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The Case of the Missing Thyroid Nodules

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Have you ever had thyroid nodules? Read the real life testimony of thyroid and Hashimoto’s patient Cheryl and how she single-handedly removed her nodules with iodine and selenium…even though she has Hashimoto’s disease!  ~Janie, hypothyroid patient and site creator

Remember: this is just Cheryl’s remarkable experience and information. Each person reading this has to decide for themselves or in working with their doctor.

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My first thyroid ultrasound came as I was fighting for proper thyroid care.

The new doctor I had just recently hired had decided that my thyroid looked “spongy.” I knew that an ultrasound was a step up on the ladder that would eventually lead to a diagnosis and therefore treatment.

Within three days after the ultrasound study, my doctor called me and stated she was referring me to an endocrinologist. Multiple nodules covered my thyroid and several were going to need a biopsy. It would be much later before I found out how many nodules I had and exactly what shape my thyroid was in.

To say that those words, nodules and biopsy, scared me would be an understatement.

Never the less, I did what so many of us do when confronted with a health issue. I hit the Internet. First, I looked up the words “Thyroid nodules.” What exactly did that mean? Was it a nice way of saying I had cancer? Thyroid nodules, according to Mayo Clinic, are “solid or fluid-filled lumps that form within your thyroid.” The article went on to state that most are benign (over 95%) and not serious. That was not enough of a definition. I wanted, needed, and felt I deserved more information.

The next site, The American Thyroid Association page (which is good with this info but lousy with other parts), said virtually the same thing, only adding that it was an abnormal growth of thyroid cells on the thyroid gland. I kept perusing the internet, reading anything and everything I could find on thyroid nodules including the size at which a nodule becomes clinically significant (1cm and over) and needs a biopsy. I also found that not all nodules are solid abnormal growths but that some are the result of tissue breakdown. Those are the fluid-filled cysts and can occur due to Hashimoto’s.

Once I was satisfied with the information I gathered on the how and why of nodules- I made it my next mission to find out about biopsies of these “abnormal growths.”

The biopsy, and was I going to die?

What I learned was that Fine Needle Aspiration is the preferred method to biopsy a clinically significant thyroid nodule, and the doctor usually performs it right in the office. The endocrinologist inserts a hollow needle into the “lump” and extracts a sample of cells for analysis. It is a safe and relatively painless procedure.

The biopsy went flawlessly, as they always do, and my results came back: The lumps, numbering 21, (with only two being significant), were classified as being hyperplastic (adnomatoid) nodules. Being benign, they mostly contained follicular cells, Hurthle cells, and some foamy macrophages. When I asked about treating my thyroid, the nodules, and medication, I got the usual answer. “We aren’t doing anything. We are going to watch and wait.” I left that endocrinologist’s office with a sense of defeat. I was for sure I was going to die and no one in the world was going to help me.

The fighter in me did not stay down for long.

I was not going to “watch and wait.” “Not this girl,” I thought. It was obvious to me that my thyroid was floundering and needed help! By the time I got home from the follow up visit, about an hour and half away, I once again hit the World Wide Web to educate myself on the pathology findings. The next phase of my journey for true thyroid care began.

In the days immediately following my biopsy results, my primary care physician finally agreed to test my Free T3, Free T4, and both antibodies tests. When the results of those tests came back, they clearly proved my suspicions. My thyroid was down for the count. It was then that my doctor agreed to medication and natural desiccated thyroid was my choice (T4/T3 can work well, too). She started me off small with one 60 mg pill a day (…which is meant to be raised until we are optimal. How we raise is also in Chapter 2 of the updated revision STTM I book).

But, I did not stop there.

I had nodules that the field of medicine had completely disregarded. I started reading on how to treat an under medicated thyroid. I read about what nutrients and supplements the thyroid had to have for proper functioning. I started digging into benign tumors and how to treat them as well. I, then, packaged that information into a regimen of supplements made easy by online ordering.

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My regimen to begin with consisted of a working NDT (From Janie: this can also be T4 and T3) and selenium. I started the selenium first because I understood that it was critical to the thyroid. So vital, in fact, that the body will take selenium from the brain for thyroid use. It was determined from the lab/biopsy results that I had Hashimoto’s and I had heard that people with Hashi’s should not take iodine. Through my research, though, I began to understand that those with Hashi’s could take iodine but do need the selenium to protect the delicate thyroid. So, I started my selenium (400 micrograms a day). I began taking it a full two weeks before my iodine. I did not want to have a Hashi’s flare from taking iodine and knew the selenium would need a while to build up completely in my system.

Iodine supplementation was next

I had visited several sites regarding the use of iodine to cure cancers and tumors. I had joined an iodine group and absorbed Stephanie Buist’s information. I visited Breast Cancer Choices.org and found a ton of helpful information there as well. I educated myself on the many uses of iodine and the vital role it plays in the human body. I learned that as important as selenium was to the thyroid, iodine was just as important. It is the main ingredient in all thyroid hormones.

