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Short and Sweet – Listen to latest interview of Janie Bowthorpe

JANIE in front of books July 2014Hello to all my fellow thyroid patient friends!

I, Janie, have taken a break from the STTM  blog after the release of the fabulous Stop the Thyroid Madness II book. And it’s time to return!!

Here’s the short and sweet reason I’m writing this blog…

Listen to Kirstin Costello of Wellness Talk Radio interview me!! I think we both did a great job!  

And once you do, spread the word by sharing the link below. Send this to your family and friends. Post it on Facebook. Let’s help reach all our fellow thyroid patients who need to learn from over a decade of thyroid patient experiences and wisdom in the treatment of hypothyroidism, adrenal fatigue/insufficiency issues, low iron and so much more.

Go here: https://www.youtube.com/watch?v=51-ikKxufgU

Kind regards from…

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P.S. Have you read the new Stop the Thyroid Madness II book? You should.

No, this new book does not “replace” the original revised and very detailed STTM book. The latter will always have brilliant details of patient experiences and wisdom found nowhere else.

But the new STTM II book is giving you the following:

1) an excellent companion to the first book.

2) information that only certain medical practitioners can give you.

3) a strong message to all doctors since it’s written by their very colleagues.

In other words, if other practitioners continue to bash Natural Desiccated Thyroid or T3 or refer to it as “poison”, think the TSH is a great diagnostic tool to diagnose or dose by, don’t believe in low cortisol, and more…they will have to be bashing their own colleagues’ wisdom as contained on these pages.

The authors of the new STTM II book include Paige Adams FNP, Geoffrey T. Bouc MD (owner of website I want my T3!), Jeffrey Dach MD (jeffreydachmd.com), Lena D. Edwards MD, Andrew H. Heyman MD (in Virginia), Carla Heiser RDN, Paula H. Luber MD, Benjamin D. Lynch MD (aka Ben Lynch of the MTHFR website), William D. Trumbower MD, Philip L. Roberts MD, Yusuf (JP) Saleeby MD, Laura R. Stone MD, Nguyen D. Phan MD, and James C. Yang, MD.

If you haven’t yet seen or read this wonderful new book yet, go here: //www.stopthethyroidmadness.com/stop-thyroid-madness-ii

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What do these people have in common: Adams, Bouc, Dach, Edwards, Heyman, Heiser, Luber, Lynch, Phan, Roberts, Saleeby, Stone, Trumbower and Yang?

1-Screen Shot 2014-08-13 at 5.22.27 PMWhat do these people have in common: Adams, Bouc, Dach, Edwards, Heyman, Heiser, Luber, Lynch, Phan, Roberts, Saleeby, Stone, Trumbower and Yang? 

Answer:  Brilliance in thought, courage in action, intelligent reasoning, and a willingness to learn from their patients as medical practitioners.

And that is all exactly why each of them was chosen to contribute as an author to a new Stop the Thyroid Madness book, titled

Stop the Thyroid Madness II: How thyroid experts are challenging ineffective treatments and improving the lives of patients

Each of them are medical practitioners who strive to….

  • create a patient-centered practice and personalized method of treatment based on the symphony between the thyroid and all other bodily systems
  • understand that treatment of thyroid disease is more than the use of a single synthetic medication and a pituitary hormone lab result.
  • have the courage to question the basic assumptions held by the traditional medical community as to what constitutes good thyroid treatment
  • listen and learn from their patients.

Why else did I choose these particular practitioners for the book?

First and foremost, it was based on patient reports. The majority of these professionals were reported by thyroid patients to be the better cream of the crop in the medical field.

Could I have chosen others?

Yes. There are others of whom patients have reported they like! But serendipity led me to each one of these masterful professionals and it has all played out like a well-tuned chorus.

How is this book different than the revised STTM book?

The revised STTM will forever stand out as a compilation of highly important and life-changing experiences and wisdom of thyroid patients worldwide.

The new STTM II book brings the minds and brilliance of medical professionals into the mix, not only giving you more details that only a trained professional can give, but the book can also be seen as a practitioner-to-practitioner book, as well. THIS is a book that will end the refrain among certain doctors “Who is Janie Bowthorpe and where is her medical degree?” (i.e. as if only someone with a medical degree can know something important medically!).

THIS is the book that you can give your doctor since it’s written by his very colleagues!

THIS is the book that will play a dynamic role in changing the worldwide medical mindset about the proper treatment of thyroid disease.

What did they write about?

