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Feel better on T4 than you did on Natural Desiccated Thyroid?

Occasionally, hypothyroid patients will exclaim with conviction and truth that they outright feel better on Synthroid or Levothyroxine (T4-only meds) than they did when they tried Natural Desiccated Thyroid (NDT) or even T3-only.  And we believe them.

But…there is an explainable reason which does not mean T4-only is better for you. It really isn’t. Bear with me and read on…

Years ago, as many of us were starting on NDT after being on T4, we were seeing our lives change in a huge way, far more than T4 did! It was like a miracle! Those five hormones really made a difference.

But some others were having problems when raising something so miraculous for others. Huh?? We didn’t get that.

It took awhile longer to finally see why and to answer the “huh?” i.e. we began to see that there were three strong and correctible reasons why someone was not seeing the miracle of NDT as others were, and instead, were blaming the NDT (or T3) and moving back to T4-only…

The three main and correctible reasons why NDT, which gives all five thyroid hormones, seems to fail…

1) NOT BEING “OPTIMAL” WITH YOUR NDT DOSE (it’s NOT about just being in range and not about being held hostage to the TSH)

We all have had a tendency to believe that our doctors know what they are doing with NDT or T3. But, the majority do not. They tend to leave you on too-low doses, and/or pay attention to the lousy TSH. Thus, due to the natural suppression of the feedback loop (hypothalamus to pituitary to thyroid), you will get worse on those lower doses, sooner or later. i.e. you will get more hypo, and/or have rising adrenaline, cortisol, anxiety or other. And because of that, some exclaim “NDT didn’t work for me!” and they rush back to T4-only.  But NDT, with all five thyroid hormones, could have worked well IF you had known to be more optimal. Optimal puts the free T3 towards the top of the range and the free T4 mid-range, and puts the TSH below range…all three…and removes all symptoms. What amount does that is very individual—some start to achieve that in mid-2 grains, others are in the 3-5 grain area, others may be higher.

What if you tried to raise to be optimal, but had worsening problems? Read #2 and #3 below.

2) NOT BEING OPTIMAL WITH YOUR IRON LEVELS (it’s not about just being in range)

When this is brought up to patients who once tried NDT and failed, they will exclaim with all sincerity “But my iron levels were great”. We know that a very small percentage may have had good iron. But what is common with the majority is they did NOT have good levels “Falling in the normal range” does not equal a good level of iron. It’s WHERE one falls that tells the story.

For example, with two types of ranges for serum iron (NOT ferritin):

a) When the range is approx. 40?155: women who have optimal serum iron tend to be close to 110, or 109, or 108, etc. They are NOT in the 90’s and definitely not lower when optimal. Men tend to be in the upper 130’s.
b)  When the range is approx. 7-27: women are optimal around 23ish; men are towards the top.

If they are lower than the latter examples, it messes up the ability to raise NDT and feel great without issue. Why? Inadequate iron levels tend to raise the reverse T3 (RT3) as one is raising their NDT.  As the RT3 goes up due to inadequate iron, you will feel worse. And because of that, some exclaim “NDT didn’t work for me!” and they rush back to T4-only…but if they had had optimal iron, NDT WOULD have worked…as long as they also had optimal cortisol (See #3 below) and were working to find their optimal dose of NDT (see #1)

See more details about iron here: http://stopthethyroidmadness.com/ferritin

3) NOT BEING OPTIMAL WITH YOUR CORTISOL LEVELS (it’s not about just being in range, and it’s NOT about blood cortisol)

We noted years ago that at least 50% of those with hypothyroidism had a cortisol issue as revealed by saliva, not blood. What does a cortisol issue mean? Either their cortisol was too high (due to the stress of being undiagnosed, poorly treated, or being on T4) or was too low (due to the stress of being undiagnosed, poorly treated, or being on T4), or had both high and low (due to the stress of being undiagnosed, poorly treated, or being on T4).

And what happens with a cortisol issue when you are trying to work with NDT? Either RT3 will go too high (the inactive hormone), or one’s T3 will pool in the blood and not make it to the cells, or both…and you won’t feel well or have bad reactions like excess adrenaline, anxiety, shakiness, feel-bads.

