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Tag: T4-only

Multiple sclerosis, Dysautonomia, you name it…ALL made worse from hypothyroidism or being on a T4 med

Screen Shot 2015-08-04 at 2.30.58 PM(This post has been updated to the current day and time. Enjoy!)

Before my thyroid disease of hypothyroidism was discovered, I had horrific and debilitating consequences from exercise or any activity. You can read about it in even more detail in the Introduction of the patient-to-patient Stop the Thyroid Madness book.

When my so-called “borderline hypothyroid” was discovered by age 30, I thought whoo-hooo, I’ll finally get rid of this strange nightmare whenever I tried to do ANYTHING. I was put on Synthroid and my anticipation for a better life was profound.

But my hope was dashed.

Not only did my body continue to overreact to activity, it got much worse over time. Horribly worse. I got to where I couldn’t even grocery shop without paying horrible prices in fatigue and other miserable symptoms.

Nearly twenty years after I had started on a T4-only medication, and had even raised it. I was told by one doctor after another that my problem was not my thyroid. I was forced to start the process of applying for social security disability–a low, low time for me.

But they were all dead wrong.

Sure, turns out I have a form of Dysautonomia, a malfunction and overreaction of my autonomic nervous system, causing my body to far overreact to activity or stress. But remaining hypothyroid, as so many of us do on t4-only medications, had made it far, far worse. And I proved it. When I switched to natural desiccated thyroid in 2002 and raised it according to what patients have learned, a miracle occurred. My severe autonomic reactions made an almost complete turnaround.

And my experience of change or improvement when it comes to other diseases or conditions has been shared by others.

Last week, I received an email from a man whose brother has MS–Multiple Sclerosis. And though natural desiccated thyroid has not taken his MS away, it allowed him to move from this wheelchair to a walker! That is quite impressive.

So I am left wondering: what other conditions or diseases, which are unique in themselves, are worsened being either undiagnosed or dosed the lousy TSH lab test range…or due to the inadequate treatment of Synthroid, Levoxyl, levothyroxine, Eltroxin, Tirosent and all other T4-only medications for all to many like myself? It’s awful to think about it.

JanieSignature SEIZE THE WISDOM

* Learn about the problems with T4-only right here.

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My mother had serious long-term depression. Can you guess why?

depression1 When I was ten years old, my mother had electric shock treatment.

The memory stands out in my mind like a beacon. And when my Dad brought her home, he took me aside and explained that my mama was not going to remember where things are for awhile, and we’d have to help her. That was especially true with the 4-legged sewing basket.

She eventually regained her memory. But she was never again the same bright and quick witted mother I used to have when I was younger.

Why was shock treatment done? To counter her mysterious ongoing and disabling depression. And this was her last option.

It didn’t work.

She lived on anti-depressants, specifically a high dose of Elavil, the rest of her compromised life.

And more than 40 years later, about a year after her death, a change in my own life with Armour helped me realize why she had to be dependent on an anti-depressant for so many years: Synthroid. My mother was on Synthroid almost her entire adult life—a medication, along with Levoxyl, Levothyroxine, Unithroid, Eltroxin, Levaxin, Norton, Eutrosig and Oroxine, which leaves nearly all patients with lingering hypothyroid symptoms, including one of the most common one: chronic on-going depression.

And a large body of doctors all around the world just don’t get it.

What brought this memory of my mother up in my mind? Because two days ago, I chatted with a gal on Synthroid. By all appearances, she seemed to be doing well, as some will make you think. She said she had enough energy, wasn’t losing her hair, and felt okay. But when I probed deeper, she admitted that her blood pressure was going too high (as happened to my mother on a T4-only med) and she had a problem with depression and was on Wellbutrin. Bingo.

See http://biopsychiatry.com/hypothyroidism.htm which is also here: http://www.theannals.com/cgi/content/abstract/34/10/1142

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8 replies

I met hundreds of millions of women today…in one woman

bunny Michelle, 40-or-50-something, came over to my house today to go over some paperwork. I hadn’t taken my Armour yet, and I said “Excuse me, I need to pop my thyroid meds under my tongue.”

“Oh, I take thyroid meds, too. Synthroid” she explained as she was writing on the papers with her pencil.

Now when I hear something like that, being who I am, I’m like a bear in a china cabinet who suddenly smells honey. So as not to overwhelm, I casually say “Oh, I used be on Synthroid.” And after a long pause while we are going over the paperwork, I say “Did you know there’s a worldwide patient revolution going on against medications like Synthroid?”

At the point, she raises her head in curiosity.

I then stick my paw in the honey: “You and I and millions have been put on meds like Synthroid and then told we are “normal” because the TSH says so. But all of us have continuing symptoms of hypothyroidism. It’s a lousy medication. “

And when I laid out what those continuing symptoms were, her eyes got as big as saucers and she was shaking her head up and down in recognition. “Depression, rising cholesterol and blood pressure, easy weight gain, fatigue, less stamina than others, dry hair and skin, feeling cold, etc”, I told her.

And the most profound aspect of Michelle? She lives her life like the Energizer Bunny, going and going and going. She told me she often doesn’t get home until 6 pm doing her job, and she clearly has a lot of professional responsibilities.

