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Read what this Eye Doctor Observed in His T4-only Treated Patients!

Matt Dixon ODThe following Guest Blog Post has been written Matt Dixon, OD who currently practices optometry in Perry, Georgia.

And not only did Dr. Dixon find himself with hypothyroidism, he made quite an interesting observation: 90% of his patients currently taking levothyroxine still have symptoms!

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So how did an optometrist (eye doctor) become passionate and obsessive about spreading the news about what Janie calls the “Madness”?

My personal journey

I don’t quite fit the typical patient profile for a hypothyroid patient.  I’m not female, no weight issues. I’ve always been very active. Yet when the symptoms started, I was clueless about where they came from or that they all could even be related. 

All eye docs are trained to recognize thyroid eye disease, but truthfully, we focus on end-stage symptoms of Grave’s disease and the ophthalmopathy that often comes with it.  And the typical optometrist does not encounter this very often.  I had no clue that in my own practice, hypothyroidism was one of the most common conditions I see. 

I suppose my first symptoms were body aches and pains.  I had always experienced annoying back issues and I presumed that deterioration was setting in as I became older (40’s).  I’ve also always been cold-natured. And by 2010, I noticed that I was struggling to make it through the work day. So by the end of the day, I was exhausted.  In fact, I was no longer exercising, but found myself buried on the couch as soon as I came home, not getting up until I forced myself to climb into bed.  Once I made it to bed, I couldn’t fall asleep and became addicted to Ambien.  When the alarm clock woke me up the next morning, my wife had to literally pull me out of bed.  If I ever forced myself to jog, I felt as if I was carrying a 25 lb. backpack.  I also began to struggle with unexplainable stress and anxiety.  

But what finally prompted me to seek answers was in fact eye-related.  I was driving my kids home one night and the road in front of me actually moved suddenly from left to right.  I hit the brakes and feared for our safety!  My 17 year old son took the wheel and we made it home.

The madness for me began

My physician at the time is a well-liked internist in my community.  I made an appointment for a checkup complete with blood work.  I had some issues that I was concerned about, but neither the assistant nor doctor reviewed my symptoms. 

I went back in a week and promptly received a prescription for Synthroid for hypothyroidism.  With little discussion about the disease, I headed to the pharmacy. After a couple of weeks I began to improve.  But I wanted to know more.  I found the vast list of hypothyroid symptoms online and could not believe how many I was experiencing.  I read enough to know that elimination of symptoms was the best way to dose the medication and focusing on TSH only would lead to under-treatment. 

More importantly, if my doctor did not know any of my symptoms, how could he know when I was adequately treated?  It was time for a new doctor.

Why do MD’s undertreat hypothyroidism?

My new doctor, unlike the previous one mentioned above, did review my symptoms and pledged to increase Synthroid until my TSH was reduced to around 1.  I made sure they were paying attention to how I was feeling.  Yes, I improved tremendously and found my happy place on brand name Synthroid.  But I did move over to natural desiccated thyroid (NDT) and was even happier. As I adjusted to the new medication and found the correct dosage, I was able to get through the day with full energy and better mental focus.  Most days I am symptom free.

In my area, I have yet to find more than a handful of docs who use NDT with any frequency.  In my patient population, I rarely encounter a patient on NDT unless I have coached them to find a way to get the prescription.  (Optometrists are licensed to prescribe oral medications but only for eye conditions) 

Synthroid is the number one prescribed drug in America!

This is no accident and it will not be easy to battle the industry that achieved this coveted ranking.  Doctors clearly have been trained to use synthetic T4-only meds as the treatment of choice, having been convinced that it is highly effective.  Trying to change this at the medical school level will likely never happen.  Attempts to enlighten physicians who are convinced that levothyroxine treatment and normalizing TSH levels is the best care will rarely lead to change.  In fact, general practitioners and internal medicine docs will continue to get it wrong as long as endocrinologists and the American Thyroid Association (ATA) promote Synthroid religiously.  Those who have seen the light, thanks to educators like Janie Bowthrope, will laugh (then cry) when they read the preview from the ATA’s published pocket guidelines http://eguideline.guidelinecentral.com/i/521958-ata-hypothyroidism-pocket-card How could these smart folks be so misinformed and allow patients to suffer?

What can one eye doctor do?

