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10 ways you can live a better life as a Thyroid Patient

STTM 10 things(This post originally appeared in 2012, but has been updated for July 2015 with more information! It’s just a poignant today as it was then. Enjoy!)

In a post I did May 21st, 2012, I showed you two examples of very poignant emails I get weekly. And the second one revealed how hard it can be when you not only have very little money, plus an uninformed doctor who ends up keeping you sick. 

Yesterday, I received another email from a thyroid patient which simply blew me away, directed to the gal above. But it turns out her words are very appropriate for all of us. Read it carefully and enjoy.

Dear friend,

I am also hypothyroid. I am on Armour Thyroid, but if I couldn’t get it, I would still take the following supplements to try and give my thyroid gland the support and boost that it needs in order to make its own hormones. Please consider starting on one or more of these and see how you feel. I’m listing the most important ones first.

1. Sunlight! We all need sunlight every day. Our bodies make vitamin D3 in the skin following exposure to sunlight. People who are overweight are usually low in vitamin D3. D3 helps the thyroid. D3 from sunlight is the best kind; D3 supplements are not as good. Don’t believe the medical profession when they try to scare you off from getting sunlight, and don’t use harmful chemical sunscreens; just cover up with longer clothing after you have had your desired sun exposure. Vitamin D3 actually has a protective effect against most cancers. Best of all, it’s free.

2. Iodine — it is part of the raw material for thyroid hormone. Buy a cheap bottle of simple iodine tincture and paint a drop on your skin each day with a cotton-tipped swab. It helps in so many ways. Not only does iodine supply the thyroid gland with raw material for hormone, but it is the body’s own natural antibiotic. The neutrophils (specialized white blood cells) each contain a speck of iodine to help fight off microbes. And the eyes and ears work better if iodine is sufficient in the body. The ciliary body of the eye has a rich concentration of iodine. And the little cochlea of the inner ear contains fluids — perilymph and endolymph — which contain iodine as well.

3. Selenium — a co-nutrient with iodine. Iodine should always be taken with selenium. I get my selenium in the form of pumpkin seeds, 2 tablespoons each day.

4. Magnesium — I make my own magnesium oil and apply it to my skin daily. Janie will tell you how wonderful magnesium oil is — it helps to burn calories by supplying the “flame” for metabolism. And it’s very anti-inflammatory, with no side effects. My recipe is as follows: Stir a cup of magnesium chloride flakes and a cup of pure water together in a bowl for 5 minutes until dissolved, then pour into a clean plastic spray bottle (like what you might use for ironing). The Zechstein Sea magnesium chloride flakes are the purest; they are from a mine underneath the Netherlands, an ancient sea of 250 million years ago. A 1-kilo bag of Zechstein magnesium chloride flakes should last you more than a year. (From Janie: you can also use a good quality magnesium supplement, which I switched to sometime after 2012!)

5. Green leafy vegetables, a dietary source of magnesium — these are helpful in so many ways and are great either raw or cooked. If you cook them, top them with a little salt, a squeeze of lemon juice and a splash of olive oil.

6. Vitamin C — helps the liver to convert T4 to the active T3 hormone. I always have more energy when I remember to take 500 mg of vitamin C twice daily.

7. Coconut oil — really! It supports the thyroid and helps with weight loss. Try to get raw or unprocessed coconut oil, but in a pinch any coconut oil is helpful. Take 1-3 tablespoons per day. Stir it into yogurt and chill it if you don’t like to swallow oil.

8. Avoid refined carbohydrates like the plague, please! They are not food at all. It is impossible to lose weight if one is eating refined cereal, bread, pasta, pizza and sweets. These trigger the body to produce more insulin; the insulin then triggers the cells to store the calories as fat. This is from the book by Gary Taubes, Good Calories, Bad Calories.

9. Avoid using harmful chemicals to clean your house; use vinegar and baking soda for most cleaning jobs. Bleach, ammonia and other chemicals are extremely harmful to your thyroid gland; chlorine displaces iodine in the body.

