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The STOP THE THYROID MADNESS book is out!

UPDATE: I am pleased to announce that the most gutsy, revolutionary, comprehensive and practical book on the subject of diagnosis, treatment, and medications for hypothyroid, as well as related conditions, including low ferritin, adrenal fatigue and other problems which befall hypothyroid patients…is out! This is YOUR book as a patient-to-patient book.

The link below will take you to the Publisher’s website. On the home page, you can read about the publisher. Then click on the PRODUCTS page to see the book and information. Click on the DOUBLE GREEN ARROWS to open up the entire text plus shipping information.

www.laughinggrapepublishing.com

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Yup, it’s done. It’s complete. And I can say without a doubt that there is NO book on hypothyroid as hands-on as this one. Why can I say that? Because the book is based on YOUR EXPERIENCE and thousands like you. Because this is THE patient-to-patient book. Yes, I wrote it, but YOU wrote it, too.

Where is the STTM book available? It will FIRST be available right here on the site in approximately two weeks. It’s about 300 pages and will sell for 19.95. So keep coming back here.

Is the STTM book a copy of the website? Not exactly. Yes, you will see some things in the book that ARE on the website. That was important. But….you will also find a chapter totally on T3. You will learn some history that’s not on the website. You will get more details on adrenal support. You will have new stories of others. You will read a chapter totally written for and about doctors. And there’s much more that is not right on the STTM site…little details inserted here and inserted there.

Why did I write it? Because though the STTM website has done WONDERS to reach people, MORE is needed. There are folks out there who are NOT coming to the web, or even know to look for answers, and this book will reach them. And….it can simply be more productive to have a BOOK to refer to and a BOOK to read when you are traveling in the airplane or waiting in the doctor’s office. AND…..FINALLY, we have something to HAND THE DOCTOR when he or she doesn’t get what we are talking about…or to our family or friends when they don’t get it, either.

Get ready. I’m excited. I hope you are too. img_0261.JPG

P.S. Guess what Oprah Winfrey may be drinking daily?? Soy milk. And since soy is a known thyroid inhibitor, guess what she’s doing to her thyroid? Quoted directly from her site: Thanks to all the yogurt and calcium-enriched soymilk she consumes, she’s getting an average of about 1,100 mg of calcium daily OOPS.

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Has progress been made with thyroid treatment??

Sometimes I ponder: the current movement away from Synthroid & Levoxyl and all other T4-only meds to desiccated thyroid like Armour (as well as the understanding of the high prevalence of adrenal fatigue with thyroid patients), has been going on for ALL of the 21st century. In other words, patients were starting to talk about desiccated thyroid like Armour by the year 1999, and Yahoo’s Natural Thyroid Hormones group was started in 2002. Other patient groups sprung up around the same time. The latter group is also where the knowledge about adrenal fatigue in thyroid patients grew, which was further added to on STTM. So….has there there been any changes in the way thyroid patients are treated for their hypothyroid and related conditions?

The YES

Sometimes I can say a resounding yes! There are many doctors around the world who are looking at Stop the Thyroid Madness (STTM) and listening to what is says. STTM is about the real life changing experience of patients! Some doctors tell me outright, either via the Contact Me form or by responding to my blog posts here, that they are reading it and approving the information. Or, I find out about other doctors second hand by patients who tell me their doctor TOLD THE PATIENT to read STTM. The latter definitely makes me chuckle when so many doctors tell patients that information on the internet is DANGEROUS! 😆

I can also say yes when I read the comments of patients on various thyroid patient groups on the internet. Because of the information patients have learned from STTM, which is in turn passed into the groups, patients all over the world are making demands in their doctor’s offices, and some progress is being made all over the world.

And a final yes can be uttered by me when I see a few but growing number of websites promote desiccated thyroid.

The NO

But there are so many situations where I have to say no. 1) When doctors on internet forums TO THIS DAY continue to give lousy advice to thyroid patients, it’s disheartening. 2) When patients on thyroid patient groups TO THIS DAY continue to have doctors state each and every ridiculous give me a break comment, it’s sad. 3) When a famous female talk show host continues to ignore each and every email sent to her for years about the deplorable situation across the world with thyroid patients, as well as seem to misunderstand her OWN thyroid and potential adrenal problem, it’s maddening. 4) And when I can run into patients DAILY when I go to the grocery store, or to the gas station, or to any public place, who are still on Synthroid or Levoxyl and coping with innumerable symptoms of a poor treatment, not excluding adrenal fatigue, it’s scandalous.

So the complete answer? Yes and no. The ball has definitely been rolling for better treatment. Some doctors out there are truly listening. Many patients out there are learning and demanding change. It’s happening. But baby, we have a LONG WAY TO GO. And the power will be in the hand of patients who question their treatment, find answers via STTM and other websites and patient forums, and continue to demand change from their doctors and the entire medical establishment. I just hope to see more change sooner than later, don’t you?!

p.s. Want to spread the word?? Go HERE to order a t-shirt or bumper stickers. You CAN make a difference!

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Does it make sense? Nope. In fact, it’s just plain STOOPID.

If you were told that water wasn’t important to your well-being, and thus, if you want it, you will now need to pay a LOT more for it, would that make sense?

Nope. And neither does what Medicare has decided about Armour Thyroid.

