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The Affordable Care Act, aka Obamacare, and Thyroid Patients: How will it be for us?

Screen Shot 2016-01-05 at 3.48.46 PMUS Thyroid patients have been abuzz behind the scenes for months about what the Patient Protection and Affordable Care Act ((PPACA), aka Obamacare, will mean for them, positively or negatively.

And more discussion has been sparked by the disastrous enrollment launch since October 1st, followed by many of us going through the shock of our private insurance being cancelled, or facing much higher premiums. So questions and concerns abound.

Of course, the stated intent of this healthcare reform, says Obama Care Facts, is to “give more Americans access to affordable, quality health insurance and to reduce the growth in health care spending in the U.S.” In other words, it’s supposed to give affordable healthcare to those who have been uninsured or improve the terms of the health insurance you already have.

But is the latter so for thyroid patients? Will we as thyroid patients be better off? Let’s look at the Affordable Care Act in general first.

Obamacare’s stated benefits and facts are:

  1. It will mostly benefit a large body of the uninsured, as well as those who don’t have employer-based or government-based health insurance.
  2. Premiums will vary depending on the state you live in, your age, health, income, and which of four plans you decide upon.
  3. You can choose between four types of medical plans with Obamacare–better plans mean higher premiums but lower out-of-pocket costs.
  4. You can still have private insurance plans instead.
  5. There will be a Medicaid expansion to cover more people in approx. 26 states
  6. Medicare recipients will have an easier time getting prescription drugs.
  7. Certain preventative medicine will be covered 100%, including health, dental and vision.
  8. You can buy Obamacare health coverage until March 31, 2014. If you don’t buy any health coverage, you may pay a tax penalty of $95 or 1% of your taxable income in 2014
  9. Larger businesses will be required to provide insurance for their employees.
  10. Your won’t be charged extra if you have to go out of your area for emergency room visits.
  11. You’ll be covered for goods and services to help you maintain a standard of living if you have a chronic disease like Multiple Sclerosis
  12. All preventative care lab tests will be covered before you are diagnosed.

Obamacare effects private insurance companies this way:

  1. All participating health insurance companies are required to cover services in ten Essential Health Benefits categories, from emergency room and hospital care to mental health and approved prescription benefits.
  2. You cannot be dropped because you have an illness or because of pre-existing conditions or charged more.
  3. Your yearly out-of-pocket costs are limite
  4. There will be no annual or lifetime limits to your insurance.
  5. You cannot be discriminated against because of your gender.
  6. Young adults can stay on their parents plan until they are 26 years old, and low budget plans until they are 30.
  7. You have the right to rapid appeal of insurance company decisions
  8. Whatever prescription meds that you pay out-of-pocket will count towards your deductible.
  9. There will be free yearly check-ups, immunizations, counseling, and screenings for all non-grandfathered plans at no out-of-pocket costs
  10. You will still have several different insurance plans in the Marketplace to choose from.

And the negatives as outlined by critics:

  1. Not all preventative tests you might want or need will be covered.
  2. It’s going to be a one-size, fits all policy created by your federal government, as if all people fall under one umbrella of needs, lifestyles and goals.
  3. Treatment goals by hospitals may end up being related to whether they are financially rewarded by the government for that treatment or not.
  4. Like an HMO, your network of doctors to choose from will be narrower if you go with Obamacare, which means you may not be able to use your current doctor.
  5. Up to 30 million still won’t be insured.
  6. A survey completed by The Doctors Company found that 60% of physicians feel their patients will get less quality of care due to the Obamacare pressure to decrease costs and improve their patient load. It will also cause 43% of doctors to go into early retirement.
  7. Private insurance premiums will probably go up for most.
  8. The higher premiums in exchange for stated better coverage will only be a good trade for those who have hefty medical expenses in any given year.

So how might thyroid patients see all this??

