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Year: 2007

Stop the Thyroid Madness 2008 NEW YEAR’S THYROID PATIENT RESOLUTIONS

For 2008, as a hypothyroid patient: I will:

1) expect that the relationship with my doctor will be a TEAM approach to my health care: not just his medical school/continuing education/experience, but also my own important knowledge and wisdom that I have gained (from reading sites like this), plus my subjective experience on my medication. My doctor does not live in my body or experience my symptoms; I do.

2) take the time to find a better doctor if my doctor refuses to respect the knowledge I have gained from reading sites like this, and/or will not listen to my subjective experience in my own body!

3) make my symptoms far more important than ink spots on a piece of paper called lab results, and will not passively allow a doctor to treat me ONLY according to those lab results.

4) give myself important supplements, including, but not limited to: selenium and zinc (helps conversion of T4 to T3), other minerals which may include magnesium, etc., plenty of B-vitamins (which are needed as I improve my thyroid function, besides supporting my adrenals), Vitamin C (also supports my adrenals) and more that I feel are suited for my needs.

5) be open to the fact that if Armour or other desiccated thyroid products don’t seem to be working, I am making one of several mistakes in my use of it, and will identify my mistakes and correct them.

Do you have others as a thyroid patient? Just respond to this post.

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Wear a Thyroid Advocacy T-Shirt!

Because so many of you asked….you can now order a THYROID ADVOCACY T-SHIRT. And let me tell you–it works!! I did a test run. Wore it to several places over several days to see what reaction I would get. And reactions I got. Sure, it was a person here or a person there. But you are planting seeds in each person who asks. And they will carry those seeds into their own better health…and tell others.

And if you think that because you are on a large thyroid forum or group, it means the word is getting out–it is! But we’ve only scratched the surface. There are still millions out there who don’t know why they gain weight so easily, feel tired, have rising cholesterol, hair is thinning, or have depression. They need to hear about this.

We have to change the current LOUSY thyroid treatment protocol from the bottom up by spreading the word. It’s WE who will go to our doctors offices and demand change! It’s WE who will stop putting money into the pockets of those doctors who won’t listen to what patients have learned and go to those who WILL.

Enjoy the shirt! And feel proud for the part YOU can play garnering attention and spreading the word! p.s. Right now, orders are from the US only. As soon as Bidpay updates their checkout, I’ll add International. STTM is not just MY website: it is YOURS.

ALSO REMEMBER: if you use Bidpay, you’ll need to use the CONTACT ME form at the bottom of the page to let me know which size. The Bidpay function has no place to designate size.

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Join the OPRAH WINFREY LETTER-WRITING CAMPAIGN

oprah-at-theoscars-in-2007-updated(This blog post was originally written in 2007, and informed thyroid patients at the time were disappointed in Oprah for not being informed or a good spokeswoman about the horrific way hypothyroid was being treated. Nothing changed. So we as patients just kept trodding along, chatting with each other.)

I have had many folks email me about their concern that Oprah is not only failing to get the message about her thyroid issue, but thyroid advocates and interviews are not sending the message about what information is needed out there…and the media has STILL not caught on to this HUGE treatment scandal of the use of T4-only meds and the TSH lab. So, by request, I have created a letter template that you can use to be part of a massive letter-writing campaign to Oprah.

Yes, I’m sure she’s very distracted by the heartsick tragedy of her Leadership Academy for Girls in South Africa, but it may also worsen her thyroid condition, as well as create a potential adrenal problem. So THIS is the TIME to make a MOUNTAIN in her mail room. Go here: www.stopthethyroidmadness.com/letter-to-oprah-winfrey/

Please note that you can also use the above template letter to email her, but if we can ALSO send REAL LIVE letters as outlined in the above page, that can make a HUGE VISUAL difference as to what we are trying to tell her.

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Site is back up….and beating a dead horse once again

Whew.

