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Read these 10 things you can do to live a better life as a thyroid patient!

STTM 10 things

(This post was updated in 2015! Enjoy!)

In my most recent post of May 21st, 2012, I showed you two examples of very poignant emails I get weekly. And the second one revealed how hard it can be when you not only have very little money, but an uninformed doctor who ends up keeping you sick.

Yesterday, I received another email from a thyroid patient which simply blew me away, directed to the gal above. But it turns out her words are very appropriate for all of us. Read it carefully and enjoy.

Dear friend,

I am also hypothyroid. I am on Armour Thyroid, but if I couldn’t get it, I would still take the following supplements to try and give my thyroid gland the support and boost that it needs in order to make its own hormones. Please consider starting on one or more of these and see how you feel. I’m listing the most important ones first.

1. Sunlight! We all need sunlight every day. Our bodies make vitamin D3 in the skin following exposure to sunlight. People who are overweight are usually low in vitamin D3. D3 helps the thyroid. D3 from sunlight is the best kind; D3 supplements are not as good. Don’t believe the medical profession when they try to scare you off from getting sunlight, and don’t use harmful chemical sunscreens; just cover up with longer clothing after you have had your desired sun exposure. Vitamin D3 actually has a protective effect against most cancers. Best of all, it’s free.

2. Iodine — it is part of the raw material for thyroid hormone. Buy a cheap bottle of simple iodine tincture and paint a drop on your skin each day with a cotton-tipped swab. It helps in so many ways. Not only does iodine supply the thyroid gland with raw material for hormone, but it is the body’s own natural antibiotic. The neutrophils (specialized white blood cells) each contain a speck of iodine to help fight off microbes. And the eyes and ears work better if iodine is sufficient in the body. The ciliary body of the eye has a rich concentration of iodine. And the little cochlea of the inner ear contains fluids — perilymph and endolymph — which contain iodine as well.

3. Selenium — a co-nutrient with iodine. Iodine should always be taken with selenium. I get my selenium in the form of pumpkin seeds, 2 tablespoons each day.

4. Magnesium — I make my own magnesium oil and apply it to my skin daily. Janie will tell you how wonderful magnesium oil is — it helps to burn calories by supplying the “flame” for metabolism. And it’s very anti-inflammatory, with no side effects. My recipe is as follows: Stir a cup of magnesium chloride flakes and a cup of pure water together in a bowl for 5 minutes until dissolved, then pour into a clean plastic spray bottle (like what you might use for ironing). The Zechstein Sea magnesium chloride flakes are the purest; they are from a mine underneath the Netherlands, an ancient sea of 250 million years ago. A 1-kilo bag of Zechstein magnesium chloride flakes should last you more than a year. (From Janie: you can also use a good quality magnesium supplement, which I switched to after this date!)

5. Green leafy vegetables, a dietary source of magnesium — these are helpful in so many ways and are great either raw or cooked. If you cook them, top them with a little salt, a squeeze of lemon juice and a splash of olive oil.

6. Vitamin C — helps the liver to convert T4 to the active T3 hormone. I always have more energy when I remember to take 500 mg of vitamin C twice daily.

7. Coconut oil — really! It supports the thyroid and helps with weight loss. Try to get raw or unprocessed coconut oil, but in a pinch any coconut oil is helpful. Take 1-3 tablespoons per day. Stir it into yogurt and chill it if you don’t like to swallow oil.

8. Avoid refined carbohydrates like the plague, please! They are not food at all. It is impossible to lose weight if one is eating refined cereal, bread, pasta, pizza and sweets. These trigger the body to produce more insulin; the insulin then triggers the cells to store the calories as fat. This is from the book by Gary Taubes, Good Calories, Bad Calories.

9. Avoid using harmful chemicals to clean your house; use vinegar and baking soda for most cleaning jobs. Bleach, ammonia and other chemicals are extremely harmful to your thyroid gland; chlorine displaces iodine in the body.

10. Simplify your personal care supplies to further reduce your toxic exposures (this saves money too). Throw away the fluoridated toothplaste, and brush with baking soda. Hydrogen peroxide 3% makes a good dental rinse. Baking soda dusted under the arms is an excellent and nontoxic deodorant. If your skin is sensitive, mix equal amounts of baking soda and cornstarch and use that as deodorant. Use a soap with a very simple formula and no chemicals. Try to find a shampoo without SLS or parabens (carcinogens). To save even more money, stop using shampoo and wash your hair with a baking soda solution and rinse with a mild vinegar solution. Many people say their hair is lovely with this treatment; google “no poo” to learn more. If you have dry skin, massage in a drop of coconut oil. Don’t use commercial creams or lotions; don’t put anything on your skin that you wouldn’t eat.