10. Simplify your personal care supplies to further reduce your toxic exposures (this saves money too). Throw away the fluoridated toothplaste, and brush with baking soda. Hydrogen peroxide 3% makes a good dental rinse. Baking soda dusted under the arms is an excellent and nontoxic deodorant. If your skin is sensitive, mix equal amounts of baking soda and cornstarch and use that as deodorant. Use a soap with a very simple formula and no chemicals. Try to find a shampoo without SLS or parabens (carcinogens). To save even more money, stop using shampoo and wash your hair with a baking soda solution and rinse with a mild vinegar solution. Many people say their hair is lovely with this treatment; google “no poo” to learn more. If you have dry skin, massage in a drop of coconut oil. Don’t use commercial creams or lotions; don’t put anything on your skin that you wouldn’t eat.

I wish you all possible success with your health. Even if you haven’t much money, there are things you can do to feel better. Please let Janie know how you are doing in a few months’ time, so she can let us know! Your sisters and brothers in the STTM community will welcome your news.

All the best, and don’t lose hope. Better days are ahead. Lots of hugs,

Yvonne in Cyprus

Yvonne is an 57-year-old American whose background is in medical transcription, writing and editing. She is constantly reading in the medical journals and websites, looking for natural and inexpensive ways to improve health. She and her husband eat a Mediterranean diet (organic when possible) with good fats from olive and coconut oils, nuts and cheeses. She thinks every family should have some type of garden, even if it’s just a few herbs in a flowerpot.

Have any other recommendations for someone who is financially poor with thyroid disease (or not–this can apply to anyone), plus has a doctor who isn’t helping?  Let others know!

P.S. from Janie: I already do many of the above. Do you? I’m big into Vit. C, magnesium and selenium. I also use liquid Vitamin D. I use baking soda for deodorant and non-fluoride toothpaste. I only use organic lotions and soaps.  I outright use one tablespoon vinegar in my morning drink, as well as MCT oil (it’s what’s in coconut oil). Or I use lemon juice in most of my water daily! Great for alkalinizing the body. I don’t avoid refined carbs totally, but I do avoid them in many places. I love the sun. Plus exercise when I’m able. And lately, I’ve learned the hard how important it is to avoid chronic stress, or treat myself more gently when I have to go through it!

A 11th recommendation from Janie: 

I think it’s also important to add that in addition to all the wonderful ways you can live a healthier life as a thyroid patient, also consider adding T3 (Cytomel, cynomel, etc) to your T4 (aka Synthyroid, levothyroxine, eltroxin, etc), or look into natural desiccated thyroid with its five thyroid hormones, which is usually even cheaper. Updating your thyroid treatment is not based on opinion! It’s based on the experiences and wisdom of patients worldwide who found they got much better results! 🙂

Namaste Janie

 

**Join the STTM Facebook page for daily tips and inspiration: https://www.facebook.com/StoptheThyroidMadness

** Check out both STTM books here: www.laughinggrapepublishing.com

Hidden Danger of Treating Hypothyroidism: the Subtle Importance of Iodine

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The following Guest Blog post is from Dr. Malcolm Maclean of the UK. It’s a timely topic as there has been sporadic mention on the internet of a connection between even the best of thyroid treatments and certain potential risks! He feels the risk between a good thyroid treatment and an increased risk of breast cancer may be very real, and he suggests what you need to do about it. 

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For some people who experience symptoms of hypothyroidism, achieving a diagnosis of “Hypothyroidism” from a practitioner may be difficult. Even for those who are so diagnosed, the standard Thyroid Hormone for treatment tends to be Thyroxine, also known as T4-only (Trade names: Synthroid/Eltroxin).

For others, Natural Desiccated Thyroid (NDT) tablets are necessary to achieve any improvement and for others T3 may be the treatment of choice, with or without NDT.

However, the point of this text is not to dwell on such difficulties, which can include:

  • ** Is adrenal function adequate for initiation of thyroid hormone replacement?
  • ** Is the iron level right?
  • ** Have the levels of estradiol and progesterone been rectified? …and so on.

Rather, this blog article picks up at the point where thyroid hormone replacement therapy is in place and the patient has started to feel better.

In other words, if you are feeling great with your thyroid treatment, does that mean everything is alright?? Maybe not when it comes to breast cancer risk and some other conditions.

