Related conditions due to hypo Archives - Page 3 of 4

Have you tested your B12? It’s a deficiency thyroid patients need to catch.

(This blog post has been updated to today’s date and time. Enjoy!)

In 2009, I wrote an article titled Ten Reasons You May Still Feel Bad, which is still just as applicable today as you are reading this! Nearly every hypothyroid patient can have some of those ten problems, and if so, they need to be discovered and corrected.

And one of those issues was low B12.

B12, also called cobalamin, is a water-soluble vitamin which has a key role in cell metabolism of your entire body, giving you energy, sharpness in your brain, and healthy nervous system functioning.

No one is capable of producing enough B12 on their own. You have to get it in your diet, or supplements. In food, it’s found in most red meats as well as fish and poultry. Liver is especially high! You’ll also find it in eggs and milk products, though it’s less absorbable if the latter has been heated.

And unfortunately, a certain percentage of hypothyroid patients have low levels of this important vitamin.

One main reason that thyroid patients get low is due to the low stomach acid we get from either being undiagnosed or underdosed due to the TSH lab test, or undertreated with T4-only products like Synthroid or levothyroxine.

Hashimotos patients may have inadequate levels due to gluten and the destruction it can cause on the stomach–another reason the majority get off of gluten!

Symptoms of low B12 can vary from person to person, but can include numbness and tingling in your hands or feet, tremors, poor reflexes, tongue soreness, leg pain, or difficulty walking with balance. Psychologically, you may have memory issues, confusion, or depression. Young women may have difficulty getting pregnant due to low B12.

When doing lab work, we saw it needed to be in the upper end of the range.

In other words, several of us with mid-range B12 still saw symptoms related to inadequate levels of B12. Getting it up in the upper quarter took those symptoms away.

To correct inadequate levels of B12 in working with our doctors, we used high oral B12 in pill or liquid versions (methylcobalamin is the recommended form of B12 for most; others use the hydroxy version), or B12 cream, or injections by your doctor (especially if you have pernicious anemia). It’s also recommended to increase your consumption of meat and dairy products, which can be rich in B12.

I highly recommend the book Could It Be B12? An Epidemic of Misdiagnoses by Sally Pacholok, R.N. and Jeffrey Stuart, D.O., who are spearheading B12 awareness.

Have high B12? That can be related to the MTHFR mutation

Turns out that a high percentage of folks can have a mutation of the MTHFR gene, which makes it hard to break down B12. To learn more, read the MTHFR page on STTM.

To read more, go here: https://stopthethyroidmadness.com/b12

Have you found yourself with low B12? Tell us your symptoms, how you treated it, and how long it took to stop the symptoms.

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March 18th 2009 49 replies

I met hundreds of millions of women today…in one woman

bunny Michelle, 40-or-50-something, came over to my house today to go over some paperwork. I hadn’t taken my Armour yet, and I said “Excuse me, I need to pop my thyroid meds under my tongue.”

“Oh, I take thyroid meds, too. Synthroid” she explained as she was writing on the papers with her pencil.

Now when I hear something like that, being who I am, I’m like a bear in a china cabinet who suddenly smells honey. So as not to overwhelm, I casually say “Oh, I used be on Synthroid.” And after a long pause while we are going over the paperwork, I say “Did you know there’s a worldwide patient revolution going on against medications like Synthroid?”

At the point, she raises her head in curiosity.

I then stick my paw in the honey: “You and I and millions have been put on meds like Synthroid and then told we are “normal” because the TSH says so. But all of us have continuing symptoms of hypothyroidism. It’s a lousy medication. “

And when I laid out what those continuing symptoms were, her eyes got as big as saucers and she was shaking her head up and down in recognition. “Depression, rising cholesterol and blood pressure, easy weight gain, fatigue, less stamina than others, dry hair and skin, feeling cold, etc”, I told her.

And the most profound aspect of Michelle? She lives her life like the Energizer Bunny, going and going and going. She told me she often doesn’t get home until 6 pm doing her job, and she clearly has a lot of professional responsibilities.

