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Category: hypothyroidism

The Scandal: Thyroid Patients are Speaking Out, Wall Street Journal, and a new video!

STTM photos of people from video UPDATEDThe push continues, fellow thyroid patients. And it’s getting louder and more widespread.

This week, Wall Street Journal columnist Melinda Beck, who writes a weekly health column, hit an important gong with her wonderful attention-getting article titled “Doctors Hear Patients’ Calls for New Approaches to Hypothyroidism.”

“Doctors and patients have been at each other’s throats for decades over how to treat a little gland in the neck–and patients may be gaining ground.” ~Melinda Beck

Beck underscored the sad reality that doctors have been relying “on a single form of treatment for hypothyroidism”, aka T4-only like Levothyroxine or Synthroid. And it’s been travesty.

Why T4-only as a sole treatment is a scandal

As I explained in detail in the revised Stop the Thyroid Madness (STTM) book, a healthy thyroid produces five hormones: T4, T3, T2, T1 and calcitonin, with T4 being the storage hormone, and T3 being the powerhouse of all the thyroid hormones. In that healthy thyroid, T4 will convert to T3, but the gland also produces “direct” T3. That is an important distinction.

Yet this “single form of treatment” with simply a storage hormone, which was thrust upon thyroid patients by 1960 (see Chapter 1 in the revised STTM book for excellent historical details), has forced us all to live for conversion alone…and hundreds of millions of us over the past five decades have a paid a hefty price. There are simply too many reasons why the conversion of T4 to T3 can be impaired, ranging from genetic factors, to diet, to stress, to illness, to age.

That is exactly what compelled me, in 2002, to start what is now the largest active thyroid group still on Yahoo, and later, the largest “system of thyroid groups” on Facebook, called the FTPO (For Thyroid Patients Only) groups–the only system of patient groups endorsed by Stop the Thyroid Madness.

How patients are dismissed

In addition to quoting a few doctors, Beck interviewed thyroid patient/advocate Mary Shomon, who stated “It’s so much easier to tell a woman to get up off the couch or hand her a prescription for antidepressants.” Also interviewed was thyroid patient/advocate Dana Trentini, who feels her second pregnancy ended in miscarriage due to only being dosed by the TSH, which in her case was left high–another hefty problem in the treatment of thyroid patients.

Major kudos to Antonio Bianco, president of the American Thyroid Association

When the American Thyroid Association (ATA) has been the height of disappointment for informed thyroid patients with it’s strong emphasis on “synthetic thyroxine” as well as its poor details about NDT, it was extremely refreshing to see him quoted as stating: “I credit this to patients pushing doctors and saying, ‘You don’t know what you’re talking about. I don’t feel fine’.” followed by Beck’s words that Bianco ‘has refocused the research to search for answers for such patients’. You give us a light of hope, Dr. Bianco.

Seven areas that patients beseech their practitioners to be wiser about…

1. Levothyroxine, Synthroid and all other T4-only medications

They have failed far too many of us. It’s not about exercising more, eating less, seeing a therapist or putting us on a myriad of other medications to treat conditions which are actually the results of that failure. Learn from us.

2. Natural Desiccated Thyroid (NDT)

What has been vividly changing lives is Natural Desiccated Thyroid (NDT), not T4-only medications. NDT has been around since the 1890’s–it worked then and it works now. Learn from us.

And to the contrary, NDT’s T4 to T3 ratio of 80/20 (as compared to the human ratio of 93/7) has not been a problem for the vast majority. Instead, problems are usually “revealed” on NDT due to a cortisol issue and/or low iron–both common problems that arise with patients who have been put on T4-only, or who have been left undiagnosed.

3. The TSH lab test

The TSH lab test is and has been as much a failure for thyroid patients as has T4-only. To be held hostage to a “pituitary hormone” has been a complete **nightmare** for thyroid patients. Even one of your own esteemed colleagues, Jeffrey Dach MD, as well as many others, know the travesty of the TSH as explained in chapter 4 of the practitioner-written book Stop the Thyroid Madness II. Learn from us.

