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Category: thyroid tidbits

More Spring 2013 Thyroid Tidbits!

Yellow FlowersOn the heals of the bat-guano Thyroid Tidbits just a few days ago, here are more for your reading pleasure and enlightenment:

Well, well, well…Endocrinology underscores what we already know!

In a March 2013 article titled “Subclinical hypothyroidism predicts cardiovascular mortality in NHANES”, it states “Subclinical hypothyroidism is a strong independent predictor of cardiovascular mortality in a healthy population at baseline, a national study indicated.”

A good realization about hypothyroid and heart health, but we have to wonder if they really understand what “subclinical hypothyroidism” is, because we, as informed thyroid patients, know it’s NOT waiting until the pituitary hormone TSH rises to 3 or 5 or above, since MANY of us are hypo years before the TSH rises high enough to reveal it…and some report NEVER having a raised TSH even though their symptoms scream hypothyroid for years!

And do they yet understand that thyroxine is NOT going to make that much of a difference in our heart health…as exactly happened to my Synthroid-treated mother?? *See*https://stopthethyroidmadness.com/healthy-heart-with-t3/

B12 Dots may be a better treatment for some!

Thyroid patient Marilyn emailed me the following interesting information:

I had a B12 level of 189 five years ago. In the beginning, I tried the mega-doses of B12, but they did nothing for me, and I had to take the monthly shots. My thyroid specialist recommended B12 Dots (found in health food stores or organic sections of stores). Put under your tongue, they are absorbed into the blood stream directly. One a day and I am back to normal. No more shots and no more big pills to take. I use the 500 mcg dot, but I know they also make a 5000 mcg dot.

And by the way, an important discovery patients made years ago: mid-range B12 is not adequate. They needed to get to the upper quarter of the range to fully rid themselves of B12-related symptoms.

Costco has it ALL WRONG!

From thyroid patient Florence who emailed me:

I received The Costco Connection magazine in the mail for April 2013. There is an article on underactive Thyroid that refers to the TSH as the “gold standard” and states if someone continues to have symptoms on T4 medication when the TSH is within the desired range then the amount of medication isn’t the problem. Please contact The Costco Connection magazine and let them know why the information the author received from an Endocrinologist at the Diabetes Center at Mercy Medical Center (Baltimore) is incorrect. 1-800-955-2292

Chronic Fatigue Syndrome: the world-is-flat syndrome

Have you ever been told you have CFS, ME (Myalgic Encephalopathy), or CFIDS? Because It’s past time to lay this out on the table, because Chronic Fatigue Syndrome just may be one more bungling diagnosis by our medical community for more than twenty years! So it’s time to have an open mind, carefully considering history and facts.

Yes, there are always exceptions to everything, but overall, there are strong clues as to what most cases of CFS spring from—a hypothyroid state. https://stopthethyroidmadness.com/chronic-fatigue-syndrome

2013 study: direct evidence about the efficacy of Vitamin D!

This newest study, just reported in Science News, is said to provide direct evidence that optimizing your vitamin D levels plays a large role in improving your immune system, besides lowering your risk for a host of diseases! That is good news for thyroid patients, especially Hashimotos patients, who are always working to optimize their poor levels due to low stomach acid.

It states that the “vitamin D status of healthy adults significantly impacts genes involved with a number of biologic pathways associated with cancer, cardiovascular disease (CVD), infectious diseases and autoimmune diseases.”

Why you need to go to bed when your body says NOW!

Dr. Lam has always stated that we need to go to bed by 10 pm. Why? He explains that “This is because our adrenal glands kick in for a “second wind” to keep us going from 11 pm to 1 am. This puts tremendous stress on the adrenals.”

And we now have proof by patient reported experiences as to how important going to bed at the right time is! One gal with adrenal fatigue and low cortisol, and who was working with the T3CM, stated she went on vacation with her family. The vacation was to an area that had no TV, and definitely no stress. And the family just went to bed by 10 pm-ish…and they all slept well. Lo and behold, she stated she did SO much better with the T3CM, getting far better results.

The message was clear: going to bed at a reasonable time can do wonders for your adrenals.

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Warning!! STTM is about bat-guano crazy conspiracy theorists…and more Thyroid Tidbits!

ANNOUNCINGACELLA’S NP THYROID IS ON BACKORDER

It’s a back-handed compliment. i.e. Acella‘s brand of Natural Desiccated Thyroid has been in great demand! But…success can equal problems, because they weren’t keeping up…or that’s how we understand it. So when you go back to get a refill, the pharmacist may try to put you another brand if they are already out. So hang tight. Acella states that they will be back into better production by the end of April.