I wish you all possible success with your health. Even if you haven’t much money, there are things you can do to feel better. Please let Janie know how you are doing in a few months’ time, so she can let us know! Your sisters and brothers in the STTM community will welcome your news.

All the best, and don’t lose hope. Better days are ahead. Lots of hugs,

Yvonne in Cyprus

Yvonne is an 57-year-old American whose background is in medical transcription, writing and editing. She is constantly reading in the medical journals and websites, looking for natural and inexpensive ways to improve health. She and her husband eat a Mediterranean diet (organic when possible) with good fats from olive and coconut oils, nuts and cheeses. She thinks every family should have some type of garden, even if it’s just a few herbs in a flowerpot.

Have any other recommendations for someone who is poor with thyroid disease, plus has a doctor who isn’t helping? Let others know!

P.S. from Janie: I already do many of the above. Do you? I’m big into Vit. C, magnesium and selenium. I also use liquid Vitamin D. I use baking soda for deodorant and non-fluoride toothpaste. I only use organic lotions and soaps. I outright use one tablespoon vinegar in my morning drink, as well as MCT oil (it’s what’s in coconut oil). I don’t avoid refined carbs totally (I’m too much of a chocolate freak), but I do avoid them in many places. And I love the sun.

Additional recommendation from Janie:

I think it’s also important to add that in addition to all the ways you can live a healthier life, also consider adding T3 to your T4, or look into natural desiccated thyroid with it’s five thyroid hormones. The latter is even cheaper than T4-only. Updating your thyroid treatment is not based on opinion! It’s based on the experiences of patients worldwide who found they got much better results, and which Stop the Thyroid Madness is about–worldwide experiences and wisdom!

Namaste Janie

* Check out 12 issues that can cause issues with conversion of T4 to T3: https://stopthethyroidmadness.com/2015/01/20/12-ways-make-thyroid-treatment-worse/

* Have you Liked the STTM Facebook page? Get daily tips and inspiration! https://www.facebook.com/StoptheThyroidMadness

Taken off Armour; put on T4–heartwrenching! And young Australian’s plea

STTM emails

(This page was updated in July 2015! Enjoy!!)

I get a lot of emails, and some are quite heart-wrenching. And though I can’t get into email advice and still have time to do what I do, I so appreciate reading what I get.

Here is one from a gal who, after ten successful years of Natural Desiccated Thyroid, was put on Synthroid and went totally downhill! Mental health issues like bi-polar, excess weight gain and more. THIS is why patients have to become knowledgeable (which is what Stop the Thyroid Madness gives you), instead of putting all your eggs in the doctor’s basket. And yes, she agreed to let me post this.

Hi Janie,

I just found your website and I’m going to order some copies of your revised STTM book. I’m nearly forty-eight years old. I was diagnosed with hypothyroidism in 1985 shortly after the birth of my first son. My doctor put me on Armour, and for ten years I was fine. When my doctor retired, I transferred my medical records to his son’s newly opened practice. His son took me off of Armour and put me on Levothyroxine, although I was having no problems, because he said it’s “better”. He basically used the same wording you quote on your website, “Armour is ‘unreliable’, ‘inconsistent’, ‘dangerous’, ‘outdated’…”. Naively, I trusted him.

Since starting Levothyroxine and subsequently, the brand-name Synthroid, I have been diagnosed with the following:

Morbid obesity (I have gained 100+ pounds in 15 years with no prior history)
– Menstrual problems (heavy, prolonged, painful periods)
– Uterine fibroids
– Bipolar Disorder
– Generalized Anxiety Disorder
– Sleep Apnea
– Posterior Tibial Tendonitis (plantar fascitis)
– Osteoarthritis

I was beginning to believe that I have fibromyalgia and chronic fatigue syndrome!

Without going into a lot more detail, I’m taking nine prescriptions for these health problems. Now I realize that most, if not all, of these “health problems” are actually symptoms of improperly-treated hypothyroidism.

All I can say is, THANK GOD FOR YOUR WEBSITE! I’m going to talk to my doctor and take a copy of your revised STTM book with me. I’m going to make him listen to me. If he won’t cooperate, I will transfer my medical records elsewhere. If I can’t get any satisfaction from any other doctor in my area, I’m going to take matters into my own hands with the help of your book and website. I talked to my psychiatrist today (to get refills for my meds) about my suspicions — he told me that he believes I could be correct (hmmm — that in itself is quite disturbing).