4. Lab tests that count, and how to read them

It’s the free T3 and free T4 lab tests which have been superior for either diagnosis or dosing, not the TSH. And a key observation noted by informed thyroid patients is “where” a result falls in the so-called “normal” range that has meaning. Many key lab tests have helped us in our journey towards feeling wonderful again. Learn from us.

5. Symptoms that go along with hypothyroidism

To the contrary, there are clear symptoms that go along with the right lab tests to reveal hypothyroidism. Depression is overtly common in an undiagnosed or poorly treated hypothyroid state, as is afternoon fatigue, poor stamina, dry skin, hair loss, rising cholesterol, rising blood pressure, painful joints, and/or others. How do we know as informed patients? Because they go away when optimally treated on Natural Desiccated Thyroid. Learn from us.

6. T3 added to T4

Adding T3 to T4 has proven to also be far superior to T4-only, and to the contrary, it has NOT been “difficult to sustain therapeutic levels” if practitioners will simply learn from their patients how to use T3-only with T4. The same goes for the even more superior Natural Desiccated Thyroid. Learn from us.

7. Listening to your patients instead of dismissing them

Finally and most importantly, though we appreciate the intense medical training that all our doctors have received, it’s time to consider that we, as informed patients, might have something valuable for our doctors or practitioners to consider and open their minds to. It’s not just about clinical trials. It’s time to RESPECT AND LISTEN TO YOUR PATIENTS, THEIR EXPERIENCES, CLINICAL PRESENTATION, AND THEIR OWN INNATE WISDOM. Learn from us.

ANNOUNCING: A new powerful YouTube video in honor of thyroid patients worldwide: https://www.youtube.com/watch?v=2n0NfAUyOKo Please share this video to your blogs, private Facebook pages, groups, Twitter, email. Join the PUSH!

JanieSignature SEIZE THE WISDOM

 

 

 

 

 

 

 

 

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43 replies

In Loving Memory of Dr. William Trumbower, a Contributor to the STTM II book

William D. Trumbower, M.D.With great sorrow, I want to announce that Dr. William D. Trumbower of Missouri, who contributed the chapter Nutrition and Hypothyroidism in the Stop the Thyroid Madness II book, has recently passed away.

I adored Dr. Trumbower. He had great humility. When I asked him to be in the book, he stated that he “agonized over it as I am not in the same category as the other authors”. Posh!! I knew that was totally wrong. He was smart, open-minded, insightful and fabulous.

What I loved about his chapter is his take on the effects of either inflammation, malnutrition or toxicity on one’s hypothyroid state. He talked about the gut and the problem one can have from gluten, besides all the problems we can encounter from refined sugars and industrial-processes oils–all which he explained can cause more inflammation.

In one section of his chapter, he discussed the problems on our thyroid and health in general due to toxicity from halogens, heavy metals and xenoestrogens. I kept thinking about that when I discovered myself with high copper and lead last year, as well as high barium!! He was also keenly aware of the importance of knowing if one has the MTHFR mutation, which in itself can cause high heavy metals.

Dr. Trumbower believed that “almost all hypothyroidism begins as a nutritional disorder”. Patients haven’t always found that to be true for them if genetics are involved, but we agree that a high body of us could fall in that nutritional problem category!! So what a perfect chapter subject for him to focus on.

But here’s what I have NEVER forgotten about Trumbower: He followed his own advice about nutrition and stated that his “thyroid dose dropped from 150 mg of desiccated thyroid to 30 mg daily”. That has always blown me away. His experience underscored how important it is for all of us to know our nutritional status and treat it! I definitely do. I had found myself to be low in B-vitamins, l-carnitine and CoQ10 and definitely treat those. I also tend to fall too low in magnesium, so that’s an important nutrient for me to supplement. Dr. Trum certainly underscored it.

After the STTM II book came out, he explained to me in his own humorous way how it had changed his professional life. He stated: “I now have credibility instead of being an old outlying radical doc.” Don’t you love it?? Now you know why I found him to be so endearing. And one way he blessed me in return is in stating that even he used the revised STTM book to guide his own thyroid journey! You make this girl proud.

In 2015, Dr. Trumbower and his daughter Elisabeth created a fully integrated clinic that combined aesthetics, wellness and bioidentical hormone therapies, called Pela Cura Anti-Aging & Wellness. What a blessing that must have been to worked with his own beloved daughter!

