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Why do some patients escape adrenal dysfunction?? I think I know why I did.

Anyone who has read my story of nearly 20 years of absolute misery on T4-only meds would think I’d be right in the thick of adrenal fatigue / HPA dysfunction and low cortisol.  Those were horrible, miserable, stressful, debilitating years.

Yet, I escaped it.

For awhile after I entered the thyroid patient activist field, I felt guilty. That was especially true as I saw how terribly people suffer with low cortisol.  But I also realized there was something potentially amazing to be discovered as to WHY I escaped it.

But years went by, and I have always been extremely busy as an activist: daily emails to take care of; constant updates to the website, keeping track of Yahoo and Facebook groups; thinking about and writing the blog; activities around the book, phone consultations, and so much more.  I have also fought to have an important private life.

So, it wasn’t until recently that I readdressed this question: why did I escape adrenal dysfunction? Was it genes which gave me strong adrenals?? That thought has drifted through my mind many times.  But I wasn’t sure. So recently, I took some time to really search my past to find answers. And something else really stood out.

Namely, because I had always been a fitness and health buff, I was big into supplements. Sure, I was unable to do hardly anything about fitness part of the equation–my T4-induced and crippling dysautonomia killed that.  But my belief in supplements never ended.   That was impressed into me by my mother who always stressed taking a vitamin pill as a child.  I also remember her putting my cigarette-smoking Dad on Vitamin C  in the 1970’s, having read it might delay his inevitable lung cancer. (It was too late.)

So when I became a young adult, married with little children, I learned even more about supplements, and took them. And one thing I remember always taking all those years as a young adult was high amounts of Vitamin C.  High amounts of Vitamin C!! That stood out to me.  And below are facts about Vitamin C and adrenals:

VITAMIN C and ADRENALS:

  1. “Of all the vitamins and minerals involved in adrenal metabolism, vitamin-C is probably the most important. It is essential to the adrenal hormone cascade and manufacture of adrenal steroid hormones.  It acts as an antioxidant within the adrenal cortex.” ~ www.bluemountainrx.com/adrenal.htm
  2. “While the adrenal glands need numerous nutrients to function normally, perhaps the most important of them all is vitamin C. The highest concentrations of vitamin C reside in the eyes, brain and adrenal glands. ~ http://www.adrenalfatiguefocus.org/adrenal-fatigue-and-vitamin-c.html
  3. “Healthy adrenal function requires vitamin C, and some of the highest concentrations of vitamin C in the whole body are found in the adrenal glands.” ~ http://www.naturalnews.com/029842_vitamin_C_adrenals.html
  4. “Vitamin C is utilized by the adrenal glands in the production of all of the adrenal hormones, most notably cortisol. When you are faced with a stressful situation, your vitamin C is rapidly used up in the production of cortisol and related stress-response hormones.” ~ http://www.adrenalfatiguerecovery.com/vitamin-c.html
  5. “The adrenal gland is among the organs with the highest concentration of vitamin C in the body. Interestingly, both the adrenal cortex and the medulla accumulate such high levels of ascorbate. Ascorbic acid is a cofactor required both in catecholamine biosynthesis and in adrenal steroidogenesis.” ~ http://www.ncbi.nlm.nih.gov/pubmed/15666839

There is much more on the net than the above, as well. And in fact, the important relationship between Vitamin C and your adrenals was proposed in 1951. This was huge, to me, as to why I may have escaped adrenal dysfunction. Even the use of B-vitamins and magnesium are important, tho I don’t remember what I was taking of those.

ANOTHER CLUE: I had a conversation with a gal recently. Like me, she suffered a long time, yet did not fall into adrenal fatique. I asked her why she felt she escaped it. She explained that she had worked for a naturopath for many years, and thus, took many supplements, including high dose Vitamin C. I was dumbfounded.

MY CONCLUSION: Whether I have found the irrefutable reason as to why I didn’t fall into adrenal fatigue and low cortisol may not be answered inconclusively. And who knows if some of us just have genetically strong adrenals.  But I lean to believe that my early use of high-dose Vitamin C all those miserable years may have been a huge factor, along with B-vitamins which can also be depleted. Today, I take a minimum of 2350 mg daily via my buffered C powder, and in water, and usually double that amount, as I like taking it before bedtime for the magnesium.  I am also a fanatic about adding squeezed lemon to my water or occasional fluoride-laden iced tea.