I was cautious with the iodine. I worked on building up a tolerance. I started with one drop of J.Crow’s Lugol’s 2% iodine solution a day for one week. I then “upped” the dose to 2 drops (6mg) a day for a week. And so on and so forth until I exhibited “hyper” symptoms at which time I dropped back down to the next lower dose. My body was set at 33 milligrams of iodine a day. I was going to heal my thyroid or die trying.

(From Janie: going low and slow is a good idea with iodine. It starts a detox of what we have too much of in our bodies: bromide, chloride, fluoride, etc. This is true for all but especially true if you have Hashimoto’s.)

What happened next has left many, including my physician, declaring a miracle.

Three months after the initial ultrasound, my doctor ordered a repeat. The results left her scratching her head and claiming divine intervention. In three months, I had lost 14 smaller clinically insignificant nodules. Fourteen nodules on my thyroid just disappeared. When I asked her, “How does that happen?” her response was “I don’t know – God.” I smirked but I knew it was the iodine and selenium I had religiously been taking.

As an experiment, and to confirm to myself what I already knew, I did come off the iodine and selenium, for a while, to see what would transpire. I told no one what I was doing, as I wanted to see it for myself, without influence or interference. For four months, I took no iodine or selenium- only the Armour. The following ultrasound showed a new nodule. That was proof enough for me. I went back on the iodine and selenium and continued to take my Armour, which, my doctor had upped to 2.5 grains a day.

Now, three years later, I am nearly “lump” free.

I no longer have any clinically significant nodules. In fact, I only have three nodules and the ultrasound reports shows that they are shrinking as well.

However, that is not all. For the first time since my fight for thyroid care began, my thyroid itself is no longer swollen and is in “acceptable normal limits,” meaning it is a “normal” size. While I know my thyroid will need consistent life-long care, as I do have Hashimoto’s, I no longer feel like I am a slave to my supplements or that my thyroid is more of a burden than a blessing. The fight for my thyroid, as long and as arduous as it has been, has been worth it. The “the Siamese sisters of the thyroid,” what I now call selenium and iodine, have given me my thyroid, and consequently, my life back. The ultrasounds alone prove it.

Cheryl

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Read more about selenium. Here’s good information about iodine.

Keep track of any US-made desiccated thyroid products. There were three that were rightly recalled in 2020, for example.

Do you experience hyper-like symptoms when you try to raise a working desiccated thyroid or T3 in your treatment in order to get optimal? That can point to an adrenal issue. Read here.

Have you raised a working desiccated thyroid or T3 and still feel hypothyroid? Read here.

And this is your patient-to-patient book, below, with Hashimoto’s. Order here.

How Dawn healed her adrenals–an inspiring story everyone must read!

Screen Shot 2014-05-13 at 2.56.53 PMWhen I first had my thyroid removed in 2012 due to autoimmune destruction from Hashimoto’s disease since age 10 and Graves disease for 6 years, I did not know what to expect. And like most other post-thyroidectomy patients, I was reassured by my surgeon that all it would take is for me to take “a little pill every day and things will be much better” (i.e. my surgeon referring to the Synthroid she prescribed for my post-op thyroid replacement)

What ensued after that was a nightmare that has lasted the past two years!

I went into heart failure multiple times from the inadequate replacement with Synthroid (T4 only medication). I was MISERABLE! Dizzy, heart racing out of the blue, internal shaking as well as nausea, severe fatigue and extreme irritability! I became a monster that even my own family did not recognize!!

STTM was discovered

Fast forward 9 months, and a good friend of mine came across the Stop the Thyroid Madness website and sent it my way. I ordered the book after looking through the website and realized I knew NOTHING about thyroid disease and proper treatment for hypothyroidism, and apparently neither did my Doctor!!

I made the switch to a working Natural Desiccated Thyroid like Armour e in March 2013, and things DID improve some. But the fatigue, shakes, dizziness and irritability continued! I flew off the handle at my husband, my parents, even my dogs (poor babies did not deserve it, but I was just out of control emotionally!) I thought I must be going crazy and feared I had developed a psychiatric disorder. In fact, my Endocrinologist suggested I see a psychiatrist to “work out my frustration and anger!”

It was my adrenals!

I started reading Chapter 6 in the revised STTM book– All about ADRENALS!! I thought I was reading my life story all over again! I had 90% of the symptoms listed on the “symptoms of low cortisol” page on the STTM site. I tried Janie’s at home testing and failed them all miserably! I ordered a 24 hour adrenal saliva cortisol test, and there is where I found my answer! See the results below:

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Turns out I wasn’t crazy! My adrenals were not putting out adequate cortisol to handle the increased stress of low thyroid levels and all my other life issues! I was LOW, LOW, LOW, slightly HIGH.

