May 2009 - Stop The Thyroid Madness Skip to content

Thyroid Tidbit: about shortages of desiccated thyroid

The below link is about desiccated thyroid shortages, and I find it interesting that both Qualitest and Time Cap generics are now discontinued…..

http://www.ashp.org/Import/PRACTICEANDPOLICY/PracticeResourceCenters/DrugShortages/GettingStarted/CurrentShortages/Bulletin.aspx?id=459

Thanks to thyroid patient Kathryn for alerting me to this by posting on another post below. And by the way, I wouldn’t rush to the conclusion that any of this means desiccated thyroid is slowly being phased out.   Shortages are probably more a reflection of the demand for desiccated thyroid by an ever-growing population finding out about it and being prescribed it…thanks to a resounding patient movement where patients found out how miserable they’ve really been on T4.  And the generics weren’t very popular in the first place due to being less strong.

*See today’s first post below.

UK celebrities with thyroid cancer or disease

clareblading1Thyroid problems have become rampant.

And it’s not just in the US with individuals like Oprah, fitness guru Jillian Michaels, Sex and the City’s Kim Cattrall, George and Barbara Bush, Kelly Osbourne and others.  A recent article in the Daily Mail-UK highlights the saga of  Clare Balding, the BBC TV sports presenter in the UK whose thyroid was gladly removed due to a malignant tumor.

Even the gal who wrote the well-written article about Clare, Pippa Jolly, reports having gone through the same removal 13 years previous due to an extreme case of Hashimotos and a nodule pressing against her trachea.

But within the informative and hopeful tone of the article are a few Rodney Dangerfield thuds of the continuing SCANDAL and idiocy of a particular thyroid treatment which even the most innocent of article writers can be fooled.

Thud #1: The very first sentence of the article says: Some good news for Clare Balding, the BBC TV sports presenter, is that her recent operation to remove her cancerous thyroid gland – a thyroidectomy – should be the end of the matter.

End of the matter? Only if she had been put on desiccated thyroid like Naturethroid, et al. Because it appears she’s on the delightfully enchanting synthetic “thyroxine“, the darling of most UK doctors and which serves to leave almost everyone with their own brand and intensity of continuing hypothyroid symptoms.  You can listen to my audio here about T4.

Thud #2: Diagnostic rates are on the increase, says Professor Monson, as thyroid tests are now done routinely at GP surgeries. ‘As a result there is a higher detection rate and the disease can be tackled earlier and if necessary followed up by surgery.

Right. Those increasing diagnostic rates, some which are based on the lousy TSH lab test, are overridingly catching someone’s hypothyroid state years after it started, which leaves a certain percentage with the misery of adrenal insufficiency and host of other problems from being undiagnosed so long.  And if one is treated after surgery based on the same holy TSH, you will only continue to have your brand of continuing symptoms. You can listen to my audio on the TSH here.

Thud #3: If the thyroid is removed or not functioning properly, thyroxine will need to be taken in drug form for life.

You and millions of others have been hoodwinked into thinking it’s thyroxine you will need the rest of your life, aka Eltroxine, Synthroid, or levothyroxine,  et al.  But those T4 meds force you to depend on conversion alone, a process not well done in many, and you miss out on what natural desiccated thyroid would be giving you as a much wiser treatment–exactly what your own thyroid gives: direct T4, T3, T2, T1 and calcitonin. Or even at the VERY least, giving yourself synthetic T4 with synthetic T3.

Thud #4: Now I have to have my hormone levels checked every three months and make sure I take my medication, but otherwise I feel fine.

I completely believe Pippa when she says she feels fine. But I want to warn her:  some CAN feel fine on a T4-only medication, but eventually and especially as she ages,  she’s going to have to watch out for those pesky little demons of being on an inferior, inadequate medication, which can include rising cholesterol, chronic low-grade depression, rising high blood pressure, or a host of other symptoms which are individual to each person on thyroxine.

Here’s hoping Clare and Pippa join the growing body of patients all over the world whose lives are being changed thanks to natural desiccated thyroid.

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New addition to STTM: audio shorts

Because you requested it….now you can listen to me explaining certain subjects here: //www.stopthethyroidmadness.com/audio-shorts/ For slower connections, it may take up to 3 minutes to download each short.  For faster connections, it’s a breeze.

Know someone who you think has hypothyroidism but they have a “normal” diagnosis? Send them to the above page.

Know someone who’s on T4 who might listen to a new idea? Send them to the above link.

Know someone who has had problems with desiccated thyroid and threw in the towel? Send them to the above link.

*If you’re afraid of the newly formulated Armour, check out the post below about Naturethroid.  Below that, read about the Royal College of Physicians in the UK, desiccated thyroid in Denmark, Germany and Italy, and why you may need Potassium.

*Want to be informed of my blog posts? Curious what’s on my mind? Use the Notifications on the bottom left of the links.

*Have you read the STTM book?? It can be much easier to refer to than this website!

Are you switching to Nature-throid? Here’s 10 good things to know!

Screen Shot 2015-09-27 at 1.33.08 PM(This page has been updated to the current day and time. Enjoy!)

In 2009, there were many folks reporting problems with the newly-formulated Armour (and that has been true for 2015, sadly), just as there was a growing body of individuals stating they are switching to Naturethroid by RLC Labs (formerly Western Research), another prescription brand of desiccated thyroid which also makes WP Thyroid.  

Today, there are even more quality brands to consider. And when a brand like Armour disappoints, many are also switching to NP Thyroid by Acella.