It has to be said that although many people do feel better once diagnosed properly and treated appropriately with Natural Desiccated Thyroid, there are the  prima facie puzzling reports of an association between “thyroid treatment and breast cancer risk” (as well as the risk of other cancers, lupus and of diabetes which have been associated with those who are taking thyroid hormone replacement) .[1-6]

Indeed the risk of breast cancer has been stated to be doubled in this situation and trebled for women in this situation who have not given birth.

The hazards of breast cancer is counter-intuitive. A person may say: “I feel so much better now that my symptoms of hypothyroidism have been improved, so why should I face the hazard of greater risk of breast cancer?”

A possible answer is that estrogen dominance, (a common predisposing factor in the development of hypothyroidism for some) down-regulates the IODINE PUMP, the active transport system of iodine. And this effect with down-regulation of the iodine bump has been produced experimentally, as well.[5]

It seems that whatever thyroid hormone preparation used, in the situation of this estrogen effect (i.e. estrogen dominance), thyroid treatment is liable to conceal a continuing hazard of Iodine-deficiency-induced breast cancer. This is because:

a) The cause of the original Iodine Pump down-regulation (estrogen effect) has not been addressed.

b) The thyroid hormone replacement used in therapy is liable to down regulate the Iodine pump further.

Apart from estrogen, the following agents are also said to down-regulate the Iodine Pump:

  1. T3
  2. T4
  3. Fluoride
  4. Perchlorate
  5. Interferon
  6. Interleukin [5,7]

This line of thought supports the mainstream view that, in thyroid hormone replacement, the TSH level should remain in the middle of the normal range. However that dosage does not always relieve symptoms. There’s a paradox and a therapeutic difficulty! What might/can be done to address that therapeutic difficulty?

The question is: in the situation of Estrogen Dominance, treated by thyroid hormone replacement, does Iodine supplementation overcome this hazard? (Together with the “Companion Nutrients” as advocated by the “Iodine Research” group). [8] .

The evidence suggests that the answer is “Yes”. The implication is that most females who are being treated with thyroid hormone replacement should be on the “Iodine Protocol” to overcome the cancer hazard, caused by impaired Iodine absorption.

Unfortunately, the standard test for Iodine status in the human body (the urine iodine test) tells us nothing about the state of Iodine absorption and therefore the true state of the body’s Iodine status. Saliva Iodine level (after Iodine loading, 50 mg) appears to be a more reliable test of the body’s true Iodine status. [9]

It is also appears that exposure to Fluoride, by depressing Iodine uptake, potentiates the cancer risk here.

Unfortunately, when Thyroid Hormone Replacement is used in the treatment of symptoms of hypothyroidism, iodine supplementation is not always used together with the “Companion Nutrients“. The evidence suggests that this supplementation of iodine should be in place to lower your risk of breast cancer, even if you are feeling great on your thyroid treatment.

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1. Turken O, Narin Y, Demirbas S, Onde ME, Sayan O, Kandemir EG, Yalaci M, Ozturk A: Breast cancer in association with thyroid disorders.

Breast Cancer Res 2003, 5:R110-R113. PubMed   Abstract | BioMed   Central   Full   Text

2. Eur Thyroid J. 2013 Jun;2(2):83-92. doi: 10.1159/000351249. Epub 2013 May 28.

3. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3765368/

4. //www.stopthethyroidmadness.com/2013/08/12/t4-only-lung-cancer/

  1. 5. http://www.hormones.gr/1/article/article.html
  2. 6. http://www.icjpir.com/sites/default/files/articles/ICJPIR%20-%2014-104%20Atta%20Abbas.pdf

7. Daniel H.Y. Shen,1 Richard T. Kloos,2,3 Ernest L. Mazzaferri,2 and Sissy M. Jhiang1,2 Sodium Iodide Symporter in Health and Disease THYROID Volume 11, Number 5, 2001 Mary Ann Liebert, Inc

8.  http://iodineresearch.com/supplementation.html

9. http://optimox.com/pics/Iodine/opt_Research_I.shtml

To read more on iodine plus groups you can discuss this in, go to the Iodine page on STTM.