And because of having a cortisol issue, some exclaim “NDT didn’t work for me!” and they rush back to T4-only…but if they had…

a) done the 4-point saliva test, not blood
b) compared the saliva results it to the lab-values page (it’s not about that normal range)
c) CORRECTLY treated it (see this page, plus Chapter 6 in the updated revision STTM book if saliva is VERY low, which also applies to Adrenal Cortex),

….they would have soared on NDT…along with good iron and being OPTIMAL on NDT (or T3)

Note: it’s always about the results of a saliva test, NOT blood cortisol.

Bottom line, it’s not as simple as “feeling better on T4”. It’s more about that you are NOT experiencing the side effects that you did on NDT from any of the above three problems, which were all correctible. That is different.

“That all sounds like too much trouble–I’m staying on T4-only!”, you may be exclaiming….

There is a big problem with that reasoning that I hope you will be open to….Namely, T4-only outright…

  • CAUSES low iron
  • CAUSES a cortisol problem
  • CAUSES many other issues like lowered B12, lowered Vitamin D, rising blood pressure, rising cholesterol, depression, anxiety, heart issues, bone thinning, chronic pain….and more. The individuality is in who gets which…but T4 users do get problems of their own kind, sooner or later.

Please note that the above is not an empty strong opinion. It’s based on years of reported patient experiences from many who were on T4! i.e. most of the following hypothyroid symptoms were experienced by T4 users!! They were still hypo!

Now you may state “But I know people on T4 who do not have those problems!”.

First, some outright DO have some of those problems, but don’t realize it or they deny it (while others see it in them). Adrenal issues, even those denied, can make certain people awash with defensiveness, argumentativeness, denial, anger, paranoia towards others observations, low patience, moodiness, etc.

Yes, some on T4 do, in fact, do better than others. But you know what we have observed? The longer they stay on T4-only, the more problems WILL, in fact, raise their ugly heads eventually…like either adrenal issues, or low iron, or low B12, or depression, or rising cholesterol, or rising blood pressure, or heart problems, or dry skin and hair, or chronic pain, or bone loss, or rising illnesses…..on and on. Forcing the body to live for conversion alone backfires….sooner or later.

Summary: A working Natural Desiccated Thyroid, or adding T3 to that T4 as a second choice and getting those frees optimal, is a much better way to go than being on nothing but T4, according to years of worldwide patient experiences

A working NDT gives you all five thyroid hormones, and does NOT force you to live for conversion of T4 to T3 alone, i.e. some of NDT is direct T3. Additionally with T4-only, some people have genetic mutations which hinder the conversion of T4 to T3 and may not realize it.

There is a good reason that millions of patients found out that T4-only is not the way to go for many reasons, and NDT is the way to go if you correct the reasons you did NOT to do well...or even adding T3 to your T4 in an OPTIMAL amount. But you will still need optimal iron and cortisol!

P.S. The above three reasons are the most common for not doing well on NDT (or T3) and should be considered first. A 4th less common reason: chronic inflammation of any cause. Read about inflammation. If this is true for you, the sad part is that T4-only will also backfire, as it raises RT3.

Mold exposure can also effect conversion.

Click on the graphic to order an excellent saliva cortisol test.

Being in the “normal” range has nothing to do with it, plus three adrenal videos to see

Note: though this page was originally written in 2012, it has been updated to the current date and time. Enjoy!

The famous psychiatrist Carl Jung used to say “To be normal is the ideal aim of the unsuccessful”. 

And nothing is ever so unsuccessful when it comes to thinking that a lab result within the so-called “normal” range is ideal.

It’s not.

And unfortunately, when I do phone coaching sessions with thyroid patients, or watch comments made in discussion groups, I hear or see all too many say “My doctor/Nurse Practitioner/Physician’s Assistant/Naturopath says I’m normal”.

And I have to immediately back the conversation up and say “Can you share that lab result and range with me?”

Because as patients have learned:  “Optimal” and “problem-free” has nothing to do with just being anywhere is a range.  It has to do with “where” in the range one’s result is.  

B12:  This may not be true for all international ranges, but when it definitely came to the US range or those similarly broad, we found out that ‘mid-range’ still produces symptoms of low B12, and we can confuse them with hypothyroidism, including fatigue and pain.  We look for our result to be in the upper quarter, if not near the top.  Because there, we found out, is where our symptoms related to low B12 abated.

