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Year: 2015

15 Things which Thyroid Patients should teach their Doctors

Screen Shot 2015-08-07 at 4.28.31 PMMany thyroid patients will tell you they have, or have had, doctors they love! I, Janie, have had many of them.

But it doesn’t take away from the fact that those in a medical profession have been sorely lacking for decades about correct knowledge on how to diagnose and treat hypothyroidism or Hashimotos, besides have inappropriate familiarity about all the issues related to being hypothyroid. Even their knowledge on how to correctly read labwork has been lazy.

Because of that poverty of correct knowledge, patients were forced to take the bull by the horns and figure things out for themselves! Stop the Thyroid Madness, the flagship of “patient experiences and wisdom”, represents all that wisdom!

Here are 15 things that any thyroid patient not only has to learn, but needs to teach any medical practitioner the best way they know how:

1) My fatigue and weight gain is not simply because I need to exercise more and eat less.

Granted, we know that exercise and how we eat is important! But being undiagnosed hypothyroid, or poorly treated due to Synthroid or any other T4-only medication, or being held to the TSH, keeps many of us with a low metabolism. The latter results in very easy weight gain, or the failure to do the kind of exercise which would help us!

2) Depression is strongly related to continued hypothyroidism!

We know there can be a variety of reasons for depression, but for most thyroid patients, our depression is a sure sign that we are either undiagnosed due to the lousy TSH lab test, or undertreated due to being on only one of five thyroid hormones like T4-only, or being held hostage to the TSH, a pituitary hormone.

3) The TSH lab test has been a failure for too many years.  

Yes, though a seriously low TSH can detect if we have hypopituitary, for most of us, we’ve had a “normal” TSH yet obvious hypothyroid symptoms. Additionally, when we are optimally treated on Natural Desiccated Thyroid, T4/T3 or T3-only, our TSH lab test is always below range without one hint of bone loss or heart problems. We want to go by the free T3 and free T4, plus symptom removal and a good heartrate and blood pressure instead. //www.stopthethyroidmadness.com/tsh-why-its-useless

4) To figure out if I have Hashimotos,  BOTH antibodies labs need to be tested, not just one. 

To detect if we have the autoimmune version of thyroid problems, patients saw right away that one antibody could be high, but the other one not.  So we need both the anti-peroxidase AND the anti-thyroglobulin lab tests. And by the way, many Hashi’s patients soar on Natural Desiccated Thyroid if they raise it correctly. See #5.

5) Natural Desiccated Thyroid (NDT) has been changing patient lives for years now, just as it did for decades before Synthroid hit the market. 

Though some patients do better on T4-only meds than others…at first..there is simply too many reported experiences by patients for 15+ years that it’s not the way to go. And those same reports show that being on the five hormones that NDT gives makes much more sense.  Even adding synthetic T3 to synthetic T4 has produced better results.

6) I can’t wait six weeks before having a raise!

Thyroid patients found out the hard way that if they stay on a starting dose of NDT (which is usually one grain) longer than a few weeks, the feedback loop causes hypothyroidism to come back with a vengeance in some way or another. So we raise every two weeks and start slowing those raises in the two grain area or close to three to start finding our optimal dose. //www.stopthethyroidmadness.com/natural-thyroid-101

7) My lab results are not about being in the “normal” range.

This was a huge discovery by informed thyroid patients as they kept observing each others lab results for years: it’s about “where” the lab result falls that tells the story…not just because it falls in a suspicious “normal” range based on the testing participants the lab facility chose. //www.stopthethyroidmadness.com/lab-values

8) If I react poorly to NDT, it’s not because NDT isn’t right for me. 

Patients who have had problems with NDT found out that there are five correctible reasons for most of them:  a) being kept on lower doses far too long b) not raising high enough because of being held to the TSH range c) having low iron d) having a cortisol problem 5) having Lyme. This page explains: //www.stopthethyroidmadness.com/ndt-doesnt-work-for-me

9) Yes, there really is such a thing as adrenal fatigue/adrenal insufficiency/hypocortisolism.