God bless you Janie — I will remain a “fan” forever and I promise to send you additional follow-up information.

And here’s another one from a 24 year old in Australia who badly needed what STTM gives her:

Thank You! As a person who was diagnosed with hypothyroidism when I was sixteen, I’ve been through the works. I used to be a dancer, singer and a gymnast. All of that has gone by the by, and I am now plagued with debilitating bone problems and white hairs. I have been so confused. Then I was angry. Then I was just depressed. I’m twenty-four. I was sitting around, waiting to die. Then I came across your website. I want to say thank you. Thank you so much for being angry and doing something about it. I can never do anything about my condition. I live in Australia, with one, stupid incompetent doctor at my disposal, which I get in to see every few months at the most. I’m poor, and I have never had a medical practitioner listen to me. So I want to say, please, on my behalf, continue to do what you’re doing. Please keep campaigning. So that one day people won’t have to suffer from this debilitating disease.

Sometimes being an Activist for the truth of better thyroid treatment is stressful. But emails like the above are what keep me going! So thank you to these two gals for communicating with me and agreeing to let others to see what I get to see. It’s all from their hearts.

Namaste Janie

* LAUGHING GRAPE PUBLISHING HAS A NEW FACE (in 2012) and a new book (in 2015). Check them out here: //www.laughinggrapepublishing.com

* Join the STTM Facebook page for tips and inspiration: https://www.facebook.com/StoptheThyroidMadness

 

An Endocrinologist peeks through, RAI disaster, and why synthetic T4 is only a mirror image

The clueless Cuckoo’s Nest of Endocrinology just goes on and on, according to repeated negative comments by thyroid patients in groups after they have visited with an Endocrinologist. i.e. you will be put on T4-only and dosed by the TSH, then told you are just fine and only need an antidepressant or statin or BP med.

But in a recent issue of the Clinical Thyroidology For Patients (A Publication of the American Thyroid Association), Volume 5, Issue, 5, 2012, there comes the question: Should patients with no functional thyroid gland be treated with both thyroxine (T4) and triiodothyronine (T3)?

Of course, the question is like asking “Should those starving be given food? ” The article starts out stupid, stating (in bold):

  1. “…the absence of T3 production by the thyroid can be overcome by maintaining higher circulating T4 levels, resulting in normal circulating levels of T3. This is why T4 in the form of levothyroxine is the main treatment for hypothyroid patients”. Patients all too well know how ludicrous this is.
  2. “Recent studies have generally found that there is no clinical advantage in adding T3 to the usual T4 replacement regimen.” What about this study which reveals that there can be inadequacy of peripheral deiodination of T4 to T3 in some, or this study which found no support for the hypothesis that people with symptoms of hypothyroidism but thyroid function tests within the reference range benefit from treatment with 100 µg thyroxine daily, or this study which found that triiodothyronine added to thyroxine improved mood and neuropsychological function, and more.

But then comes the little peek from the door by the MD author after mentioning the 2011 study titled “Levothyroxine monotherapy cannot guarantee euthyroidism in all athyreotic patients.” The concluding paragraph has this in it:

The present study identifies a subgroup of hypothyroid patients, namely those whose thyroid was surgically removed who do not have normal FT4 and F3 levels despite normal TSH levels on T4 alone. What is not shown by this study is whether or not combination therapy (T4 plus T3) is beneficial in these patients. Further studies are needed to sort this out.

Further studies are needed?? They are already out there! Besides, if 99% of Endocrinologists would use the proverbial toothpick to open up the eyelids of their minds, they just might notice all the continuing hypothyroid symptoms their patients have while on T4-only meds whether STUDIES prove anything or not. WAKE UP!!

MAN-MADE SYNTHETICS ARE ONLY A MIRROR IMAGE OF THE REAL THING

Scientists have always been able to synthetically duplicate substances by creating the same mix of molecules, aka a synthetic copy of the original compound. That’s what levothyroxine (l-Thyroxine) is a man-made copy of T4 (Thyroxine). Synthroid is an example. But it’s a mix of the left handed nature-made combination of molecules, aka L-(Laevorotary), along with the synthetic, man-made right handed version, aka D-(Dextrorotary), i.e. the latter is a mirror-image, not a direct image, according to this article.

The author feels it doesn’t act like a hormone. So though your blood will show you have an increased level of levothyroxine, it’s not the same as having an increased level of the natural t4. And of course, we as thyroid patients also know that the body is NOT meant to live on a storage hormone alone, even if it was pure. We also need direct T3 added to that T4. Even natural desiccated thyroid provides direct T3. So with natural desiccated thyroid, we get T4, T3, T2, T1 and calcitonin.

