levels slid to a lower level than when I started ACE.

I spoke with my good thyroid doctor, and he suggested we lower ACE in the morning, add more at the noon/evening doses and slide the times a bit earlier than what I had been taking. Things continued to improve, and I got my afternoons back! By then I was back working full time up to 50 hours per week. The new job was emotionally stressful, but not physically so. I continued to get adrenaline reactions in the late afternoon, but they became less and less as time went on. I started feeling completely recovered by Feb 2014. I still had low thyroid levels due to hormone resistance, but adrenals symptoms had completely resolved. I weaned off ACE and did just fine. I kept up with the nutritional support of high dose Vitamin C and Magnesium and did the adrenal cocktail and celtic sea salt if I needed it, but it was rare for me to need those at this point.

Victory!

We waited three months of me being off of ACE and retested to see where I stand! Here are the new, post-treatment levels. Taken end of April, 2014:

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As you can see, my levels are now VERY close to optimal! I did notice that my nighttime level has gone up some, so my doctor had put me on Zinc to help reduce that, and Melatonin as needed (though I don’t really take it more than once per month.)

I discovered recently that I have Lyme disease and chronic infections which is the cause of my inflammation and continued low thyroid levels, despite taking Nature-Throid and Cytomel T3 at high doses. We hope that treatment for Lyme will finally help get inflammation down and improve my thyroid levels to liveable again!

I cannot be more thankful to Stop the Thyroid Madness for helping me get my life back! There IS life after Adrenal Fatigue!! I would say healing my adrenals has been the single most important thing I have done to feel better and function better on a daily basis. My family and my dogs no longer fear me and I have my laidback personality back once again, and my house is now at PEACE!! Don’t give up hope!! STTM will help you get better if you follow it!

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* Are your Ducks in a Row??https://stopthethyroidmadness.com/ducks-in-a-row

* Janie Bowthorpe has the first of a series of eBooks out, and the first one is on EBV:https://stopthethyroidmadness.com/sttm-ebooks/

90 replies

“A Little Natural Desiccated Thyroid” if you’re “A Little Hypothyroid? Don’t Make the Same Mistake We Did!

photo Moriah with butterfliesThe following Guest Blog Post is written by Jill, who has a B.S. in Combined Sciences and is the mother six, including 22-month-old Moriah, a thyroid and adrenal patient who has Down syndrome.

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I had gone to several doctors to investigate thyroid treatment for our infant daughter Moriah, who was born with Down syndrome (Ds). From my research, I knew thyroid issues to be quite common in those with Ds, but also frequently overlooked since many of the characteristics associated with Ds are the same as those seen in congenital hypothyroidism.

Also, because many doctors do not order all the appropriate labwork but rely too heavily on the TSH, many of these children remain untreated.

I was determined not to fail my girl on thyroid, so imagine my joy to finally find a doctor willing to prescribe NDT. I happily filled our prescription for 15 mg/day of natural desiccated thyroid and scheduled a follow-up appointment for 6 weeks. What I did not know at the time is that one cannot remain on a low dose of natural desiccated thyroid. (Patient Mistake #1)

The solution to being “a little” hypothyroid is not to take “a little” NDT. As I learned from a new friend and confirmed on the STTM website, that will cause you to become even more hypothyroid than you were to begin with due to the suppression of the feedback loop.

And that is exactly what happened to Moriah.

My friend clued me in, and I felt sick to my stomach, realizing this doctor must not be aware of that since she had not mentioned anything about ever raising Moriah’s dose. Long story short, even with labwork showing a big drop in the free T3, along with multiple new-onset hypothyroid symptoms, the doctor wanted to keep Moriah on just 15 mg/day. Why? Because, she stated “The TSH is by far the most important of the thyroid levels, and her TSH is really good!”

Ugh!

Sadly, the mistaken notion about how to dose NDT is all too common, even among caring, integrative doctors such as the one I had. I read many stories of doctors prescribing “low dose” NDT or adding “just a little” to be “on the safe side” and treat “borderline” hypothyroidism. But this is not how it works with NDT! This “treatment” only makes things worse! There is even pediatric dosing information on the NDT websites, but it is meaningless to a doctor who doses according to the TSH.

What a tragedy that these caring doctors are actually making their young patients even sicker!

Thankfully, we are now working with a new doctor who understands the necessity of evaluating symptoms and all the labwork and understands that, like adults, children cannot be left on “low dose” NDT. I wish there were more doctors like her.

