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Dumb as boards; blind as bats

I use those phrases often. I can’t help it. Because it’s exactly what doctors are when it comes to thyroid treatment. It’s APPALLING.

Yesterday, I had the first of two book signings. It was announced in the paper, and I wasn’t sure what the turnout would be. I shouldn’t have wondered. It was a great turnout. People are GETTING IT that there is SOMETHING WRONG with their treatment. Around me stood several women, all still on T4 (Synthroid, Levoxyl, et al), and ALL suffering. All but one woman had weight problems. Several had rising cholesterol. Some admitted to being on anti-depressants. Some obviously had adrenal fatigue. And ALL were being told by their doctors that their thyroid treatment was now “normal”. Where can I go beat my head against the wall?????? They were eager to get the book and the knowledge it contained to change their lives!

So far, the book has been sent to Norway, Iceland, Belgium, UK, Austria, Sweden, Switzerland, Ireland, Australia and Canada, besides all over the US. The STTM website started the wheel to turn, and the book can only move it faster. And add it to other thyroid books which had begun to mention the truth (Broda Barnes being the first) as well as other groups and websites—we’ll eventually knock some SENSE and SIGHT in doctors, don’t you think?

The Stop the Thyroid Madness book, the bible of correct thyroid and adrenal treatment, by patients for patients, can be ordered here.

P.S. I live near one town which serves a population of nearly 35,000 people, and near another of over 4000 people, and there are plenty of doctors around here. Yet, there is not ONE doctor in this area that “gets it”. I sympathize with YOU if you are in the same boat.

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Has progress been made with thyroid treatment??

Sometimes I ponder: the current movement away from Synthroid & Levoxyl and all other T4-only meds to desiccated thyroid like Armour (as well as the understanding of the high prevalence of adrenal fatigue with thyroid patients), has been going on for ALL of the 21st century. In other words, patients were starting to talk about desiccated thyroid like Armour by the year 1999, and Yahoo’s Natural Thyroid Hormones group was started in 2002. Other patient groups sprung up around the same time. The latter group is also where the knowledge about adrenal fatigue in thyroid patients grew, which was further added to on STTM. So….has there there been any changes in the way thyroid patients are treated for their hypothyroid and related conditions?

The YES

Sometimes I can say a resounding yes! There are many doctors around the world who are looking at Stop the Thyroid Madness (STTM) and listening to what is says. STTM is about the real life changing experience of patients! Some doctors tell me outright, either via the Contact Me form or by responding to my blog posts here, that they are reading it and approving the information. Or, I find out about other doctors second hand by patients who tell me their doctor TOLD THE PATIENT to read STTM. The latter definitely makes me chuckle when so many doctors tell patients that information on the internet is DANGEROUS! 😆

I can also say yes when I read the comments of patients on various thyroid patient groups on the internet. Because of the information patients have learned from STTM, which is in turn passed into the groups, patients all over the world are making demands in their doctor’s offices, and some progress is being made all over the world.

And a final yes can be uttered by me when I see a few but growing number of websites promote desiccated thyroid.

The NO

But there are so many situations where I have to say no. 1) When doctors on internet forums TO THIS DAY continue to give lousy advice to thyroid patients, it’s disheartening. 2) When patients on thyroid patient groups TO THIS DAY continue to have doctors state each and every ridiculous give me a break comment, it’s sad. 3) When a famous female talk show host continues to ignore each and every email sent to her for years about the deplorable situation across the world with thyroid patients, as well as seem to misunderstand her OWN thyroid and potential adrenal problem, it’s maddening. 4) And when I can run into patients DAILY when I go to the grocery store, or to the gas station, or to any public place, who are still on Synthroid or Levoxyl and coping with innumerable symptoms of a poor treatment, not excluding adrenal fatigue, it’s scandalous.