I go away for a few days on business, and when I get back, I find out that the site has been down the entire time! Turns out that the Domain name had expired, and notices of its impending expiration were being sent to an old, non-existent email address. Thus, I got no warnings and had no idea the domain name was about to expire. But we are back up…and they have my correct email address. 😉

And by the posts of alarm by thyroid patients on several yahoo groups, one thing sure stood out: THIS IS AN IMPORTANT WEBSITE for thyroid patients. The information compiled here was sorely missed!

Why was it missed? Because the information on STTM is ground-breaking, by patients and for patients. It reflects the hard-earned, tough-learned knowledge of YOU against decades of a thyroid treatment THAT HAS BEEN AND IS WRONG and HAS KEPT THYROID PATIENTS SICK!!

Equally as important, STTM gives ground-breaking information on the common condition of adrenal fatigue and how to treat it. There is now a growing body of thyroid patients who have successfully weaned off their HC thanks to the information presented here!

Second, I discovered via a few emails that there are some VERY generous and kind thyroid patients out there. One gal thought that something had gone financially wrong, and she offered to completely host the site and work on it according to my direction. HOW NICE!!

But do know that everything WILL be paid for (and especially now that they have the correct email. lol) You can also be a part of the cost by contributing to the web hosting. See the HOSTING DONATIONS ACCEPTED button at the bottom of each page, or go here. That donations allows YOU to be a part of this important information revolution for thyroid patients, besides helping me as the individual who owns this site and doesn’t have a rich uncle. 😆

And I think I will beat the dead horse in a new post above this one…in a few days.

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What planet to do you live on, Oprah??

Cuz it ain’t the one WE live on, dah’ling.

For a few years now, patients have repeatedly written the Oprah show, begging her to address the thyroid scandal of decades of T4-only medication and the lousy TSH lab, both of which have left MILLIONS of patients with lingering hypo symptoms while our doctors proclaimed we were NORMAL…and about a FAR better treatment called natural desiccated thyroid and dosing by symptoms, NOT the TSH.

And when she finally has a program which somewhat addresses the thyroid issue this week, she allows her hallowed guest, Dr. Christiane Northrup, to state “your symptoms are actually your soul’s way of bringing deeper issues to your attention.” Hogwash! And thyroid patient Mary Shoman has rightly proclaimed that “thyroid disease is NOT your fault, despite what Dr. Northrup says.”

But the issue goes even further. Oprah implies, by her own experience, that taking a month vacation and eating fresh foods is enough to make one well from thyroid disease?? Double hogwash! Thyroid patients seek to live some of the healthiest lifestyles there are. All you have to do is observe the conversations in most any internet thyroid patient talk group, and you will see daily posts on the best supplements to take, healthiest foods to eat, and best ways to de-stress our lives. We are overall a VERY educated group of patients about health, and we practice it. We HAVE to be in light of how poorly educated most of our doctors are about our thyroid disease. And in spite of all the above, our thyroid condition persists.

What has CHANGED our lives is leaving the scandal of T4-only treatment in the dust, and learning about desiccated thyroid like Armour, switching to it, and dosing according to the elimination of symptoms, NOT simply labs. We have also faced the fact that at least 50% of us have adrenal fatigue, which leaves us impatient and angry, with headaches and body aches, chronic back pain and body aches, a loss of passion, and sleep issues. And we have tread new ground in our knowledge on how to treat it, when many of our doctors pooh-pooh the reality of adrenal fatigue.

I love ya, Oprah, as do millions of women out there. But taking a month vacation and eating fresh foods does NOT cure our thyroid disease. So time will tell what went on with you! So now, all we can do is hope eternal that Oprah will get on the planet that the rest of us live on, and help us to spread the word as to why millions of thyroid patients have been suffering and about a far better treatment. If you can continue to have persistence, you can email her here. STOP the thyroid madness!

P.S. Go here to read thyroid patient Anna’s humorous experience with following the same kind of advice given on Oprah’s show.

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