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Have you tested your B12? It’s a deficiency thyroid patients need to catch.

Screen Shot 2015-09-14 at 6.23.24 PM(This blog post has been updated to today’s date and time. Enjoy!)

In 2009, I wrote an article titled Ten Reasons You May Still Feel Bad, which is still just as applicable today as you are reading this!  Nearly every hypothyroid patient can have some of those ten problems, and if so, they need to be discovered and corrected.

And one of those issues was low B12.

B12, also called cobalamin, is a water-soluble vitamin which has a key role in cell metabolism of your entire body, giving you energy, sharpness in your brain, and healthy nervous system functioning.

No one is capable of producing enough B12 on their own. You have to get it in your diet, or supplements.  In food, it’s found in most red meats as well as fish and poultry. Liver is especially high! You’ll also find it in eggs and milk products, though it’s less absorbable if the latter has been heated.

And unfortunately, a certain percentage of hypothyroid patients have low levels of this important vitamin.

One main reason that thyroid patients get low is due to the low stomach acid we get from either being undiagnosed or underdosed due to the TSH lab test, or undertreated with T4-only products like Synthroid or levothyroxine.

Hashimotos patients may have inadequate levels due to gluten and the destruction it can cause on the stomach–another reason the majority get off of gluten!

Symptoms of low B12 can vary from person to person, but can include numbness and tingling in your hands or feet,  tremors, poor reflexes, tongue soreness, leg pain, or difficulty walking with balance.   Psychologically, you may have memory issues, confusion, or depression. Young women may have difficulty getting pregnant due to low B12.

When doing lab work, we saw it needed to be in the upper end of the range.

In other words, several of us with mid-range B12 still saw symptoms related to inadequate levels of B12. Getting it up in the upper quarter took those symptoms away.

To correct inadequate levels of B12 in working with our doctors, we used high oral B12 in pill or liquid versions (methylcobalamin is the recommended form of B12 for most; others use the hydroxy version), or B12 cream, or injections by your doctor (especially if you have pernicious anemia). It’s also recommended to increase your consumption of meat and dairy products, which can be rich in B12.

I highly recommend the book Could It Be B12? An Epidemic of Misdiagnoses by Sally Pacholok, R.N. and Jeffrey Stuart, D.O., who are spearheading B12 awareness.

Have high B12? That can be related to the MTHFR mutation

Turns out that a high percentage of folks can have a mutation of the MTHFR gene, which makes it hard to break down B12. To learn more, read the MTHFR page on STTM.

To read more, go here: //www.stopthethyroidmadness.com/b12

JanieSignature SEIZE THE WISDOM

Have you found yourself with low B12? Tell us your symptoms, how you treated it, and how long it took to stop the symptoms.

Want to be notified of these blog posts? Curious what Janie is ranting about this time? Use the Notification on the bottom of this page. 

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7 reasons you’re gonna love Forest Pharmaceuticals (told ya so)

Now being announced on the Forest Pharm hotline at 866-927-3260, the following strengths of Armour are now completely available again:

1) 15 mg. (1/4 grain)
2) 30 mg. (1/2 grain)
3) 60 mg. (one grain)
4) 120 mg. (2 grains)
5) 180 mg. (3 grains)
6) 240 mg. (4 grains)
7) 300 mg. (5 grains)

Yessiree, the above represent the different size and strength tablets of natural desiccated thyroid via the Armour brand, most of which had been unavailable for quite awhile. The 90 mgs is still on backorder.

Rejoice!

P.S. And we thank RLC Labs for their continued availability of Naturethroid and Westhroid, plus Sriprasit Pharma Co., Ltd. in Thailand for their Thyroid-S.   Because no matter how hard any pharmaceutical company, Endocrinologist, certain hospitals,  or group of physicians (see below) tries to sing the praises of T4 treatment with Synthroid, Levoxyl, Levothyroxine, Eltroxin, Norton for thyroid disorders or hypothyroid….WE KNOW BETTER.

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What in the world is the UK’s Royal College of Physicians thinking??

Screen Shot 2015-08-14 at 7.49.11 PM

(This post was updated to the present! Enjoy!)

2009 was a nauseating year for informed UK thyroid patients. UK’s Royal College of Physicians came out with a press release about the new guidelines on the diagnosis and management of primary hypothyroidism. And it hit the web with a resounding, stiff-necked **THUD**.

The press release was titled:

Thyroxine is the only treatment for primary hypothyroidism

Yup, as if nothing else could possibly exist, even though other hypothyroid treatments do exist, and one has been around for over 110 years changing lives called Natural Desiccated Thyroid. But no, it’s only the blinkered, horse-blinders pronouncement that   “Thyroxine is the only….”.

And to underscore the title, the first line of the press release pronounced:

New guidelines on the diagnosis and management of primary hypothyroidism state that thyroxine is the only treatment that should be given for this condition, which is caused by underactivity of the thyroid gland.

