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Is grandpa sleepy? The innocent victims of the TSH lab.

lynn-doralynn-donna1 Most of us are in our prime when our health is slaughtered thanks to the lousy TSH lab result–a result which can be normal for years before it rises high enough to reveal our hypothyroidism, or a range which keeps us with lingering hypo symptoms.

But the elderly are also wide open targets of the scandal of  the use of the TSH test to diagnose hypothyroidism.

My father-in-law was stout, tall and healthy as an ox his entire life.  For the first eighty-eight years of his life, life was active and grand. Oh did I love him.

Yet as he was nearing ninety, fate became fickle. He became like a Rip Van Winkle,  sleeping more than being awake the final three years of his life.  He slept in the mornings, he slept after lunch, he slept before dinner, and he went to bed early.  And he seemed depressed.

Family concern (mine) prompted his doctor to test his TSH,  widely used by clueless doctors to ascertain thyroid function. The family doc proclaimed “Normal”

Sad. Because I had to watch him waste away in his fatigue until he died.

Hypothyroidism increases with age,  and many of our elderly fall victim to it. Using most any search engine on the net, you’ll find numerous articles on thyroid and the aged. But I suspect it’s an even greater problem that most any article can relay, since most of them are talking about the TSH and thyroxine. So the elderly, just like us,  suffer due to the infinitely lousy TSH lab, just like my dear father-in-law.

Read my latest article on OpEdNews titled “TSH: Thyroid Stimulating Hooey and the Loss of Wisdom” (Yup, the first part is the same title of Chapter 4 in the STTM book) : http://www.opednews.com/articles/TSH-Thyroid-Stimulating-H-by-Janie-Bowthorpe-090205-60.html

Have you noticed suspicious hypothyroid symptoms in your grandma or grandpa, or your own elderly patients? Tell your story by commenting on this blog post.

Ten reasons you may still feel bad: health is like a chocolate cake

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(This post has been updated to the present date and time! Enjoy!)

I frequently bake chocolate cake for birthdays in my family. Of course, part of it is so I can lick the beaters and bowl. **blush** But in my family, we are chocolate lovers. So any cake I bake is THE BEST cake in world.

Why? Because of the combination and/or amounts of several important ingredients that make any cake “great”… by anyone. Leaving out any of those specific ingredients, or putting in too little or too much, could result in a cake less than great.

And your health and feel-goods as a thyroid patient are like a good cake: the combination of ingredients and amounts that you have to get right.

Below are ten healthy “ingredients” to investigate to make sure the “chocolate cake of your life” is great!

1) INGREDIENT: The right amount of thyroid hormone medication

One of the most common mistakes made by patients and their doctors is simply not raising high enough to find the right amount. I have a friend who was stuck on 3 grains of Natural Desiccated Thyroid out of habit. Now 3 grains might be right for some, but it wasn’t for her–she continued to have hypothyroid symptoms out of habit. I finally convinced her to talk to her doctor. Labs showed her free T3 was just a few points over mid-range, and having a free T3 towards the top seems to work better for most. That will also push the TSH very low…and without a problem. So she did raise, and it finally did the trick. She now had the perfect chocolate cake of health!

2) INGREDIENT: Optimal B12

Sammy felt like she was doing great on her thyroid meds, but something was off. She had occasionally weakness, a tingling in her fingers, fatigue, and sometimes walking problems. Turns out her B12 levels were not optimal, which can be common for those undiagnosed hypothyroid or on T4-only. She got a B12 test, learned where patients are optimal, and corrected it.

3) INGREDIENT: Optimal iron

Did you know that like most nutrients, being “in range” has nothing to do with anything?? It’s “where” you fall that counts. And thyroid patients who’ve been undiagnosed, undertreated due to being held hostage to the TSH, or treated with T4-only, tend to acquire inadequate levels of iron. Symptoms can include fatigue, depression, weakness, achiness, breathlessness or others.  Learn all about iron and where iron is optimal.

4) INGREDIENT:  The right amount of stomach acid via ACV or lemon juice

Hypothyroid patients can have low hydrochloric (HCL) stomach acid levels. That not only contributes to acid reflux (yes, reflux can be because of LOW iron), it means you don’t absorb nutrients well (including low B12 and iron mentioned above). As a result, it’s crucial to give that acid back to yourself.  A tablespoon of Apple Cider Vinegar or lemon juice mixed in water and taken twice day helps many. Or try taking Betaine, which is HCL in pill form, or any other quality HCL or digestive product.

5) INGREDIENT: Optimal levels of B-vitamins

Did you know that when you become healthier due to the right thyroid treatment, your demand for B-vitamins can increase? Yessiree. B-vitamins along with CoQ10, help drive the production of your internal cellular energy. Though a variety of foods give B-vitamins, patients will often supplement with a good whole food B-vitamin or one brand or kind of their choice.

6) INGREDIENT: Avoidance of gluten

Now, patient experiences have revealed that not everyone needs to remove gluten from their diet. But a very high percentage of Hashimoto’s patients (the autoimmune version of thyroid disease) find they do a great deal better if they do. Why? Gluten can raise one’s antibodies, as well as damage your stomach lining and intestines, thus reducing absorption of many key nutrients. If you have Celiac disease, removal of gluten is also important.

7) INGREDIENT: Sex Hormone balance

When your thyroid or adrenals get out of balance, your sex hormones can follow suit, from estrogen dominance to low testosterone.  When estrogen dominance occurs, you can feel depression, fatigue, and sore breasts.  Low testosterone can equal lower energy and mood. That’s why many thyroid patients also treat their hormonal levels, if needed, to feel better.