DO YOU REALLY NEED COMPOUNDED DESICCATED THYROID?

Progressive doctors have been having a love-affair with compounded medications for several years. And for some medications, as well as for patients who are sensitive or allergic to certain fillers, it makes complete sense! (Compounded means that the pharmacist “combines, mixes, or alters ingredients in response to a prescription to create a medication tailored to the medical needs of an individual patient”).

But…most thyroid patients are discovering that they really do NOT need compounded NDT and that is especially true for “slow release” compounded NDT. First, compounded NDT is far more expensive than the prescription brands. Second, the T4 in desiccated thyroid is your “natural slow release” of T3 throughout your day. So it makes financial sense to go with the prescription brands if you have no sensitivities or problems with fillers. And even if you go with compounded….you don’t need slow-release!

YES, THE STTM WEBSITE HAS BEEN UPDATED, plus more pages!

In case you didn’t notice, there’s a new look to STTM. Part of it is because we needed STTM to be far more user-friendly on your cell phones. I think you’ll like what you see. You’ll also find links at the TOP of each page instead of to the left.

There are also new pages from the last several weeks: one on parathyroid issues, especially hyperparathyroidism (i.e. if you have high calcium levels, you need to read this page); another is an issues related to hypo landing page showing you several conditions which can outright be related to your hypothyroidism and you may not even realize it (like fibromyalgia); another about problems that can occur if you overeat high oxalate foods (as happened to ME!); how hypothyroid patients can have low stomach acid and its consequences (like acid reflux and poor absorption issues)….and you can always keep up with What’s New on STTM.

ALL THE BUZZ ABOUT MTHFR

If you haven’t heard about it, you probably will. Because lots of thyroid patients are finding themselves with a defect in a particular gene called the MTHFR, which is the acronym for “methylenetetrahydrofolate reductase” gene (methyl-ene-tetra-hydro-folate-re-duc-tase). This gene is supposed to make the MTHFR enzyme. But if there’s a defect, the enzyme doesn’t work right and you can be left with a multitude of health issues (or see them in your ancestors) including heart disease (and high homocysteine levels), breast cancer, other cancers, addictions, miscarriages, chemical sensitivities, IBS, strokes and so much more. Those with this defect can also find themselves with high levels of mercury, or iron, or other toxins. Go here to read what it’s all about.

BERBERINE. INSULIN RESISTANCE, and THYROID CANCER

Since it’s pretty obvious to me that I have insulin resistance (i.e. it takes twice as much insulin to do the job, which means more fat storage), I was pretty excited when I learned about Berberine. It’s a natural alkaloid salt found in a variety of different plants and it’s stated to make your insulin more effective, thus your blood sugar levels can come down. I notice that some folks are using it in place of Metformin, as well, and reporting better glucose levels. It’s supposedly been used for centuries in Ayurvedic and Chinese medicine.

***But there’s another interesting possibility about Berberine: studies have shown it to be effective in reducing thyroid cancer cells, here. Talk to your doctor about it before assuming you can use it for cancer in lieu of other treatments, please.

AND ABOUT THE TITLE OF THIS BLOG POST...

Bet ya didn’t know that STTM is bat-guano crazy, did ya?? lol. This misinformed comment was found as a comment of a random blog post, and tells me that some still don’t get that this isn’t about conspiracy or theory. This is about patients worldwide who have either found that T4-only meds weren’t doing the job in their own degree and kind, or….patients were getting bit in the behind years later thanks to the inadequacy of thyroxine. Even worse, doctor who have been diagnosing or treating by the TSH pituitary hormone were leaving patients sick!

So what you have on STTM is more than ten years of GOOD patient experiences, the good and the bad. LEARN from it, and expect to take it into your doctor’s office to help them catch up with us!

STTM BOOK IS COMING SOON IN SPANISH

First there was English, then came Swedish, then came German….and later, you’ll see Spanish! I’ll announce it when it’s out. I also plan on updating a few parts of the current revised STTM English book by Fall–just some corrections here or there. For example, the current one states that the percent saturation should be 25 – 45% for women, but we know that most women, when optimal, fall somewhere around 35% and definitely not 25%. So I’ll correct that, because somehow, it didn’t get in Addendum C of the current revised edition! Get your book here…and consider two or three, because your shipping rate is much better. Give the extras to a friend or loved one.