WHAT THIS MEANS FOR YOU: Adrenal patient experience has shown that once your adrenals or HPA function drops, as does your cortisol, the use of hydrocortisone is usually the best way to treat it.  See the adrenals page here.  And patients have learned in leaps and bounds on how to use HC with their open-minded doctors (…if they can even find a doctor who looks beyond his dogmatic training.  It’s not easy.)  But the use of high dose Vitamin C might not be something you want to ignore, whether you have to use HC or not:

  1. “Sufferers of adrenal fatigue are hit particularly hard by vitamin C deficiency. The production of cortisol and other adrenal hormones, characteristically low in this disorder, is dependent on an ongoing supply of vitamin C. If this supply dwindles, so too does the secretion of adrenal hormones. This feeble response from the adrenal glands places the body under further stress, further increasing demand for the vitamin C. The importance of intervention with the appropriate amounts of this nutrient should not be overlooked.”   ~ http://www.adrenalfatiguefocus.org/adrenal-fatigue-and-vitamin-c.html
  2. Have you heard of Scurvy? This is a progressive disease from the  deficiency of vitamin C that ultimately leads to death.  And Linus Pauling wrote in his 1979 book, Biomolecular Sciences,  that death from Scurvy is actually “adrenalcortical failure”. That is profound as to the importance of Vitamin C with YOUR adrenal health and/or recovery.
  3. “In two separate studies about vitamin C supplementation (1,000—1,500 mg per day for one week), ultramarathon runners showed a 30 percent lower cortisol level in their blood when compared to runners receiving a placebo. In another study of healthy children undergoing treatment with synthetic corticosteroids, 1 gram (1,000 mg) of vitamin C, consumed three times a day for five days, resulted in significantly lower cortisol levels compared to healthy children given a placebo. In a study of lung-cancer patients, a dose of 2 grams of vitamin C, given daily for one week prior to surgery, was able to bring elevated cortisol levels (resulting from the surgery) back to normal ranges in a significantly shorter period of time compared to patients receiving a placebo. ~ http://cortisolconnection.com/ch8_3.php

What about you? If you escaped adrenal dysfunction while going through years of misery on T4-only meds, or being held hostage to the lousy TSH lab result, why do YOU think you escaped it?

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* IODINE: Finally, I have updated the iodine page on STTM–long overdue.  Thanks to VRP for pointing out that their links have changed.  You can read many different links about iodine, the controversies and more, and decide for yourself what is right for you.

* FINDING A  BETTER DOCTOR: Want to try to find a better doc that the vast majority of cows…oops, doctors? Go here.

* TALK TO OTHERS: Talking to other patients is what started me on new path years ago. You can too, here. Scroll down to view them all.

 

As a hypothyroid patient, you might want to think twice about drinking water out of plastic bottles

(This page has been updated to the present. Enjoy!)

As a hypothyroid patient, do you think you are fine drinking that purely fine mineral water from a plastic bottle?

Think that fluoride and chlorine are the only substances we need to worry about when it comes to our thyroid health?? Think again.

Thyroid patient Amy McMullen, who has contributed before on STTM’s blog as a GUEST POSTER (Confessions of a Undercover Thyroid Advocate) and has a passion about human rights, has written another important article below which should be of keen interest to all of you.

BPA–A POWERFUL ENDOCRINE DISRUPTER THAT AFFECTS YOUR THYROID

Perhaps you have read recently about how the chemical Bisphenol A (BPA) is found to be prevalent in our food and water. As a hypothyroid patient, I was surprised to see that not all articles about this harmful substance adequately describe the connection between thyroid function and BPA. This is an oversight that should be addressed since hypothyroidism is estimated to affect over ten million people in the US and this number is growing. It makes perfect sense to look to environmental toxins as a likely culprit in this serious health epidemic.

BPA is a synthetic estrogen and an endocrine disrupter that causes multiple health problems.

There are over 200 studies linking it to breast cancer, obesity, attention deficit disorder, early puberty in girls, genital abnormalities in boys and girls alike, polycystic ovary disease and infertility in women and prostate cancer in men. Studies indicate that up to 92% of Americans have BPA in their urine. Also BPA doesn’t leave the body quickly; fasting adults still had BPA levels in their bodies after 24 hours.

BPA comes from many plastic sources. It’s used as a hardener in plastic manufacturing. Many tin cans have plastic linings that contain BPA including soup and tomatoes, and it’s also in plastic water bottles, some infant formulas and canned juices. BPA is also found in PVC water supply piping.