But does an active Michelle mean that Synthroid works and is just as good a thyroid treatment as desiccated thyroid? You know the answer. She revealed that she’s quite tired when she comes home, wishes she had more energy, and still has issues with her weight, even though she lost some when she got on Synthroid.

And reading between the lines, it was clear that Michelle is probably on an anti-depressant, a statin, and a blood pressure medication. And…she clearly has an adrenal problem that’s only going to get worse. She has a terrible time falling asleep at night (high cortisol), and is very sensitive to light and noise (high or low cortisol).

Suddenly it dawned on me. I am sitting across hundreds of millions of women, and some men. I am listening to how millions live their lives–making a living, maintaining a home, loving their spouses and children, interacting with people. But underneath it all, it’s not a pretty picture. They cope, and they cope again. And they dish out their money for more medications to treat the very symptoms caused by an inferior medication. And as they age, they’ll pay each of their millions of prices, just as my mother did, and as I was headed. Energizer bunnies with faulty batteries.

P.S. Barack Obama has a health care reform plan. Will it change the lives of those 50 million with thyroid disease in the US, or will it only continue this T4-only travesty and health care scandal? Are we headed in the same insane direction as the UK when it comes to T4-only? Express your opinion.

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7 reasons you’re gonna love Forest Pharmaceuticals (told ya so)

Now being announced on the Forest Pharm hotline at 866-927-3260, the following strengths of Armour are now completely available again:

1) 15 mg. (1/4 grain)
2) 30 mg. (1/2 grain)
3) 60 mg. (one grain)
4) 120 mg. (2 grains)
5) 180 mg. (3 grains)
6) 240 mg. (4 grains)
7) 300 mg. (5 grains)

Yessiree, the above represent the different size and strength tablets of natural desiccated thyroid via the Armour brand, most of which had been unavailable for quite awhile. The 90 mgs is still on backorder.

Rejoice!

P.S. And we thank RLC Labs for their continued availability of Naturethroid and Westhroid, plus Sriprasit Pharma Co., Ltd. in Thailand for their Thyroid-S. Because no matter how hard any pharmaceutical company, Endocrinologist, certain hospitals, or group of physicians (see below) tries to sing the praises of T4 treatment with Synthroid, Levoxyl, Levothyroxine, Eltroxin, Norton for thyroid disorders or hypothyroid….WE KNOW BETTER.

(Want to be notified of my blog posts? Curious what’s on my mind? Use the Notification method to be informed. Look on the bottom left of the links where you can sign up. )

3 replies

A real life horror movie: suckered by Big Pharma marketing. Part 2

(Want to be notified of my blog posts? Curious what’s on my mind? Use Notifixious to be informed. Look on the bottom left of the links where you can sign up. )

Recently, after we watched a semi-scary movie about being suckered, a friend brought up my blog post of last July where I described a terrifyingly-real horror movie.

The plot: stunningly convince hundreds of millions of individuals worldwide that what is obvious, isn’t. i.e. it’s all in your head, you are adequately treated on Synthroid, Levoxyl, Eltroxin, Norton, et al, and not only that, we’ll bandaid your continuing problems with more medications.

A second plot: also completely hoodwink those with top notch higher medical educations and experience by churning out the the exact same poppycock, and reward their stupidity with gifts.

The central villian: Big Pharma, followed by the doctors who bought the lie

Exactly a year ago this month, Science Daily came out with an article, citing two York University researchers who estimated that the U.S. pharmaceutical industry spends almost twice as much on promotion as it does on research and development, contrary to the industry’s claim. In other words, the researchers estimated that $57.5 billion in US dollars was spent on pharmaceutical promotion in 2004–the year they were studying. Yes, I said BILLION.

Breaking that down, Big Pharma spent approximately $61,000 per physician in promotion of their products. And they concluded that both figures were UNDERestimates. In other words, they concluded that the US pharmaceutical industry is marketing-driven rather than “life-saving”.

And adding fuel to the fire: most doctors believe every thrust of that marketing. I recently participated in comments with other wonderful patients in response to a DO/Endocrinologist, Dr. Thomas Repas, who has clearly bought the Big Pharma marketing when it comes to levothyroxine. You can read his posts and our comments here, here, and here. Dr. Repas is exactly the kind of doctor who has starred in our horror movie, and the kind of doctor that patients have lamented about for years. Read the Give Me a Break list of comments made by doctors, as well as further comments on the January 1st blog.

But Dr. Repas is in good company. Doctors have believed the Big Pharma lie about T4-only medications, and against desiccated thyroid like Armour, Naturethroid, etc. for 50 years. In the patient-to-patient Stop the Thyroid Madness book, you can read about the first tableting of Synthroid in 1955 and the strategic and successful promotion of T4-only, in spite of the fact that T4 was known to be unstable for decades.

And today, more than 50 years later, very few of us have been untouched by the Big Pharma push for levothyroxine T4-only treatment. My own mother was suckered, and I was suckered. And until patients started to make a huge push for desiccated thyroid treatment the last few years, nearly every single doctor around the world had been suckered.

We still have a way to go. But we’ll get there, bit by bit.

5 replies