But does an active Michelle mean that Synthroid works and is just as good a thyroid treatment as desiccated thyroid? You know the answer. She revealed that she’s quite tired when she comes home, wishes she had more energy, and still has issues with her weight, even though she lost some when she got on Synthroid.

And reading between the lines, it was clear that Michelle is probably on an anti-depressant, a statin, and a blood pressure medication. And…she clearly has an adrenal problem that’s only going to get worse. She has a terrible time falling asleep at night (high cortisol), and is very sensitive to light and noise (high or low cortisol).

Suddenly it dawned on me. I am sitting across hundreds of millions of women, and some men. I am listening to how millions live their lives–making a living, maintaining a home, loving their spouses and children, interacting with people. But underneath it all, it’s not a pretty picture. They cope, and they cope again. And they dish out their money for more medications to treat the very symptoms caused by an inferior medication. And as they age, they’ll pay each of their millions of prices, just as my mother did, and as I was headed. Energizer bunnies with faulty batteries.

P.S. Barack Obama has a health care reform plan. Will it change the lives of those 50 million with thyroid disease in the US, or will it only continue this T4-only travesty and health care scandal? Are we headed in the same insane direction as the UK when it comes to T4-only? Express your opinion.

March 9th 2009 15 replies

Dr. Richard B. Gutler’s comment is disgusting!

shameonyou And again, on the heels of my post below about Sheila Turner of the UK’s TPA (be sure and read it–good comments, too) comes a blog post by Dr. Richard B. Gutler of California, an Endocrinologist (why are we not surprised). And his message?

1) That the NHS is correct to ban Armour

2) That Armour is a “second drug” that causes harm.

3) That it’s only “fringe” patients who don’t do well on T4

4) That none of the above patients are hypothyroid

5) That they don’t feel well on T4 because of other reasons

6) Therapy is not needed if the TSH is below 10

You know what patients have a fantasy about, Dr. Gutler?? That folks like YOU become hypothyroid and are put on T4. You’ll then see your blood pressure rising, or your cholesterol doing the same, or depression and fatigue setting in, or your adrenals overworking, or weight gain and a host of other continuing symptoms of hypothyroid while on T4, whether right away or down the line. OH WAIT. Those are all due to something else. Gee, let’s put you on anti-depressants, statins, blood pressure meds, pain meds, anti-anxiety meds since those “other” reasons never seem to be fixed. OH WAIT. They DO get fixed when these same patients are switched to Armour or any other desiccated thyroid, and have addressed their low cortisol or low ferritin thanks to years of undiagnosis or undertreatment with T4.

SHAME ON YOU.

p.s. It’s because of opinions like yours that the Stop the Thyroid Madness book has been sent to patients in over 16 countries, so far. People want to find out the TRUTH.

Update: you can read Sheila’s and UK-TPA’s response here: https://stopthethyroidmadness.com/uk-tpas-response-to-the-rcp/

See more from Sheila that gives UK patients hope: https://stopthethyroidmadness.com/relationship-between-the-RCP-and-MHRA/

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February 22nd 2009 18 replies

A real life horror movie: suckered by Big Pharma marketing. Part 2

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Recently, after we watched a semi-scary movie about being suckered, a friend brought up my blog post of last July where I described a terrifyingly-real horror movie.

The plot: stunningly convince hundreds of millions of individuals worldwide that what is obvious, isn’t. i.e. it’s all in your head, you are adequately treated on Synthroid, Levoxyl, Eltroxin, Norton, et al, and not only that, we’ll bandaid your continuing problems with more medications.

A second plot: also completely hoodwink those with top notch higher medical educations and experience by churning out the the exact same poppycock, and reward their stupidity with gifts.

The central villian: Big Pharma, followed by the doctors who bought the lie

Exactly a year ago this month, Science Daily came out with an article, citing two York University researchers who estimated that the U.S. pharmaceutical industry spends almost twice as much on promotion as it does on research and development, contrary to the industry’s claim. In other words, the researchers estimated that $57.5 billion in US dollars was spent on pharmaceutical promotion in 2004–the year they were studying. Yes, I said BILLION.