“How do I fix it?” 

I considered using T3CM, but knowing that I was low Morning, Noon AND Evening meant that was not likely to help per other patient’s experiences.

So someone suggested I try Thorne ACE (Adrenal Cortex Extract) to replace my low cortisol at those three times of day! I got it all ordered, read through the chapters in the STTM book. I added in high doses of Vitamin C (3,000mg per day) and high doses of magnesium (800-1,200mg per day) and started supplementing with Celtic Sea Salt and the Adrenal Cocktail (salt in water, plus minerals). I started feeling better pretty quickly with the sea salt and nutritional support added.

It took me several weeks of trial and error to get my symptoms under control and get the dose of ACE correct. I had to learn to take DATs (Daily Average Temperatures) to gauge whether or not the dose was the right one. I tracked symptoms, doses and temps daily. I adjusted up every few days until my temps stabilized and my symptoms became more minimal. I was still without a good doctor at this point, so I was self-treating using the knowledge I got in the support groups and in the Stop the Thyroid Madness book.

A job change was necessary

I realized that I could not continue under the extreme stress of working the 12 hour nightshift in a busy hospital. I was burning the candle at both ends, and everything I read about adrenals said reducing stress and sleeping on a set schedule was a MUST. So, I spoke with my spouse, and we decided I would quit my job and look for something less physically and emotionally demanding, and something with day-time hours exclusively. I was off work for 3 months while searching for a new position, and though money was tight and things were stressful, changing to sleeping at night once again made a HUGE difference (I put myself on a strict 10 pm-7 am sleep schedule.) I cut caffeine, sugar and alcohol out completely — the caffeine was very tough to give up, but I did it! Being out of the high-stress work environment was extremely helpful in healing adrenals!

A saliva retest

I was feeling better little by little, but the fatigue remained, especially in the afternoons. I would just crash around 2 pm and couldn’t do much of anything until late in the evening! I would get periodic adrenaline reactions (especially late in the afternoons.) I would sweat profusely, get shaky inside, feeling like my heart would pound out of my chest! I finally got in to see my “good thyroid doctor” in November 2013. He immediately said he wanted to take me off ACE for two weeks and retest my adrenals to see if I had made progress. Here is what they showed: (the retest is the one that says “current” taken in November 2013:

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As you can see, my Morning was showing improvement, but the noon and evening levels slid to a lower level than when I started ACE.

I spoke with my good thyroid doctor, and he suggested we lower ACE in the morning, add more at the noon/evening doses and slide the times a bit earlier than what I had been taking. Things continued to improve, and I got my afternoons back! By then I was back working full time up to 50 hours per week. The new job was emotionally stressful, but not physically so. I continued to get adrenaline reactions in the late afternoon, but they became less and less as time went on. I started feeling completely recovered by Feb 2014. I still had low thyroid levels due to hormone resistance, but adrenals symptoms had completely resolved. I weaned off ACE and did just fine. I kept up with the nutritional support of high dose Vitamin C and Magnesium and did the adrenal cocktail and celtic sea salt if I needed it, but it was rare for me to need those at this point.

Victory!

We waited three months of me being off of ACE and retested to see where I stand! Here are the new, post-treatment levels. Taken end of April, 2014:

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As you can see, my levels are now VERY close to optimal! I did notice that my nighttime level has gone up some, so my doctor had put me on Zinc to help reduce that, and Melatonin as needed (though I don’t really take it more than once per month.)

I discovered recently that I have Lyme disease and chronic infections which is the cause of my inflammation and continued low thyroid levels, despite taking Nature-Throid and Cytomel T3 at high doses. We hope that treatment for Lyme will finally help get inflammation down and improve my thyroid levels to liveable again!

I cannot be more thankful to Stop the Thyroid Madness for helping me get my life back! There IS life after Adrenal Fatigue!! I would say healing my adrenals has been the single most important thing I have done to feel better and function better on a daily basis. My family and my dogs no longer fear me and I have my laidback personality back once again, and my house is now at PEACE!! Don’t give up hope!! STTM will help you get better if you follow it!

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* Janie Bowthorpe has the first of a series of eBooks out, and the first one is on EBV:https://www.stopthethyroidmadness.com/sttm-ebooks/

Dr. Melnick discusses alarming article from Harvard about the use of the TSH and thyroid treatment!

(Note: if you are reading this via email notification, do NOT reply to the email if you want to comment. Click on the title of the blog post, which will take you directly to the blog post. Scroll down to comment there.)

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P4089852Dear STTM Blog readers, I am so fortunate to talk to many wonderful individuals because of Stop the Thyroid Madness. And recently, I had a conversion with the very insightful Dr. Hugh Melnick of New York City.