I have included his bio from the book below, just for you to know more about him and what a wonderful person and doctor he was!

Rest in Peace, Dr. Trumbower. Your chapter in the STTM II book will forever inspire thyroid patients, just as your presence and open-mindedness in the lives of so many of your patients have done the same.

********************

I, William D. Trumbower MD, am a 69-year-old OB/GYN (no longer doing obstetrics or surgery), practicing in the, medium size, college town of Columbia, Missouri. I am blessed in my practice, as my eleven partners do not require me to take call any more. I am able to spend my time, in my office, performing annual exams on many people I have known for well over 30 years, as well as being able to concentrate on bioidentical hormones, thyroid, chronic fatigue and other areas that no one seems to be very interested in, probably because they are not extremely profitable.

I did not mean to be an alternative thyroid hormone physician. Nothing in my training would have given me any hint that this was to be my destiny. During my residency, I was obsessed with surgery, high-risk obstetrics and obstetrical anesthesia. I was fortunate enough to to stay on the teaching faculty, at the University of Missouri — Columbia, for three years, as an assistant professor. I left the University of Missouri and entered private practice, in 1979.

I suppose I can trace much of my interest in alternative thinking to my parents, who were both extremely bright and well-read individuals. My father, who had been a captain, in World War I, was the product of a classic East coast education and seemed to know everything about everything. My mother was a registered nurse and she was the one who directed me into medicine, by forcing me to get a job, in the summer of my high school graduation, in 1963, as an orderly, at the University of Missouri Teaching Hospital, in Columbia, Missouri. When I think back to my youth, one of the turning points, at the age of 15, was reading Immanuel Velikovsky’s book’s Worlds in Collision and Earth in Upheaval. I realized, after reading these books the important issue for me was not whether Dr. Velikovsky was right or wrong about his theories (I believe he was right, about most things), but how the scientific establishment dealt with someone who dared to question consensus views. This attitude of not accepting what everyone assumes is the truth has stuck with me for the rest of my life.

Another turning point, for me, and my career, occurred early in my private practice, in the 1980s, when I was confronted with patients with cyclic mood problems, which my training had not prepared me to deal with, at all. The only thing that I could think of, for people like this, was hysterectomy and putting them on Premarin. One of my patients directed me to the works of Dr. Katharina Dalton, in London, England. When I tried some of her techniques of supplemental natural progesterone, I was astonished to find that it worked remarkably well. As a result, my family and I took a trip to London, where I spent a week with Dr. Dalton learning her techniques. When I returned home, full of enthusiasm to share my new knowledge, I was shocked to find that most of my colleagues were very negative and wanted nothing to do with this information. It literally drew a line in the sand, with me on one side and most of my colleagues on the other. However, when I looked around, most of the patients were on my side of the line.

Because of my age, I did some of my training in the days before Synthroid dominated the market and natural products, such as Armour, were still in wide use. My mother was hypothyroid and I watched as her new doctors switched her to modern medicines, leaving her with a continued weight problem and fatigue. Because of this, I was open-minded enough to prescribe Armour, if patients requested it, but I really did not know much about it until I met another physician from Columbia, Missouri, Dr. Mark Starr. Mark was from Columbia and moved back here to start a practice. He is the author of the book Hypothyroidism Type 2. I realized that he had a lot to offer my patients and so I began to communicate with him. He is the one who directed me toward the work of Dr. Broda Barnes and opened my mind about thyroid. Since then, I have continued to read and study, extensively, about thyroid. My education was enhanced when I was diagnosed with Hashimoto’s thyroiditis, in the last decade.

Interestingly enough, one of my patients had brought me one of the first editions of Stop the Thyroid Madness, prior to my diagnosis. I actually used many of the techniques and suggestions, in the book, to guide me through my own hypothyroid treatments, including a trial of Synthroid, finding elevated reverse T3, having to use T3 only and, finally, settling on desiccated thyroid, which I have been on since that time.