Easily more than 50% of thyroid patients end up with a cortisol problem, either due to being undiagnosed for years thanks to the use of the faulty TSH lab test, or being put on only one of five thyroid hormones–T4. And to learn more about it, one of your doctor’s own colleagues has written a brilliant chapter as to biologically why we get low cortisol, found in the Stop the Thyroid Madness II book, chapter 15. And this:  //www.stopthethyroidmadness.com/adrenal-info

10) Saliva testing for cortisol is far more accurate than blood testing

Saliva is said to be testing one’s cellular levels of cortisol, plus it does so at four key times during a 24-hour period, which is important to know. And patients found that the results (from reputable companies) fit their symptoms! Whereas blood cortisol testing is measuring both bound and unbound cortisol, and most of the time does NOT fit the symptoms, showing high cortisol when we are really low, or vice versa. //www.stopthethyroidmadness.com/adrenal-info

11) If some or most of my saliva cortisol results are low, there are safe and effective ways to treat it. 

The adrenal area is one which thyroid patients took great time and care to learn, based on what we read from experts, plus our repeated experiences and wisdom. This is where our doctor, need to be open-minded enough to learn from Stop the Thyroid Madness, both on the website and in the revised STTM book, chapters 5 and 6.

12) If I have acid reflux or stomach problems, it’s usually due to low stomach acid caused by our hypothyroid state, not the need for Prilosec (Omeprazole). And some of us need to be off gluten, especially if we have Hashimotos.

i.e. what we need is to restore a better level of acid in our stomachs, which our hypothyroid state lowers–the latter which causes problems in absorbing vitamins and minerals. That’s why we need to put lemon juice or apple cider vinegar in the liquids we use to swallow our meds and supplements. And a large body of us with Hashimotos need to be off gluten.

13) I’m not stupid just because I didn’t go to medical school, plus I live in my own body. So I need you to see us as a team. 

Because of what Stop the Thyroid Madness gives me, both the website and the books, it’s important to me that you see us as a team–BOTH my knowledge and your own.

14) No, thyroid cancer is not the easy cancer.

Thyroid cancer patients hate their cancer as much as anyone does…plus it’s worrisome, surgery nor RAI is not a picnic, and recurrence is on our minds. //www.stopthethyroidmadness.com/2015/01/31/thyroid-cancer-easy-cancer-thyroid-cancer-patients-appalled/

15) My thyroid labwork should be done before I take my thyroid meds for the day. 

Patients discovered that the T3 is NDT will peak about two hours after meds are taken, then a slow fall. If patients are on T3-only, it’s a 4-hour peak. We want to measure what still lingers in us, not the peak or rise.

What else do you think our doctors need to learn?

JanieSignature SEIZE THE WISDOM

* Join the STTM Facebook page for daily information, tips and inspiration!
* Get your STTM books here and become INFORMED: //www.laughinggrapepublishing.com You can also consider buying them for your favorite doctor (and perhaps get reimbursed when you check out of his or her office after a visit.)

43 replies

Medical Boards and the TSH: how they fail thyroid patients worldwide!

STTM Texas Medical Board“A learned fool is more a fool than an ignorant fool.”
                        ― Molière

 

In 2008, a news press appeared about the discipline of a very popular and well-liked doctor in Texas, USA who treated many hypothyroid patients.

And for what?

Under the column titled NONTHERAPEUTIC PRESCRIBING, it stated:  The action was based on Dr.________ prescribing Adipex, Adderal and Armour Thyroid to patients when such medications were not indicated.

Adipex and Adderal are both central nervous system stimulants, and we can’t comment one way or the other.

But the mention of Armour thyroid as “not indicated” was a sure sign that this medical board was using the ridiculous TSH lab test range to decide whether a thyroid medication was needed or not. We’ve already seen numerous and similar disciplinary actions brought upon well-liked and wise doctors like Dr. Peatfield and Dr. Skinner of the UK, Dr. Derry of Canada, and Dr. Springer in the US–all who dared to make obvious symptoms of one’s hypothyroid state more important than ink spots on a piece of paper. There have been many others.

