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The pitiful challenges even a Good Doctor faces….ignorance, stupidity, resistance. Read this!

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As thyroid patients, we are continually seeking doctors who understand successful patient experience. It’s not always easy. So when we do find a good doctor, we’re ecstatic. But little do we know the challenges a good doctor faces! The following was sent to me by a progressive, open-minded MD, of whose name I have removed to protect him from his own medical board. Be appalled and amazed. I was.

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Janie, it is not infrequent that we are sent messages like this from Pharmacy Benefits Managers. Here is a typical letter with my reply.

Considerations for Your Review

1. Drug Safety Consideration: ARMOUR THYROID Use in Seniors Our claims record suggests that your older patient is receiving ARMOUR THYROID. Thyroid hormones should be dosed cautiously in seniors due to a potential risk of cardiac effects. Desiccated thyroid products contain variable amounts of T3. T4 and other iodothyronine compounds. Because older patients have a high prevalence of occult
cardiac disease, the Beers criteria generally recommend transition to a safer alternative (e.g.. agents like levothyroxine with more standardized hormone content). Please consider the potential risks versus benefits of therapy for your patient.

Reference(s):
1. Thyroid Agents. In: McEvoy GK, ed. AHFS: Drug Information. Bethesda, MD: American Society of Health-System Pharmacists; 2008:Sec 68:36.04.
2. Pick DM et al. Updating the Beers Criteria for Potentially Inappropriate Medication Use in Older Adults. Archives of Internal Medicine. 2003; 163:2716-2724.
3. Semla TP et al. Geriatric Dosage Handbook. 13th ed. Hudson, OH: Lexi-Comp; 2007.

(And this brilliant doctor’s reply:)

Dear xxxxxxx

Re: Armour Thyroid Products

I invite your attention to the P.I. (product information) in the PDR on levothyroxine (Synthroid). I quote: PRECAUTIONS “Patients with underlying cardiovascular disease–Exercise caution when administering levothyroxine to patients with cardiovascular disorders and to the elderly in whom there is an increased risk of occult cardiac disease.”

DOSAGE AND ADMINISTRATION

“Caution should be exercised when administering SYNTHROID to patients with underlying cardiovascular disease, to the elderly, and to those with concomitant adrenal insufficiency (see PRECAUTIONS).”

I read your statement that says, “Desiccated thyroid products contain variable amounts of T3 and T4 and other idothyronine compounds.” Forest Pharmaceuticals has stated their product is standardized as published in the PDR: “ One (1) grain or 60 mg of Armour contains by assay 38 mcg levothyroxine (T4) and 9 mcg liothyronine (T3).” I do not ever remember Armour Thyroid ever being recalled for stability or lack of standardization.

However, Synthroid and the other forms of levothyroxine have had significant problems.

SYNTHROID AND OTHER T4 PRODUCTS were subject to FDA NOTICE in the FEDERAL REGISTER: AUGUST 14, 1997 (VOL 62, NUMBER 157). These were the drugs that were not well standardized and were not stable. I quote from the report: “Some of the problems reported were the result of switching brands. However, other adverse events occurred when patients received a refill of a product on which they had been previously stable, indicating a lack of consistency in stability, potency, and bioavailability between different lots of tablets from the same manufacturer.”

Thank you for caring for the health of the patients receiving medications from your company. I request that you check your facts fully before issuing such flyers.

Respectfully,

xxxxxxxxx, M.D.

Cc: FOREST PHARMACEUTICALS

BRAVO TO THIS DOCTOR in the face of complete ignorance!!

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STTM HAS HIRED A PUBLICIST and YOUR HELP IS NEEDED!

Do you value what Stop the Thyroid Madness has given you?? Something has to be done to reach millions of individuals still lingering without a diagnosis due to the TSH, or suffering due to being on T4-only meds! You and I run into them DAILY and don’t even know it! Or we have many family members in the TSH/T4 category. And the media does NOTHING about this scandal. STTM has hired a publicist, and you can read about it here. But I can’t do this alone. If you value Stop the Thyroid Madness, please considering helping.