When Janie Bowthorpe called me to ask me to write a chapter, for her new book, I was dumbfounded to find that anyone knew who I was. I was likewise astonished at the other authors in the new book, many of whom are people whose works I regularly read. My hope is that this chapter will provide a small overview of my view on thyroid disease and the general approaches that I take with it. I will end by saying that the most powerful tool that anyone has to control their health destiny is what they eat every day

** Dr. Trumbower’s obituary http://www.columbiatribune.com/obituaries/bill-trumbower/article_60ba8e47-c38f-5f03-ad9a-a87978dfa9ef.html

26 replies

An Endocrinologist peeks through, RAI disaster, and why synthetic T4 is only a mirror image

The clueless Cuckoo’s Nest of Endocrinology just goes on and on, according to repeated negative comments by thyroid patients in groups after they have visited with an Endocrinologist. i.e. you will be put on T4-only and dosed by the TSH, then told you are just fine and only need an antidepressant or statin or BP med.

But in a recent issue of the Clinical Thyroidology For Patients (A Publication of the American Thyroid Association), Volume 5, Issue, 5, 2012, there comes the question: Should patients with no functional thyroid gland be treated with both thyroxine (T4) and triiodothyronine (T3)?

Of course, the question is like asking “Should those starving be given food? ” The article starts out stupid, stating (in bold):

  1. “…the absence of T3 production by the thyroid can be overcome by maintaining higher circulating T4 levels, resulting in normal circulating levels of T3. This is why T4 in the form of levothyroxine is the main treatment for hypothyroid patients”. Patients all too well know how ludicrous this is.
  2. “Recent studies have generally found that there is no clinical advantage in adding T3 to the usual T4 replacement regimen.” What about this study which reveals that there can be inadequacy of peripheral deiodination of T4 to T3 in some, or this study which found no support for the hypothesis that people with symptoms of hypothyroidism but thyroid function tests within the reference range benefit from treatment with 100 µg thyroxine daily, or this study which found that triiodothyronine added to thyroxine improved mood and neuropsychological function, and more.

But then comes the little peek from the door by the MD author after mentioning the 2011 study titled “Levothyroxine monotherapy cannot guarantee euthyroidism in all athyreotic patients.” The concluding paragraph has this in it:

The present study identifies a subgroup of hypothyroid patients, namely those whose thyroid was surgically removed who do not have normal FT4 and F3 levels despite normal TSH levels on T4 alone. What is not shown by this study is whether or not combination therapy (T4 plus T3) is beneficial in these patients. Further studies are needed to sort this out.

Further studies are needed?? They are already out there! Besides, if 99% of Endocrinologists would use the proverbial toothpick to open up the eyelids of their minds, they just might notice all the continuing hypothyroid symptoms their patients have while on T4-only meds whether STUDIES prove anything or not. WAKE UP!!

MAN-MADE SYNTHETICS ARE ONLY A MIRROR IMAGE OF THE REAL THING

Scientists have always been able to synthetically duplicate substances by creating the same mix of molecules, aka a synthetic copy of the original compound. That’s what levothyroxine (l-Thyroxine) is a man-made copy of T4 (Thyroxine). Synthroid is an example. But it’s a mix of the left handed nature-made combination of molecules, aka L-(Laevorotary), along with the synthetic, man-made right handed version, aka D-(Dextrorotary), i.e. the latter is a mirror-image, not a direct image, according to this article.

The author feels it doesn’t act like a hormone. So though your blood will show you have an increased level of levothyroxine, it’s not the same as having an increased level of the natural t4. And of course, we as thyroid patients also know that the body is NOT meant to live on a storage hormone alone, even if it was pure. We also need direct T3 added to that T4. Even natural desiccated thyroid provides direct T3. So with natural desiccated thyroid, we get T4, T3, T2, T1 and calcitonin.

REFLECTION ON WHY RAI WAS THE WORST THING SHE EVER DID

Read thyroid patient Robyn Thompson’s story on why she so regrets doing RAI (Radioactive Iodine), and how her Graves TSI antibodies are now worse than ever before, here: https://stopthethyroidmadness.com/robyns-experience-with-rai-graves/

HOW TO PROTECT YOUR ADRENALS IN THE FACE OF STRESS

I loved what thyroid patient Joy McHargue said to someone on the STTM Facebook group when asked what to do about high stress. Her answer: Pray, salt, magnesium, rest, adaptogens of your choice, Vitamin C, talk about the stress to a calming person, take time away from the stress doing something fun regularly, epsom salt baths, fresh air?