Just to clarify: TSH stands for Thyroid Stimulating Hormone and is a messenger hormone released by your pituitary gland with the purpose of “knocking” on the door of your thyroid to tell it to produce thyroid hormones. So the implication is that if the TSH lab result falls in this so-called “normal range” (which in itself is a travesty), by golly everything must just be fine with your thyroid. You will read an interesting and explanatory chapter on the TSH in the revised STTM book as well as more information by Dr. Jeffrey Dach in the STTM II book.

But thyroid patients all over the world know first hand that the TSH lab result has been a complete failure. It can look “normal” even while we have clear symptoms of hypothyroidism. And it can take years and years before it rises high enough to show that something is quite wrong with the function of our thyroid.

A side note: the Association of American Physicians and Surgeons (AAPS) filed a lawsuit against the entire Texas Medical Board (TMB) and its officials in 2014. Though unrelated to thyroid treatment, they cited Manipulation of anonymous complaints, conflicts of interest, violation of due process, breach of privacy, and retaliation against those who speak out.

Kymm is a good example of the TSH fallacy in diagnosis

Take Kymm, a 45 year old woman. She had manifested hypothyroid symptoms for 15 years since the birth of her daughter. Yet during those entire 15 years, her TSH lab result had been completely “normal” in the upper 1’s and lower 2’s. Her hypothyroid state had never been “indicated” based on the typical and widespread gold standard of diagnosis used by medical professionals: the TSH.  As a result, she simply continued to suffer with easy weight gain, chronic depression, thinning hair, rising cholesterol, dry skin and an increase in stress on her adrenals. (And she did finally start on Natural Desiccated thyroid aka NDT, with adrenal treatment…and soared).

Kymm is not an oddity.  Thyroid patients on internet groups report going years with a normal TSH and no diagnosis, yet clear symptoms which are ignored by their TSH-obsessed doctors.  So their doctors may have avoided disciplinary action by going strictly by the TSH lab test, but did they truly practice the art and science of healing??

A doctor is disciplined for allowing a patient’s TSH to be suppressed

A horrendous disciplinary action happened to a California physician when it came to the thyroid treatment of one of his patients named as V.G who had had her thyroid removed. She had dizziness, dry skin and fatigue. He first put her on .125 levothyroxine, which only barely raised her T4 with a low T3. She continued to have the above symptoms, but also complained of nervousness, palpitations and weakness. He then moved her over to two grains of Armour, one brand of natural desiccated thyroid (NDT). The disciplinary action states:

Lab test results dated November 2, 2010, indicated that THS [sic} levels were suppressed, suggesting that V.G. was receiving too much thyroid hormone. However, at V.G.’s subsequent office visit on November 30, 2010, Respondant made no change to V.G’s thyroid medication. (#15)

The patient also had high cholesterol, plus symptoms of PCOS–both clear symptoms of continued hypothyroidism even though they claim she was receiving too much thyroid hormone! By point #17, after the patient had been raised to 3 grains, it reports a slight lowering of cholesterol and normal triglycerides, yet it was stated once again that she was on too much thyroid hormones due to a suppressed TSH. The bombshell comes in #19, it which states:

Respondent was grossly negligent in the care and treatment of V.G when he failed to recognize abnormal thyroid function tests and failed to properly adjust thyroid medications.

In other words, the California Medical Board was claiming that this doctor should have LOWERED the medication due to a suppressed TSH, in spite of the fact that she continued to have clear hypothyroid problems on the lower dose of 2 grains. Scores of thyroid patients who’ve had their thyroid meds lowered due to a suppressed TSH will tell you that their hypothyroid symptoms got worse, not better.

(If symptoms improve from lowering desiccated thyroid due to a suppressed TSH, that is more about the relief of hyper-like symptoms caused by low iron or low cortisol–either which NDT will reveal and aggravate until treated. See www.stopthethyroidmadness.com/ndt-doesnt-work-for-me  Also, there is a possibility that V.G.’s low T3 was due to a high Reverse T3, which will occur in the presence of low cortisol, low iron and/or inflammation.)