Dr. Melnick brought my attention to a very disturbing article titled “For borderline underactive thyroid, drug therapy isn’t always necessary” that came from the Harvard Health Letters in October 2013, You can see it here: http://www.health.harvard.edu/blog/for-borderline-underactive-thyroid-drug-therapy-isnt-always-necessary-201310096740.

This conversation between Dr. Melnick and I may be of great interest to STTM readers, besides alarming once you see what is being stated in this article and suggested as treatment guidelines. It’s simply Thyroid Treatment Dark Ages!

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JANIE: Hello Dr. Melnick. I’m so glad to chat with you! Can you tell our readers a little about yourself?

DR. MELNICK: I am a reproductive endocrinologist who has been in medical practice since 1976. As the medical director of Advanced Fertility Services In Vitro Fertilization Center in New York City, I have always been impressed by the large number of  infertile women that I have seen over the years, who are symptomatically hypothyroid, and who conceive after treatment with thyroid medication.

Although I did my medical training at a point in time when the TSH test and Synthroid were just being introduced into clinical practice, I was trained by one of the most widely respected endocrinologists of that era, Herbert Kupperman, MD, Ph.D. to diagnose and  treat patients with potential thyroid issues according to their symptoms, rather than solely by their blood test results.  His vast clinical experience, and subsequently mine, as well, is that treatment with Natural Desiccated Thyroid (NDT) gives far superior symptomatic improvement for the vast majority of patients. Furthermore, the dosage of thyroid medication should always be based upon a patient’s clinical symptoms and not the TSH level.

JANIE: That greatly impresses me when I learn of doctors like yourself who understand the efficacy of Natural Desiccated Thyroid as well as the problems with using the TSH lab test.  You recently brought my attention to what was written just a few months ago by Heidi Godman, the Executive Editor of Harvard Health Letter (see introduction above). Can you expound on what Ms Godman meant by “borderline underactive thyroid”? 

DR. MELNICK: Actually, Ms. Godman is mistakenly defining hypothyroidism by TSH levels, rather than by a patient’s clinical symptoms. It is obvious that there are many symptomatic and genuinely hypothyroid individuals, who have normal TSH levels, and who experience relief when given a proper dose of the appropriate thyroid medication. The TSH level only diagnoses a type of hypothyroidism that is due to failure of the thyroid gland itself, or a failure of the pituitary gland.

In my experience, the most common form of hypothyroidism is called subclinical because the TSH levels are in the “normal range.” It is a genetic condition, usually passed through the mother and manifests itself later in adulthood. In subclinical hypothyroidism, the individual’s cells need more active thyroid hormone–T3–than their bodies are able to produce in order to function properly. Therefore, supplementation with a thyroid medication containing T3, in the proper dose, will relieve the troubling symptoms and allow the cells to function optimally.

Again, basing the dosage of thyroid medication on TSH levels is incorrect. When treating hypothyroidism, we are not treating a condition like diabetes, in which the insulin dose is based upon the patients’ blood sugar levels. Although they are both endocrine disorders, they are vastly different conditions and cannot be treated in the same fashion, although many endocrinologists still insist on doing so!

JANIE: In the article, Godman quotes that prescriptions for levothyroxine have increased from 50 million in 2006 to about 70 million in 2010, and a similar increase has occurred in England and Wales. She then calls this increase in treatment “pretty risky business”, citing irregular heart rhythms, insomnia, and loss of bone density”. What is she implying there?

DR. MELNICK: I think that the observed increase in the use of the thyroid medication Synthroid is due to the fact that hypothyroidism is a very common condition, affecting at least 35% of the female and 10% male population.  Considering the population estimates for 2013 is 317 million people in the U.S.A. and the population of the United Kingdom is estimated to be 70 million, 28% of the population in the U.S.  and 23% of the population in England, (assuming one prescription per year per individual patient) are being treated for hypothyroidism. This is actually a bit less than the estimated incidence of hypothyroidism in this country. I also believe that more cases of hypothyroidism are being found because people, in general, are more informed about the symptoms of hypothyroidism and seek treatment.

In my opinion, Ms. Godman erroneously categorizes treatment of hypothyroidism a “pretty risky risky business”. The risks of not treating hypothyroidism is, in fact, more potentially injurious to a patient’s health! 

For example, the increased risk of heart disease in untreated hypothyroid individuals is a solid example of why hypothyroidism needs to be treated. The examples that she cites, namely, irregular heart rhythms and insomnia, are found in many people with hypothyroidism before treatment and are cured by adequate thyroid treatment. The symptoms that she mentioned are not exclusively associated with hyperthyroidism. The loss of bone density claim comes from studies of hyperthyroid individuals, who because of their hyperthyroidism and excessively high metabolic rate, may develop osteoporosis.