How does BPA relate to thyroid disease?

According to a several good studies, BPA is a thyroid receptor antagonist. This means that BPA will interfere with the binding of the thyroid hormone T3 with cell receptor sites. This will cause hypothyroidism, not only with people with under-functioning thyroids but also for those who are currently taking medications for hypothyroidism or even those who have normally functioning thyroids. BPA was found to accumulate in many organs when injected into rats including the lung, kidneys, thyroid, stomach, heart, spleen, testes, liver, and brain. In this way, BPA has the potential to interfere with thyroid hormones in each organ that has accumulated the substance. A study also indicates that the levels of BPA that are considered safe (upper limit of emission is set to 2.5 ppm [µg/liter], which is more than 90 µM) are high enough to inhibit thyroid hormone receptors. Yet another study shows that BPA appears to accumulate in rat fetuses in significantly high levels and disrupts thyroid function in baby rats.

There’s also evidence that BPA may influence the metabolism of endogenous steroids, which may be a factor in adrenal fatigue and its treatment, as well as and its treatment, as well as dysautonomia stemming from adrenal problems. Many with hypothyroidism also suffer from co-morbid adrenal fatigue and BPA may be a contributing factor in this.

What this means for everyone, but especially for thyroid patients, is every effort should be made to remove BPA from food and water supplies.

For those who are not able to get properly optimized on their thyroid meds or who are finding they are suffering from hypothyroid symptoms despite normal levels of TSH, free T3 and free T4, consider BPA as a possible source of the problem.

Steps you can take to minimize you exposure include:

  • Avoid all canned foods with plastic liners and avoid bottled water. Buy your canned tomatoes in glass jars, not metal cans or stick to using fresh ingredients. Most other canned foods use BPA as well, especially green beans (Here is a list of BPA-free canned foods).
  • Drink water out of glass or stainless steel containers (and make sure there’s no plastic liner or lids that have BPA) or BPA-free plastic. Low density polyethylene bike bottles contain BPA.
  • Do not microwave foods in plastics or use plastic wraps when microwaving. Avoid polycarbonate (“PC” or #7 and #3) plastic food containers altogether.
  • Since most municipal water piping is PVC and some houses have it as water supply lines, consider installing a reverse osmosis system for your drinking water. This will also remove fluoride and chlorine (other thyroid disrupters) and many other harmful substances from drinking water.

Most importantly we need to make our voices heard that BPA is not an acceptable substance and that its use in our food and water supply must cease. Recently Senator Feinstein introduced a ban on BPA to the Food Safety Modernization Act but this was modified to remove the ban due to pressure by industry groups. Senator Feinstein still has an effort underway to ban BPA from child drink bottles and toys and several states have enacted such bans but this does not go far enough.

Contact your representatives today and let them know that a national ban on BPA must be enacted. If they don’t listen then I suggest you make yourself heard at the ballot box this November.

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  • Have you cut down on your exposure to Fluoride? Buy non-fluoridated toothpaste as a first step.
  • Cut down on more chemicals by using baking soda under your arms rather than commercially-made underarm deodorants. Note that the baking soda may at first cause redness, but it will go away within days and is a great way to kill odors.
  • Have a pounding heartrate that you can’t explain? You may be making too much RT3 or have an adrenal issue.
  • Check out typical Questions and Answers about thyroid treatment and related issues.
  • Want to write a GUEST BLOG POST on STTM? Go here.
  • Join the STTM Facebook page for daily tips and inspiration. 

Suffering on Synthroid: imagine how horrific it was before the internet

Elizabeth Alexander 1959(Though this post was originally written in 2009, it has been updated to the current day and time and still applies!)

I think back about my mother.

At age twenty-one in 1939, she had most of her thyroid removed due to Graves disease and hyperthyroidism. Because a small part remained, hyper set in once again by 1960 complete with bugged eyes.

So Radioactive Iodine I-131 was the next step to once-and-for-all annihilate the thyroid and hyperthyroid symptoms.  Not long after, as her thyroid hormone levels fell, she was one of the early victims of the “new and modern” T4-only medication called Synthroid.

And all hell broke loose.

Depression enveloped her everyday life—one of her worst lingering symptoms of hypothyroidism due to the shoddy treatment of a T4-only med. I remember her moods, her frequent anger and lack of patience, and her constant counseling appointments.

Why all the counseling appointments? You can imagine that the doctor had no clue that her problems was being on Synthroid with nothing more than T4-only. No direct T3….something which a brain needs.