As far as a suppressed TSH, informed thyroid patients worldwide, who when optimally treated on NDT with the complete removal of hypothyroid symptoms (plus a healthy blood pressure and heart rate), find that it’s quite normal to have a suppressed TSH without one hint of symptoms of being on “too much thyroid hormone”!!!

Medical Boards can be a problem for thyroid patients and good doctors alike!

In the United States, there is a Federation of State Medical Boards with the stated purpose of “protecting the public from the unprofessional, improper and incompetent practice of medicine…”, yet the very boards which state they are protecting us from professional incompetence end up supporting incompetence via their flagrant ignorance about the TSH lab test and their dubious “discipline” of doctors who end up changing our lives and well-being!!

Or in the United Kingdom, we have the General Medical Council with the stated purpose of helping ” protect patients and improve medical education and practice across the UK”….yet they completely hounded Dr. Gordon Skinner who successfully treated thyroid patients, even though their TSH results erroneously implied that not a thing was wrong. Additionally, the GMC has brought at least 30 cases against Dr. Sarah Myhill, who also had the courage to treat her patients in spite of a so-called normal TSH.

Dr. Myhill so wisely stated: “Doctors who fail to toe the drug-industry-driven, conventional-medicine, symptom-suppressing line are singled out for special attention by the establishment”

Are Medical Boards useless?

Most informed thyroid patients would clarify that Medical Boards have good intentions. They can play a role in protecting us from true incompetence or negligence from those we put our trust in. They can serve a role in protecting us from sexual misconduct and the inability to practice safely due to substance abuse.

But when it comes to the highest and best treatment of our thyroid disease, medical boards DO THYROID PATIENTS NO FAVOR by disciplining doctors who….

  • have the wisdom and courage to look at the clinical presentation of clear symptoms rather than simply a “pituitary hormone” lab test with both its ridiculous normal range and its FAILURE to measure whether all organs and tissue are receiving enough thyroid hormones…
  • pay more attention to symptom relief on natural desiccated thyroid  (with good heartrate and blood pressure) rather than obsessing about one’s suppressed TSH lab test when thyroid patients are optimal.

As Albert Einstein so wisely stated, the measure of intelligence is the ability to change. Will Medical Boards grow up and change in their knowledge of thyroid treatment? No one more than maltreated thyroid patients worldwide can fervently hope so, as well as forward-thinking doctors who have been wrongly harassed by their medical boards in their treatment of hypothyroidism.

JanieSignature SEIZE THE WISDOM

 

*For more detailed information on the history of Medical Boards and problems, check out the book titled Medical Licensing and Discipline in America: A History of the Federation of Medical Boards. 

* Join the STTM Facebook page for tips, information and inspiration. 

* Do you have both the STTM books? They are extremely useful in making you an informed thyroid patient based on the experiences and wisdom of patients before you worldwide!

 

 

 

22 replies

10 ways you can live a better life as a Thyroid Patient

STTM 10 things(This post originally appeared in 2012, but has been updated for July 2015 with more information! It’s just a poignant today as it was then. Enjoy!)

In a post I did May 21st, 2012, I showed you two examples of very poignant emails I get weekly. And the second one revealed how hard it can be when you not only have very little money, plus an uninformed doctor who ends up keeping you sick. 

Yesterday, I received another email from a thyroid patient which simply blew me away, directed to the gal above. But it turns out her words are very appropriate for all of us. Read it carefully and enjoy.

Dear friend,

I am also hypothyroid. I am on Armour Thyroid, but if I couldn’t get it, I would still take the following supplements to try and give my thyroid gland the support and boost that it needs in order to make its own hormones. Please consider starting on one or more of these and see how you feel. I’m listing the most important ones first.

1. Sunlight! We all need sunlight every day. Our bodies make vitamin D3 in the skin following exposure to sunlight. People who are overweight are usually low in vitamin D3. D3 helps the thyroid. D3 from sunlight is the best kind; D3 supplements are not as good. Don’t believe the medical profession when they try to scare you off from getting sunlight, and don’t use harmful chemical sunscreens; just cover up with longer clothing after you have had your desired sun exposure. Vitamin D3 actually has a protective effect against most cancers. Best of all, it’s free.