JANIE: The next part of this article is alarming. It refers to a particular “clinical practice guidelines” authored by Endocrinologist Dr. Jeffrey Garber, an associate professor of medicine at Harvard Medical School. These guidelines come from a task force representing the American Thyroid Association and the American Association of Clinical Endocrinologists. The first guideline is as follows, and goes completely against what informed thyroid patients know to be wise. Can you comment? 

1) The best way to check for hypothyroidism is to look at the level of thyroid stimulating hormone (TSH) in the blood, and when the TSH level is above 10 mIU/L, there’s uniform agreement that treatment with levothyroxine is appropriate. 

DR. MELNICK: Firstly, clinical practice guidelines are merely suggestions that have been developed to help physicians with limited experience diagnose and treat medical issues. Clinical guidelines are like a cook book, which describes a recipe that makes a simple meal, but not necessarily a complex and elaborate feast. That said, it is quite obvious that the way in which I diagnose and treat hypothyroidism is quite different than that which is suggested by the above referenced societies.

Although I do perform a complete battery of blood tests, including antithyroid antibodies, iron, vitamin B12 and vitamin D levels, I believe that a clinical approach – listening to a patient’s symptoms and treating a patient accordingly – is, in some ways, more important in diagnosing and properly treating patients suffering with the symptoms of hypothyroidism. If a physician only looks at a patient’s blood tests, without listening to the patient’s symptoms and asking them appropriate questions, many people who legitimately need thyroid medication will be denied proper treatment. That is precisely the reason that so many people come to me suffering with all the classical symptoms of hypothyroidism and tell me that their doctors have tested their thyroid and found them to be “within normal limits”.

It is not surprising when these very same patients experience symptomatic improvement when treated with adequate doses of NDT. I rarely treat patients initially with Synthroid. The primary reason is that Synthroid, being a synthetic T4 (a weak thyroid hormone- not chemically identical to human T4), must be converted into T3, the potent form of the hormone that enters every cell in the body and makes the cells of the body function normally. Unfortunately, many individuals are unable to successfully convert T4 into T3, so the patients’ symptoms remain, yet the TSH level is normal.

Natural desiccated thyroid (NDT) is made from the thyroid glands of pigs, which produce thyroid hormones chemically similar to that found in humans and does contain T3. Porcine (pig) thyroid gland also contains other thyroid hormones and proteins, which, in my experience are much more effective in relieving the symptoms of hypothyroidism than synthetic T4.  Who can argue that a natural treatment, if availble, is to be preferred over a synthetic one.

JANIE: I loved the analogy above to a cook book, Dr. Melnick! Garber’s second most-emphasized guideline is the following, and I would love for you to comment on this as well, as informed thyroid patients would find this very disturbing, as well: 

2) If the TSH level is between 4mIU/L and 10mIU/L, treatment may still be warranted in various situations:  

  • if the levels of actual thyroid hormones in the blood–known as thyroxine (T4) and triiodothyronine (T3)–are abnormal
  • if the bloodstream contains anti-thyroid antibodies that attack the thyroid. These antibodies would indicate a hypothyroid condition called Hashimoto’s disease, in which the immune system mistakenly attacks the thyroid.
  • if there is evidence of heart disease or risk for it. 

Garber is next quoted as saying “Use thyroid hormone for a brief period of time.”  and “If you feel better, you can continue with treatment. If not, then stop.”  That recommendation is quite alarming as well, as it fails to understand that it may not be about stopping thyroid medication, but moving over to a far better treatment with natural desiccated thyroid, which informed thyroid patients know should have been the first treatment of choice anyway. Can you comment? 

DR. MELNICK: In my clinical experience, 99% of patients with TSH levels over 4.0 are quite symptomatic, if questioned about their symptoms properly. Therefore, treatment is absolutely mandatory, both to relieve “quality of life symptoms” as well as to prevent heart disease, lower blood pressure, normalize blood sugar and cholesterol levels, if they are found to be elevated.

Dr. Garber’s recommendations about using thyroid medicine for a short period of time and continuing it if improvement is noted omits two essential factors. The first is that since he treats his patients only with Synthroid, a significant percentage will show no improvement because their symptoms are not relieved because they cannot convert T4 into T3. The second factor is that by following TSH levels in the blood, a patient may not actually be taking a high enough dose of thyroid medication, yet  will show low TSH levels in the blood. The level of thyroid hormones circulating in the blood-whether they are bound or free- only indicate absorption of the medication and give no indication as to the amount of T3 entering the cells. When an individual gets enough T3 into their cells, their symptoms will improve.

The only way to measure the correct dose of thyroid medication, in addition to noting improvement in symptoms, is by measuring the Basal Body Temperature and by the measurement of nerve conduction velocity (Thyroflex Test). This is a noninvasive test  which gives a good indication of dosage adequacy. The slower the patient’s nerve conduction velocity, the higher the dose of thyroid medication that is required.