About Dr. Maclean:

Screen Shot 2015-05-10 at 9.59.39 AMThe following text was kindly provided by Dr Malcolm Maclean, a Scottish doctor, who himself was diagnosed as having symptoms of hypothyroidism in his mid-fifties. He writes:
“Hypothyroidism evidently runs in my family. Looking back on my school days, I now realize that my mum had a royal flush of symptoms of hypothyroidism. Despite consulting an eminent specialist, the diagnosis was not made and she ended up with a diagnosis of “Narcolepsy” (Episodic sleepiness, not otherwise specified) and, as treatment, a prescription of long-acting amphetamine (Durophet).
It is clear that even in the 1950s there was a bias against proper diagnosis and treatment of hypothyroidism. 
My own diagnosis of hypothyroidism was not made until I started falling asleep at my desk in the mid afternoon. Starting Natural Desiccated Thyroid treatment, and I had the wonderful experience of mental fog lifting, which many, similarly affected and treated, will recognize.
As a medical advisor to the UK charity: Thyroid Patient Advocacy, I press (With others) for better diagnosis and treatment of symptoms of hypothyroidism as well as better education of doctors. The present unsatisfactory state of medical education concerning endocrinology, cannot last much longer, seeing that many patients now know more endocrinology than their doctors.
My particular interest lies in the management of those who make an incomplete recovery, having embarked on thyroid hormone replacement therapy and the attached text attests to that.

 

12 WAYS YOU CAN BE MAKING YOUR THYROID TREATMENT WORSE!

STTM 12 waysA healthy thyroid makes five hormones, of which T3 is the most powerful. T4 is the storage hormone, meant to convert to the life giving T3.

But sadly, there are a variety of reasons why conversion of T4 to T3 my be inhibited, and which especially makes being on Synthroid or any other T4-only medication a risky choice in the treatment of hypothyroidism.

Even if you finally found the right treatment for you (which is adding direct T3 (the active hormone) to that T4 (a storage hormone)…or moving over to Natural Desiccated Thyroid…it’s important to learn the following reasons why you may not be converting that T4 to T3 in the most optimal way.

1) GETTING OLDER: Just as getting older can influence even the production of thyroid hormones, it can affect your ability to convert the storage hormone T4 to the active hormone T3! i.e. deiodination decreases.  www.hormones.gr/205/article/thyroid-hormones-and-aging.html

2) EXCESS GOITROGEN FOODS EATEN DAILY (broccolli, soy, etc) CAN GET YOU INTO TROUBLE!  www.stopthethyroidmadness.com/goitrogens

3) GOING THROUGH HIGH STRESS DAY AFTER DAY RAISES CORTISOL, WHICH IN TURN INHIBITS CONVERSION of T4 to T3! www.stopthethyroidmadness.com/ps/

4) CERTAIN SUPPLEMENTS OR FOODS NEED TO BE TAKEN AWAY FROM YOUR THYROID MEDS Calcium, iron and estrogen are examples. Though this talks about levothyroxine (which patients are moving away from all over the world), the information is solid: www.peoplespharmacy.com/2010/08/26/taking-thyroid-medicine-properly/

5) NUTRIENTS ARE NEEDED TO HELP CONVERT T4 to T3!!  Are you low in Selenium? If so, it negatively affects the conversion of T4 to T3! So do low levels of zinc, B12, B6 and more. http://www.naturalthyroidchoices.com/ThyroidNutrients.html And why do we, as thyroid patients, find ourselves with low nutrient levels?? Besides having Celiac, here’s the most common reason for all: www.stopthethyroidmadness.com/stomach-acid 

6) CHEMOTHERAPY and RADIATION CAN NEGATIVELY AFFECT YOUR T3 LEVELS:   http://www.ncbi.nlm.nih.gov/pubmed/9204611

7) THOSE WHO FIND THEMSELVES WITH HIGH LEVELS OF HEAVY METALS DUE TO MTHFR CAN ALSO SEE THYROID HORMONE PROBLEMS!  www.stopthethyroidmadness.com/mthfr

8) MORE THAN MODERATE EXERCISE CAN DECREASE CONVERSION OF T4 to T3!  www.ncbi.nlm.nih.gov/pubmed/18539729

9) LOW IRON IS A KNOWN INHIBITOR OF T4 to T3!  Just as low thyroid can cause low levels of iron due to low stomach acid, conversely, that low iron can inhibit conversion of T4 to T3!! www.stopthethyroidmadness.com/ferritin