So the complete answer? Yes and no. The ball has definitely been rolling for better treatment. Some doctors out there are truly listening. Many patients out there are learning and demanding change. It’s happening. But baby, we have a LONG WAY TO GO. And the power will be in the hand of patients who question their treatment, find answers via STTM and other websites and patient forums, and continue to demand change from their doctors and the entire medical establishment. I just hope to see more change sooner than later, don’t you?!

p.s. Want to spread the word?? Go HERE to order a t-shirt or bumper stickers. You CAN make a difference!

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Does it make sense? Nope. In fact, it’s just plain STOOPID.

If you were told that water wasn’t important to your well-being, and thus, if you want it, you will now need to pay a LOT more for it, would that make sense?

Nope. And neither does what Medicare has decided about Armour Thyroid.

Medicare is the government’s health insurance for those of you age 65 or older. It’s also available for those with certain disabilities, and for any age with permanent kidney failure requiring dialysis or a kidney transplant. And recently, the almighty Medicare has notified those using Medicare that it will no longer cover Armour. Why? Because it fits under medications considered “less than effective.” And poop on top of garbage…Medicare also recommends T4.

You have got to be kidding.

Armour thyroid is conclusively, adamently and overwhelmingly changing the lives of those who switch to it. Conversely, T4-only medications like Synthroid, Levoxyl and others have conclusively, adamently and overwhelmingly left most if not all hypothyroid patients with continuing hypothyroid symptoms of one degree or another. Yet, Medicare has dictated that an inferior treatment is the medication of choice and will be covered, and a medication that changes lives is not worth being on their formulary.

There is a pervasive madness going on out there.

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Wear a Thyroid Advocacy T-Shirt!

Because so many of you asked….you can now order a THYROID ADVOCACY T-SHIRT. And let me tell you–it works!! I did a test run. Wore it to several places over several days to see what reaction I would get. And reactions I got. Sure, it was a person here or a person there. But you are planting seeds in each person who asks. And they will carry those seeds into their own better health…and tell others.

And if you think that because you are on a large thyroid forum or group, it means the word is getting out–it is! But we’ve only scratched the surface. There are still millions out there who don’t know why they gain weight so easily, feel tired, have rising cholesterol, hair is thinning, or have depression. They need to hear about this.

We have to change the current LOUSY thyroid treatment protocol from the bottom up by spreading the word. It’s WE who will go to our doctors offices and demand change! It’s WE who will stop putting money into the pockets of those doctors who won’t listen to what patients have learned and go to those who WILL.

Enjoy the shirt! And feel proud for the part YOU can play garnering attention and spreading the word! p.s. Right now, orders are from the US only. As soon as Bidpay updates their checkout, I’ll add International. STTM is not just MY website: it is YOURS.

ALSO REMEMBER: if you use Bidpay, you’ll need to use the CONTACT ME form at the bottom of the page to let me know which size. The Bidpay function has no place to designate size.

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Join the OPRAH WINFREY LETTER-WRITING CAMPAIGN

oprah-at-theoscars-in-2007-updated(This blog post was originally written in 2007, and informed thyroid patients at the time were disappointed in Oprah for not being informed or a good spokeswoman about the horrific way hypothyroid was being treated. Nothing changed. So we as patients just kept trodding along, chatting with each other.)

I have had many folks email me about their concern that Oprah is not only failing to get the message about her thyroid issue, but thyroid advocates and interviews are not sending the message about what information is needed out there…and the media has STILL not caught on to this HUGE treatment scandal of the use of T4-only meds and the TSH lab. So, by request, I have created a letter template that you can use to be part of a massive letter-writing campaign to Oprah.

Yes, I’m sure she’s very distracted by the heartsick tragedy of her Leadership Academy for Girls in South Africa, but it may also worsen her thyroid condition, as well as create a potential adrenal problem. So THIS is the TIME to make a MOUNTAIN in her mail room. Go here: www.stopthethyroidmadness.com/letter-to-oprah-winfrey/

Please note that you can also use the above template letter to email her, but if we can ALSO send REAL LIVE letters as outlined in the above page, that can make a HUGE VISUAL difference as to what we are trying to tell her.

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