CHAPTER 1 The Integrative and Functional Medicine Approach to Thyroid Diseases by James Yang, MD, MPH and Andrew Heyman, MD, MHSA

CHAPTER 2 Stress, Adrenals, Your Thyroid, and You by Laura R Stone MD, Andrew Heyman, MD MHSA and Carla Heiser MS RD LD

CHAPTER 3 Thyroid Replacement Therapy: Natural Desiccated Thyroid (NDT) by Yusuf (JP) Saleeby, MD

CHAPTER 4 The Unreliable TSH Lab Test by Jeffrey Dach MD

CHAPTER 5 When Normal Ain’t Normal by Geoffrey T. Bouc MD

CHAPTER 6 Nutrition and Hypothyroidism by William D. Trumbower, MD

CHAPTER 7 Hashimoto’s Autoimmune Thyroid Disease by Jeffrey Dach MD

CHAPTER 8 Why Are Doctors Like That? by Nguyen D. Phan MD

CHAPTER 9 Gluten Intolerance and Thyroid Disease by Paula Luber, MD

CHAPTER 10 Thyroid Toxicity by Philip L. Roberts, MD

CHAPTER 11 Moving Forward with Reverse T3: the Causes and Health Implications by Paige Adams, FNP, B-C

CHAPTER 12 Methylation, MTHFR and Thyroid Dysfunction by Benjamin Lynch, ND

CHAPTER 13 Hypocortisolism: An Evidence-Based Review by Lena Edwards, MD, FAARM, FICT; Andrew H. Heyman, MD MHSA; Sahar Swidan, PharmD

Who wrote the Foreword?

Dr. David Brownstein, MD.

Where can I order the book?

Currently, only at the publishing company website. It will eventually catch up to Amazon, but that can take time.  You can order one or multiple copies of the new STTM II book here: http://laughinggrapepublishing.com/stop-thyroid-madness-ii-book/

Or you can order a set(s) of both the revised STTM book and the STTM II book here:  http://laughinggrapepublishing.com/stop-thyroid-madness-books-revised-and-ii/  ALSO NOTE that by snail mail, you can order an amount of each book. There’s an Order Form to print out on the above page.

Want to read more about each author?

Go to the following page and click on their photo: //www.stopthethyroidmadness.com/stop-thyroid-madness-ii

 

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Survey by Thyroid Patients as to How They View Their Doctors — not a pretty picture!

Screen Shot 2014-04-03 at 11.42.37 AMRecently, Stop the Thyroid Madness LLC implemented a survey to discern thyroid patient observations and opinions about the medical professionals they have used. And the results of this poll present alarmingly negative opinions by 1,870 thyroid patients about doctors they have used.

Of course, most informed thyroid patients aren’t surprised by the findings of this survey. But to see the responses, and especially the comments made in response to questions 2 – 5, it all certainly underscores how deep the problem is.

As far as which doctors gave the worst treatment according to patients, Endocrinologists led the pack with MD’s following in second. Conversely, Naturopaths gave the best treatment, even though they barely got 1/3 of the responses.

Comments made by patients in response to Question 3 (see below–actions which would have raised the opinions of patients of doctors) were the most enlightening. They ranged from having better knowledge about T3 or desiccated thyroid, understanding the right lab work instead of the TSH, listening to their patients (stated frequently), better understanding of thyroid symptoms, ceasing to tell patients to eat differently or exercise more, not being so afraid of higher doses of NDT, understanding nutrition, stop with the labeling/dismissiveness/arrogance/patronizing, respecting educated patients…and a great deal more which you can read under #3 in the linked page below.

The survey’s five questions with responses were:

Question 1: How satisfied have you been with the way the majority of medical professionals you have seen over the years have treated your thyroid problem? (Choose one response only)

1) VERY SATISFIED — Most medical professionals have helped my thyroid issues.

2) MODERATELY SATISFIED — Some have done well; others have not done as well

3) NEUTRAL — I have no opinion one way or the other

4) NOT SATISFIED — the vast majority of my experiences with doctors have been
negative when it comes to helping me

Question 2: If you chose #1 above, why do you feel very satisfied about your thyroid treatment by the majority of medical professionals you have seen over the years? (Choose any that apply)

1) I feel much better than I did before

2) I have no more symptoms that I understand are related to hypothyroidism.

3) The majority of those doctors were good listeners

4) The majority of those doctors seem to know what they are doing.

5) The majority of those doctors respect my opinions and see me as a partner in my healthcare.

6) Their fees were affordable

7) Other (133)

Question 3: If you chose either 2, 3, or 4 in the first question above: which of the following actions by medical professionals would have raised your opinion of the thyroid care you had gotten? (Choose any that apply)

1) Paying more attention to my symptoms rather than putting focus solely on lab results.