10)  CHRONIC INFLAMMATION IS NOT YOUR FRIEND WHEN IT COMES TO CONVERSION OF T4 to the ACTIVE T3! Just as undiagnosed or undertreated hypothyroidism can cause inflammation, the latter in turn can negatively effect conversion! www.stopthethyroidmadness.com/inflammation

11) LIVER HEALTH IS KEY TO GOOD CONVERSION of T4 to T3! Since your liver is the main component in conversion, any kind of liver stress (fatty liver disease, hepatitis, heavy metals and more) will see reduced conversion to T3. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC301912/

12) ESPECIALLY IN MEN, LOW TESTOSTERONE MAY INHIBIT CONVERSION! And like the two incidences about, undertreated or untreated hypothyroidism can lower testosterone, and low testosterone can further inhibit production of T4 to T3. http://www.allthingsmale.com/community/threads/interesting-testosterone-d1-increase-and-gh-increase-t4-to-t3-conversion.17213/

NOTE: you will sometimes see Diabetes listed as an inhibitor of T4 to T3, yet studies are not conclusive and some see higher T3 with diabetes, not lower.

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1-Screen Shot 2015-01-20 at 12.41.23 PM Have you liked thepatient-to-patient FACEBOOK STTM THYROID PAGE? You’ll get excellent information and inspiration daily based on patient experiences and wisdom worldwide! 

www.facebook.com/StoptheThyroidMadness

 

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CHECK OUT BOTH STTM BOOKS HERE: www.laughinggrapepublishing.com

 

 

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CHECK OUT STTM’s PINTEREST!
www.pinterest.com/therealSTTM/ Lots of graphics you can repin or post on your Facebook page to help your friends and family! 

What do these people have in common: Adams, Bouc, Dach, Edwards, Heyman, Heiser, Luber, Lynch, Phan, Roberts, Saleeby, Stone, Trumbower and Yang?

1-Screen Shot 2014-08-13 at 5.22.27 PMWhat do these people have in common: Adams, Bouc, Dach, Edwards, Heyman, Heiser, Luber, Lynch, Phan, Roberts, Saleeby, Stone, Trumbower and Yang? 

Answer:  Brilliance in thought, courage in action, intelligent reasoning, and a willingness to learn from their patients as medical practitioners.

And that is all exactly why each of them was chosen to contribute as an author to a new Stop the Thyroid Madness book, titled

Stop the Thyroid Madness II: How thyroid experts are challenging ineffective treatments and improving the lives of patients

Each of them are medical practitioners who strive to….

  • create a patient-centered practice and personalized method of treatment based on the symphony between the thyroid and all other bodily systems
  • understand that treatment of thyroid disease is more than the use of a single synthetic medication and a pituitary hormone lab result.
  • have the courage to question the basic assumptions held by the traditional medical community as to what constitutes good thyroid treatment
  • listen and learn from their patients.

Why else did I choose these particular practitioners for the book?

First and foremost, it was based on patient reports. The majority of these professionals were reported by thyroid patients to be the better cream of the crop in the medical field.

Could I have chosen others?

Yes. There are others of whom patients have reported they like! But serendipity led me to each one of these masterful professionals and it has all played out like a well-tuned chorus.

How is this book different than the revised STTM book?

The revised STTM will forever stand out as a compilation of highly important and life-changing experiences and wisdom of thyroid patients worldwide.

The new STTM II book brings the minds and brilliance of medical professionals into the mix, not only giving you more details that only a trained professional can give, but the book can also be seen as a practitioner-to-practitioner book, as well. THIS is a book that will end the refrain among certain doctors “Who is Janie Bowthorpe and where is her medical degree?” (i.e. as if only someone with a medical degree can know something important medically!).

THIS is the book that you can give your doctor since it’s written by his very colleagues!

THIS is the book that will play a dynamic role in changing the worldwide medical mindset about the proper treatment of thyroid disease.

What did they write about?