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TPA (Thyroid Patient Advocacy) STILL NEEDS YOU TO REGISTER

Have you registered for the Counterexamples to T4-only? So far, 1437 have, and Sheila Turner is determined to get that number to over 2000 at least. There were 900 participants on those flawed studies showing that T4/T3 combination worked no better than T4-only, and we have got to prove our point that this is wrong. All you have to do is answer 3 very short questions. http://www.tpa-uk.org.uk/register_of_counterexamples.php

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Taking your temp, Selenium and RT3, TPA’s Autumn Newsletter, and HealthcheckUSA’s discount to STTM readers

NOTE: though this post was originally written in 2011, it can still contain relevant information for you today to consider, or do further research on.

(Photo graphic by thyroid patient Sam Aliyev of Azerbaijan, Baku city.)

TAKING YOUR TEMPERATURE CORRECTLY?? Possibly not.

Thanks to Dr. Broda Barnes, informed thyroid patients know the importance of taking one’s temperature, especially just before we get out of bed in the morning. According to Barnes, we can suspect a thyroid problem if that temp is below 97.8. Conversely, healthy thyroid function (or adequate treatment) would put our before-rising temp from 97.8 to 98.2. (Menstruating females would need to be aware of higher temps right after ovulation.).

Today, we favor the mercury thermometer over digitals for accuracy. But are we using the mercury thermometer correctly? Maybe not.

A discussion between thyroid patients recently underscored the need to leave it in the mouth longer than the 5 minutes we thought was adequate. Thyroid patient Jennifer states: At 5 minutes it read 97.6, at 10 minutes it read 97.8 and at 15 minutes it read 98 degrees. After that, it stayed 98 degrees. We then discussed the fact that manipulating the muscle in the back of throat could have caused the final temp. But her experiment, as well as others, underscored that we need to be holding that mercury thermometer in our mouths no less than five minutes, and ten is probably better.

DOES SELENIUM REALLY CAUSE A RISE IN REVERSE T3 (RT3)?

The above statement about selenium causing excess RT3 has oft been repeated from group to group for a few years. But it may be very wrong.

For example, this study shows selenium did not cause a rise in RT3, and in fact, lowered it. Here is one which shows LOW levels of selenium can result in increased RT3. This medical book states that though RT3 comes from T4, it also concludes that low selenium increases RT3.

In other words, though the enzymes that convert T4 to T3, and convert T4 to RT3, are selenium dependent to do their job, that doesn’t mean that selenium is going to increase your RT3. Bottom line, many thyroid patients love selenium, especially with its power to lower Hashimoto’s antibodies, and being anti-cancer. Suggested levels are no more than 400 mcg.

TPA’s AUTUMN NEWSLETTER IS OUT–many good articles!

TPA stands for Thyroid Patient Advocacy, and is a UK charity organization started by Sheila Turner. Check out the articles below in the latest newsletter.

Page 5: The Big Question – Is There an Anti-T3 Conspiracy. Eric Prichard critically questions why those in Endocrinology need to cite numerous anti-T3 studies, in spite of many other studies which reveal the activeness and superiority of T3. Is the UK and other dark age countries ever going to get it?

Page 9: Why I Believe T3 Should Be the Very Last Treatment that Thyroid Patients Consider. Don’t let UK’s Paul Robinson’s title fool you. He believes in the efficacy of T3, but underscores why it can be complex to dose with just T3. Especially compelling are what follows Paul’s article, titled MEMBERS SUCCESS STORY. Story 1 is about an individual who, when dosing T3 in the early morning hours, was able to get off all adrenal meds. Story 2 is about a gal’s successful transition from T4 to T3.