The STTM website has been a Godsend, and I refer everyone to it, especially to check out “Mistakes Patients Make“” so they do not make the same one I did.

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— See why going by the TSH is the WORST way to diagnose or treat hypothyroidism, here.

— For adults, here’s what we have learned about using Natural Desiccated Thyroid.

— Having what seem like bad reactions to NDT? Learn why. It’s not about NDT, but what it’s revealing!

— Have you Liked the STTM Facebook page?? Come on over for daily inspiration and information based on shared patient experiences!

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Three Sleeping Issues you might encounter as a Hypothyroid Patient

Snoopy

(This page has been updated for the present day and time! Enjoy!)

Have trouble sleeping? Here are three scenarios you might identify with, the causes, and the solutions.

1) INSOMNIA or WAKING UP FREQUENTLY SOON AFTER YOU FALL ASLEEP

This is an extremely common problem faced by thyroid patients, and the most common reason is going to bed with high levels of cortisol–the opposite of what healthy adrenals should be doing. With normal adrenal function, your bedtime cortisol levels should be low, or at the bottom of the range of a saliva cortisol test. Symptoms include laying awake for a long time before falling asleep for the night…or if you can fall asleep well, you tend to wake up often within the next hour or two.

Why the high cortisol?

It’s usually a left-over remnant of when you used to have high cortisol all day long, but which has since fallen to low levels of cortisol except for bedtime, or afternoon and bedtime.

And all the above can happen to certain individuals due to a continued hypothyroid state (such as being treated with the inadequate T4-only medications like Synthroid, Eltroxin, Oroxine, and/or Levothyroxine, etc) or due to undiagnosed hypothyroidism (thanks to the use of the TSH lab test).

Another cause is low bedtime cortisol (i.e below the range), which has caused issues with falling or staying asleep at bedtime. Low cortisol seems to cause high adrenaline, and the latter results in a fitful sleep pattern during the night. The solution? First do a 24-hour adrenal saliva test to prove if it’s high or low cortisol, say informed thyroid patients. Guessing can get you into trouble. (And blood cortisol is not the answer, since it’s measuring both bound and unbound cortisol.) Then compare the results to what we’ve learned they mean.

For high bedtime cortisol, patients have had success with cortisol-lowering herbs like Holy Basil, zinc or others, taken a good hour or two before they want to fall asleep. Each dose is given three nights to see if it’s enough to improve sleep. If not it’s raised…and again if needed. Then they wean off after several weeks of better sleep.

For low cortisol (below the range), patients often have to use a small dose of HC or Adrenal Cortex. Even supplementing with sea salt has been reported to help with sleep. Additionally, if bedtime cortisol is below the range, there’s a good chance your cortisol is low most of the day, which saliva testing will reveal. Chapter 6 in the revised STTM book has excellent and important information on the proper use of HC, which would also apply to adrenal cortex.

2) WAKING UP ANYWHERE AROUND 3 – 4 AM

Waking up a good three to four hours before you would normally start your morning is a strong sign of low cortisol, which in turn causes hypoglycemia (low blood sugar). And the latter can push your adrenaline up, causing you to wake up hours before you are supposed to. You might also feel shaky or hungry.

The solution? Besides taking cortisol at bedtime, if needed, patients have reported doing far better with sleep by eating a complex carbohydrate at bedtime (for example, whole wheat cracker with cheese or peanut butter…or if you need to avoid gluten, berries and cream cheese). The same strategy is used if waking up around 3 am or so, which will help raise your blood sugar levels and you might fall back asleep better.

3) WAKING UP FREQUENTLY WITH NO SET PATTERN

Time to check your sex hormones, which can get messed up with hypothyroidism, or made worse because of adrenal sluggishness or cortisol use.

Low estrogen can cause hot flashes, waking you up. A study titled Sex Hormones, Sleep and Core Body Temperature in Post Menopausal Women reveals that low estradiol (E2) and higher luteinizing hormone (LH) levels are strongly related to lessening the quality of your sleep.

Low progesterone is also known to cause insomnia and even anxiety, and may cause sleep apnea (or make you snore, ladies. Gulp). Entry into menopause has caused this, report many women.

Especially in men, low testosterone can negatively affect the quality of your sleep, i.e. you won’t stay in your deep sleep cycle long enough for recuperation of your body and mind.

SLEEPING TIDBITS:

  • Low levels of the neurotransmitter serotonin, which can cause depression, is also implicated with insomnia.
  • High cortisol can also be caused by Lyme or reactivated Epstein Barr Virus–the latter of which at least 95% of adult have dormant in their bodies, but which can reactivate due to stress or illness. .