CHAPTER 1 The Integrative and Functional Medicine Approach to Thyroid Diseases by James Yang, MD, MPH and Andrew Heyman, MD, MHSA

CHAPTER 2 Stress, Adrenals, Your Thyroid, and You by Laura R Stone MD, Andrew Heyman, MD MHSA and Carla Heiser MS RD LD

CHAPTER 3 Thyroid Replacement Therapy: Natural Desiccated Thyroid (NDT) by Yusuf (JP) Saleeby, MD

CHAPTER 4 The Unreliable TSH Lab Test by Jeffrey Dach MD

CHAPTER 5 When Normal Ain’t Normal by Geoffrey T. Bouc MD

CHAPTER 6 Nutrition and Hypothyroidism by William D. Trumbower, MD

CHAPTER 7 Hashimoto’s Autoimmune Thyroid Disease by Jeffrey Dach MD

CHAPTER 8 Why Are Doctors Like That? by Nguyen D. Phan MD

CHAPTER 9 Gluten Intolerance and Thyroid Disease by Paula Luber, MD

CHAPTER 10 Thyroid Toxicity by Philip L. Roberts, MD

CHAPTER 11 Moving Forward with Reverse T3: the Causes and Health Implications by Paige Adams, FNP, B-C

CHAPTER 12 Methylation, MTHFR and Thyroid Dysfunction by Benjamin Lynch, ND

CHAPTER 13 Hypocortisolism: An Evidence-Based Review by Lena Edwards, MD, FAARM, FICT; Andrew H. Heyman, MD MHSA; Sahar Swidan, PharmD

Who wrote the Foreword?

Dr. David Brownstein, MD.

Where can I order the book?

Currently, only at the publishing company website. It will eventually catch up to Amazon, but that can take time.  You can order one or multiple copies of the new STTM II book here: http://laughinggrapepublishing.com/stop-thyroid-madness-ii-book/

Or you can order a set(s) of both the revised STTM book and the STTM II book here:  http://laughinggrapepublishing.com/stop-thyroid-madness-books-revised-and-ii/  ALSO NOTE that by snail mail, you can order an amount of each book. There’s an Order Form to print out on the above page.

Want to read more about each author?

Go to the following page and click on their photo: //www.stopthethyroidmadness.com/stop-thyroid-madness-ii

 

Part II: Erfa Canada says new thyroid pills are fine: Thyroid Patients worldwide exclaim HOG WASH!!

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Another nightmare for thyroid patients who depend on Natural Desiccated Thyroid.

If you are new to this subject, 2014 saw new batches of the Canadian Erfa Thyroid come out, along with patients worldwide reporting a return of hypothyroid symptoms in the worst way…sooner or later. It was eerily similar to what happened with Armour thyroid in 2009 after Forest Labs changed the way the pill was made. 

You can read about this travesty with Erfa Thyroid on the following May 8, 2014 blog post page, here: //www.stopthethyroidmadness.com/2014/05/08/dear-erfa-canada-stop-nonsense-change-desiccated-thyroid-back/  It is followed by a massive amount of posts, comparing batch numbers as well as symptoms which have returned. It’s all a must read!

This morning, I received a message from a thyroid patient who heard from Dr. Knafo, the Medical Director at Erfa Canada 2012 Inc. He stated to her:

We just received all the retesting on the product and everything looks fine on our end. Did you have a blood test done ?

In other words, when you look at his last question, the implication is the same that has been stated to others: that the symptoms which she has seen return on the new Erfa Thyroid are about HER, not about the pills.

But we also now have an official announcement from Dr. Knafo, and is exactly what I feared would be stated: 

Dear All,

I wanted to thank all of you for your response and wanted to update you on the results we got from the retesting done by an independent lab. All the side effects reported were sent to Health Canada and all the retesting were done by a reputable independent lab.

We got about 70 patients reporting to us and there was 55 lack of efficacy reports. Half of the time we had the lot number and we could do an analysis of which lot were involved. There was NO relations between the batches involved and the side effects reported as many batches (50%) were trace back to our older production. Regardless, we decided to retest the batches that were involved (both from the older factory and new one) and sent everything to an independent lab.

There was no difference in concentration from one batch to the other. We did not change our formulation, suppliers nor our manufacturing technique.

