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Do you know someone who is defensive, paranoid and/or frequently anxietal??

 

Screen Shot 2015-09-30 at 12.00.16 PM(This page was updated to the present day and time. Enjoy!)

It happens often–someone will join a patient group, and right off the bat, you notice they are one or more of the following (or you notice it in yourself):

  • very defensive about certain subjects
  • know-it-all
  • argumentative
  • hot-headed
  • condescendingly overbearing
  • paranoid
  • highly emotional
  • over-reactive

They may quickly fly off the handle.  They might see implications in words that were never there. They can also be childish in their reactions, obsessive about certain topics or people, mistrustful of others, forgetful, combative, and/or jittery.

Even worse, combine someone with intelligence and a way with words along with all of the above, and you’ve got a royal pain in the butt. And the worst part?  Most have no idea how badly they are manifesting the above.

It’s called adrenal fatigue, also known as adrenal insufficiency or hypocortisolism.

It starts out with excessively high cortisol, then falls to low cortisol with a basket full of consequences when it comes to coping and interacting with life and people. i.e. those with adrenal fatigue can have several of the above list or more. . And having a cortisol problem is unfortunately very common among thyroid patients thanks to being left undiagnosed due to the lousy TSH lab test, or being put on T4-only medications like Synthroid, levothyroxine, Extroxin, etc. Both situations cause the adrenals to work far too hard, then become sluggish.

It’s also unfortunately common for many doctors to deny the existence of low cortisol as we tend to have it, or be clueless on how to treat it.

And to get well, we have to become informed ourselves

Why? Because patient experiences and wisdom are far ahead of most doctors, and we have to be prepared to guide them. You can read about this condition here. Then the adrenal wisdom we’ve gain on treating adrenal issues. Some of the BEST details are in Chapters 5 and 6 in the Stop the Thyroid Madness book. The last Chapter in the STTM II book does a bangup job explains biologically how we end up with low cortisol in the first place. A must read.

There appear to be a huge body of thyroid patients with this condition–at least 50% or more–and it’s a topic that needs understanding and a condition that needs the right treatment.

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In 2010, Janie was on two radio shows around the time this post was originally written (and is now updated). See if you can find their archives:

  • Michigan Talk Network’s “Health and Wellness Show” by Dr. John Wycoff, D.O., an educational & patient interactive call radio show. http://www.michigantalknetwork.com/dr%20wycoff/new/hws_home.html  
  • Plus Just Ask Nish, a new TRN nationally syndicated radio show heard on 53 stations in 1400 cities. http://ask-nish.com/radio_justasknish.php The host is  Nisha Jackson, N.D. who has 18 years of experience in research and practice, as well as multiple T.V. appearances, motivational speaking, and two other radio shows (although this is her largest).

Have you Liked the STTM Facebook page? Great daily tips, inspiration and information!

23 replies

My discovery of why our MAGNESIUM levels are a huge problem! (mine was)

1-Screen Shot 2015-01-14 at 8.02.21 PMThough this post was written several years ago, it’s information is applicable even to this day and time and has been updated.

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I am blown away by the magnitude of what I have discovered just recently. And this potentially involves YOU.

I had several labs done just to keep track of how I stood in several areas. One was RBC Magnesium. “RBC” (red blood cell) measures the intracellular levels of magnesium–supposedly a more accurate picture than a “serum” measurement of your magnesium, which only measures 1% (and sadly, most doctors only measure your serum levels). i.e. even if your serum measurement was normal, your cellular levels may NOT be.

And my result?? My RBC magnesium measured at the bottom, very bottom, of the range. I was shocked. I eat healthy, and have been giving myself liquid minerals off and on for awhile. But clearly, I have been unable to raise my magnesium level. When I tried to raise my supplementation, I’d have to runnnn to the bathroom.

So I opened a book that a good friend gave me: Transdermal Magnesium Therapy by Mark Sircus, OMD. And I am blown away. Here is what I have learned, and YOU may need to as well:

Magnesium Deficiency

  • Affects at least 7 out of 10 reading this
  • Can be there even if you feel well (me); will be there if you have mal-absorption (think gluten issues)
  • Is common with diabetes, liver disease, and if you take or eat a lot of calcium
  • Is especially problematic if you drink alcohol, sodas, caffeine and excess sugar, have a stressful life, sweat a lot, or take birth control pills
  • Increases your risk of heart disease, strokes, muscles problems, cancer and many other illnesses
  • Is common in a stressful life (and especially so if you have adrenal fatigue/low cortisol, or you are a Type A personality)
  • Can be even worse than a serum lab test reveals
  • Is found in someone like me who eats right!!