1. Obamacare says that all preventive care lab tests will be covered. This could continue to mean that the most favored test to diagnose thyroid disease will be the TSH, similar to what veterans in the VA system get, and which thyroid patients know has been an abject failure for diagnoses since its inception in the 1970s. So the thyroid madness with the TSH might sadly continue.

2. Obamacare says that you’ll be covered for goods and services to help you maintain a standard of living if you have a chronic disease. Thyroid patient skeptics have expressed doubts that we will be covered for the chronic and debilitating low cortisol issues we tend to have–the latter usually due to undiagnosed or undertreated hypothyroidism from the use of the TSH lab test or T4-only treatment. Then think of the disability from Lyme and compromised immune function and you have a continuation of the problems we encounter today, on top of how adrenal issues keep us from working.

3. Obamacare will have standardized kinds of treatment. Say thyroid patient Andy: “That can certainly be a disappointment if they favor T4-only for hypothyroidism, just as government-run VA care does for my Dad”, and which leaves him with worse problems than he had when diagnosed. And a large body of thyroid patients know what an abject failure T4-only treatment has been. i.e. the failure of T4-only like Synthroid, whether from the beginning or the longer one stays on it, is not isolated.

4. Obamacare states that because of the required Essential Health Benefits categories your insurance has to cover (preventative medicine), it will allow more people to find and treat chronic diseases before you have to go into the emergency room. If the government believes the fantasy that the TSH is the best way to diagnose, or T4 is the best treatment, or the low cortisol problem doesn’t exist except for Addisons patients, or the only test for cortisol levels is blood testing instead of saliva (the latter which we know gives far better information)…some thyroid patients aren’t going to avoid the emergency room.

5. Obamacare has always said you can keep your doctor. But with recent news revealing millions of people are experiencing cancellation of their insurance policies, that may not be so, which can be crushing if you finally found a doctor who isn’t obsessed with the TSH and T4-only medications, or who understand the low cortisol problem. If you aren’t able to keep your current health plan, and have to purchase another coverage, the latter may not cover your current doctor. You’ll need shop for a plan that does.

In other words, whether one is for or against Obamacare, it may continue the backwards diagnosis and treatment of hypothyroidism, plus new issues and direction that everyone will have to deal with on top of it, both positives and negatives.

Read more:

http://cbo.gov/sites/default/files/cbofiles/attachments/44190_EffectsAffordableCareActHealthInsuranceCoverage_2.pdf

http://obamacarefacts.com/obamacare-facts.php

http://obamacarefacts.com/insurance-exchange/health-insurance-plans.php

http://www.washingtonpost.com/blogs/wonkblog/wp/2013/09/30/%3Fp%3D63297/

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Thyroid Patients and their Doctors: all the information you need

DoctorI’m so glad I wasn’t yet into hypothyroidism when I was a child. I had a doctor named Dr. Roach. Yes. Really. And he was quite tall and very serious. Not the kind of guy who should have been a pediatrician. So when my mother took me into the office for my required childhood vaccinations, I was SCARED…TO…DEATH…of him. I would hide behind the chairs as if I could really escape this nightmare. It didn’t work…lol.

So IF I had to see Dr. very-tall-very-serious-Roach for hypothyroidism, I shudder to think how it would have gone. lol.

INEFFECTIVE DOCTORS

As adults, we have somewhat more choices on who we see. And even so, it’s not always an easy issue. Thyroid patients report far too many doctors who they feel are missing the mark in their thyroid disease treatment.

And I get that!! When I was on Synthroid and later Levoxyl and suffering miserably, I remember going to at LEAST 20 doctors over those years, trying desperately to get help for what was debilitating me…and failing!

And boy oh boy, are there some bad memories. One doctor decided to use me for his “experiments” and I was put on a medication which really had nothing to do with what I went in there for. In retrospect, I think he was using me for a medical article he wanted to write, which he did then and still does today.

Another doctor put his foot down in arrogance when I asked if I could please get my potassium, sodium and magnesium tested to see why I was getting blood pressure problems. “That’s not your problem”, he swiftly said. i.e. he came across as “I’m the doctor; you are not. Don’t ask for anything”.