Breaking that down, Big Pharma spent approximately $61,000 per physician in promotion of their products. And they concluded that both figures were UNDERestimates. In other words, they concluded that the US pharmaceutical industry is marketing-driven rather than “life-saving”.

And adding fuel to the fire: most doctors believe every thrust of that marketing. I recently participated in comments with other wonderful patients in response to a DO/Endocrinologist, Dr. Thomas Repas, who has clearly bought the Big Pharma marketing when it comes to levothyroxine. You can read his posts and our comments here, here, and here. Dr. Repas is exactly the kind of doctor who has starred in our horror movie, and the kind of doctor that patients have lamented about for years. Read the Give Me a Break list of comments made by doctors, as well as further comments on the January 1st blog.

But Dr. Repas is in good company. Doctors have believed the Big Pharma lie about T4-only medications, and against desiccated thyroid like Armour, Naturethroid, etc. for 50 years. In the patient-to-patient Stop the Thyroid Madness book, you can read about the first tableting of Synthroid in 1955 and the strategic and successful promotion of T4-only, in spite of the fact that T4 was known to be unstable for decades.

And today, more than 50 years later, very few of us have been untouched by the Big Pharma push for levothyroxine T4-only treatment. My own mother was suckered, and I was suckered. And until patients started to make a huge push for desiccated thyroid treatment the last few years, nearly every single doctor around the world had been suckered.

We still have a way to go. But we’ll get there, bit by bit.

January 30th 2009 5 replies

Puff. Puff. Puff. If you are a cigarette smoker & hypothyroid, you might want to read this!

(Though this post was originally written in 2008, it has been updated to the present day and time! Enjoy!)

Who, as a smoker, hasn’t heard how deleterious tobacco smoking is for your health. Not only will you acquire health problems directly related to smoking, but your life is shortened by 10-15 years average according to statistics. My own father died at age 63 directly related to his smoking i.e he got emphysema, then lung cancer. (Update: Discovered from doing my own genetics that I have inherited a mutation which can cause me not to break down Nicotine well. This may explain why my Dad died so young from smoking!)

But in spite of strong reasons to quit, most smokers will tell you it’s NOT easy. Why? Because the nicotine in tobacco is the addictive bogeyman. Nicotine stimulates those pleasure centers in your brain, besides being a substance which “gets you going” by releasing both blood sugar and adrenaline. The American Heart Association states that “Nicotine addiction has historically been one of the hardest addictions to break.”

But for hypothyroid patients, tobacco smoking presents another whammy.

Namely, smoking may be stressing your adrenals over and over. And with adrenal problems being a common side effect of treating hypothyroidism with T4 meds like Synthroid, Levoxyl, Eltroxin, et al, as well as being dosed by the lousy TSH, you’ve got a third reason to fall into adrenal issues if you are a smoker.

Additionally, another factor in the difficulty of quitting is that cortisol decreases when you try to quit.

A 2006 research report found that the lowered cortisol after quitting is associated with smoking relapse and with reports of increased withdrawal severity and distress. So, when you already have adrenal stress, and you quit smoking–a double whammy against being successful.

Does being a smoker affect the TSH lab test?

Yes, in such a way that smoking will lower your TSH, which can hide the fact that you can be undiagnosed hypothyroid, or undertreated. See an interesting research study on smoking and your TSH here.

What’s the solution?

If you don’t have adrenal fatigue and want to quit, it may be wise to have a good adrenal support on hand, such as adrenal cortex or any quality OTC adrenal product at your health food store. If you DO have adrenal fatigue, staying away from cigs may require adding additional cortisol to your daily amount. Chapters 5 and 6 in the STTM book have good information to help you with cortisol support. Also be prepared that by quitting, your hypothyroid state may be revealed, or may get worse.

Are you a smoker with hypo? Don’t hesitate to respond to this post with your experience. We learn from each other!

READ DEBORAH’S STORY ABOUT HER ATTEMPT to STOP SMOKING.

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October 14th 2008 91 replies

Category: Related conditions due to hypo