REFLECTION ON WHY RAI WAS THE WORST THING SHE EVER DID

Read thyroid patient Robyn Thompson’s story on why she so regrets doing RAI (Radioactive Iodine), and how her Graves TSI antibodies are now worse than ever before, here: https://stopthethyroidmadness.com/robyns-experience-with-rai-graves/

HOW TO PROTECT YOUR ADRENALS IN THE FACE OF STRESS

I loved what thyroid patient Joy McHargue said to someone on the STTM Facebook group when asked what to do about high stress. Her answer: Pray, salt, magnesium, rest, adaptogens of your choice, Vitamin C, talk about the stress to a calming person, take time away from the stress doing something fun regularly, epsom salt baths, fresh air?

THE STOP THE THYROID MADNESS BOOK IS NOW EVEN MORE REVISED!

I added info about the T3 Circadian Method for Adrenal fatigue, refined information throughout, and cleaned up misspellings. You can order the book at the bottom of any page on STTM, or via the tiny photo.

JANIE’S LATEST INTERVIEW: http://podroom.a2zen.fm/podcasts/krystalya-marie-energy-healing/stop-the-thyroid-madness-with-janie-bowthorpe-on-e

P.S. If you are receiving this via the Email Notification, DO NOT reply to the email to comment on this post. Click on the title of this, which will take you to the actual blog post, and Comment there!

Being in the “normal” range has nothing to do with it, plus three adrenal videos to see

Note: though this page was originally written in 2012, it has been updated to the current date and time. Enjoy!

The famous psychiatrist Carl Jung used to say “To be normal is the ideal aim of the unsuccessful”.

And nothing is ever so unsuccessful when it comes to thinking that a lab result within the so-called “normal” range is ideal.

It’s not.

And unfortunately, when I do phone coaching sessions with thyroid patients, or watch comments made in discussion groups, I hear or see all too many say “My doctor/Nurse Practitioner/Physician’s Assistant/Naturopath says I’m normal”.

And I have to immediately back the conversation up and say “Can you share that lab result and range with me?”

Because as patients have learned: “Optimal” and “problem-free” has nothing to do with just being anywhere is a range. It has to do with “where” in the range one’s result is.

B12: This may not be true for all international ranges, but when it definitely came to the US range or those similarly broad, we found out that ‘mid-range’ still produces symptoms of low B12, and we can confuse them with hypothyroidism, including fatigue and pain. We look for our result to be in the upper quarter, if not near the top. Because there, we found out, is where our symptoms related to low B12 abated.

Vitamin D: Several leaders and I had a private discussion about all the conflicting information on the net as what an ideal Vit. D result was. We decided to follow the Vitamin D Council, which states that 60-80 is the goal. I then add that progressive doctors like to see 80-100, which can especially be cancer-protective.

Cortisol Saliva Results: When you look at the results of someone with no symptoms of an adrenal problem, here’s what you note: 8 am, at the top of the range; Noon, about a quarter from the top; Afternoon, mid-range; Bedtime, at the very bottom.

Iron: Of the four labs we generally like to see as thyroid patients, we note that a good Serum iron level is closer to 110 (with men being higher and in the upper 130’s or 140’s); a good % Saturation is close to 35% for women and 40-45% for men; a good Ferritin will end up being 70-90 (though this can come last as one improves the others), and a good TIBC, if the range is 250 – 450, ends up being in the low 300’s, we noted, when the others are where they should be.

To read more about what patients have learned about lab results, go to the LAB VALUES page. Learn to understand your own lab results!!

Three good videos about better adrenal function

I often feel I can’t rave enough about what Paul Robinson of the UK revealed to us about promoting better adrenal function without the use of adrenal meds. It’s a quite unique method of using T3-only (or natural desiccated thyroid) in the early morning hours when the adrenals need it the most. You can see several testimonies—some with more updates coming—on the STTM T3 Circadian page here: https://stopthethyroidmadness.com/t3-circadian-method.

Has everyone succeeded with the CT3M? No, say some. It wasn’t enough to raise their low afternoon, but definitely helped their low morning!! Others absolutely love it. So it’s up to you.

Granted, if you have Addisons, hypopituitary, or untreated diabetes or blood sugar issues, and saliva reveals quite low cortisol, you may still need HC or adrenal cortex. Chapter 6 in the revised STTM book is your go-to chapter. But for some, this is a very workable solution.