How a deficiency of magnesium affects you

  • Can cause heart disease (and exacerbates my Mitral Valve Prolapse), plus strokes
  • Promotes tooth decay, muscle cramping (me for over a decade)
  • Lowers your immune system strength, energy levels, metabolism
  • Increases blood pressure (mine has risen at the same time I’ve noticed leg cramps…hmmmm)
  • Decreases your body’s ability to use Vit. C and E
  • Lowers the production, function and transport of insulin
  • Causes an increase of toxins and acid in your body (think cigarettes, radiation, toxins in food/water/air)
  • Makes you susceptible to host of diseases and conditions
  • Can cause tinnitus in the ears

Why you need higher levels of magnesium

  • Helps the metabolism of carbs, fats and amino acids and influences 325 enzymes
  • Counteracts and regulates the influence of calcium, which can harm you if too much
  • Is required for the body to produce and store energy (just like desiccated thyroid)
  • Calms the brain
  • Removes toxins along with Vit. C
  • Increases the efficiency of white blood cells (your immune system)
  • Helps prevent cancer and slows down the course of cancer (along with zinc and selenium!)
  • Can raise testosterone levels in men (and with zinc)
  • Relieves pain! (important news for those with arthritis or other pain issues)
  • Does the opposite of what is listed above about how deficiencies affect you
  • Is nearly miraculous for the depth and scope of its application
  • Saves billions of dollars as well as millions of lives

How will I treat my own low magnesium??

After confirming my situation via the RBC Magnesium lab test,  I know I can’t improve it with oral supplements. The amount I would need simply causes diarrhea.

Instead, I am following the information I’ve read in this book and heard about from others: the use of “magnesium oil”, which is magnesium chloride, and I’ll be rubbing it on my skin and following the information on how much. That is apparently the best way to give myself enough magnesium. I have personally ordered the Ancient Minerals brand–found it on the net. I may also use magnesium salts in water, soaking my feet in it. I plan on making sure my husband is tested, as I strongly suspect he is low as a diabetic with digestive issues.

(Update: I eventually stopped liking the stinging feeling that the magnesium oil did to my skin, and I switched to Natural Calm powder in my morning drink…then later to other forms of supplemental magnesium!)

Yes, I feel really good with my natural desiccated thyroid in the treatment of my hypothyroid. But I want to be healthy in all areas, and this is one that looks important to me. (Thanks Stephanie)

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An editorial response from Thyroid Patient Activist Janie Bowthorpe

I am pleased to note that Mary Shomon of about.com,  who in her blog post on Thursday, April 22, 2010, has not only softened her wording about self-treatment by hypothyroid patients, but has also written expressively concerning surrounding issues. These are also issues which I presented in two blog posts earlier this week concerning the immense problem with doctors as expressed by patients, and self-treatment.

Good for Mary!

As witnessed by Sheila Turner’s excellent editorial towards those who criticize self-treatment, as well as angst expressed by many patients toward those who criticize,  self-treatment is an important issue and can’t be diluted down as simply “self-destructive” in our current medical climate.

The following are differences in how this is viewed, though, with one common thought:

  • Is self-treatment one  of the “most controversial” issues with thyroid patients? The answer is “only to those who make it so”. Far more troubling to thyroid patients is a medical establishment which worships a medication which has left millions undertreated, and which makes a pituitary hormone lab called the TSH as if it’s from God Almighty. Equally as troubling to patients are doctors whom they report as condescending, close-minded, robotic, and/or ignorant about issues that keep thyroid patients sick–low ferritin, adrenal fatigue, and more. Self-treatment is only the symptom of a much larger, more controversial problem.
  • Does self-treatment have “obvious drawbacks” for thyroid patients who feel forced to do it? The answer is “yes”, but no different and probably far less than the “obvious drawbacks” patients face with clueless doctors.  The comments on my blog posts are bloated with patients who have been left sick, or made sicker, by one doctor, after another doctor, after one more.  It’s not a pretty picture.
  • Is there a “risk of undertreatment” for thyroid patients who self-treat? Yes, but probably far less  than the huge number of patients who report being left “undertreated” by doctors who are blind to the problems of T4, or doctors who remain clueless about the inadequacy of treating by the TSH.
  • Is the “greatest concern” about self-treatment the problem of being “over-medicated”? You betcha. But in the vast majority of these unfortunate cases with patients who choose to self-treat, the problem is undiagnosed or undertreated low cortisol and/or low ferritin, which results in thyroid hormones pooling in the blood and creating hyper-like symptoms.  This is a risk for self-treatment.
  • Have “dozens of thyroid patients” ended up in emergency rooms due to over-medication? “Dozens” is speculation.  It may be more realistic to state that “some”, yes, have stated this unfortunate outcome when they made the choice.  But research and comment all over the internet shows anyone that hundreds of thousands of all patients can end up in the emergency room due to poor doctoral decisions, or bad reactions to pharmaceutical medications which doctors love to prescribe. Ending up in an emergency room is not solely connected to self-treatment.
  • Do “patients face many major obstacles that prevent them from getting accurate and effective thyroid diagnosis and treatment?” Yes! That is where Mary is in agreement with me with her six excellent  points, including the tragic situation in the UK. And here are 10 reasons patients are frustrated, angry and sick.
  • Has one negative journal article about someone who self-treated “resulted in desiccated thyroid  getting greater scrutiny by the FDA?” The answer can easily be:  no worse than the body of patients who were made fearful that the FDA was banning desiccated thyroid, and who followed a strong campaign to contact the FDA about desiccated thyroid. I was also personally told by two pharmaceutical representatives that this action to contact the FDA made the pharms very uncomfortable and put too much attention on desiccated thyroid. Time will tell, but it’s not helpful to blame anything.
  • Does “actively promoting self-medication” with natural desiccated thyroid “work against thyroid patient interests”. The answer to this loaded question resides in who you ask. Whether “actively promoted” or simply “read about”, there seems to be a body of patients who report that finding out about desiccated thyroid, and feeling forced to self-treat because of not finding any doctor to help them, was one of the best decisions they ever made.