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Thyroid Tidbits: Men with low iron, Reverse T4 (yes, I said it correctly), Inflammation in thyroid patients, plus more

(No, the tatoo isn’t mine. It belongs to a gal who says STTM helped changed her life. Amazing and brave! 🙂 )

MEN CAN HAVE LOW IRON, TOO:

I’ve seen a few hypothyroid men who have found themselves with low iron. In fact, either iron anemia is growing in men, or we’re just hearing from them more thanks to the internet.

And remarkably, it has become personal for me. Turns out my own husband is very low, which explains the fatigue he had been experiencing lately. Sadly, taking iron pills gives him a headache, so he will eat high-iron foods daily, and will be exploring Floradix, a liquid herb-based iron. Men, get all the needed iron labs!

REVERSE T4 (yes, I said it correctly)

I’ve been having an email chat with a scientifically-minded guy named Brian who also has a sister with a major in bio-chemistry. And something dawned on both of them concerning “levothyroxine” which is the synthetic term for T4. The prefix LEVO means the “left-hand” version of a molecule, and thyroxine is the biological term for the real T4. Says Brian: “Levo-thyroxine means it has exactly the same atoms in exactly the same order, but not the same shape (handedness), so if enzymes or proteins have to chemically “fit” it to work, they may not be able to. He concludes this can be one reason being on synthetic T4-only does not work, and knew it was alluded to by Dr. Mark Starr.

But Brian continues: In just the same way that levothyroxine is the mirror-image or “left-handed” version of regular thyroxin, RT3, or Reverse T3, is the mirror-image or “left-handed” version of T3. If we were consistent with our terminology, in other words, levothyroxine would be known as “Reverse T4”. Says Brian, just as Reverse T3 is biologically inactive , so is Levothyroxine, thus “Reverse T4”. I love it!

CHECK OUT WHAT THIS MEDICAL TRANSCRIPTIONIST SAID:

In a facebook discussion, a female medical transcriptionist has had a realization. Namely, in almost every report she is transcribing into text or digital format, a patient with the diagnosis of hypothyroidism also has a medical history of depression and/or anxiety. You can read about depression & anxiety here. Of course, no patient who is informed is surprised! They are HYPOTHYROID symptoms. And she then notes the prescription ordered by the doc: Synthroid. WAKE UP DOCTORS. You are only dooming your patients to a lifetime of depression, anxiety and far more.

WHY MANY OF YOU HAVE INFLAMMATION (and don’t even know it), WHAT IT DOES, AND HOW TO TREAT IT

One thing I see a lot when doing phone consultations, as well as on thyroid patient groups, is evidence that someone has low-grade inflammation. In fact, research has already shown that a large body of folks with hypothyroidism have higher levels of CRP (C-Reactive Protein) which is a lab test marker of inflammation. That inflammation, in turn, puts you at a higher risk of heart disease.

Another clue that you have an inflammation problem is having higher ferritin levels (i.e. ferritin looks great, or is too high) along with poor iron serum/% saturation lab results. In other words, in the presence of chronic inflammation, your iron will be diverted to your ferritin iron storage, and less will be in your serum and saturation. You can also find yourself with very low TIBC (Total iron-binding capacity). The TIBC is measuring the protein “transferrin”, made in your liver, and which transports your iron through your body. If this is the case, you can’t take high levels of iron supplementation, as explained on the above ferrritin page and more in the book.

What do you do? 1) Treat your hypothyroidism properly–a huge step in lowering that inflammation–with desiccated thyroid, NOT Synthroid. (Read the Things We Have Learned page on STTM, or even more details in Chapter 3 in the new Revised STTM book). 2) Treat proven low cortisol with HC or hydrocortisone. Don’t guess! Do a saliva test!) If saliva testing reveals you have adrenal dysfunction, cortisol supplementation will help counter inflammation. (Read the Adrenal Info and How to Treat page on STTM, or more details in Chapter 6 in the new Revised STTM book.) 3) Use Krill Oil as a supplement. Krill Oil is an even better marine fish oil with rich amounts of Omega 3 fatty oils, and research with even a low dose of 300 mg proves that it does a bang-up job in reducing inflammation as well as pain in joints associated with rheumatoid and osteoarthritis. My own husband is on 1000 mg a day.

HAVE THE REVISED SECOND EDITION OF THE STTM BOOK YET? IT’S WORTH IT.