But if you are considering Naturethroid, here is info to carry with you if you switch:

  1. Naturethroid has a coating on the outside, and some patients state they bite on the pill to remove the coating, and still try to do it sublingually. No sugar, but some are determined.
  2. One grain of Naturethroid is 65 mg rather than the 60 mg that Armour users have been used to. Two grains are 130 mgs, etc. (One grain is actually 64.8 but it’s easier to round it up). Strengths are 1/4, 1/2, one grain, two grains, three grains.
  3. The makers of Naturethroid started making 1 1/2 grain tablets by 2010.
  4. Ingredients are
    • Porcine Thyroid Powder, U.S. Pharmacopeia
    • Microcrystalline Cellulose
    • Dicalcium Phosphate
    • Sodium Starch Glycolate
    • Magnesium Stearate
    • Hydroxypropyl Methylcellulose
    • Stearic Acid
    • Carnauba Wax
    • Polyethylene Glycol
  5. Naturethroid uses the same USP thyroid powder as any good desiccated thyroid product—it “adheres to full pharmaceutical purity and standardization on the consistency of the hormones along with full pre-and-post testing procedures associated with quality prescription products.”
  6. RLC Labs is a small and friendly pharmaceutical company.
  7. Twitter has a Nature Throid website.
  8. RLC labs also used to distribute Westhroid more than it does today (simlar), but that has largely been replaced by WP Thyroid–an NDT with very few fillers.
  9. When switching, you will have to figure out if you need to be on a similar amount as before, or a different amount, according to symptoms.
  10. And finally, it’s been around since the 1930’s–another tried and true desiccated thyroid product!

** Need the best groups on the internet to talk about your thyroid–totally based on wise patient experiences and wisdom?? Go here. 

** Have you joined (liked) the STTM Facebook group? You’ll get solid and daily tips, information and inspiration from the Flagship of patient experiences and wisdom. 

** Want to be informed of my blog posts? Curious what’s on my mind? Sign up for Notifications at the bottom of this page. 

UK’s Royal College of Physicians continues to be deaf, blind and royally dumb.

throwingup1

Funny how things work. I had been wondering what the heck was going on with thyroid patients in the UK after the Royal College of Physicians (RCP) came out with their February 6th guideline stating that 1) thyroxine was the only medication needed for hypothyroidism, 2) “natural” medications were dangerous and 3) the only labs needed are the TSH and T4.

All the above goes totally against the life-changing experience of a growing body of patients.

Equally a part of this B-grade horror movie is the stand taken by the British Thyroid Association (BTA).  Read it. And UK-TPA thyroid patient advocate Sheila Turner began to go through her own hell when her Armour was taken away, which you can read about in the February 20th blog post here.

And suddenly, I get an email from Sheila, informing me that the RCP stand is as bad as it was three months ago for her and other thyroid patients.

Sheila states: This is absolutely unbelievable that out of the hundreds of references we sent to the Royal College of Physicians to show their guideline to be flawed, they have taken no account of one single one of them. They are publishing their previous guidance without one since change. The world has gone mad.

Dear Sheila, Further to my email of 6 April, the comments and materials received by the College have been reviewed. This position statement or guidance (not a guideline) was produced on behalf of the Royal College of Physicians, in particular its Patient and Carer Network and the Joint Specialty Committee for Endocrinology and Diabetes; the Association for Clinical Biochemistry; the Society for Endocrinology; the British Thyroid Association; the British Thyroid Foundation Patient Support Group and the British Society of Paediatric Endocrinology and Diabetes and is endorsed by The Royal College of General Practitioners. The President has asked me to let you know that this review has not resulted in any changes to that statement.  It should be noted that it is about the treatment of primary hypothyroidism and does not preclude other treatments for exceptional cases by specialist endocrinologists who can make clear to patients any associated risks. References supporting the statement are listed below. Yours sincerely, Catharine Perry Administrator -   Diagnosis and treatment of primary hypothyroidism. BMJ 2009;338:b725 -   Vaidya B, Pearce S. A Clinical Review of the management of hypothyroidism in adults. BMJ 2008;337:a801. This contains references for 35 articles and states that Armour thyroid is of no proved additional benefit to levothyroxine. – The Lancet Volume 363, Issue 9411, Pages 793 – 803, 6 March 2004.  This covers the history, epidemiology, pathophysiology, and clinical diagnosis and management of hypothyroidism and is written by Caroline GP Roberts and Paul Ladenson of Johns Hopkins University School of Medicine, Baltimore, USA.  This review, which references 164 clinical articles, states that the treatment of choice for hypothyroidism is levothyroxine sodium (thyroxine) and does not refer to Armour thyroid. -  Baloch Z, Carayon P, Conte-Devolx B, et al. Laboratory medicine practice guidelines. Laboratory support for the diagnosis and monitoring of thyroid disease.Thyroid 2003;13:3-126. -  Association of Clinical Biochemists BTA, British Thyroid Foundation. UK Guidelines for the use of thyroid function tests. http://acb.org.uk/docs/tftguidelinefinal.pdf -  Surks MI. Ortiz E, Daniels GH, et al. Subclinical thyroid disease: scientific review and guidelines for diagnosis and management. 2004;291:228-238.

And as your peruse the six references above which they use to defend their tunnel-visioned, moronic position, you realize that you, your words, and your positive-outcome experience on desiccated thyroid, as well as the use of far better labs, is about as important within the UK’s latest medical pronouncement as is dirt on the bottom of a rusted bucket in the middle of an empty field in nowhere. Yup.

Or as Harold Shipman stated about the RCP’s guidelines: What a brilliant wheeze.

******************************************

See below on the potential importance of potassium in your health and well-being. And on the May 7th post about the party being over with Forest Pharmaceuticals, comments continue to come in about experiences with the “new” Armour.