One main point that must be noted is that thyroid medicine may take up to twelve weeks in order to experience some degree of symptomatic relief. The other is that the patients’ dosage should be increased gradually and in divided daily doses until symptomatic relief is  experienced. The dose should be reduced if the patient experiences rapid or irregular heartbeat, shakiness or anxiety. These symptoms will resolve in several hours and are not harmful.

Hashimoto’s or autoimmune thyroiditis is a much more complex clinical condition, in that symptoms in many individuals may vary, from hypo to hyper from time to time. Treatment with thyroid hormone is usually needed, but some patients, in the early stages of thyroid autoimmunity, may be fairly asymptomatic.  As the condition progresses, symptoms will eventually be experienced. The levels of antithyroid antibodies do not correlate with the severity of a person’s symptoms.  Antithyroid antibodies never disappear and will always be detectable in the blood.  There may also be gluten sensitivity in some instances, so dietary factors may be important. When an infertility patient is found to have antithyroid antibodies, whether they are symptomatic or not, I always treat them with NDT since it does help them to conceive and seems to reduce the incidence of miscarriages.

JANIE: Heidi Godman then states the following about individualized treatment for hypothyroidism, which informed thyroid patients know by years of experience is a recipe for disaster: That requires measuring TSH four to eight weeks after starting treatment or changing a dose, another TSH test after six months, then every 12 months.”  

DR. MELNICK: I respectfully disagree with both Ms. Godman’s  formula as stated above, as well as with Dr. Garber’s method for diagnosing and treating hypothyroidism. Although the Harvard Medical School is a very prestigious institution, and that the information that they published cited the work of a physician of professorial rank, it is quite contrary to my own clinical experience and that of the many untreated or inadequately treated individuals who suffer with the many debilitating and disturbing symptoms arising from thyroid hormone deficiency.

I say this in jest, but if a patient follows the treatment protocol advocated by Ms. Godwon, they are more like to die of old age before their symptoms of hypothyroidism begin to show signs of clinical improvement .

JANIE: Your last sentence was excellent, Dr. Melnick. Your sage observations and wisdom jive with over a decade of successful patient experiences and wisdom! And we must push AGAINST the guidelines suggested by Dr. Jeffrey Garber. Informed thyroid patients know how disastrous they can be!

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Wall Street Journal’s recent thyroid article: 13 ways it could have been SO MUCH better!

Screen Shot 2013-08-06 at 1.05.29 PM(This post has been updated to the present day and time! Enjoy!)

As usual, informed thyroid patients can only roll their eyes about the latest example of a watered-down, thyroid-themed article in the media. This time, it’s from Wall Street Journal Online and appeared Monday, August 5th, 2013.

Now on the positive side, the title looks good: New Call for More Thyroid Options. 

But let’s set it straight: this is NOT new! Informed thyroid patients have been clamoring about better treatment for more than a decade!!

I started the Yahoo Natural Thyroid Hormones group in 2002 as a way to begin the important discussion about the efficacy of Natural Desiccated Thyroid as a treatment for hypothyroidism over T4-only. The Stop the Thyroid Madness (STTM) site first went up in December 2005–a compilation of worldwide patient experiences which included lives being changed thanks to natural desiccated thyroid (NDT). The STTM book by the same name first appeared in 2008, and the revision in 2011. The STTM II book came out in late 2014. Today, there are numerous thyroid groups all over Facebook which have been extolling the virtues of better treatment.

Let’s break the article down and go into further detail, correction or clarification–all which might have made this a MUCH more informative and accurate article:

1) Grass roots patient-activist organizations….and the doctor-founded National Academy of Hypothyroidism, say that the current screening test for hypothyroidism leaves out some symptomatic patients and that the main medication used to treat patients, doesn’t always alleviate many symptoms.

True! And let’s be more specific about that so-called “screening test”: it’s the inane use of the TSH lab test which has been a monstrous screening failure! The TSH is a pituitary hormone, NOT a thyroid hormone! And it can consistently look “normal” for years (according to the parameter of an erroneous man-made “normal” range), yet we have raging hypothyroid symptoms…all the while the patient has to hear his or her doctor state they need to “exercise more and eat less”. The “main medication” is the all-too-often lousy T4-only medication like Synthroid, Levoxyl, Levothyroxine, Eltoxin, etc. Yet, a healthy thyroid makes FIVE hormones, not just one.

2) They are calling for doctors to be open to other therapies, including a combination of synthetic hormones and the use of natural, animal-based ones.

True. But though adding synthetic T3 to synthetic T4 is a huge step in a much better direction and can be applauded (and so can being on T3-only), a multitude of worldwide patient experience has found that Natural Desiccated Thyroid has given these patients even better results (in the presence of good iron and cortisol levels). Doctors need to listen to that!

3) Hashimoto’s Disease: A Primer (box on the left side of the article) 

What a perfect way to lower the quality of an article. As usual, it contains the dark ages information about the use of the TSH, and mentions the “common” treatment of T4-only. They might as well have inserted a primal on blood-letting.