And there were many doctors who, in light of my hypothyroid-caused depression due to being inadequately treated thanks to T4-only, told me I need to see a psychologist or get on anti-depressants. NOT the right answer when natural desiccated thyroid would have ended that depression!

Yes, I finally found a couple of medical professionals who have been wonderful! And that’s because they have started listening to our experiences, and are willing to learn from me, as well.

A better direction

Today, patients have a lot more help and a sense of proactivity in their treatment thanks to the education and support that Stop the Thyroid Madness offers. Here are pages related to doctors that may help:

  • TAKE A SURVEY as to your experiences with the majority of your doctors over the years. This will become important information which STTM will use in the future. Please contribute by answering the five questions!
  • Here’s where you can see how patients find a good doctor. It can take a little work, but the end results will be much better.
  • Don’t know how to say things to your doctor? Here’s a letter to your doctor which can help.
  • And of course, YOU need to become informed somewhat ahead of time, because there will probably be some areas you’ll need to guide your doctor about. Here’s a summary of what patients have learned.
  • Also helpful is to take a copy of the revised STTM book with you. You can have it bookmarked and read to open, if needed, in the discussion with your doctor.
  • What if your doctor is the kind that needs research proof? STTM has a medical research page you can print out and hand to him.
  • And to make you feel empowered, here is a page which outlines the areas doctors need to change in their thinking.
  • Finally, get support from patients.

Bottom line about working with your doctor

Yes, thyroid patients may be disgusted and angry about the lack of good care they’ve received, but it still helps to to interact respectfully and tactfully. And definitely be INFORMED. That will give you the edge and your doctor’s respect in return. If not, move on to much better doctor! Be our OWN best advocate!

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  • Want to receive these blog posts right in your email?? Sign up to the left of this blog post on the STTM blog page.
  • Take the Survey Monkey STTM SURVEY as to your experiences with the majority of the doctors you have seen.
  • Want to talk to Janie and learn about patient experiences and wisdom concerning your issues? Go to the Talk to Others page.

Thyroid treatment success stories–read Erin’s story about T4-only problems and moving to NDT!!

peopleI love real life stories!

In fact, I think those kind of testimonies are some of the most influential ways to help others. And Erin’s story below really struck me. She spent years ignoring the idea that her T4 treatment with Synthroid and later Levoxyl just might explain all the growing problems she was having. So she finally saw the light, made a change, and is feeling so much better as she finally is working on the right issues. Enjoy her story! And if you want to read more, they are on the Stories of Others page, which anyone is invited to contribute to!

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HOW I MISREAD MY CONTINUED SYMPTOMS WHILE ON T4-ONLY…THEN GOT WISE

by Erin

I was diagnosed with Hashimotos Thyroiditis and post-partum depression after having my first baby at 23 years old. I went to the doctor because I was so depressed and fatigued that I couldn’t get out of bed most days. I also had terrible headaches. My doctor put me on Prozac and Synthroid and I stayed on both for the next 23 years (also later used Levoxyl).

Continued problems

The Prozac did help me to be more functional; however, I still had periods of depression and fatigue, and developed other health problems as well, such as anemia, IBS, and chronic pain from TMJ. I went back to my doctors seeking solutions, but they put me on new and different meds that didn’t help and actually caused worsening symptoms like sedation and dependence. I was even diagnosed with bipolar at one point and on six different psych meds at one time!

I finally got off all the meds except the Levoxyl (which I had switched to from Synthroid) and Prozac, and was able to go back to school and regain some functionality. But I continued to struggle with chronic pain, periods of depression, fatigue, and digestive complaints. My doctors periodically checked my TSH and told me I was optimally treated or raised my Levoxyl. I didn’t question their testing or treatment methods, and did not connect my health problems with my hypothyroidism.