Vitamin D:  Several leaders and I had a private discussion about all the conflicting information on the net as what an ideal Vit. D result was. We decided to follow the Vitamin D Council, which states that 60-80 is the goal.  I then add that progressive doctors like to see 80-100, which can especially be cancer-protective.

Cortisol Saliva Results:  When you look at the results of someone with no symptoms of an adrenal problem, here’s what you note: 8 am, at the top of the range; Noon, about a quarter from the top; Afternoon, mid-range; Bedtime, at the very bottom.

Iron: Of the four labs we generally like to see as thyroid patients, we note that a good Serum iron level is closer to 110 (with men being higher and in the upper 130’s or 140’s); a good % Saturation is close to 35% for women and 40-45% for men; a good Ferritin will end up being 70-90 (though this can come last as one improves the others), and a good TIBC, if the range is 250 – 450, ends up being in the low 300’s, we noted, when the others are where they should be.

To read more about what patients have learned about lab results, go to the LAB VALUES page. Learn to understand your own lab results!! 

Three good videos about better adrenal function

I often feel I can’t rave enough about what Paul Robinson of the UK revealed to us about promoting better adrenal function without the use of adrenal meds. It’s a quite unique method of using T3-only (or natural desiccated thyroid) in the early morning hours when the adrenals need it the most. You can see several testimonies—some with more updates coming—on the STTM T3 Circadian page here: //www.stopthethyroidmadness.com/t3-circadian-method.

Has everyone succeeded with the CT3M? No, say some. It wasn’t enough to raise their low afternoon, but definitely helped their low morning!! Others absolutely love it. So it’s up to you.

Granted, if you have Addisons, hypopituitary, or untreated diabetes or blood sugar issues, and saliva reveals quite low cortisol, you may still need HC or adrenal cortex. Chapter 6 in the revised STTM book is your go-to chapter. But for some, this is a very workable solution.

Robinson has created three videos to explain it all, which he also links to from his recent blog:

Part 1: http://www.youtube.com/watch?v=97SOyEYwh54 

Part 2: http://www.youtube.com/watch?v=7t2wg9rr6F4

Part 3: http://www.youtube.com/watch?v=dhkhcLPGCww

If your doctor prescribes synthetic T4 with synthetic T3

Progress appears to be one step at a time. And we are seeing more and more doctors prescribing T3 to their patients on T4. That’s good!! Doctors are FAMILIAR with the synthetics. So that’s what they will prescribe!

But many, many patients who have tried both synthetics, and who have tried natural desiccated thyroid, report even better results with the latter. So THIS IS WHERE YOU COME IN. Teach your doctor!! Why just be on synthetic T4 and synthetic T3 when you might do even better with all five hormones from desiccated thyroid—i.e. the same five your own thyroid would be giving you! Consider sending the Revised STTM book to your doctor: //www.laughinggrapepublishing.com/ Or, there’s a STTM II book totally written by physicians (his colleagues) and one chapter is specifically about NDT: https://laughinggrapepublishing.com/stop-thyroid-madness-ii-book/

JanieSignature SEIZE THE WISDOM

 

Why iron is so important, milk thistle for RT3, and send the revised STTM book as a Christmas present!

NOTE: though this post was originally written in 2012, it has been updated to the present day and time! Enjoy!

IRON AND ITS IMPORTANCE 

It all too common with hypothyroid patients: finding themselves with low iron levels.   I probably had insufficient iron my entire adult life, remembering that my doctors always told me I was borderline, yet nothing was done about it. So when I finally got on desiccated thyroid, and my iron needs increased due to better health, I finally fell into true anemia, and twice.  Miserable, let me tell you. I was breathless, achy, depressed and had horrific fatigue.

And why is iron so important?