THE STOP THE THYROID MADNESS BOOK IS NOW EVEN MORE REVISED!

I added info about the T3 Circadian Method for Adrenal fatigue, refined information throughout, and cleaned up misspellings. You can order the book at the bottom of any page on STTM, or via the tiny photo.

JANIE’S LATEST INTERVIEW: http://podroom.a2zen.fm/podcasts/krystalya-marie-energy-healing/stop-the-thyroid-madness-with-janie-bowthorpe-on-e

P.S. If you are receiving this via the Email Notification, DO NOT reply to the email to comment on this post. Click on the title of this, which will take you to the actual blog post, and Comment there!

3 replies

The Good Housekeeping fiasco asks a huge question: when is the media going to catch up with the real world?

As informed thyroid patients, we’ve all been talking about it in patient groups, blog posts, and amongst each other. About.com’s Mary Shomon did a good write up in her blog post, and you can see one of several different Facebook group conversations here as well as the article and our comments after it, here.

And if you haven’t caught up with it all yet, here is a summary of the extremely sad misinformation and implications contained in an article of the latest issue in the Good Housekeeping magazine:

  1. that the first step to diagnosing your potential hypothyroid problem is the use of the thyroid-stimulating hormone (TSH) lab test (a test which informed patients worldwide exclaim has left them either undiagnosed for years or undertreated! https://stopthethyroidmadness.com/tsh-why-its-useless)
  2. that your TSH may only point to hypothyroidism if it comes back at 10 or higher (Hogwash!! say informed thyroid patients, who have been hypothyroid with a TSH in the two’s! See above.)
  3. that the only other tests you may need are the T4 and antibodies (which informed patients have found is only PART of what you need, which needs to include the very important free T3! //www.stopthethyroidmadness.com/recommended-labwork)
  4. that it’s worthy to quote a Dr. Daniels who states “There’s no compelling evidence that medication helps patients whose TSH is in the 5.0 to 10.0 range,” (exactly the kind of doctor which nearly all informed thyroid patients state has kept them repeatly sick for years! //www.stopthethyroidmadness.com/give-me-a-break )
  5. that if you have “other problems”, such as infertility or depression, your doctor might suggest medication (when, oh when, are doctors going to GET IT that depression and infertility are key symptoms of ongoing hypothyroidism!! https://stopthethyroidmadness.com/long-and-pathetic )
  6. that T4 meds like Synthroid are T4 hormone are the go-to medication (and are the very medications which have kept patients sick, disabled, or with problematic hypothyroid symptoms for over 50 years! https://stopthethyroidmadness.com/t4-only-meds-dont-work )
  7. that the “potency can vary” for desiccated thyroid…as if that’s a good reason to be concerned about its use (potency is set in a predictable range and is made according to the strict guidance of the United States Pharmacopeia , say the makers of desiccated thyroid, and desiccated thyroid has been changing lives ten fold for decades! https://stopthethyroidmadness.com/natural-thyroid-101)
  8. And last but not least…that you need to be on-guard about online patient information (yet wise and repeated “patient experience” has changed not only patient lives, but the way open-minded doctors are practicing in their own offices!! https://stopthethyroidmadness.com/things-we-have-learned

All the above, appearing in what we all thought would be considered a long-standing good magazine, only underscores the irresponsibility and ignorance of the media about REAL LIFE!! Who wants to subscribe to any magazine, or listen in seriousness to any news program, talk show, or internet website that allows this kind of DARK AGES BALONEY on its pages?? I don’t.

P.S. One particularly personal tragedy is the author of this article, Susan Carlton. She is clearly hypothyroid, yet completely duped by the pharmaceutically-brainwashed medical field which clings blindly to a poor medication and inadequate labwork. She is ALL OF US LOOKING AT OURSELVES all those years when we believed in the doctors we went to and emptied our pocketbooks to try and find out why we had depression, infertility, rising cholesterol and blood pressure, linger aches and pains, poor stamina and fatigue, weight gain, hair loss, anxiety…and so many more symptoms of undiagnosed or undertreated hypothyroidism.