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  • Speak or read Spanish better than English?? The revised Stop the Thyroid Madness book is now in Spanish! And shipping is relatively cheaper for two or three books. laughinggrapepublishing.com Give one to a friend or family member!
  • Need a good doctor to work with your own knowledge? Learn how to find one here. And remember: make it clear you expect to be a “team”.
  • Here’s an important summary of what patients have learned in getting well again.
  • Join the STTM Facebook page for daily tips, information and inspiration!
162 replies

Being in the “normal” range has nothing to do with it, plus three adrenal videos to see

Note: though this page was originally written in 2012, it has been updated to the current date and time. Enjoy!

The famous psychiatrist Carl Jung used to say “To be normal is the ideal aim of the unsuccessful”.

And nothing is ever so unsuccessful when it comes to thinking that a lab result within the so-called “normal” range is ideal.

It’s not.

And unfortunately, when I do phone coaching sessions with thyroid patients, or watch comments made in discussion groups, I hear or see all too many say “My doctor/Nurse Practitioner/Physician’s Assistant/Naturopath says I’m normal”.

And I have to immediately back the conversation up and say “Can you share that lab result and range with me?”

Because as patients have learned: “Optimal” and “problem-free” has nothing to do with just being anywhere is a range. It has to do with “where” in the range one’s result is.

B12: This may not be true for all international ranges, but when it definitely came to the US range or those similarly broad, we found out that ‘mid-range’ still produces symptoms of low B12, and we can confuse them with hypothyroidism, including fatigue and pain. We look for our result to be in the upper quarter, if not near the top. Because there, we found out, is where our symptoms related to low B12 abated.

Vitamin D: Several leaders and I had a private discussion about all the conflicting information on the net as what an ideal Vit. D result was. We decided to follow the Vitamin D Council, which states that 60-80 is the goal. I then add that progressive doctors like to see 80-100, which can especially be cancer-protective.

Cortisol Saliva Results: When you look at the results of someone with no symptoms of an adrenal problem, here’s what you note: 8 am, at the top of the range; Noon, about a quarter from the top; Afternoon, mid-range; Bedtime, at the very bottom.

Iron: Of the four labs we generally like to see as thyroid patients, we note that a good Serum iron level is closer to 110 (with men being higher and in the upper 130’s or 140’s); a good % Saturation is close to 35% for women and 40-45% for men; a good Ferritin will end up being 70-90 (though this can come last as one improves the others), and a good TIBC, if the range is 250 – 450, ends up being in the low 300’s, we noted, when the others are where they should be.

To read more about what patients have learned about lab results, go to the LAB VALUES page. Learn to understand your own lab results!!

Three good videos about better adrenal function

I often feel I can’t rave enough about what Paul Robinson of the UK revealed to us about promoting better adrenal function without the use of adrenal meds. It’s a quite unique method of using T3-only (or natural desiccated thyroid) in the early morning hours when the adrenals need it the most. You can see several testimonies—some with more updates coming—on the STTM T3 Circadian page here: https://stopthethyroidmadness.com/t3-circadian-method.

Has everyone succeeded with the CT3M? No, say some. It wasn’t enough to raise their low afternoon, but definitely helped their low morning!! Others absolutely love it. So it’s up to you.

Granted, if you have Addisons, hypopituitary, or untreated diabetes or blood sugar issues, and saliva reveals quite low cortisol, you may still need HC or adrenal cortex. Chapter 6 in the revised STTM book is your go-to chapter. But for some, this is a very workable solution.

Robinson has created three videos to explain it all, which he also links to from his recent blog:

Part 1: http://www.youtube.com/watch?v=97SOyEYwh54

Part 2: http://www.youtube.com/watch?v=7t2wg9rr6F4

Part 3: http://www.youtube.com/watch?v=dhkhcLPGCww

If your doctor prescribes synthetic T4 with synthetic T3

Progress appears to be one step at a time. And we are seeing more and more doctors prescribing T3 to their patients on T4. That’s good!! Doctors are FAMILIAR with the synthetics. So that’s what they will prescribe!