And it continues in all its blabbering, tunnel-vision glory:

The guidelines also state that the only validated method of testing thyroid function is on blood, which must include serum TSH (thyroid stimulating hormone) and a measure of free thyroxine (T4).

For those who may not have caught up with the wisdom on thyroid patients and a growing body of entirely wise practitioners, the TSH lab test has proven to be the absolutely worst way to diagnose hypothyroidism, besides its use to find the right amount of medication. Far more important is the very test the UK College completely omitted: the free T3. T3 is the active thyroid hormone!

The came the final coup de grâce in the press release:

Patients, doctors and other health professionals are worried that people are being wrongly diagnosed and treated, due to the amount of unvalidated diagnostic tests and ‘natural’ treatments which are being offered by a variety of private individuals and companies. Wrong diagnoses and treatments can be dangerous, either because the wrong treatment can cause serious side effects, or the true cause of symptoms can be left undiagnosed and untreated.

Sadly, the danger is in using only one of five thyroid hormones, and forcing patients to live for conversion alone, resulting in a continuation of hypothyroidism in each patient’s degree and kind, sooner or later.

A concluding paragraph by Janie

In the 1600’s, Galileo was the first most prolific voice to proclaim that the earth revolved around the sun (Natural Desiccated thyroid), in contrast to the firmly held position that the sun revolved around the earth (Thyroxine).  He was denounced as being dangerous and heretical. Looks as if the UK Royal College of Physicians has a 17th Century mindset…. 

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** I wrote about it in the news media here: http://www.opednews.com/articles/The-Royal-College-of-Physi-by-Janie-Bowthorpe-090210-698.html

Are you from the UK? Tell us what you think.

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A real life horror movie: suckered by Big Pharma marketing. Part 2

(Want to be notified of my blog posts? Curious what’s on my mind? Use Notifixious to be informed. Look on the bottom left of the links where you can sign up. )

Recently, after we watched a semi-scary movie about being suckered, a friend brought up my blog post of last July where I described a terrifyingly-real horror movie.

The plot: stunningly convince hundreds of millions of individuals worldwide that what is obvious, isn’t. i.e. it’s all in your head, you are adequately treated on Synthroid, Levoxyl, Eltroxin, Norton, et al,  and not only that, we’ll bandaid your continuing problems with more medications.

A second plot: also completely hoodwink those with top notch higher medical educations and experience by churning out the the exact same poppycock, and reward their stupidity with gifts.

The central villian: Big Pharma, followed by the doctors who bought the lie

Exactly a year ago this month, Science Daily came out with an article, citing two York University researchers who estimated that the U.S. pharmaceutical industry spends almost twice as much on promotion as it does on research and development, contrary to the industry’s claim. In other words, the researchers estimated that $57.5 billion in US dollars was spent on pharmaceutical promotion in 2004–the year they were studying. Yes, I said BILLION.

Breaking that down, Big Pharma spent approximately $61,000 per physician in promotion of their products.  And they concluded that both figures were UNDERestimates.  In other words, they concluded that the US pharmaceutical industry is marketing-driven rather than “life-saving”.

And adding fuel to the fire: most doctors believe every thrust of that marketing. I recently participated in comments with other wonderful patients in response to a DO/Endocrinologist, Dr. Thomas Repas, who has clearly bought the Big Pharma marketing when it comes to levothyroxine. You can read his posts and our comments here, here, and here.   Dr. Repas is exactly the kind of doctor who has  starred in our horror movie, and the kind of doctor that patients have lamented about for years.  Read the  Give Me a Break list of comments made by doctors, as well as further comments on the January 1st blog.

But Dr. Repas is in good company. Doctors have believed the Big Pharma lie about T4-only medications, and against desiccated thyroid like Armour, Naturethroid, etc. for 50 years.  In the patient-to-patient  Stop the Thyroid Madness book, you can read about the first tableting of Synthroid in 1955 and the strategic and successful promotion of T4-only, in spite of the fact that T4 was known to be unstable for decades.

And today, more than 50 years later, very few of us have been untouched by the Big Pharma push for levothyroxine T4-only treatment.  My own mother was suckered, and I was suckered.  And until patients started to make a huge push for desiccated thyroid treatment the last few years, nearly every single doctor around the world had been suckered.

We still have a way to go. But we’ll get there, bit by bit.

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Thyroid Tidbit: You ain’t gonna get smarter on Synthroid!

Today, I came across a short summary on recent study findings presented at the 79th Annual Meeting of the American Thyroid Association in November, 2008.

It states that in a study with thyroid patients 65 and older, there was no improvement in cognitive function when a patient is optimally treated on thyroxine, aka Synthroid, Levoxyl, Levothyroxine, Eltroxin, et al.

Gee golly.  What breaking and cutting-edge news!

NOT.

Too bad it takes the results of a research study to reveal what has been blatantly obvious in patients of all ages for 50 years: thyroxine overall does not work and leaves patients with a variety of NON-improvements, as well as worsening symptoms of lingering hypothyroidism as they age.  Duhhhh.


3 replies