2) Understanding how to read lab results

3) Being offered Natural Desiccated Thyroid or T3 rather than T4-only

4) Going more by the Free T3 and Free T4 plus symptoms, not the TSH

5) Understanding the reality of cortisol problems, plus saliva testing and treatment

6) Understanding the problem of low iron, reading iron labs, treatment

7) Being more open-minded about non-traditional therapies

8) Understanding that my depression could be related to my hypothyroid state.

9) Other (395)

Question 4: When thinking about the types of health care providers you have used over the years, please choose one type that you feel did the WORST job in your treatment.

1) Endocrinologists

2) MD’s (Medical Doctor)

3) DO’s (Doctor of Osteopathy

4) NP’s (Nurse Practitioners)

5) PA’s (Physicians Assistants)

6) Naturopaths

Comments (122)

Question 5: When thinking about the types of health care providers you have used over the years, please choose one type that you feel did the BEST job in your treatment.

1) Endocrinologists

2) MD’s (Medical Doctor)

3) DO’s (Doctor of Osteopathy

4) NP’s (Nurse Practitioners)

5) PA’s (Physicians Assistants)

6) Naturopaths

Comments (565)

TO SEE THE RESULTS OF THIS SURVEY, head on over the SURVEY: Hypothyroid patients view of their doctors page.

Seize the wisdom!!

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Getting the facts straight about Dr. Sydney Wolfe, and what YOU can do.

armourbottleWith the recent blog post by health writer Mary Shomon concerning Dr. Sidney Wolfe’s new 4-year term with the FDA’s Drug Safety and Risk Management Advisory Committee, there has been much brooha and fear-mongering on thyroid patient groups.

Why? Well look at it this way. This is a man of stature. He is an MD, an Adjunct Professor of Medicine, the director of Public Citizen’s health research group which promotes drug safety and public health, and editor of the newsletter Worst Pills, Best Pills, and since August of  ’08, a member of the Drug Safety Committee.  He also has a resume a mile long.

Yet in spite of his seemingly caring activism for our health and well-being, and his immense experience and education, he is clearly and completely off-base about Armour and other desiccated thyroid prescription drugs.

For example, as as editor of the Worst Pills, Best Pills newsletter,  Wolfe declared Armour desiccated thyroid as a “Do Not Use” product because it is not adequately guaranteed to provide appropriate blood levels of thyroid hormone and reliable alternatives are available”. (Gee, funny how our experiences are completely otherwise….)

Then in the May 2003 issue (of which you have to have a paid prescription to read), he wrote an article titled  “Do Not Use! Natural or Desiccated Thyroid (ARMOUR THYROID) For Thyroid Hormone Replacement Therapy.” In that article, the clueless Wolfe stated that he supported The American Thyroid Association’s statement “There is no evidence that desiccated thyroid, a biological preparation, has any advantage over synthetic thyroxine.” (I guess millions of us and our improved heartrate, stamina, cholesterol, depression and more…aren’t evidence?)

He then proposes that Armour is mostly prescribed for weight loss, is a niche market for the unscrupulous, and concludes with “if you are offered natural thyroid hormone replacement treatment for any reason, this is a red flag and you should get a second opinion.” In a letter to consumers, Wolfe and Public Citizen state that that T3 is only needed from conversion and is predictably found from conversion, that the T2 and T1 also found in desiccated thyroid has essentially no activity, that desiccated thyroid is an unpredictable mixture, that is has no predictable biological activity…plus so many more complete and total inaccuracies based on “intellectual head chatter” not on observation and experience.

Thud.

Mary Shomon, in 2003, did a bang-up job trying to communicate with Wolfe, Worst Pills, Best Pills, and Public Citizen about the inaccuracies of their beliefs and statements…basically to no avail. The TRUTH is here, and in more detail in Chapters 1 and 2 in the STTM book which are enlightening those reading it all!

So we are left wondering, six years later, what his four-year appointment to this committee will mean. But let’s make a few things quite clear to contrast some of the fears going on and expressed on thyroid groups:

1) Armour is not being banned.
2) Wolfe is one of a current 9 members of this committee. Wolfe is not “the committee”.
3) Wolfe and seven others currently have voting rights. He is the only “Consumer Representative”.
4) There are still six more vacancies.
5) The committee is NOT the power. They simply make recommendations. And historically, the FDA can be slow to act on their recommendations, or doesn’t follow them at all (which is a GOOD thing when it comes to a SAFE and EFFECTIVE medication like desiccated thyroid).