  • Iron carries oxygen from your tissues to your lungs (so if iron is low, you can be breathless and your heartrate has to go up in response to less oxygen. Link here.)
  • Iron helps raise dopamine and serotonin in your brain (so if iron is low, you can feel depression or hyperactive i.e. attention-deficit hyperactivity disorder. Link here.)
  • Iron assists with the cortisol secretion after ACTH stimulation (so if your iron is low, the cortisol secretion is decreased, lowering glucose in your cells, and that might cause the pooling of T3 in your blood. Link here.)
  • Iron promotes good conversion of thyroid hormones T4 to T3 (so if iron is low, your storage iron T4 will build too high. Link here.)
  • Iron balances your autonomic nervous sytem (so if your iron is low, you can end up in a frequent state of fight-or-flight with accompanying adrenaline surges and nervousness due to heightened sympathic activity. Link here.)
  • Iron protects women from breast tumor growth (so if your iron is low, a benign tumor can become a malignant cancer tumor. Link here.) 
  • Iron improves your immune system (so if your iron is low, you are most susceptible to infections and illness. Link here.)
  • Iron supports brain cell health (so if your iron is low, you can have brain cell death contributing to dementia and possibly Alzheimers. Link here.)

How to discern if your iron is too low

We used to think testing one’s storage iron, ferritin, was enough. But it’s not. Your storage iron can look normal because of an ongoing inflammation, which tends to thrust iron into storage. So we learned that we need four labs at the minimum : ferritin, % saturation, serum iron, and TIBC.  Even low ferritin along with optimal results in the other labs have caused problems with T3 pooling in the blood.  Go here to read what we look for in our iron results.

Raising poor iron levels

Hypothyroid patients tend to “dry up” and that also causes lowered levels of hydrochloric acid in the stomach, which lowers absorption. For better absorption, try adding 1 tsp to 1 tbsp of Braggs Apple Cider Vinegar to each large glass of water or juice you use to swallow your iron pills, or use Betaine, which is an OTC hydrochloric acid supplement.

To learn more, go to the following page. And for even more details, read the Odds and Ends chapter in the revised STTM book.

CAN LIVER CLEANSES/SUPPORTS HELP IMPROVE YOUR RT3 RATIO??

Because of low iron or adrenal dysfunction, many thyroid patients have found themselves with high levels of Reverse T3…or more common, a poor RT3 ratio. And too much RT3 can mean the thyroid hormone T3 won’t adequately work in your cells, and you can feel miserable. The solution for most has been to switch to T3-only, but that can have a host of difficulties.  It’s not easy to dose with T3 alone.

Recently, though, patients are discovering an alternative way to lower one’s excess RT3: the use of a good liver cleanse/support product, and most especially those with the herb called Milk Thistle. It’s an herb which, for hundreds of years, has been used as a liver tonic.  In supplements, it’s the milk thistle seeds which are used because they contain silymarin–the powerful part of the herb which does the trick.  And doses in the 400 mg’s of milk thistle extract supplements seem to be doing the trick, say patients who are reporting on it, taking it twice a day at 200 and 200 minimum. Some studies state you can go higher, if needed. Be careful with its use, as it can lower ferritin levels to some degree. But as long as you keep your serum iron levels up, you can get by with the lowering of ferritin for the short while you may be on Milk Thistle to lower RT3.

HO! HO! HO! SEND THE REVISED STTM BOOK TO A FRIEND OR LOVED ONE FOR CHRISTMAS OR THE NEW YEAR!  It can be the BEST gift they will ever receive!  Go to the following page, and put in the name and address of the recipient, YOUR email, and the publishing company will get the book out to your special someone:  //www.laughinggrapepublishing.com/

 LISTEN TO ONE OF SEVERAL INTERVIEWS I’VE DONE LATELY…AND BOSTON IS NEXT! My next interview will be aired on WBZ-AM 1030 (Boston & New England) on the program called “Women’s Watch” with host Ellen Sherman. You can also listen live here: http://boston.cbslocal.com/station/wbz-news-radio/ No specific time as I am posting this, but it may happen next week. Watch the NTH Yahoo group, STTM Twitter and STTM Facebook groups for an announcement. And there are more to come thanks to a great publicist representing Stop the Thyroid Madness. Want to donate so she can continue helping us spread the word? Go here.  Janie can’t do it without you…and this is specifically to reach millions still on T4-only meds!

 STTM NOW HAS MANY FACEBOOK GROUPS!  See what Facebook has to offer you on top of already great Yahoo groups, here.

 

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