We have over 10,000 patients in Canada only and reports from Canadian patients were much less in numbers. We cannot explain why many of you are experiencing those symptoms however I think the right approach is to take every single case separately and understand if there is no other variables involved. The number of reports are however consistent with the increase of sale (we sold 3 times more Thyroid in the past year).

The test results are available in our office for anyone that wants to consult them.

I hope this update clarify a bit more the situation and action we put in place. Please feel free to contact me anytime.
Regards,

Dr H. Knafo
Medical Director ERFA Canada 2012 inc.

And I want to make my response to Dr. Knafo public here:

Dear Dr. Knafo,

Thank you for the kind way in which you expressed yourself concerning the testing of the “new” Erfa Thyroid by an Independent lab.

I want to underscore to you that the reason Erfa has seen a three-fold increase in its sales last year is because Erfa used to be a great product for all involved. Patients had found it to be as excellent as the “old” Armour used to be for decades, plus they have always loved that they can do Erfa Thyroid sublingually. Additionally, many patients in Europe have had access to Erfa, which was important when knowledge about Natural Desiccated Thyroid is so pitiful in Europe.

Understand that I have worked directly with patients for 12 years as an activist for better thyroid treatment. Natural Desiccated Thyroid (NDT) changes lives and is proven over and over by worldwide patient experiences to be a much better hypothyroid treatment than T4-only. It even edges out the combination of T4 and T3 by its positive effects!

Granted, there are many patients who have reported not doing well on NDT over the past decade. But that wasn’t because NDT didn’t work. We figured out early on that there are two main reasons why NDT may not seem to work: a cortisol issue (low or high), and/or low iron. So patients learned that they must get the right testing for both of those, know how to read the results, and treat both before they will do well with NDT. You can read about all this here: //www.stopthethyroidmadness.com/ndt-doesnt-work-for-me

And of course, some reported NDT not working because they were being held hostage to the TSH lab test, which we as informed patients know is the WORST test to be dosed by. You will remain under-dosed if a doctor goes by the TSH range. Read this: //www.stopthethyroidmadness.com/tsh-why-its-useless

So because of all the above, I had to discern if all these complaints about the “new” Erfa Thyroid were actually because of any of the above.

But Dr. Knafo, I quickly saw that no, the vast majority were not. The bulk of complaints…and bad experiences…have been coming from patients who were doing wonderfully on Erfa Thyroid for awhile, only to see their symptoms return exactly when they started using the pills that were now being made at a different facility.

You stated in your announcement: There was no difference in concentration from one batch to the other. We did not change our formulation, suppliers nor our manufacturing technique. What is missing from that statement is that you have, in fact, stated to others than Erfa Thyroid did change the facility in which the pills are made. And as far as the “manufacturing technique”…patients clearly see a difference in the “new” batches. They are now slightly shinier, the indentations are deeper, and the new pills have a blotchy look that wasn’t there before.

The photo above shows the difference between the old and new.

Of course, we don’t know if what we are observing in the new pills explains anything. All patients DO know is that all-too-many of them are seeing their hypothyroidism return with the new Erfa Thyroid.

I think you are a sincere man, Dr. Knafo. We appreciate that about you. But…something has, in fact, changed in Erfa Thyroid. And to dismiss the growing overall body of patients worldwide who are not doing well anymore on Erfa thyroid is a bad move, just as it’s insensitive to state that that there are no other variables involved so thus, it must be about the individual circumstances.

Sincerely,

Janie A. Bowthorpe. M.Ed.
//www.stopthethyroidmadness.com
https://www.facebook.com/StoptheThyroidMadness
//www.laughinggrapepublishing.com

P.S. Go back and read all the comments on the May 8th blog post linked above. It’s patently clear that the new Erfa Thyroid has changed, whether testing says otherwise.

UPDATE: thyroid patient S. compiled the following as of August 2015 and these represent expiration dates:

The good batches (no one reported them as bad, and one or more people reported them as good) are: 8/15 (reported by 3 people) and 4/17 (4 reports).

Some batches were reported as both good and bad by different people: 5/17, 7/17, 7/16, 2/17, 10/16, 3/15.

Some were reported only as bad: 11/15 (3 reports); 11/17 (1 report); 3/16 (3 reports); 8/17 (3 reports).

No reports for 1/17, 3/17 or 6/17 so these are unknown.