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Walter Reed Medical Center proclaims desiccated thyroid SAFE…and there’s more to the story!

CLAPPING HANDSPatients have known by their experiences the past 110 years that natural desiccated thyroid (NDT) was safe and effective.

Yet it took a recent study at Walter Reed Military Medical Center, and lead by the U.S. National Institutes of Health, to proclaim what patients already knew: Desiccated thyroid extract a safe alternative to levothyroxine in hypothyroidism, as reported on Endocrine Today. Good for Walter Reed Military Medical Center and Thanh D. Hoang, DO, the staff endocrinologist who reported it:

“At the end of the 16-week study, 34 patients (48.6%) preferred DTE therapy, whereas 13 (18.6%) preferred levothyroxine; 23 (32.9%) did not specify a preference, he said. Further analysis confirmed those who preferred DTE lost even more weight over a 4-month period.”

In other words, those doctors throughout the years…and especially negatively-biased Endocrinologists…who have outright proclaimed that NDT was….

  • ineffective
  • dangerous
  • inconsistent
  • unnecessary
  • “fill-in-the-blank”

…might want to eat a bit of the dirt from that potted plant in their office’s waiting room.

And what’s the “more to the story”??

In all probability, there were several patients who had either low iron or a cortisol problem—a common problem for many hypothyroid patients who’ve remained undiagnosed with their hypothyroidism. And with either or both, patients don’t do as well on NDT until they optimize either. And once they do, patients have soared on NDT, as reported for more than ten years!

Also, the TSH lab test was used in this study, and if patients are kept in the TSH “normal” range, they don’t do as well ! Dosing NDT should have NOTHING to do with a pituitary hormone lab result, we have learned over and over.

Bottom line: we might have seen that 48% much higher if the above had been recognized. But frankly, the results of this study are still POSITIVE and underscore what patients have already known and experienced for a long, long time!! Hooray!!

DO YOU HAVE SPANISH-SPEAKING FACEBOOK FRIENDS?

WIth 20130611_191811the Spanish version of the Stop the Thyroid Madness book being out, I could use help in reaching folks who really don’t understand English well-enough to know why they are having problems with their thyroid treatment.

Please consider posting the following on your Facebook page to help reach your spanish-speaking friends from the misery of being undiagnosed or being on T4-only meds like Synthroid:

Pre-ordenar su copia de la versión española del libro DETENGAN LA LOCURA TIROIDEA: Una Revolución de Pacientes en Contra de Décadas de Mala Calidad !! http://www.stopthethyroidmadness.com/spanish/

EVEN WITH DAILY SUPPLEMENTATION, MY OWN VITAMIN D LEVEL FELL

I found myself with a Vit. D level of 45 two weeks ago. That was a shock considering I have been supplementing with 5000 IU’s almost daily and it was, in fact, lower that last time I checked. Sure, there have been intermittent periods where I would run out of my supplement, or forgot it on a vacation. But this was a drastic drop…considering. And my progressive doc wondered out loud if SUNSHINEsomething is going on out there, as she’s seen this with several of her patients.

Granted, we know that one culprit which is huge for thyroid patients is low stomach acid. But are there other causes? Possibly.

In 2011, the National Center for Health Data reported on 9 reasons your D levels can fall. They include living in higher latitudes, pollution, having darker skin, obesity, and getting older. Two other important reasons include gut problems or kidney/liver issues. i.e. if your gut is compromised due to low stomach acid, Celiac, or any other digestive/absorption issues, you will probably need to keep a close watch on your levels and supplementation. And a stressed liver is not helping you either. That’s where doctors will test your ALT and AST to gauge the stress level of your liver.

For me, I’m back on 10,000 IU’s daily.

WANT TO SEE MORE MEDICAL STUDIES WHICH SUPPORT WHAT WE ALREADY KNOW? 

STTM has a page showing several medical research studies which you might enjoy, and can use with your narrow-minded, research-obsessed doctor.

**Have you Liked the STTM Facebook page? You’ll get daily tips and information!

 

 

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Oprah leaves her show behind in 2011, and also leaves millions of thyroid patients in the dust

opraharmsupThe news this morning about Oprah made me pause.

Yes, it’s being announced today that there will be no more Oprah Winfrey Show on CBS after Fall of next year.  She’s saying goodbye. And the rumor is that she will move her talk show to The Oprah Winfrey Network, which replaces the Discovery Health Channel. We’ll see when she formally announces it today on her show.