Robinson has created three videos to explain it all, which he also links to from his recent blog:

Part 1: http://www.youtube.com/watch?v=97SOyEYwh54

Part 2: http://www.youtube.com/watch?v=7t2wg9rr6F4

Part 3: http://www.youtube.com/watch?v=dhkhcLPGCww

If your doctor prescribes synthetic T4 with synthetic T3

Progress appears to be one step at a time. And we are seeing more and more doctors prescribing T3 to their patients on T4. That’s good!! Doctors are FAMILIAR with the synthetics. So that’s what they will prescribe!

But many, many patients who have tried both synthetics, and who have tried natural desiccated thyroid, report even better results with the latter. So THIS IS WHERE YOU COME IN. Teach your doctor!! Why just be on synthetic T4 and synthetic T3 when you might do even better with all five hormones from desiccated thyroid—i.e. the same five your own thyroid would be giving you! Consider sending the Revised STTM book to your doctor: //www.laughinggrapepublishing.com/ Or, there’s a STTM II book totally written by physicians (his colleagues) and one chapter is specifically about NDT: https://laughinggrapepublishing.com/stop-thyroid-madness-ii-book/

JanieSignature SEIZE THE WISDOM

 

Saliva testing while on HC? Maybe…if your doc understands what to look for…plus more!

For years, thyroid patients have shied away from using saliva testing while on HC, concerned about the false highs and false lows of cortisol levels that occur with exogenous use of medications like hydrocortisone (HC) i.e. that which you give yourself externally vs the natural release. Or, there might be an issue with the HC still left in your mouth, and the saliva results would reflect this.

But thyroid patient and author Paul Robinson, as explained in his blog post, has recently been in touch with Dr. Henry Lindner who has found a way to use saliva with his patients on HC. Also, to avoid the residue of HC in one’s saliva, he instructs his patients to swallow their HC quickly with water.

For example, Lindner can tell if one isn’t on enough HC by looking at the saliva result done two hours after a patient took HC. i.e. the reading might still look “normal” when in fact, it should be much higher due to the high peak after taking HC exogenously. It would only be “normal” (or low normal) looking four hours after one takes HC, not two hours after. Conversely, if saliva is done right before the next dose of HC is due, which is often in four hours, it should be low normal, since exogenous use of HC should result in a fall after the peak. Thus, it can mean one’s HC dose before that was too much.

You can read Dr. Lindner’s own words on his website here. I can’t guarantee this will work for you. In fact, we don’t recommend doing it this way at all. And your doctor probably won’t understand it yet. So in the meantime, patients have been assessing their HC use with Daily Average Temps (DATS) and it’s still viable as well. It can be a way to avoid the cost of additional saliva testing. To understand how to do your DATS, see Discovery Step Two, number four, here. This is also explained in the revised STTM book in Chapter 5, which also has more details.

Want to order your own saliva test? Go here. Both My Med Lab and Healthcheck USA use ZRT, and Direct Labs uses a six times a day saliva testing if you’re curious about your nighttime levels.

DID HIS WIFE COMMIT SUICIDE DUE TO THE FAILURE TO TREAT HER THYROID CORRECTLY?

In one of STTM’s Facebook groups, I saw a posting about this article, and it broke my heart.

I cannot say one way or the other about this particular case, where his young wife had Hashimotos. But in the ten years I’ve been a Thyroid Patient Activist, I’ve seen SO many thyroid patients on T4-only, or those who haven’t received a correct diagnosis due to the lousy TSH lab test, suffer from depression, whether from continued thyroid problems or the effects of adrenal fatigue and low cortisol–the latter which a large body of thyroid patients can fall into. The brain and the adrenals NEED T3, we have learned personally, over and over.

My own mother was a classic example, having endured Electric Shock Treatment in the 1960’s for her poorly-treated, thyroid-induced depression, then needing to be on an anti-depressant her entire life from being on T4-only. That anti-depressant made her emotions flat.

You can see the article here.

DO YOU HAVE TO ENDLESSLY TAKE CERTAIN VITAMINS/MINERALS TO KEEP THEM UP??

I do. For me, it’s magnesium. It’s like my body has a “magnesium hole” and I can never seem to keep my levels optimal without supplementing daily. And I am very optimally treated for my hypothyroidism, and use Apple Cider Vinegar daily in a large glas of flavored water for a more acidic stomach environment. For others, it’s a “B12 hole”, and they have to inject or take supplements daily. Others might have an “iron hole” and need the maintain that.

What about you? What supplements do you have to take daily to keep your levels optimal??