2. Iodine — it is part of the raw material for thyroid hormone. Buy a cheap bottle of simple iodine tincture and paint a drop on your skin each day with a cotton-tipped swab. It helps in so many ways. Not only does iodine supply the thyroid gland with raw material for hormone, but it is the body’s own natural antibiotic. The neutrophils (specialized white blood cells) each contain a speck of iodine to help fight off microbes. And the eyes and ears work better if iodine is sufficient in the body. The ciliary body of the eye has a rich concentration of iodine. And the little cochlea of the inner ear contains fluids — perilymph and endolymph — which contain iodine as well.

3. Selenium — a co-nutrient with iodine. Iodine should always be taken with selenium. I get my selenium in the form of pumpkin seeds, 2 tablespoons each day.

4. Magnesium — I make my own magnesium oil and apply it to my skin daily. Janie will tell you how wonderful magnesium oil is — it helps to burn calories by supplying the “flame” for metabolism. And it’s very anti-inflammatory, with no side effects. My recipe is as follows: Stir a cup of magnesium chloride flakes and a cup of pure water together in a bowl for 5 minutes until dissolved, then pour into a clean plastic spray bottle (like what you might use for ironing). The Zechstein Sea magnesium chloride flakes are the purest; they are from a mine underneath the Netherlands, an ancient sea of 250 million years ago. A 1-kilo bag of Zechstein magnesium chloride flakes should last you more than a year. (From Janie: you can also use a good quality magnesium supplement, which I switched to sometime after 2012!)

5. Green leafy vegetables, a dietary source of magnesium — these are helpful in so many ways and are great either raw or cooked. If you cook them, top them with a little salt, a squeeze of lemon juice and a splash of olive oil.

6. Vitamin C — helps the liver to convert T4 to the active T3 hormone. I always have more energy when I remember to take 500 mg of vitamin C twice daily.

7. Coconut oil — really! It supports the thyroid and helps with weight loss. Try to get raw or unprocessed coconut oil, but in a pinch any coconut oil is helpful. Take 1-3 tablespoons per day. Stir it into yogurt and chill it if you don’t like to swallow oil.

8. Avoid refined carbohydrates like the plague, please! They are not food at all. It is impossible to lose weight if one is eating refined cereal, bread, pasta, pizza and sweets. These trigger the body to produce more insulin; the insulin then triggers the cells to store the calories as fat. This is from the book by Gary Taubes, Good Calories, Bad Calories.

9. Avoid using harmful chemicals to clean your house; use vinegar and baking soda for most cleaning jobs. Bleach, ammonia and other chemicals are extremely harmful to your thyroid gland; chlorine displaces iodine in the body.

10. Simplify your personal care supplies to further reduce your toxic exposures (this saves money too). Throw away the fluoridated toothplaste, and brush with baking soda. Hydrogen peroxide 3% makes a good dental rinse. Baking soda dusted under the arms is an excellent and nontoxic deodorant. If your skin is sensitive, mix equal amounts of baking soda and cornstarch and use that as deodorant. Use a soap with a very simple formula and no chemicals. Try to find a shampoo without SLS or parabens (carcinogens). To save even more money, stop using shampoo and wash your hair with a baking soda solution and rinse with a mild vinegar solution. Many people say their hair is lovely with this treatment; google “no poo” to learn more. If you have dry skin, massage in a drop of coconut oil. Don’t use commercial creams or lotions; don’t put anything on your skin that you wouldn’t eat.

I wish you all possible success with your health. Even if you haven’t much money, there are things you can do to feel better. Please let Janie know how you are doing in a few months’ time, so she can let us know! Your sisters and brothers in the STTM community will welcome your news.

All the best, and don’t lose hope. Better days are ahead. Lots of hugs,

Yvonne in Cyprus

Yvonne is an 57-year-old American whose background is in medical transcription, writing and editing. She is constantly reading in the medical journals and websites, looking for natural and inexpensive ways to improve health. She and her husband eat a Mediterranean diet (organic when possible) with good fats from olive and coconut oils, nuts and cheeses. She thinks every family should have some type of garden, even if it’s just a few herbs in a flowerpot.