Page 15: Thyroid Patients Have Come a Long Way, Baby….But We Still Have a Way to Go! Though there are now numerous patient groups on the net and many lives have changed, Janie Bowthorpe (yes, me) explains how many doctors still have a long way to go in understanding how T4 and TSH fail patients, just as desiccated thyroid or T3 have turned miserable lives around.

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HAPPY HALLOWEEN to thyroid patients worldwide!


MySpaceAnimations.com

MAY YOU HAVE A FUN, HAPPY AND HEALTHY DAY! Janie

 

The positive effect of kindness on the immune system and on the increased production of serotonin in the brain has been proven in research studies. Serotonin is a naturally occurring substance in the body that makes us feel more comfortable, peaceful, and even blissful. In fact, the role of most anti-depressants is to stimulate the production of serotonin chemically, helping to ease depression. Research has shown that a simple act of kindness directed toward another improves the functioning of the immune system and stimulates the production of serotonin in both the recipient of the kindness and the person extending the kindness. Even more amazing is that persons observing the act of kindness have similar beneficial results. Imagine this! Kindness extended, received, or observed beneficially impacts the physical health and feelings of everyone involved! ~~Wayne Dyer

I promise myself…to be so strong that nothing can disturb my peace of mind; to talk health, happiness, and prosperity to every person I meet; to make all my friends feel that there is something worthwhile in them; to look at the sunny side of everything and make my optimism come true; to think only of the best, to work only for the best, and to expect only the best; to be just as enthusiastic about the success of others as I am about my own; to forget the mistakes of the past and press on to the greater achievements of the future; to wear a cheerful expression at all times and give a smile to every living creature I meet; to give so much time to improving myself that I have no time to criticize others; to be too large for worry, too noble for anger, too strong for fear, and too happy to permit the presence of trouble; to think well of myself and to proclaim this fact to the world, not in loud word, but in great deeds; to live in the faith that the whole world is on my side, so long as I am true to the best that is in me. ~~Christian D. Larson

Life expectancy would grow by leaps and bounds if green vegetables smelled as good as bacon. ~~Doug Larson


Animations provided by MyspaceAnimations.com

Rhodiola, B-vitamins, Liver health, Depression & 5-HTP, VIt. D & asthma, plus the Road to Recovery!

pumpkins

(Though this page was written in 2011, it has been updated to the present date)

Are you enjoying the change in your weather? I am tremendously.

If you have the revised STTM book, you will note a brand new chapter about supplements and foods. I have also gathered up the following information on supplements that just might interest you!

SinglePumpkinRhodiola, an herb and adaptogen, can be a great way to counter stress and protect your adrenals!

I often speak of certain herbs which thyroid patients should look into if they are under a lot of stress, or their adrenal cortisol saliva test shows slight sluggishness, or even slightly high cortisol, as a result of a variety of stressors. One in particular is Rhodiola Rosea, and I am frankly impressed with it.

Since Rhodiola grows wild in Siberia, Russians have been brewing it as a tea to combat sluggish energy for a long time! And the Chinese have been aware of its great properties for eons as well. As an adaptogen, it’s said to decrease fatigue, stimulate your energy levels, and lower depression, i.e. it can do a great job countering the effects of stress, whether biological or psychological. See this research study.

It’s also known as an anti-oxidant, and studies show it can have anti-tumor properties. Different brands of Rhodiola contain different amounts of its important properties, so read the label. You might want to avoid taking it in the evenings, as it can stimulate too much as you prepare for sleep. I keep Rhodiola on hand to use if I’m going through stress of any kind! P.S. Please note that Rhodiola won’t be enough if your cortisol levels are severely low. You may need hydrocortisone in working with your doctor.

Single PumpkinWhy keeping your B-vitamin levels up can be so important!

Early in my journey to feeling wonderful again with desiccated thyroid, I remember a doctor stating how important it was to keep up with my B’s. Why? Because with an improving metabolism means a greater need for B-vitamins. Additionally, we may not be absorbing nutrients very well due to excess food processing, so keeping up with this is critical, even if you don’t “feel” the results.