Medicare is the government’s health insurance for those of you age 65 or older. It’s also available for those with certain disabilities, and for any age with permanent kidney failure requiring dialysis or a kidney transplant. And recently, the almighty Medicare has notified those using Medicare that it will no longer cover Armour. Why? Because it fits under medications considered “less than effective.” And poop on top of garbage…Medicare also recommends T4.

You have got to be kidding.

Armour thyroid is conclusively, adamently and overwhelmingly changing the lives of those who switch to it. Conversely, T4-only medications like Synthroid, Levoxyl and others have conclusively, adamently and overwhelmingly left most if not all hypothyroid patients with continuing hypothyroid symptoms of one degree or another. Yet, Medicare has dictated that an inferior treatment is the medication of choice and will be covered, and a medication that changes lives is not worth being on their formulary.

There is a pervasive madness going on out there.

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Bumper Stickers are coming! And they work!

***UPDATE: BUMPER STICKERS ARE HERE! You will also note a way to pay immediately for either bumper stickers or t-shirts, using a new, growing and SECURE site that transfers money from your bank to the STTM account on the site. This is a preferred alternative to PayPal with much less hassle. NOTE: IF YOU USE IT, you will need to use Contact Me to let me know the information on the Order Form.

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A gal suggested I also have bumper stickers in addition to the t-shirts, and I think she’s right. I have a bumper sticker on my car of Calvin peeing on a particular brand of T4 (I can’t sell those since I name the brand–lol). But it definitely catches attention! Just the other day, as we had parked our car in front of a Walgreens, a gal came up with her camera to take a photo of the bumper sticker. She laughingly explained that she works in the pharmacy and wanted to show it to the pharmacist.

And I have to wonder how MANY view that bumper sticker when I am sitting in line behind a red light, or parked somewhere. It has to create thought. And that is exactly what we ALL want–to create thought in this T4-obsessed, TSH-worshipping society.

You will see four different kinds of bumper stickers on this site before March, and I will announce them here. Three use good ole tongue-in-cheek humor. WE CAN MAKE A DIFFERENCE. YOU CAN MAKE A DIFFERENCE. Stop the thyroid madness!

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Oops. Let’s not blow this out of proportion!

A very overreactive rumor is being started as I type this about the FDA and Armour, and I think this whole topic needs to be leveled out. The rumor is as follows:

1) The FDA has stopped manufacture of all grandfathered drugs like Armour.
2) Armour will no longer be available at your local pharmacy

i.e. it’s being banned, discontinued, taken off the market, gotten rid off…you name it.

Now first let me clarify that all are totally and completely false. Forest Labs is still making Armour, and you can also find Armour at your local pharmacy, even if certain strengths are easier found than others.

Here is what is going on: In the January-February issue of the 2007 (i.e. a YEAR AGO) FDA Consumer Magazine, an article came out by Michelle Meadows titled The FDA Takes Action Against Unapproved Drugs. But this is NOT new news. This is based on the June 2006 release guidance by the FDA, called Marketed Unapproved Drugs–Compliance Policy Guide. What the FDA is doing is working to get unapproved drugs meet their approval guidelines.

What is an unapproved drug? For one, they are those drugs which were around before the FDA (Federal Drug Administration) came into existence in 1938, and these drugs were ‘grandfathered’ in with the subsequent FDA-approved drugs thereafter. (Armour is an example. Synthroid was too until it did what it took to be approved in 2002) Other examples, as explained in the January/February 2007 article, are when only one company may have approval to market a drug, but other companies are illegally marketing their versions of the drug without having gone through the FDA’s approval process. Another scenario is that a combination of ingredients is approved by the FDA, but a company is marketing a single ingredient without approval.

The article also clearly states: Before pursuing regulatory action against unapproved drugs, the FDA plans to consider the effects on the public health, including whether the product is medically necessary. The agency recognizes that some unapproved therapies offer benefits. An example is Phenobarbital, a drug used to control seizures. In some cases, FDA action requiring drug approvals will be gradual to avoid shortages of medically necessary products. In other words, whenever the day may come that Forest Labs is asked that Armour meet the regulations of the FDA, the process will be gradual and Forest will be given a fair deadline to do what it takes.

Kathy, a pharmacist with Forest Labs, reminds us that Armour has never been asked to go through that process (or they may not be admitting it yet so they can go through it in peace.). And if the day comes, they will do what it takes. Armour is a safe and life-giving product. And you bet your booties that even if it looked threatened some day, there would be a huge uprising from patients to stop it. But that’s not going to happen, just as it was for Synthroid where Abbott labs did what it took to be approved, and succeeded.

So, take heart: everything is fine. Armour is still being made. Your pharmacies still have it, even when some strengths are easier to come by than others. And I’ll keep you informed. And remember: I’ve always told you to stock up on your desiccated thyroid products anyway. 🙂

p.s. The root of the rumor comes from a recent recall by Forest Labs concerning its 3, 4 and 5 grain tablets, which had a 6-month potency problem, and a misunderstanding about it’s implications by individuals. Those tablets are currently scheduled to be out again by the end of January.

http://www.fda.gov/fdac/features/2007/107_drug.html
http://www.fda.gov/cder/guidance/6911fnl.pdf

***Want to spread the word and be your own thyroid patient advocate? Get your t-shirt here.

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