I am frankly extremely proud of the Revised Second Edition of the STTM book. In spite of being a lot of hard work, it is good to see all the additions, details and corrections throughout the entire book. There is much more on labs and how to read them, ferritin and iron, adrenal dysfunction and how to treat it, reverse T3 and how to treat it, plus a completely new chapter on good supplements and foods. I added a little more hidden humor, which was fun. There are now 36 more pages, too, and at the same price. You can see more about the book here. The book is ideal since you can bring that right into the doctor’s office with the information highlighted and bookmarked. As far as Kindle or other readers, yes, I’m already aware that some of you have requested it. But right now, it’s the book only. But I’ll make announcements in the future as to what might be coming up.

P.S. Seeing this blog post via the email notification? If you have a comment to make, click on the title, which will take you directly to this blog post on the net, and comment there.

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Thyroid Tidbits that just might tickle your fancy, give you hope, or make you laugh in derision (2010)

A GOOD REPORT from 2010 ON THIS OVER-THE-COUNTER THYROID SUPPORT

A gal recently used the Contact Me form on STTM to ask if I’d ever compiled patient experiences on ThyroGold–a nonprescription, over the counter, desiccated thyroid formulated by Dr. John C. Lowe and made from the thyroids of New Zealand cows who are pasture-fed. I said no–haven’t heard yet from anyone on it long enough.

But just thirty minutes later, here comes an email from a gal who has been on it four months, feels very good with many noted improvements. She is so thankful, and stated STTM gave her the confidence to feel she could work with ThyroGold. And lo and behold, her TSH-worshipping, Synthroid-prescribing doctor is watching her progress, and pleased.

Update to the present: Always check all the ingredients in any OTC thyroid med, and stay in touch with your doctor. This is just information.

COCONUT OIL AND ALZHEIMERS

Many a thyroid patient have heard of the benefits of coconut oil, especially as a food product which can stimulate your metabolism.

But a Dr. Mary Newport discovered in 2008 that just 4 teaspoons a day of virgin coconut oil just might have the right ingredients–medium-chain triglycerides which produces ketones by the liver–to stop the onset or even reverse some of the damage caused by Alzheimer’s. She witnessed this in her own husband. You should read her story here, and more on the Coconut Ketones website here. Since my mother, and her father, both got Alzheimers by the time they were eighty, this especially interests me!

In fact, coconut oil just night have the same successful results with Parkinson’s disease, Huntington’s disease, multiple sclerosis and amyotrophic lateral sclerosis (ALS or Lou Gehrig’s disease), drug-resistant epilepsy, brittle type I diabetes, and type II (insulin-resistant) diabetes. WHOA!!

(But do work with knowledgeable doctor, please)

Says Dr. Newport:

Our cells can use ketone bodies as an alternative fuel when glucose is not available. Brain cells, specifically neurons, are very limited, more limited than other cells, in what kinds of fuel they can use to function and to stay alive. Normally, they require glucose (sugar), but they can also use ketone bodies. Humans do not normally have ketone bodies circulating and available to the brain unless they have been starving for a couple of days or longer, or are consuming a ketogenic (very low carbohydrate) diet, such as Atkins. In Alzheimer’s disease, the neurons in certain areas of the brain are unable to take in glucose due to insulin resistance and slowly die off, a process that appears to happen one or more decades before the symptoms become apparent. If these cells had access to ketone bodies, they could potentially stay alive and continue to function.

ARE ENDOCRINOLOGISTS FROM ANOTHER PLANET?

A patient on STTM’s Facebook page recently reported that since her HMO would only allow her to see an Endocrinologist, off she went to the appointment.

And what does her new Endo tell her? Ready? That her TSH was fine, low T3 & T4 meant nothing, and there is NO evidence that adrenal fatigue is real (in spite of the fact that when she tries to raise her Armour, her heart goes wacky–a sure sign of stressed adrenals). She concluded that there is “nothing like being lectured on things when you know more than they do.” She felt forced to keep her mouth shut by his reactions if she did try to teach him something, and just resigned to “agreeing with everything he said and left”.

And her summary of that Endo escapade? “My dose of Armour is right, makes no difference I’m fatigued, had to quit my job, leg swelling so bad I can hardly get around. None of that mattered. ONLY the TSH test.”

And unfortunately, her comment about knowing more than the doctor is very, very common now thanks to STTM and patient groups. All we can hope for are those doctors who are humble and open-minded to what we now KNOW to be true!

REMEMBER ME MENTIONING THE GAL WHO PUT THE STTM BUMPER STICKER ON HER HUSBAND’S CAR?

Well, he got followed into the Barber Shop this time by a male nurse! So now, he wants something to hand out to these folks who keep approaching him. haha. So she has made copies of the STTM FLYERS and he’ll have them in the car from now on. This is reaching people…one by one!

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