What’s the big deal with B vitamins? They help your adrenals deal with stress better, assisting the production of all adrenal hormones. i.e. your adrenals are BIG users of B vitamins. They help breakdown other nutrients, which improves energy. They help in the production of serotonin, thus helping you to avoid depression. They enhance your immune function, and help with your hair, skin and muscles. Wiki states they reduce the risk of getting pancreatic cancer.

I have tried to take liquid B-vitamins before, and despise the taste. So I use a good quality, high dose pill form. Some do better taking each B vitamin individually. Go here to read about vitamin B12 in particular, tho ALL of them are imporant.

Single PumpkinAre you supporting your liver? It’s actually important for thyroid patients.

There have been many good discussions in the FTPO Facebook discussion groups about our livers. Why is that large organ so important? For one, it’s a major detoxer! We need it to function well to help remove that which we do NOT want in our bodies…such as excess RT3. It plays a strong role in digestion through the production of bile, helps breakdown carbs and proteins, produces insulin-like growth factor (IGF-1) and a bag full of other good activities. You can’t do well without good liver function.

How to support it? I am personally using a liquid product called Liver Life. It contains mushrooms and Milk Thistle seeds—both important for good liver function. Others also choose to do a liver cleanse to remove toxins, lower excess RT3 and improve liver function. I suggest talking to a Naturopath about good products, or do an internet search. Patients in groups can also help.

Single PumpkinSpeaking of depression…look what 5-HTP did for this gal.

Depression is all too common when on the inadequate T4-only meds like Synthroid or levothyroxine. Ridding it is one huge benefit of switching to desiccated thyroid, or correcting poor adrenal function and low iron. But there’s a possible solution until you better treat your thyroid—5-HTP. This chemical is a natural way to raise your serotonin levels, which helps to raise your mood.

One gal had severe depression (which in turn can cause suicidal thoughts in some.) Her Naturopath had an idea—to start taking 800 mg of 5-HTP a day, starting immediately with five pills before bedtime that very night. It worked. She explains “The 5-HTP took me back to the bubbly, happy me that was there before the thyroid problems began – at least emotionally.”

Single PumpkinHave asthma or any lung condition? Then you may want to look at your Vitamin D levels, which are chronically low in thyroid patients.

A female thyroid patient with low levels of Vitamin D got on supplementation with D3 to raise her levels. And to her complete surprise, her asthma went away. She explains: After I realized that my asthma was gone, I googled “Vitamin D and Lungs” and found out that it’s being studied all over the world. Here’s just one quote she picked up: “In a recent article from the American Journal of Respiratory and Critical Care Medicine, researchers looked at Vitamin D2 and D3 levels in adults with asthma. They also measured obstruction in the lungs in various ways. They reported a significant correlation between Vitamin D levels and lung obstruction. In other words, the lower the Vitamin D level, the more obstruction in the lungs. In addition, decreased or insufficient Vitamin D levels were linked to greater “twitchiness” of the lung, which makes the lungs more sensitive.”

Cartoon thryoid with PatClick on last link below to view the Road to Recovery in your thyroid journey.

When I do phone coaching, there is a common phrase I tell folks: Be prepared that there will be rocks in the road you’ll need to tackle, and it’s normal. So keep on keeping on. And to underscore that reality, thyroid patient Joan Trudo Steckelberg created a great image of this road for me: https://stopthethyroidmadness.com/the-road-to-recovery-a-visual-image/ Thank you, Joan!

One more kooky & hilarious video! Plus more about bipolar, pregnancy, mistakes patients make.

HUMOROUS VIDEO ABOUT ADRENAL FATIGUE: In my blog post last February 15th, 2011, I sent you in the direction of a kooky, creative and hilarious You Tube video titled “Our Holy Miracle of the Infallible TSH Test”.