So what can you do? I challenge you to follow and act on the below, which puts our energies into communication, not feeding the ego and power of a misguided man with our overtly expressed fears as if they have actually come to pass :

1) Remember 1-5 above. Armour is fully available. Keep the facts straight, and fear-mongering down.

2) STTM has a powerful and growing page of testimonies of those who switched to desiccated thyroid.  Are you in there? If not, you need to be. This website currently has a huge audience. It’s noticed by doctors all over the world, as is the STTM book, which is YOUR book of YOUR experiences,  which is also being ordered by doctors. Use the Contact Me form at the bottom of that page.

3) Tell your experience with Synthroid or other thyroxine medications at the following websites:  www.rateadrug.com,  www.drugs.com,  www.askapatient.com They don’t include any of the desiccated thyroid meds yet, but you can tell of the negative experiences with all the T4-only drugs, including adrenal fatigue if you fell into that, and all your lingering thyroid symptoms.  The above links will take you to their Synthroid page–you can search for the other T4 meds.  Remember to mention Armour or other desiccated thyroid meds and how they have helped you!! Update: thyroid patient Gina found the drugs.com Armour page: http://www.drugs.com/comments/thyroid-desiccated/armour-thyroid.html

4) Report your T4-only experience to MedWatch, the FDA’s  program for reporting problems.  You will see an Online Reporting Form to download. Don’t fail to mention which problems were removed or greatly improved when you switched to Armour, or the fact that you now have to deal with adrenal fatigue thanks to the inadequacy of T4-only treatment. You can also call 1-800-FDA-1088, but remember: your call is not to draw attention to Wolfe’s opinions! It’s to draw attention to how lousy a treatment T4 is as compared to how much better Armour has been.

5) Go to my article titled Synthroid Sucks: the Rallying Cry of Thyroid Patients vs. Clueless Doctors and comment on this article, including mentioning what Armour, Naturethroid or other desiccated thyroid did for you. Rate it as well. Both keep this article in the media and in the eyes of others.

6) Go to www.medications.com where patients ask questions and YOU can answer, mentioning YOUR experience and how much better desiccated thyroid has been. Clicking on that will take you to the Synthroid patient questions. Answer them. Be careful with links–they may not catch them at first, but will remove them if they do.  You can mention website names, tho, like Stop the Thyroid Madness.

7) Send people here to follow all these steps. Power is in numbers!

8 ) Use the following website to email or write your senators and representatives: http://www.visi.com/juan/congress/ THEY DO READ THEM. And they will remember this!  Here’s a template letter you can use:  www.stopthethyroidmadness.com/template-letter-to-your-senator-or-representive/

If you have other ideas and places to write or call, add your comment to this post. Remember,  put your power in communication! LOTS of communication.

P.S. Did you know that the American Thyroid Association, in cooperation with the American Association of Endocrinologists, together support January as “Thyroid Awareness Month”…which is supported through an unrestricted grant from Abbott Laboratories, the makers of Synthroid?? Major UGH.


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Can you believe what this Endocrinologist said in 1931??

Ever heard of Henry R. Harrower?

He came to the US from England in 1903 at age 20, and with great fortitude and drive, became an MD and Endocrinologist. He had influence in the creation of today’s  professional Endocrine Society.   He also believed (to the consternation of many of his colleagues) in the use of organs to treat conditions, such as Armour desiccated thyroid.

And in 1931, he made the following incredible statement:

“A good laboratory report is cold comfort to a patient whose symptoms remain unchanged, and the doctor can repeat such reports until he is blue in the face, but they will not help his patient much if unaccompanied by controlled symptoms and changed feelings.”

He also stated:

“Are not the feelings of the patients often as clinically valuable as the other findings? In no case can we wholly discount them.”

BRILLIANT!!  BRAVO!! “Cold comfort” couldn’t describe our reaction better when a slew of your modern colleagues have habitually discounted thyroid patient symptoms for decades in favor of ink spots on a piece of paper called “lab results” with dubious “normal ranges”. And we give the same “Bravo” to a growing body of doctors who are making a courageous change in their relationship with patients the last few years by LISTENING to the patient first and foremost.

p.s. Thanks to Stephanie Buist, working to become a naturopath, who posted the first quote above to the Facebook of a mutual friend of ours. You can read more about Harrower here.

How do you feel about what Dr. Harrower said over 100 years ago? How would you rate the Endocrinologists you’ve seen the past few decades as compared to Harrower? Have you had no more than “cold comfort”?

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