For many years, I just lived with the pain, discomfort, and fatigue. I chalked it up to stress and aging. But the IBS and fatigue got progressively worse until they were seriously interfering with my life. I had bloating, constipation and pain that often kept me housebound. I went to my doctor, and was told to change my diet, and take over-the-counter preparations for constipation. He never suggested that my health problems could be related to my hypothyroidism.

My denial and my apathy

My mother, who began frequenting a particular thyroid website, told me that some people can not convert t4 to t3, that she was one of those people, and that I might be too. She encouraged me to go back to my doctor and ask him to test my t3 levels. It seemed unlikely to me that my hypothyroidism was not being adequately treated! After all, I was getting my health care at a university medical center – a teaching institution.

My doctor ordered lab tests yearly and had not adjusted my Levoxyl for several years. I think too I was just plain too exhausted to deal with it. I barely had enough energy to get through work, let alone devote time to researching an alternative form of thyroid treatment that, in my mind, probably would not work anyway! I think, too, the Prozac contributed to my failure to seek alternative modes of thyroid treatment by dulling the pain and keeping me apathetic.

The pain and discomfort of my IBS is what finally pushed me to take the first step to finding an alternative form of health care. My husband had been insisting for a few years that I go to a naturopath or functional medicine doctor, but I didn’t want to pay out of pocket when I had medical insurance that I paid for each month.

My breakthrough, finally

Finally, I got on the internet and searched for a functional medicine doctor in my area, and found one not far from my house. My new doctor, a naturopath, ordered comprehensive lab testing, which revealed that I had very low free t3 levels, severe anemia, low b12, low ferritin, high cholesterol, candida overgrowth, other digestive bacteria imbalances, and more! He told me that my health problems were related to my hypothyroidism, which, he said, was not optimally treated on my current medications. He advised me to reduce my Levoxyl and add .25 grain of Naturethroid each day. He also recommended a variety of supplements.

When I first took the Naturethroid, I didn’t feel much. But about two weeks later I began to feel better than I had in years! I could not believe how amazing I felt; it was like a miracle! My IBS, head and jaw pain went away, and I had feelings of well-being. I was convinced natural desiccated thyroid was the solution to my health problems.

A bump in the road

About 10 days later, however, I started feeling anxious, restless, shaky, and having heart palpitations. I went back to my naturopath and he told me to stop the Naturethroid. I felt intuitively this was incorrect. I frantically searched the internet for some reason for my symptoms, and found STTM. I learned that I couldn’t tolerate the Naturethroid because of my low iron and low cortisol. I also felt empowered by what I learned on STTM; the site encouraged patients to make their own decisions about their healthcare. After that, I took over management of my own health care. I told my naturopath what I had discovered, and he agreed to adopt the treatment plan I felt was right from what I learned from STTM. Fortunately, he was open-minded and has been willing to be my equal partner in my health care.

I learned from the STTM site, book and forums that recovering from years of untreated hypothyroidism from staying on T4 meds is more complicated than simply getting on NDT. It takes a lot of work to stay informed, investigate, identify and treat the root causes of my health problems with natural remedies. It is far easier to remain passive and allow my doctors to dictate my treatment. However, my apathy kept me sick for a long time, and I cannot afford to lose anymore time being sick! Treating the root causes of my health problems is well worth it, as it leads to longer-lasting and better results than simply covering the symptoms with harmful pharmaceuticals.

Success and confidence for the future

While I still have work do to, I have come a long way and feel better than I have in years. The progress I have achieved in recovering my health has made me confident that I will ultimately achieve optimal health with the tools I have learned on STTM.

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  • The STTM **SPANISH EDITION** book is on sale for a limited time only thanks to an overstock! Only at the LGP site!
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Three Sleeping Issues you might encounter as a Hypothyroid Patient

Snoopy

(This page has been updated for the present day and time! Enjoy!)

Have trouble sleeping? Here are three scenarios you might identify with, the causes, and the solutions.