Have any other recommendations for someone who is financially poor with thyroid disease (or not–this can apply to anyone), plus has a doctor who isn’t helping?  Let others know!

P.S. from Janie: I already do many of the above. Do you? I’m big into Vit. C, magnesium and selenium. I also use liquid Vitamin D. I use baking soda for deodorant and non-fluoride toothpaste. I only use organic lotions and soaps.  I outright use one tablespoon vinegar in my morning drink, as well as MCT oil (it’s what’s in coconut oil). Or I use lemon juice in most of my water daily! Great for alkalinizing the body. I don’t avoid refined carbs totally, but I do avoid them in many places. I love the sun. Plus exercise when I’m able. And lately, I’ve learned the hard how important it is to avoid chronic stress, or treat myself more gently when I have to go through it!

A 11th recommendation from Janie: 

I think it’s also important to add that in addition to all the wonderful ways you can live a healthier life as a thyroid patient, also consider adding T3 (Cytomel, cynomel, etc) to your T4 (aka Synthyroid, levothyroxine, eltroxin, etc), or look into natural desiccated thyroid with its five thyroid hormones, which is usually even cheaper. Updating your thyroid treatment is not based on opinion! It’s based on the experiences and wisdom of patients worldwide who found they got much better results! 🙂

Namaste Janie

 

**Join the STTM Facebook page for daily tips and inspiration: https://www.facebook.com/StoptheThyroidMadness

** Check out both STTM books here: www.laughinggrapepublishing.com

38 replies

Hidden Danger of Treating Hypothyroidism: the Subtle Importance of Iodine

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The following Guest Blog post is from Dr. Malcolm Maclean of the UK. It’s a timely topic as there has been sporadic mention on the internet of a connection between even the best of thyroid treatments and certain potential risks! He feels the risk between a good thyroid treatment and an increased risk of breast cancer may be very real, and he suggests what you need to do about it. 

**********

For some people who experience symptoms of hypothyroidism, achieving a diagnosis of “Hypothyroidism” from a practitioner may be difficult. Even for those who are so diagnosed, the standard Thyroid Hormone for treatment tends to be Thyroxine, also known as T4-only (Trade names: Synthroid/Eltroxin).

For others, Natural Desiccated Thyroid (NDT) tablets are necessary to achieve any improvement and for others T3 may be the treatment of choice, with or without NDT.

However, the point of this text is not to dwell on such difficulties, which can include:

  • ** Is adrenal function adequate for initiation of thyroid hormone replacement?
  • ** Is the iron level right?
  • ** Have the levels of estradiol and progesterone been rectified? …and so on.

Rather, this blog article picks up at the point where thyroid hormone replacement therapy is in place and the patient has started to feel better.

In other words, if you are feeling great with your thyroid treatment, does that mean everything is alright?? Maybe not when it comes to breast cancer risk and some other conditions.

It has to be said that although many people do feel better once diagnosed properly and treated appropriately with Natural Desiccated Thyroid, there are the  prima facie puzzling reports of an association between “thyroid treatment and breast cancer risk” (as well as the risk of other cancers, lupus and of diabetes which have been associated with those who are taking thyroid hormone replacement) .[1-6]

Indeed the risk of breast cancer has been stated to be doubled in this situation and trebled for women in this situation who have not given birth.

The hazards of breast cancer is counter-intuitive. A person may say: “I feel so much better now that my symptoms of hypothyroidism have been improved, so why should I face the hazard of greater risk of breast cancer?”

A possible answer is that estrogen dominance, (a common predisposing factor in the development of hypothyroidism for some) down-regulates the IODINE PUMP, the active transport system of iodine. And this effect with down-regulation of the iodine bump has been produced experimentally, as well.[5]

It seems that whatever thyroid hormone preparation used, in the situation of this estrogen effect (i.e. estrogen dominance), thyroid treatment is liable to conceal a continuing hazard of Iodine-deficiency-induced breast cancer. This is because:

a) The cause of the original Iodine Pump down-regulation (estrogen effect) has not been addressed.

b) The thyroid hormone replacement used in therapy is liable to down regulate the Iodine pump further.