Well, creator and thyroid patient Brian Foreman has brilliantly done it again, but this time, it’s about adrenal fatigue and titled “Why Isn’t My Thyroid Medication Working?” Have fun watching it, and get ready for a good laugh here and there.

Want to know more about adrenal dysfunction? Go here to find out about the problem, and do the Discovery Tests tests to see if you might have it. Note that it’s critical, if the self-tests seem to point to an adrenal issue, to do a 24-hour adrenal saliva test to see what is going on at four key times during a 24-hour period. Here is a compilation of what patients have learned in how to treat low cortisol, and this page is important to share with your doctor. If you want even more detail, it is strongly recommended by thyroid patients to order the REVISED STTM BOOK, and see Chapters 5 and 6. This can be carried right into your doctor appointment with key areas highlighted and bookmarked.

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BIPOLAR, DEPRESSION and HYPOTHYROID: A thyroid patient emailed me with just one more article on the connection between having a bipolar disorder and one’s thyroid, including the fact that there is “a strikingly high rate of autoimmune-caused thyroid problems in people with bipolar disorder”, aka Hashimotos disease.

And even if depression is your main problem, the article mentions “gently pushing your thyroid status over toward the “hyperthyroid” end of normal, if you happen now to be toward the hypothyroid end of normal”, in order to adequately reverse the depression problem. I constantly think back about my own mother who suffered from depression, succumbed to having shock therapy, and ended up on anti-depressants the rest of her life because of her use of Synthroid. So we know that treating hypothyroidism with direct T3, such as is found in desiccated thyroid, is far better.

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IS THERE A BABY KNOCKING IN YOUR BELLY? I often see pregnant women in forums wondering how their babies are doing and how the thyroid works in helping their babies, or hurting them if the mother is pregnant and hypothyroid. Here is an article sent to me that can help inform as to changes in your thyroid function when pregnant, how thyroid hormones affect the brain of the fetus, and the role of iodine. It can underscore how important proper treatment is while pregnant.

What about adrenal fatigue which so many thyroid patients find themselves with, and pregnancy? A gal named Anne has written about this issue here. She has Addisons disease, which is more about a disease process and can be autoimmune, but her comments can be very applicable for those of you with sluggish adrenal function. Share all of this with your doctor. Need to find a good one?? Go here.

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TWO COMMON MISTAKES MADE BY PATIENTS: In patient groups, here are two common mistakes I see patients make:

  1. Not doing the 24 hour adrenal saliva test if adrenal dysfunction is suspected: I can’t stress this enough: patients have learned repeatedly they shouldn’t have rushed into cortisol treatment if they or their doctor’s “suspect” an adrenal problem. Yes, STTM has outlined several self-tests, called Discovery Steps, that you can do in your own home to see if anything is suspicious. There is also a checklist of symptoms related to adrenal problems. But the problem is two-fold: symptoms of high and low cortisol can be exactly the same, and ‘where you are low’ and ‘where you are not’ can dictate how your treatment should be. Some only need to lower high cortisol, some may do well on simply adaptogens like Ashwagandha or Rhodiola, some do well on Isocort or OTC adrenal cortex, and some outright need to be on prescription hydrocortisone. Teach this to your doctor. Here is where you can order your own saliva tests, and then take them into your doctor’s office.
  2. Not getting copies of labwork: Contrary to how your doctor says it, you have a right to have copies of your own labwork. And you should! Patients often come on groups seeking feedback from other patients, and yet, have no idea what their labwork was, or the ranges. Getting copies of labwork is just one step of many in being a pro-active patient. Here is how to read labwork according to the experience of thyroid patients.
Remember: Stop the Thyroid Madness, aka STTM, is a patient-to-patient informational site meant to educate and inspire you with that information. Talk to your doctor about what you have learned; use the STTM revised book right in the office, and push for what you believe in, and you can go a long way to feeling MUCH better.