1) INSOMNIA or WAKING UP FREQUENTLY SOON AFTER YOU FALL ASLEEP

This is an extremely common problem faced by thyroid patients, and the most common reason is going to bed with high levels of cortisol–the opposite of what healthy adrenals should be doing. With normal adrenal function, your bedtime cortisol levels should be low, or at the bottom of the range of a saliva cortisol test. Symptoms include laying awake for a long time before falling asleep for the night…or if you can fall asleep well, you tend to wake up often within the next hour or two.

Why the high cortisol?

It’s usually a left-over remnant of when you used to have high cortisol all day long, but which has since fallen to low levels of cortisol except for bedtime, or afternoon and bedtime.

And all the above can happen to certain individuals due to a continued hypothyroid state (such as being treated with the inadequate T4-only medications like Synthroid, Eltroxin, Oroxine, and/or Levothyroxine, etc) or due to undiagnosed hypothyroidism (thanks to the use of the TSH lab test).

Another cause is low bedtime cortisol (i.e below the range), which has caused issues with falling or staying asleep at bedtime. Low cortisol seems to cause high adrenaline, and the latter results in a fitful sleep pattern during the night. The solution? First do a 24-hour adrenal saliva test to prove if it’s high or low cortisol, say informed thyroid patients. Guessing can get you into trouble. (And blood cortisol is not the answer, since it’s measuring both bound and unbound cortisol.) Then compare the results to what we’ve learned they mean.

For high bedtime cortisol, patients have had success with cortisol-lowering herbs like Holy Basil, zinc or others, taken a good hour or two before they want to fall asleep. Each dose is given three nights to see if it’s enough to improve sleep. If not it’s raised…and again if needed. Then they wean off after several weeks of better sleep.

For low cortisol (below the range), patients often have to use a small dose of HC or Adrenal Cortex. Even supplementing with sea salt has been reported to help with sleep. Additionally, if bedtime cortisol is below the range, there’s a good chance your cortisol is low most of the day, which saliva testing will reveal. Chapter 6 in the revised STTM book has excellent and important information on the proper use of HC, which would also apply to adrenal cortex.

2) WAKING UP ANYWHERE AROUND 3 – 4 AM

Waking up a good three to four hours before you would normally start your morning is a strong sign of low cortisol, which in turn causes hypoglycemia (low blood sugar). And the latter can push your adrenaline up, causing you to wake up hours before you are supposed to. You might also feel shaky or hungry.

The solution? Besides taking cortisol at bedtime, if needed, patients have reported doing far better with sleep by eating a complex carbohydrate at bedtime (for example, whole wheat cracker with cheese or peanut butter…or if you need to avoid gluten, berries and cream cheese). The same strategy is used if waking up around 3 am or so, which will help raise your blood sugar levels and you might fall back asleep better.

3) WAKING UP FREQUENTLY WITH NO SET PATTERN

Time to check your sex hormones, which can get messed up with hypothyroidism, or made worse because of adrenal sluggishness or cortisol use.

Low estrogen can cause hot flashes, waking you up. A study titled Sex Hormones, Sleep and Core Body Temperature in Post Menopausal Women reveals that low estradiol (E2) and higher luteinizing hormone (LH) levels are strongly related to lessening the quality of your sleep.

Low progesterone is also known to cause insomnia and even anxiety, and may cause sleep apnea (or make you snore, ladies. Gulp). Entry into menopause has caused this, report many women.

Especially in men, low testosterone can negatively affect the quality of your sleep, i.e. you won’t stay in your deep sleep cycle long enough for recuperation of your body and mind.

SLEEPING TIDBITS:

  • Low levels of the neurotransmitter serotonin, which can cause depression, is also implicated with insomnia.
  • High cortisol can also be caused by Lyme or reactivated Epstein Barr Virus–the latter of which at least 95% of adult have dormant in their bodies, but which can reactivate due to stress or illness. .

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  • Speak or read Spanish better than English?? The revised Stop the Thyroid Madness book is now in Spanish! And shipping is relatively cheaper for two or three books. laughinggrapepublishing.com Give one to a friend or family member!
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  • Here’s an important summary of what patients have learned in getting well again.
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