Apart from estrogen, the following agents are also said to down-regulate the Iodine Pump:

  1. T3
  2. T4
  3. Fluoride
  4. Perchlorate
  5. Interferon
  6. Interleukin [5,7]

This line of thought supports the mainstream view that, in thyroid hormone replacement, the TSH level should remain in the middle of the normal range. However that dosage does not always relieve symptoms. There’s a paradox and a therapeutic difficulty! What might/can be done to address that therapeutic difficulty?

The question is: in the situation of Estrogen Dominance, treated by thyroid hormone replacement, does Iodine supplementation overcome this hazard? (Together with the “Companion Nutrients” as advocated by the “Iodine Research” group). [8] .

The evidence suggests that the answer is “Yes”. The implication is that most females who are being treated with thyroid hormone replacement should be on the “Iodine Protocol” to overcome the cancer hazard, caused by impaired Iodine absorption.

Unfortunately, the standard test for Iodine status in the human body (the urine iodine test) tells us nothing about the state of Iodine absorption and therefore the true state of the body’s Iodine status. Saliva Iodine level (after Iodine loading, 50 mg) appears to be a more reliable test of the body’s true Iodine status. [9]

It is also appears that exposure to Fluoride, by depressing Iodine uptake, potentiates the cancer risk here.

Unfortunately, when Thyroid Hormone Replacement is used in the treatment of symptoms of hypothyroidism, iodine supplementation is not always used together with the “Companion Nutrients“. The evidence suggests that this supplementation of iodine should be in place to lower your risk of breast cancer, even if you are feeling great on your thyroid treatment.

*****************

 

1. Turken O, Narin Y, Demirbas S, Onde ME, Sayan O, Kandemir EG, Yalaci M, Ozturk A: Breast cancer in association with thyroid disorders.

Breast Cancer Res 2003, 5:R110-R113. PubMed   Abstract | BioMed   Central   Full   Text

2. Eur Thyroid J. 2013 Jun;2(2):83-92. doi: 10.1159/000351249. Epub 2013 May 28.

3. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3765368/

4. //www.stopthethyroidmadness.com/2013/08/12/t4-only-lung-cancer/

  1. 5. http://www.hormones.gr/1/article/article.html
  2. 6. http://www.icjpir.com/sites/default/files/articles/ICJPIR%20-%2014-104%20Atta%20Abbas.pdf

7. Daniel H.Y. Shen,1 Richard T. Kloos,2,3 Ernest L. Mazzaferri,2 and Sissy M. Jhiang1,2 Sodium Iodide Symporter in Health and Disease THYROID Volume 11, Number 5, 2001 Mary Ann Liebert, Inc

8.  http://iodineresearch.com/supplementation.html

9. http://optimox.com/pics/Iodine/opt_Research_I.shtml

To read more on iodine plus groups you can discuss this in, go to the Iodine page on STTM.

About Dr. Maclean:

Screen Shot 2015-05-10 at 9.59.39 AMThe following text was kindly provided by Dr Malcolm Maclean, a Scottish doctor, who himself was diagnosed as having symptoms of hypothyroidism in his mid-fifties. He writes:
“Hypothyroidism evidently runs in my family. Looking back on my school days, I now realize that my mum had a royal flush of symptoms of hypothyroidism. Despite consulting an eminent specialist, the diagnosis was not made and she ended up with a diagnosis of “Narcolepsy” (Episodic sleepiness, not otherwise specified) and, as treatment, a prescription of long-acting amphetamine (Durophet).
It is clear that even in the 1950s there was a bias against proper diagnosis and treatment of hypothyroidism. 
My own diagnosis of hypothyroidism was not made until I started falling asleep at my desk in the mid afternoon. Starting Natural Desiccated Thyroid treatment, and I had the wonderful experience of mental fog lifting, which many, similarly affected and treated, will recognize.
As a medical advisor to the UK charity: Thyroid Patient Advocacy, I press (With others) for better diagnosis and treatment of symptoms of hypothyroidism as well as better education of doctors. The present unsatisfactory state of medical education concerning endocrinology, cannot last much longer, seeing that many patients now know more endocrinology than their doctors.
My particular interest lies in the management of those who make an incomplete recovery, having embarked on thyroid hormone replacement therapy and the attached text attests to that.