The last resort–Electric Shock Treatment

By 1963, and right before President Kennedy was shot, she submitted herself to Electric Shock Treatment in a futile effort to control her depression.  What a crock.  She was never again the bright and quick-witted woman I remembered as a younger child. Her brain was fried and she had a new dull flat reaction to life.

And for the rest of her life, she lived on her antidepressant/anti-anxiety med Elavil and had daily constant naps, weight gain, rising cholesterol, dry hair, heart surgery, stiff joints, brain fog and inability to stand on her feet long–her own manifestation of lingering symptoms while on the lousy thyroxine.  Additionally, her long-term use of antidepressants made her emotions completely flat…..

And she did the T4-only horror show…all…by…herself. No internet,  no patient groups and forums, no Stop the Thyroid Madness website, blog or book,  no good doc, no thyroid Facebook or Twitter groups, no other good thyroid books or websites. Nada. I came along as a Thyroid Patient Activist too late for my mother, who died in 2003.

It makes me shudder thinking of that lonely hell.

But then again, it’s not just in the far past: it happened to her only daughter, me, for nearly 20 years. Complete lonely hell of my own with intense and disabling Dysautonomia (an overreaction of my autonomic nervous system) induced by my continued hypo state while on Synthroid and later Levoxyl.

And today, because the mass media or any media personality refuses to speak the truth of the 55 year scandal of T4-only meds like Synthroid, Levoxyl, levothyroxine, Eltroxin, Oroxine, or the cuckoo’s nest of the TSH lab test and range, HUNDREDS OF MILLIONS of individuals still suffer. How stupid can they get.

This is a scandal that has effected a huge mass of individuals globally, past and present,  including those today who STILL linger with undiagnosed hypothyroidism thanks to the worthless TSH lab test or lingering hypo on the lousy T4-only medications. And all the above when we, as patients, have learned a far better way to treat our thyroid problems

Did you have relatives like my own Mom (who died in 2003) who lived the T4-only scandal alone?  Use the Comment form to tell us about them.  Have YOU suffered from a T4 med? Report it to the FDA here.

Multiple sclerosis, Dysautonomia, you name it…ALL made worse from hypothyroidism or being on a T4 med

Screen Shot 2015-08-04 at 2.30.58 PM(This post has been updated to the current day and time. Enjoy!)

Before my thyroid disease of hypothyroidism was discovered, I had horrific and debilitating consequences from exercise or any activity.  You can read about it in even more detail in the Introduction of the patient-to-patient Stop the Thyroid Madness book.

When my so-called “borderline hypothyroid” was discovered by age 30, I thought whoo-hooo, I’ll finally get rid of this strange nightmare whenever I tried to do ANYTHING.  I was put on Synthroid and my anticipation for a better life was profound.

But my hope was dashed.

Not only did my body continue to overreact to activity, it got much worse over time.  Horribly worse. I got to where I couldn’t even grocery shop without paying horrible prices in fatigue and other miserable symptoms.

Nearly twenty years after I had started on a T4-only medication, and had even raised it. I was told by one doctor after another that my problem was not my thyroid. I was forced to start the process of applying for social security disability–a low, low time for me.

But they were all dead wrong.

Sure, turns out I have a form of Dysautonomia, a malfunction and overreaction of my autonomic nervous system, causing my body to far overreact to activity or stress. But remaining hypothyroid, as so many of us do on t4-only medications, had made it far, far worse. And I proved it. When I switched to natural desiccated thyroid in 2002 and raised it according to what patients have learned, a miracle occurred.  My severe autonomic reactions made an almost complete turnaround.

And my experience of change or improvement when it comes to other diseases or conditions has been shared by others.

Last week, I received an email from a man whose brother has MS–Multiple Sclerosis.  And though natural desiccated thyroid has not taken his MS away, it allowed him to move from this wheelchair to a walker! That is quite impressive.

So I am left wondering:  what other conditions or diseases, which are unique in themselves, are worsened being either undiagnosed or dosed the lousy TSH lab test range…or due to the inadequate treatment of Synthroid, Levoxyl, levothyroxine, Eltroxin, Tirosent and all other T4-only medications for all to many like myself? It’s awful to think about it.

JanieSignature SEIZE THE WISDOM

* Learn about the problems with T4-only right here. 

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* Get the STTM books here, because you have to become informed in order to get well: www.laughinggrapepublishing.com