4) [In reference to Dr. Ridha Arem’s correct comment that “There are so many unhappy thyroid patients,”] :  Many of his mainstream medical counterparts disagree. “The vast majority of people are fine on the standard therapy,” says Jeffrey Garber, an associate professor of medicine at Harvard Medical Center and chair of the American Association of Clinical Endocrinologists Thyroid Scientific Committee. Still, he says, “there’s a whole group out there who just thinks we’re clueless. 

Yup, millions of informed thyroid patients worldwide would definitely put you in that clueless category, Dr. Garber.

5) The wide range of symptoms, so similar to those of many other diseases, can make diagnosis tough. 

Totally untrue, say thyroid patients! Thyroid disease has a common cluster of symptoms in patients, which can include one or more of depression, fatigue, the need to nap, rising cholesterol, rising blood pressure, achiness, hair loss, weight gain, inability to lose weight, dry skin, dry hair, achiness, a low mid-afternoon temperature (below 98.6F/37C) and so many more symptoms.

Additionally, we have noted that if our free T3 is mid-range or lower, or our Free T4 is low, along with the above symptoms, it’s a sure sign that we are hypothyroid. Finally, family history underscores it for others, as can an ultrasound. It’s not that difficult when you understand the clinical presentation of hypothyroidism over an ink spot on a piece of paper!

6) Newborns and pregnant woman are routinely tested. Experts recommend screening all women over the age of 35 every five years. 

And how does that help when the testing/screening is with the inadequate TSH lab test, which we, as patients, already know leaves millions of us undiagnosed for years.

7) For treatment, guidelines generally call for the prescription of levothyroxine, a synthetic version of a hormone called thyroxine, or T4, which is produced by the thyroid. The gland also produces one other hormone, Triiodothyronine, or T3. 

A healthy thyroid gland produces FIVE known thyroid hormones: T4, T3, T2, T1 and calcitonin. So what’s the motive to prescribe only a storage thyroid hormone???

8) Most doctors, says Dr. Arem, generally prescribe T4-only medications. But such medications may leave some patients with lingering symptoms such as fatigue and depression and, in some cases, low T3 levels. 

He’s right! But there’s more to the story. Even those T4-only treated patients who see a removal of those lingering symptoms still end up seeing them crop up the longer they stay on T4! T4-only treatment is NOT a pretty picture.

9) Some patients go to alternative health professionals to get prescriptions for drugs such as desiccated thyroid extract (DTE) prepared from animal thyroid glands, which include a combination of T4 and T3.  

Thyroid patients are NOT just getting their natural desiccated thyroid (NDT is the common term, not DTE) from alternative health professionals. They are also getting it from open-minded and progressive regular doctors who LISTEN to their patients experiences!

10) The danger here, Dr. Arem says, is such patients could end up with an excessive amount of T3, resulting in symptoms of overactive thyroids, such as anxiety and a fast or irregular heart rate. He advocates a combination approach with amounts tailored to the individual.  

With all due respect to Dr. Arem, who is light years ahead of his colleagues in many areas, an excessive amount of T3 is not because of the use of NDT. It’s because NDT will reveal the problems of inadequate iron or inadequate cortisol–either of which can cause T3 to pool high in the blood and not make it to the cells. When patients correct those, they eventually soar on NDT. A newer page on STTM explains why NDT appears to cause problems.

11) Most studies looking at combination approaches show conflicting results. 

This is because those doing the studies made several key mistakes!! a) they dosed by the TSH, which leaves patients underdosed, b) they had no clue about the problem of inadequate levels of iron or cortisol, either which will leave a patient hypothyroid! Learn from patients!

12) The study’s authors said in a news release that it showed DTE may be a good alternative therapy for a limited number of patients. Harvard’s Dr. Garber says there may be certain subsets who are genetically programmed to respond to such combination therapies. 

That’s like saying a “limited number” of human beings and only those “who are genetically programmed” will do well with a healthy thyroid (NDT gives the exact same hormones as a healthy thyroid!! T4, T3, T2, T1 and calcitonin).

13) Dr. Garber, like many endocrinologists, uses T4 medications with the vast majority of his patients. Occasionally he’ll also use conservative doses of a synthetic T3 drug, but he virtually never prescribes the animal-derived form, he says, because of complications that could arise for women trying to get pregnant or in early pregnancy, as well as individuals with heart disease.  

And this is why most thyroid patients, when they report about their doctor experiences, find Endocrinologists to be the worst doctor they ever went to, using descriptive words such as arrogant, close-minded, blind. And by the way, even some heart surgeons know that T3 SUPPORTS healthy heart function, not hurts it! See the Medical Research page on STTM which supports what we already know by our experiences!