I’ve decided to review residual symptoms with every patient who comes into my office taking any form of hypothyroid medication.  The majority of them have never reviewed such a list!  Occasionally, a patient will not circle a “single symptom”, but more often patients will have “several” symptoms.  I offer a 3-page summary of how hypothyroidism can be properly treated and, of course, I have them google STTM.  After counseling over 100 of these patients (with only one complaint), many have returned to say thank you.  Sadly, most patients get the push back from their MD and will remain on T4-only meds.  I’ve also learned that if a physician has not studied the use of natural desiccated thyroid and is only committed to normalizing TSH, even the patients who convert to NDT may still suffer due to ineffective dosing.

I treat many patients with dry eye syndrome, which is very common and sometimes costly to treat.  I am convinced that treating dry eye syndrome in a patient who is undertreated for hypothyroidism is like trying to change a flat tire on a car that is still moving.  Every eye doctor should take an interest in this disease even if for this reason alone!

What can a patient do?

Refuse to tolerate inadequate treatments.  Be passionate about your own health.  Recognize that very good doctors with good intentions have been misinformed and may be facing tremendous pressure in our rapidly changing healthcare system.  They do not quickly change deeply held beliefs when it comes to recommended treatments.

Study Janie’s recommendations.  Make an effort to help your physician understand.   //www.stopthethyroidmadness.com/doctors-need-to-rethink/  When seeking a new doctor, nurse practitioner, physician’s assistant or osteopath, ask questions before you make an appointment.  And do not assume that a board-certified endocrinologist is any more enlightened about this disease.

Final thoughts

My best analogy in attempting to drive home the importance of optimal treatment of hypothyroidism in my patients is to show them their vision as it would appear through a half-strength pair of glasses.  I ask them if they would be happy to see like this.  I ask them how quickly they would find a new eye doctor who prescribes full-strength glasses.  They get it.  I’m passionate about this disease and the patients who are literally suffering and feel uninvited to shout “I feel like crap!” to a doctor who won’t listen.  Together, we will make a difference.

Matt Dixon, OD

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Dr. Dixon has practiced in Perry and Warner Robins, GA for over 25 years.  He provides comprehensive eye care and frequently counsels patients regarding wellness.  He has written numerous articles on eye disease and the business of optometry.

He is married to Jenna and has 3 children and 2 dogs.  He is an aspiring songwriter and has recorded 2 albums.  Thanks to NDT, he is quickly becoming a CrossFit addict.  www.drmattdixon.com

LYME SUCKS!! In Loving Memory of Paige Adams, FNP, B-C

Paige Adams, FNP, B-C UPDATED(Paige Adams died Sunday night/early Monday morning, due to her Lyme disease. And if you didn’t know her, I want you to.

In honor of Paige Adams, the Lyme Warrior….)

When I was contacting certain medical practitioners in 2014 to be in the STTM II book, one that I knew I wanted in there was Paige Adams.

Paige was a Nurse Practitioner with a fabulous reputation among patients as owner of The Center for Proactive Medicine in Nashville, Tennessee.

And Paige herself was a fighter! She had problems for many years and successfully treated her hormone imbalances like PCOS and infertility, Crohn’s disease, severe adrenal fatigue and Hashimoto’s disease. Perhaps that is why she specialized in treating difficult cases at her clinic…

And oh was Paige a fun and extremely loving individual, as so many others know! In our many email correspondences, she would start her message with things like “Hey Lovely Lady!” or “Hey Gorgeous!” or “Hi Ladybug!”. Or she would end her emails with “Much Love n Blessings”.  She always made me chuckle with her exuberant, sweet and loving personality.

Paige strongly supported this thyroid patient movement for better health care as well as our power in being informed patients and our best advocates. Her chapter happened to be about Reverse T3 in the Stop the Thyroid Madness II book, titled “Moving Forward with Reverse T3: The Causes and Health Implications”. And she wanted me to include all sorts of wonderful and cute graphics in the chapter, which you will see in Chapter 11. You can discern her dynamic personality in the way she wrote that chapter.

She concluded her wonderful chapter with the following words of wisdom:

The best best advice I can give to my patients is this:

– Eat clean (preferable gluten-free)
– Drink plenty of filter spring water
– Exercise to tolerance
– Find time to enjoy life and to laugh. I mean laugh a LOT!
– Get your face in the sun for even a few minutes every single day
– Keep your [internal] gutters and downspouts clean
– Get your caboose in bed for plenty of uninterrupted sleep every night

Paige also knew about the importance of B12, supported the use of Low Dose Naltrexone, understood personally about the MTHFR mutation, was concerned about the connection between certain viruses and cancer, was interested in genomics, supported the use of Natural Desiccated Thyroid in the treatment of hypothyroidism, and had an special interest in autism in children, many of whom she treated.