And sadly, how many of us also thought that actions similar to “drinking more java (for energy)”, or “honing crossword skills (for focus)” or attending a “spinning class” (for our weight gain) was going to help us! They didn’t help at all. They just sent us closer to adrenal dysfunction and disability.

***********************************

If you could speak to the author, Susan Carlton, in kindness and wisdom, what would you say to help her get past the brainwashing she is a victim to, as you were??

If you could speak to Good Housekeeping and all media like Oprah, CNN, MSNBC, ABC, FOX, what would you say about the repeated misinformation?

12 replies

Electrolytes, Stress, A1C and diabetes, FDA, Las Vegas and more!

I’m amazed at lingering problems since being on T4: Though I’ve been on desiccated thyroid for 8 years, and do quite well since correcting low ferritin twice thanks to the lousy T4-only treatment, I discovered that my RBC magnesium is low, as I suspect my RBC potassium is, as well–all probably down due to chronic economic stress from this lousy economy. But it underscores that we all have to be vigilant and not hesitate to periodically get minerals and electrolytes tested, especially RBC (Red Blood Cells), as well as anything else your doctor recommends, or you read about. Labs you can do yourself are here, then share with your doc. You can read about potassium issues here.

Under stress with the economy or the holidays? When stressed, I love and use the herb Ashwagandha. It’s been used for thousands of years in Ayurvedic healing, helping your immune system and stress response. High dose B-vitamins are said to help counter anxiety and depression. Vitamin C is huge for your adrenals like the B’s, and has been known for years to counter the effects of stress. In fact, stress depletes it, so they state you are wise to raise it when under stress. (Is Vit. C why I never got adrenal fatigue when I deserved to get it? I always took a lot.) Also recommended include the herbs Valerian Root, Marshmallow, Lemon Balm, Chamomile tea, Passionflower, and more. But first do research on any herbs and talk to your doc.

Hypothyroidism can falsely raise your A1C, implying you have diabetes even with normal blood glucose. Just got word from thyroid/adrenal patient Jackie about this study concerning the A1C test, here. In turn, those on thyroid treatment saw their A1C fall. We don’t know what the thyroid meds used were, but imagine even better results if on desiccated thyroid, which many patients report does a much better job than T4, especially in the presence of optimal ferritin/iron and adrenal function.

Don’t be complacent: register yourself: Sheila of TPA-UK is working to create a register of patients who have had continuing hypothyroid symptoms while on T4. After she creates this register of patients, which right now only involves a couple of questions, she will create the a Worldwide Register of Counterexamples to Levothyroxine (T4)-Only Therapy for. Register yourself here. This will also run alongside Dr. Gordon Skinner’s Worldwide Register, which you can also be a part of here.

Listen to a new video produced by the FDA about drug shortages here. I wonder what our own 2009 shortages with Armour and Naturethroid played a role in this video? Wonder if the FDA will ever admit that they were partly to blame for this shortage by shutting down the 2009 generics? Has anything been left out of this video?

No, Las Vegas Review-Journal. Hypo get undiagnosed because of the lousy TSH, not “subtle” symptoms. Yes, this journal did a recent article, quoting AACE as stating half of thyroid patients remain undiagnosed. The article then states it’s probably due to symptoms being very “subtle” or “very similar to other health problems such as anemia, fatigue, depression, slow metabolism and a wide array of other diseases.” GROAN. It would be nice if these articles on hypo got it straight: hypo remains undiagnosed because of the lousy TSH lab test, which too many Endocrinologists worship, and because they fail to noticed the obvious symptoms of a hypothyroid state, which include anemia, fatigue, depression, slow metabolism and a wide array of other diseases. i.e. those ARE the symptoms of hypo, not “other health problems”. When oh when will reporters DARE to state what patients have learned?? (Oh, and guess who included a link to this article in their email Thyroid Weekly? The Endocrinologist-loving, TSH-loving American Thyroid Association.)

Have a great holiday season!!

Janie

P.S. HO! HO! HO! The publishing company will send a book for you to a friend or loved one for a Christmas present. Go here.

15 replies