 

50 replies

THYROID CANCER IS AN EASY CANCER?? Patients are appalled!

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“May your choices reflect your hopes, not your fears.” ~ Nelson Mandela

It’s not uncommon when perusing the internet to see the word “easy” associated with “thyroid cancer”, or described as “the best kind of cancer to get”… as if of all cancers, this one is somehow less difficult, less arduous, a walk in the park or a piece of cake cancer.

Nor is it uncommon for thyroid cancer patients to be told something in a similar vein by their doctors. And of course, many of those doctors will use the “one little pill” pronouncement about the treatment afterwards. Easy-peasy, lemon squeezy!!

So where is the truth? Do you have reason to be nervous about your surgery? About your cancer? Is it that easy? What will your life be like after surgery?

One side of the story

Many thyroid cancer patients do report that all went well in many ways. They caught it early enough. It didn’t spread to their lymph nodes. Some didn’t even have to use pain medications after their surgery. If some did, it was short-lived. Others moved over to Tylenol after going home. Or ice packs. Drains were removed smoothly. Recovery went smoothly. Energy returned in several weeks. And they report that the cancer remained gone.

But here’s the other side of the story which completely dispels the myth that thyroid cancer is easy or the “best” cancer to get.

1) No matter where the cancer is, the emotional reaction is the same.

Many a thyroid cancer patient will tell you about their fears, depression, aloneness or anxiety when they were told. Or the denial, anguish, anger and stress they feel. Or the numbness. Or the fears of it returning. Or the unknown.

2) No surgery is fun, and that includes thyroid removal

Who wants to endure the pre-op or the aftereffects of surgery. No matter if some do better than others, it’s not fun to be in a hospital, be put to sleep, the waking up, the drains, the recovery, the discomfort, the time away, and the cost.

3) Many thyroid cancer patients have to endure RAI treatment after surgery and the side effects

RAI stands for Radioactive Iodine Ablation, also called I-131, given in either in liquid or capsule form. Since the thyroid easily absorbs iodine, and the radiation is strong, it serves to destroy any remaining tissue or cells that might still have thyroid cancer in them.

And side effects are far from pleasant and can include isolation, stomach problems, heart palps, neck tenderness, all over achiness, changes in taste, salivary inflammation and parotitis, facial or neck redness or “sunburns”, peeling skin, fatigue, fogginess, nausea, dry eyes, irregular period or other reported problems.

Then comes the reported risks that can come later in life due to having RAI, which include “bladder, breast, central nervous system, colon and rectum, digestive tract, stomach, pancreas, kidney (and renal pelvis), lung, or melanoma of skin”. Keep in mind this is about “risk” rather than a definite outcome, but it’s not fun to consider.

You can read of one patient’s opinion and experience with RAI titled Why have million of patients been treated with RAI?

4) The fear of recurrence always lingers!

Life-long monitoring is a sure bet when one has had thyroid cancer. The itchy reminder that it “could” come back never goes away when one has to have neck examinations, certain thyroid blood tests or neck ultrasounds.

5) The “one little pill” mantra of easiness is foolhardy

That one little pill is a reference to T4-only, aka thyroxine or levothyroxine, also commonly known as Synthroid or other brand names. And reported patient experiences for all too many reveal continual problems, sooner or later.  Equally as silly, that one little pill leads to the use of many other pills to treat the symptoms of continued hypothyroidism that many report finding themselves with while on the T4-only, one little pill. Those include statins, anti-depressants, anti-anxiety or pain meds, to name a few.

The conclusion?

You are not alone. Thyroid patients know that thyroid cancer is not as “easy” as they make it sound, nor is it the “better” cancer!  We are with you! Join the group below for camaraderie, wisdom and support!

This page was brilliantly updated July, 2015 to reflect even better information. Enjoy!

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