But the change sure does shine a bright spotlight on a colossal and complete failure by Oprah and The Oprah Winfrey Show for hundreds of millions of thyroid patients. Though she had her own bout with thyroid disease (and may still be dealing with it when you consider her weight issues), we all winced a year ago when she stated that a month long Hawaiian vacation and eating fresh foods with soy milk (a goitrogen) were a great way to treat her thyroid condition. Yikes.   We equally squirmed in our seats when Dr. Christiane Northrup made the comment that our thyroid problems were due to an “energy blockage in the throat region, the result of a lifetime of ‘swallowing’ words one is aching to say.” Double yikes.

And since then, we have watched nothing, zilch, zero from Oprah and The Opray Winfrey Show about a horrendous 55-year medical scandal of thyroid treatment that has negatively affected the lives of hundreds of millions of thyroid patients worldwide. T4-only meds like Synthroid, the darling medication of the medical community for hypothyroidism treatment, has left hundreds of millions sick.  The TSH lab test has equally sent us to hell.  Because we have been forced to live with continuing symptoms of hypothyroidism, we’ve endured much more testing and have been put on many other medications to bandaid our continuing symptoms. And a majority of us have had to deal with the additional burden of adrenal fatigue thanks to all the above.

It’s been hell, Oprah. But you never listened.  So for me personally, I could care less what you do now. You’ve let millions of us down.

********************************

On a far better note:  Last night’s Thyroid Patient Community Call on Talkshoe was excellent. From thyroid/adrenal patient Valerie Taylor, who is absolutely one of the most knowledgeable patients in the world about adrenals and RT3, we gained good information how it raises its ugly head when you have high or low cortisol, low B12, low ferritin and other untreated issues, and how to treat it. You can go back to Talkshoe and listen to the broadcast, which was Episode 7.  See my blog post right below this. As far as future Talkshoe Community Calls: they will always be announced here first.

Below that, you’ll read how cellulose as a filler just may be a huge problem in natural desiccated thyroid meds. But we are also discovering that a good desiccated thyroid like Naturethroid, even with its cellulose, can seem even worse if we have undiscovered and untreated issues like low B12, low Vit. A, low ferritin, low Vit. D and other conditions common with hypothyroidism.  Make sure you have tested for these.

*HO HO HO! Have a STTM book sent to someone  you care about as a CHRISTMAS or HOLIDAY present. All the work is done for you!

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Why the party is over with Forest Pharmaceuticals, the makers of Armour

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Janie wrote the following in 2009 about Armour, and wouldn’t you know, 2015 sees another problem with Armour!

In 2002, when I first got on natural desiccated thyroid and it absolutely changed my life, it happened to be the brand name called Armour by Forest Pharmaceuticals.

And I swooned.

You could do it sublingually (even if it wasn’t made that way), and I praised Armour for that. So did other patients after we spread the word on patient groups, on the STTM website and in the Stop the Thyroid Madness book.

My fondness for Armour did not take away my praises for other prescription brands, though, including Naturethroid or Westhroid by RLC Labs.  I simply made a doe-eyed commitment to Armour for my personal treatment because you could do it sublingually. I have also used the name “Armour” interchangeably to represent all good desiccated thyroid products.

But because of a succession of three events, I think it’s time to give back my going-steady ring.

The first blow to my romance with Armour centered around the extreme tight-lipped secrecy from Forest when the reformulation of Armour began.

We can surmise the trouble begin in 2007 when patients were finding Armour in the larger sizes to be suddenly ineffective.  For the entire year of 2008, supplies were extremely limited and only the one grain size or lower could be found, if at all.  Patients were worried and unhappy.  I even supported Forest in my blog posts, assuring patients that everything would be fine.  But Forest said practically nothing. Why was and is Forest mum about why this was happening ?

The second blow to our courtship was the change to the “reformulated” Armour

Suddenly, patients find that doing Armour sublingually was a thing of the past. Now all we get is a never-ending chalky pasty residue under our tongues.  Additionally, many patients have been reporting that the amount of Armour that once removed all symptoms, was now bringing them back.  Huh?? In spite of an apparent drawback in some batches in 2007, why would Forest take an effective product and change it?

And the third and final straw to my affair of the heart?

I made a phone call to Forest using the same 800 number you all can use. That was Tuesday, May 5th. My intent was to ask about the word anhydrous which is now after the ingredient dextrose in the Armour ingredients listing. (It means that all moisture has been withdrawn, but I wanted to confirm the details for the brands page.) 