8) INGREDIENT: Iodine plus other minerals

Turns out that not only are your thyroid hormones in need of iodine to even exist, patients have reported iodine supplementation to help them feel better. Women like using it to rid themselves of fibrocystic breast disease. We do recommend doing on Iodine Loading Test to first see if you need it, though. Most do, but some may not. Other minerals are important too, like magnesium, potassium, sodium and more.

9) INGREDIENT: A good doctor

Yes, we certainly know how hard it can be to find an informed and open-minded doctor. And because of that, some patients are forced to self-treat, and we don’t begrudge that choice at all. If you do want to find a better doctor, here’s a page to help you do so. It may not always be easy where you live, but can be possible.

10) INGREDIENT: Knowledge

This is where Stop the Thyroid Madness (STTM) comes into play. STTM is the flagship of patient experiences and wisdom, ready for you to absorb all its excellent information and regain your health and well-being again, besides help teach your doctor. There are now TWO STTM books to learn from, too.

P.S. My real chocolate cake: I think cake mixes are just as good as homemade. I use Devils Food Cake a lot, but have used all the varieties for fun. But the icing is ALWAYS homemade: cream one stick butter, add about 4 cups powdered sugar, 1/2 cup cocoa, then cream or half-n-half.  Shake in a liberal amount of sea salt. Add two tsp. vanilla.  Beat, beat.  Taste. Modify as needed. YUM. There are other great icings you can make! 

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Thyroid Tidbit: Oprah was on Methimazole, a thyroid blocker

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(This page was updated in 2015. Enjoy!)

Oprah admitted in January, 2009, on her Best Life Webcase, that she was on Methimazole (Tapazole) when treating her thyroid problem.

Methimazole is an anti-thyroid drug, often used to treat hyperthyroidism, aka Graves disease, or a toxic multinodular goiter. It’s known to inhibit the enzyme thyroperoxidase. In healthy thyroid functioning, this enzyme is made in your thyroid and is an important component in the production of thyroid hormones. But with hyperactivity of the thyroid, it can become a problem.

Oprah may have needed the treatment for Hashimoto’s Toxicosis–an autoimmune combination of Hashimotos and Graves.  Treatment with Tapazole can be common in treating Hashimoto’s Toxicosis. Because of that treatment, she may have then fallen into hypothyroidism, since there was mention of a 20 lb weight gain, exhaustion and depression—common symptoms of hypothyroidism.

We don’t know much else, but it’s too bad this issue by such a well known celebrity didn’t move her into more discussion about better thyroid treatment with Natural Desiccated Thyroid or T3 in one’s treatment, especially when so many lives have suffered due to the medical practitioner love-affair with Synthroid and other T4-only medications. Many of us were highly disappointed.

Anybody had Hashi’s Toxicosis and treated with Tapazole? What’s your experience with Methimazole (Tapazole)?

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Thyroid Tidbit: You ain’t gonna get smarter on Synthroid!

Today, I came across a short summary on recent study findings presented at the 79th Annual Meeting of the American Thyroid Association in November, 2008.

It states that in a study with thyroid patients 65 and older, there was no improvement in cognitive function when a patient is optimally treated on thyroxine, aka Synthroid, Levoxyl, Levothyroxine, Eltroxin, et al.

Gee golly.  What breaking and cutting-edge news!

NOT.

Too bad it takes the results of a research study to reveal what has been blatantly obvious in patients of all ages for 50 years: thyroxine overall does not work and leaves patients with a variety of NON-improvements, as well as worsening symptoms of lingering hypothyroidism as they age.  Duhhhh.


Thyroid Tidbit: Thyroid Disease in India

STTM thyroid disease in indiaThough this was originally written in 2008, it has been updated to the current date. Enjoy!

In the magazine India Today, it was estimated that there were at least forty million individuals with thyroid disease, according to Dr. Ganapathi Bantwal, faculty member of the Indian Thyroid Society (ITS) and Professor and Head of Department of Endocrinology, St John’s Medical College, Bangalore.

He stated that most with thyroid disease are women, and most hypothyroidism is occurring after the birth of a baby, called postpartum hypothyroidism.

Actually, that most with thyroid disease are women is actually true all over the world. And hypothyroidism can occur at other times in one’s life, not just after the birth of a baby.

The Indian Thyroid Society wants to observe January as Think Thyroid Month with experts calling thyroid related disorders as the next diabetes to affect the nearly forty million Indians.

India in the News

This article in 2013 from the Daily Mail. states that one in ten people in India suffers from hypothyroidism. Considering the amount of Indian citizens, that’s a hefty amount.

Similar to the above article, DNA India underscores that

“undetected cases were significantly higher in Delhi (3.97 %) as compared to other major cities like Mumbai (2.86 %) and Chennai (2.09 %). About 9.61 % of the study population in Delhi had mild thyroid failure, which may lead to hypothyroidism in future.”

In 2015, Times of India reported the same number suffering from hypothyroidism.

How is hypothyroidism treated in India?

Sadly, it’s treated in the same poor way as everywhere else: with T4-only and the use of the TSH lab test–both which patients report keeps them sick. An example of the emphasis of both is here from the Indian Journal of Endocrinology and Metabolism. But here or there, one can find doctors who prescribe NDT (natural desiccated thyroid).

Does India have a thyroid organization?

One is called the Indian Thyroid Society, which is represented by the website for their peer-reviewed online journal called Thyroid Research and Practice, here. The journal covers “technical and clinical studies related to health, ethical and social issues in field of Thyroidology”. Articles with clinical interest and implications are given preference. The Editor in Chief is Dr. Unnikrishnan AG, an Endocrinologist and CEO at Chellaram Diabetes Institute Pune, a not-for-profit Institute, where he heads clinical care, research, education and oversees a philanthropic rural diabetes care program.

i.e. it’s not for patients as much as it is for clinicians.