And to the last comment above, and since there have been “implications”, I want to underscore (and ad nauseum) that the patient-to-patient Stop the Thyroid Madness was not created as a self-treatment site, nor does it “actively promote” it.  STTM is a site with a goal to educate patients who can, in turn, take that information into their doctors offices and push for change. And it’s been working, one doctor at a time, as witnessed by patients who report those doctors on patient groups, and by emails I get from some of those doctors.

But it’s also clear that those who self-medicate may be using STTM, as well as many other websites and books out there by doctors, advocates and non-professionals alike, to help them. So at least there is education out there to help those who choose this, even if none was created for that purpose.

Summary

There are important differences in opinion, and much more to the story as I outlined above.

But the bottom line is this: for up to 60 years, hundreds of millions of thyroid patients around the world have been subjected to

  1. a medication called thyroxine which has left a heap of lingering hypothyroid symptoms,
  2. a new debilitating condition like adrenal fatigue,
  3. a lab test (TSH) which has delayed diagnosis for years or kept patients undertreated, and
  4. too many doctors who aren’t up to speed about most any of this, and have left patients frustrated, angry and still sick.

And all the above is a far worse scenario which only pushes some patients to self-treat as a side-effect. But if  you aren’t totally wiped out financially and emotionally in trying to find an informed doc, two suggestions: //www.stopthethyroidmadness.com/how-to-find-a-good-doc as well as posting your city/state in the subject line of patient groups here: //www.stopthethyroidmadness.com/talk-to-others

P.S. Please note that you will never see this blog, or this website, knowingly allow non-professional,  negative, nasty, false, abusive and/or profound slander about a colleague, as has been done elsewhere. 🙁


10 replies

10 reasons many thyroid patients are still frustrated, angry, and sick

 

Screen Shot 2015-06-12 at 1.21.49 PMUpdated in 2015:

It’s a continuing travesty, and you see it in patient groups.

i.e. many patients still find themselves sick and disabled, stumbling miserably from one uninformed doctor to another…in spite of the wonders of natural desiccated thyroid, the testimony of changed lives, the education of patients thanks to the STTM website & book, and a small but growing body of wise doctors who seem to be “getting it”,

So what’s the problem?? It lays with our doctors and the entire medical profession.

  1. Heavy-handed control over your medication:

    You go to pick up your prescription, and find your medication has been lowered by your doctor without your agreement or knowledge, as happened to Terry here (scroll down to find her post).

  2. Ignorance about adrenal insufficiency and treatment:

    You clearly have an adrenal problem, and one doctor dismisses its existence, another doctor poo-poos the saliva test, another doctor tells you cortisol supplementation is dangerous, another doctor thrusts all his herbal supplements at you, another doctor thinks that 5 or 10 mg cortisol is enough…and on and on and on.

  3. Thinking that falling in the range is optimal:

    If a lab result within those numerical boundaries, which are based on a set of people a laboratory picked to come up with the range, says I’m normal, WHY do I still have issues??

  4. Dismissing you:

    You are wise thanks to reading, researching and living in your own body, yet your doctor calls you a problematic patient on your charts, dismisses you, or gets angry.

  5. RT3 huh?

    You have strong suspicions that your Reverse T3 is too high thanks to low cortisol or low iron or Lyme or undiagnosed gluten issues, etc, yet this doctor refuses to test you, that doctor says an RT3 excess is rare.