One of several treatments that Paige loved was the Myer’s Cocktail–an intravenous nutrient mixture that could contain high doses of the B vitamins as well as magnesium, vitamin C and sometimes calcium.

Paige was an “avid and outspoken animal lover”, too, which she never hesitated to talk about in her Facebook posts. Paige also loved the Alabama Crimson Tide.

And Paige had Lyme disease

For those who don’t know, and in simple terms, Lyme is a tick born infection via a bacteria of what is called the Borrelia type. It is estimated to affect 300,000 people a year in the United States and 65,000 people a year in Europe¹, even though many more individuals get bitten by a tick without getting Lyme.  The good news about the bite is that if it’s attached for less than 36-48 hours, there is less risk you’ll get Lyme.²  But it happens.

If someone does get Lyme, the signs and symptoms of the disease vary and usually appear in stages.³ Many will get a bullseye rash on the skin within the next week or more: some do not. Others will get flu-like symptoms, ranging from achiness to fever to fatigue. Over time, which can take months to years and especially if untreated, individuals can develop viral infections, inflammation, aches and pains, shakiness and/or neurological issues…to name a few. Lyme is nasty.

Paige, unfortunately, had active Neuropsychiatric Lyme Disease, which she explained to me in the Fall of 2015 and was fighting it all with IV antibiotics and a great amount of oral medications.  Also known as Lyme neuroborreliosis, it’s the neurologic involvement of either the peripheral or central nervous system.

Bottom line, Paige was one sick lady and fought like a champion. Her dear mother confirmed that she lost her battle with Lyme during the night. There will be no service, but as soon as her mother announces it, there will be a way to make donations, which I will include as a comment to this post.

Lyme disease and you

Do know that each person’s case of Lyme is individual with many variables, both in outcomes and treatment protocols. Many do quite well after treatment. For more information…

– A video to watch about Lyme: https://www.youtube.com/watch?v=6OdP8Jndnyk

– And another video by Dr. Horowitz about the co-infections that can go with Lyme: https://www.youtube.com/watch?v=O9a-2Nb2sbk

- – Here’s an interesting page where the results of this gal’s survey questions were tabulated about Lyme treatments: http://willtherebecake.org/2015/11/11/success-rates-of-various-lyme-treatment-options-a-personal-study/ The rest of the website is excellent.

More sites:

http://ilads.org/

http://www.lymediseaseassociation.org/

http://whatislyme.com/where-to-start-lyme-info-for-newbies/

http://www.tiredoflyme.com/http://www.betterhealthguy.com/blog

Groups:

– This group is for women only and focuses on abx: https://m.facebook.com/groups/243181499182129?ref=bookmarks
– This one is all about various herbal protocols like cowden, buhner, white     https://m.facebook.com/groups/263709223729311?ref=bookmarks
– This one follows dr. Klinghardt: https://m.facebook.com/groups/712530532196662?ref=bookmarks
– LDI: https://m.facebook.com/groups/828673227222144?ref=bookmarks
– Another Cowden group: https://m.facebook.com/groups/1547743332142929?ref=bookmarks
– Cannabis for Lyme: https://m.facebook.com/groups/1506598772889860?ref=bookmarks
– Lyme and mold (mainly follows dr. Shoemaker): https://m.facebook.com/groups/1485904731739075?ref=bookmarks

Dear Paige, you will be missed by so many people! Thank you for touching all our lives with your sweet spirit, highly positive outlook, loving attitude, tireless efforts to help others in your practice and passions…and your wonderful contribution to the STTM II book! And we all send our deepest condolences to your mother and the rest of your family and closest friends.

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  1. https://en.wikipedia.org/wiki/Lyme_disease
  2. http://www.cdc.gov/lyme/transmission/
  3. http://www.mayoclinic.org/diseases-conditions/lyme-disease/basics/symptoms/con-20019701

Here is a great article by Paige:

Intravenous Therapies – Miracle Help for All

And remarkably, this is the beautiful graphic she posted on Facebook the day before she died… We should all post it on our pages in her honor.

Paige Adams quote she posted