But many, many patients who have tried both synthetics, and who have tried natural desiccated thyroid, report even better results with the latter. So THIS IS WHERE YOU COME IN. Teach your doctor!! Why just be on synthetic T4 and synthetic T3 when you might do even better with all five hormones from desiccated thyroid—i.e. the same five your own thyroid would be giving you! Consider sending the Revised STTM book to your doctor: //www.laughinggrapepublishing.com/ Or, there’s a STTM II book totally written by physicians (his colleagues) and one chapter is specifically about NDT: https://laughinggrapepublishing.com/stop-thyroid-madness-ii-book/

JanieSignature SEIZE THE WISDOM

 

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Ten years reveal what works with thyroid treatment, plus healing adrenals without HC!

This year, 2012, marks the tenth year I started working with and learning from patients after desiccated thyroid turned my life completely around. It all began with the creation of the Yahoo group Natural Thyroid Hormone users–a still-active group. And the next few years of “patients sharing with patients” provided incredible information.

And when it comes to the variety of thyroid med treatments, here’s a general summary of ten years of patient experience:

  1. T4-ONLY MEDS: do not work well for a large body, if at all, leaving patients with continuing hypothyroid symptoms in their own degree and kind. Those who feel they are doing well on T4 end up seeing increasing symptoms of a poor treatment…eventually (or don’t recognize their symptoms of a poor treatment). By observation, more than 50% of those on T4-only end up with screwy or debilitating adrenal function, low iron, low Vit. D and more side effects of a poor treatment. Some put on T4 (because of a transient high TSH lab test result) probably never needed any thyroid treatment in the first place, like my sister-in-law.
  2. SYNTHETIC T3 WITH SYNTHETIC T4: a definite step up from T4-only in improvement of symptoms. Unfortunately, though, we see more and more doctors prescribing this rather than breaking through their ignorance and prescribing natural desiccated thyroid with its T4/T3/T2/T1/calcitonin, because all they know about is synthetics.
  3. T3-ONLY: another good step up from T4-only. Patients note they have to be diligent in taking their multi-dosed T3, having no T4 to rely upon for conversion. Also used temporarily by those who want to lower high RT3 while correcting the causes.
  4. NATURAL DESICCATED THYROID: gives the best results, say many patients over the past ten years who tried the synthetic T4/T3 route or others, since it gives exactly what a healthy thyroid would give (T4, T3, T2, T1 and calcitonin). There just appears to be something synergistically powerful when you give yourself exactly what your own thyroid would be giving you. If you have issues, it’s usually due to a cortisol or iron problem, which need to be corrected. More info here.
  5. COMPOUNDED THYROID: Be careful, say experienced patients, when your doctor prescribes this! It’s far more expensive, and the less expensive prescription pill forms of NDT work well anyway. Also, some patients have been shocked to find out that what they were taking was compounded synthetic T3 and synthetic T4. Beware, say informed patients, when your doc says “it’s specially formulated for your particular needs” (for most, this is a mute point. The prescription pills for fine.) or “time-released is good” (Not, say patients, who found it runs out far too quickly).
  6. OVER-THE-COUNTER THYROID SUPPLEMENTS: Just a few years ago, patient experience found them to be weak substitutes for prescription desiccated thyroid meds. But the last few years saw the introduction of good OTC products which patients report have done them well! ThyroGold brought out by the late Dr. John C. Lowe is one, even if quite strong and the need to pour out the contents and divide.
Of course, there can be less common ways to use the above. For example, those with peripheral tissue resistance can be on high doses of desiccated thyroid (to get the benefits of all five hormones) along with added T3. And there are more.
READ the stories of two real people who found out the hard way that Synthroid can end up biting you in the butt later: DEANNE and GENE.

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YES VIRGINIA, YOU CAN HEAL YOUR ADRENALS WITHOUT USING HC!

And just as patient experience has revealed great information about a variety of thyroid treatments, the same patient experience is breaking ground with adrenal treatment as I write this! Namely, a small but growing body of patients have been doing the T3 CIRCADIAN PROTOCOL FOR ADRENALS, as first discovered by UK patient and author Paul Robinson, and it’s working!

And even more exciting? It’s working with natural desiccated thyroid, not just T3!

Now of course, Paul doesn’t feel that “healing” is the right word. He prefers that it’s “promoting better adrenal function”. He’s right. But “healing” fits when one has gone from the misery of low cortisol, to the glee of better adrenal function….and achieved from just several weeks of doing the protocol correctly, as compared to a few years with the use of HC and its problematic side effects.

To read more about this exciting new discovery, go here. You’ll also see the link to order Robinson’s book, of which Chapter 16 covers this use of T3 in promoting better adrenal function.

 

9 replies