When I reached the representative for Forest, and after she asked my name and I gave it (oops),  the tune of the conversation changed.  She said she could not answer my question since I own a public website, and would have to inform the “Media group” from Forest, and they would call me back. When I asked when, the answer was a vague as Synthroid is in treating hypothyroidism i.e. she didn’t know. I even called back the next day to get the same dribble.   Why have representatives on the Forest hotline been instructed not to answer a simple question from someone like myself,  and I still have not received a phone call from Forest?

Sob.

Yup, breaking up is hard to do, but a gal can only take so much strange betrayal, tight-lipped silence…and ignoring a simple question from someone who has done a LOT to put money in their pockets out of extreme gratitude. Thank goodness there are other fish in the sea.

JanieSignature SEIZE THE WISDOM
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Thank you, Jeffrey Dach, MD

img_0276 When I work up this morning and later got on my computer, I read an email which informed me that Dr.  Jeffrey Dach had reviewed the Stop the Thyroid Madness book in a surprise article which came out today: www.opednews.com/articles/A-Review-of-Stop-the-Thyro-by-Jeffrey-Dach-090218-801.html

Yes, I write on the same site, yet had no idea he was going to do this…

You can also see my response to his review, on his blog, here: http://jeffreydach.com/2009/02/06/stop-the-thyroid-madness-by-jamie-bowthorpe.aspx#Comment

Humble thanks, Dr. Dach.  With the shared experiences of thousands of hypothyroid patients around the world, I climbed a steep mountain to get that book out–a labor of love and the firm commitment to educate patients because of a medical community which has been keeping us sick.  Stop the Thyroid Madness!

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A real life horror movie: suckered by Big Pharma marketing. Part 2

(Want to be notified of my blog posts? Curious what’s on my mind? Use Notifixious to be informed. Look on the bottom left of the links where you can sign up. )

Recently, after we watched a semi-scary movie about being suckered, a friend brought up my blog post of last July where I described a terrifyingly-real horror movie.

The plot: stunningly convince hundreds of millions of individuals worldwide that what is obvious, isn’t. i.e. it’s all in your head, you are adequately treated on Synthroid, Levoxyl, Eltroxin, Norton, et al,  and not only that, we’ll bandaid your continuing problems with more medications.

A second plot: also completely hoodwink those with top notch higher medical educations and experience by churning out the the exact same poppycock, and reward their stupidity with gifts.

The central villian: Big Pharma, followed by the doctors who bought the lie

Exactly a year ago this month, Science Daily came out with an article, citing two York University researchers who estimated that the U.S. pharmaceutical industry spends almost twice as much on promotion as it does on research and development, contrary to the industry’s claim. In other words, the researchers estimated that $57.5 billion in US dollars was spent on pharmaceutical promotion in 2004–the year they were studying. Yes, I said BILLION.

Breaking that down, Big Pharma spent approximately $61,000 per physician in promotion of their products.  And they concluded that both figures were UNDERestimates.  In other words, they concluded that the US pharmaceutical industry is marketing-driven rather than “life-saving”.

And adding fuel to the fire: most doctors believe every thrust of that marketing. I recently participated in comments with other wonderful patients in response to a DO/Endocrinologist, Dr. Thomas Repas, who has clearly bought the Big Pharma marketing when it comes to levothyroxine. You can read his posts and our comments here, here, and here.   Dr. Repas is exactly the kind of doctor who has  starred in our horror movie, and the kind of doctor that patients have lamented about for years.  Read the  Give Me a Break list of comments made by doctors, as well as further comments on the January 1st blog.

But Dr. Repas is in good company. Doctors have believed the Big Pharma lie about T4-only medications, and against desiccated thyroid like Armour, Naturethroid, etc. for 50 years.  In the patient-to-patient  Stop the Thyroid Madness book, you can read about the first tableting of Synthroid in 1955 and the strategic and successful promotion of T4-only, in spite of the fact that T4 was known to be unstable for decades.

And today, more than 50 years later, very few of us have been untouched by the Big Pharma push for levothyroxine T4-only treatment.  My own mother was suckered, and I was suckered.  And until patients started to make a huge push for desiccated thyroid treatment the last few years, nearly every single doctor around the world had been suckered.

We still have a way to go. But we’ll get there, bit by bit.

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