  6. Look at me! Look at me!

    You make an appointment with that great doc who has a fabulous website/book and who shouts that he uses desiccated thyroid with a big smile…yet some or all of the above and below occurs with him/her or his “trained” associates.

  7. Continued worship of the TSH lab test:

    Too many doctors still think the TSH lab test is from God Almighty. So when you finally start to feel well on desiccated thyroid with a TSH at zero or below…WHAM…you must lower your meds because you are somehow “hyper” in spite of no symptoms to match whatsoever and improvement in our bone density and heart health.

  8. Pharmaceutical addicts:

    You mention your lingering hypothyroid symptoms, and you are bandaided with anti-depressants, anti-anxietal meds, statins, BP pills, pain tablets, acid reflux pills, calcium for your thinning bones…instead of understanding from your doctor that these are ALL side effects of poor thyroid treatment.

  9. The country you live in:

    The desperation of UK thyroid patients is deep thanks to a thyroid association and a College of Physicians which tightens the screws if a doctor dares to prescribe a life changing medication with T3 in it.  Or just as frustrating, having a government which forbids desiccated thyroid to arrive to you in the mail, or like Denmark, refuses to dispense it.

  10. Reformulations and Big Pharma apathy:

    In 2009, then Forest Labs turned one of the most popular and effective desiccated thyroid brand, Armour, into a pill with too much cellulose and too little sucrose, causing a massive return of symptoms in many.  RLC also reformulated their Naturethroid to some degree, and though some patients still do well on it, others did not anymore. Erfa made some kind of change in 2014 which they denied, yet certain patients all over the world reported new problems they had never had before. You are left wondering WHAT is going to happen next!!

And there are more reasons you might want to bring up in the Comments part of this post.

So you see, it’s no wonder so MANY patients feel forced to self-treat, yet they are also condemned for doing so.

All-in-all, we still have a way to go, baby, and especially with the doctors we try so hard to get help from…but can’t.

P.S. Are you brave? Walk into your doctor’s office with the STTM shirt. And here’s how to find a potentially better doc. 

 

28 replies

Having lower TSH levels when taking thyroxine not unsafe, says recent research

(Though this post was first written in 2010, it still works for today and is very pertinent!)

I am amazed.

The Society for Endocrinology in the UK reported that taking higher doses of thyroxine (which will lower the TSH lab result) may be safer than has been purported for decades.

And how low a TSH lab result did they find to be safe? As low as 0.04-0.4, the research found. It’s still safe enough to not cause an increased risk of  “heart disease, abnormal heartbeat patterns and bone fractures”, aka HYPERthyroid symptoms.

And those of us worldwide who know about the superiority of having T3 in our treatment (like a working natural desiccated thyroid, T4 with T3, or even just T3-only), can also use these research results in our fight to be on enough with TSH-obsessed doctors. They tend to view research as the end-all to the truth rather than solid clinical presentation, sadly.

Because when we have enough T3 to feel fabulous again with all symptoms removed (in the presence of good cortisol levels, adequate iron levels, B12 and digestive issues), our TSH lab result is always low, aka suppressed, and without one iota of hyper symptoms.

Patients have experientially known this truth about the lousy TSH lab test, without research, for years!

P.S. You WILL feel good most of the time with a midrange free T3, but it eventually backfires. We have to get that free T3 optimal. <—Read the latter.

But here’s what’s missing from their research:

  1. Those “safe, low levels” of an ink spot on a piece of paper do not mean the 16,426 patients they followed will be without numerous issues related to being on a storage hormone alone.  i.e. the body is not meant to live for conversion alone! A healthy thyroid will convert T4 to the active T3, but it will also provide direct T3 in addition to the T2, T1 and calcitonin…none of which a T4-only med provides directly.
  2. Additionally, the TSH lab test only reveals the action of a pituitary messenger hormone called the Thyroid Stimulating Hormone (TSH).  The lab test does NOT measure whether your tissue is receiving enough thyroid hormone, which is why so many patients on T4 end up with depression, rising cholesterol, high blood pressure, low B12, low iron, and many symptoms, as well as adrenal fatigue thanks to the inadequate treatment of T4.
  3. Raising T4 often encourages an excess production of Reverse T3 over time, which will block cell receptors and increase the very symptoms the researcher state is avoided, as well as far more hypothyroid symptoms.

On the positive side

This is just one more research study that ends up being on our side!  i.e. it fits our experiences. I have also included mention of this study on the following page on STTM, where I keep a ongoing list of research which supports what patients already know by their experience and clinical presentation:  www.stopthethyroidmadness.com/medical-research/

35 replies