See the actual Wall Street Journal article here.

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* Did you know that the original and revised Stop the Thyroid Madness book is in four languages?? English, Spanish, German and Swedish. Wooo hoooo!!  And now, there’s a STTM II book with each chapter written by medical practitioners! 

* The STTM Facebook page is very active and informative about successful thyroid patient treatment! Come join us! Discussion groups listed on the Talk to Others page.

Check out this photo, about Vitamin D, 64 symptoms removed, and life after thyroid cancer~

OOPS. THIS GAL’S DOCTOR WAS A BIT CLUELESS…

Look carefully at the photo to the left. You will see the actual outline of this woman’s thyroid. It’s obvious. It’s swollen. A swollen thyroid is called a goiter, and can be due to an autoimmune attack of the thyroid called Hashimotos, aka thyroiditis.

Yet, this woman’s doctor insisted she just had a throat infection, gave her penicillin for 12 days, and the outcome?  It’s still inflamed and sore. Jeez, doctor!! WHAT were you thinking!  She states: I always feel something pressing down on my neck and food gets stuck and then I’m having a chocking session. CLEAR thyroiditis and a blind doctor!

Thanks to this gal’s participation in the Stop the Thyroid Madness Facebook groups, she knows the truth, is empowered, and is going to try and get the RIGHT labs and treatment this time! Her biggest challenge is where she lives–the UK with a very dark- ages medical system that worships T4-only and doesn’t get the efficacy of Natural Desiccated Thyroid. It’s not a pretty picture in the United Kingdom or a lot of European countries if you have thyroid disease.

VITAMIN D–DON’T DISMISS THIS IMPORTANT VITAMIN FOR YOUR THYROID HEALTH!

Vitamin D is considered a steroid plus a prohormone, i.e. it’s not yet a hormone, but has affects on real ones. And your body can get it from sunshine exposure, or you can supplement with it. Why is it a great vitamin? It helps balance out your calcium levels and bone density, can help lower stress and blood pressure, and promotes a good immune system.

Vitamin D is found in two forms: cholecalciferol (vitamin D3) which is made via skin exposure to sunlight, or ergocalciferol (vitamin D2). D3 is the natural form and why it’s often preferred for supplementation over D2. After vitamin D3 is formed in your skin or taken as a supplement, it is then metabolized into two different substances: 1) 25-hydroxyvitamin D (25(OH)D), known as calcidiol and your storage Vitamin D, and 2) 1,25-dihydroxyvitamin D (1,25(OH)2D3), known as calcitriol. The former is the Vitamin D you measure via blood.  Good information on both can be found in the abstract here.

So why bring it up?  First, it’s important for your thyroid, i.e. it has to be in sufficient amounts for thyroid hormones to work in your cells. And second, a huge body of thyroid patients find themselves with low levels of this important vitamin! How to raise it? It can take 10,000 IU’s of D3 daily. Some doctors even prescribe more and sometimes once a week in these very high amounts. Add an acid to the drink you use to swallow your Vit. D–like one tablespoon Braggs Apple Cider vinegar, or lemon juice. It will promote better absorption.

SHE ELIMINATED 64 SYMPTOMS THANKS TO NDT AND TREATING HER LOW CORTISOL!! 

Next time you hear that NDT is not good, think twice. Her name is Mary, and you should check out the 64 symptoms she eliminated thanks to NDT, here.  You will see that she’s still working on a few more, but the difference is stunning!

A TESTIMONY FROM A COLLEGE STUDENT OF HOW NDT CHANGED HIS LIFE AFTER THYROID CANCER (even more than being on T4 with T3!)

I’m a male college student and in 2008 I was diagnosed w/ thyroid cancer. Cancer aside, I was placed on Cytomel followed by Synthroid. When I asked my doctors for natural options they said there were no such meds. For four years I was a prisoner in my own body. I had rapid mood swings, I was always cold, had a lack of energy and worst of all dry skin. The dry skin became so bad that I started to develop cystic acne covering my entire back and many on my face–I had no confidence and work out 5x a week yet I was scared to take off my shirt. I knew that there had to be a solution being that I didn’t have any of these symptoms prior to getting my thyroid removed so I began to research. This website, Stop the Thyroid Madness, got me in the right direction as far as understanding the role o f T3 and T4. After many lies, and doctors who denied to write for Armour or Naturethroid, I finally found a woman who knew about the “madness”. I have only been on Naturethroid for one month and my TSH, T3 and T4 levels may be off but I feel like the old me again! I have energy, I have steady moods, I have less brain fog and my skin is finally producing oil again and my acne is almost cleared 100%! Thanks for your work your site had changed my life for the better!

DID YOU KNOW THAT THE STTM BOOK IS AVAILABLE IN ENGLISH, SWEDISH AND GERMAN?? A perfect gift for your friend or loved one who speaks any of those languages. Go here.