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The tortoise and the hare: the STTM movement is the tortoise, but we’re winning!!

Hardly a person hasn’t heard Aesop’s fable of the tortoise and the all-too-confident hare, running their I’ll-prove-to-you-who’s-boss race. The hare was FAST and certain to win the run. But the ever-so-committed tortoise, even if slow, slower and slowest…was steady…and won the race.

Until recently, I thought our thrust and determination to change the Big Pharma, zombie-doctoring medical system in the treatment of hypothyroid would be like the hare. We’d get the attention of the mass media through our great determination, shout the message of a FAR better thyroid treatment, and create huge change.

But I think I was wrong. Change has occurred, but we have been doing it like the tortoise…slow and steady.

Slowly but steadily, we are seeing more and more doctors starting to “get it”, even if they still have a way to go. Slowly but steadily, folks are finding out why they have less stamina than others, or depression, or rising cholesterol, or fibromyalgia, or thinning hair in the face of the dogged “normal” diagnosis…all due to an inadequate medication called T4, aka Synthroid, Levoxyl, Eltroxin, et. al. and a lousy lab called the TSH.

Slowly but steadily, folks are finding out about desiccated thyroid to treat their hypothyroid, and cortisol to treat their adrenal fatigue.

Even the STTM book has been like the tortoise. Literary agents didn’t get it, nor did huge publishing companies. I finally stopped counting, but I bet I had over 200 rejections. They all thought it was simply “another” thyroid book. So the fruition of the STTM book came out of true sweat and tears, and a lot of cuss words as I squirmed through my frustrations. Yet, the STTM book–a PATIENT-TO-PATIENT book of which I was only the messenger, is not only a steady seller like the tortoise was steady, but sales keep growing every month, reviews are excellent, and lives ARE changing. How can you criticize a message, whether the STTM site or the book, that is based on the positive and critical experience of thousands of patients around the world!!

Change IS happening! Like the tortoise, we’re winning the race and creating change, bit by bit, whether it’s via STTM, various internet thyroid groups, other good books, or just word of mouth. We’re all a part of it. But we can’t be complacent, because it’s truly obvious by blogs and websites I read that there’s still a huge body of hypothyroid patients still suffering on T4 who need to find out what WE have found out. But it will happen, bit by bit. 🙂

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Dumb as boards; blind as bats

I use those phrases often. I can’t help it. Because it’s exactly what doctors are when it comes to thyroid treatment. It’s APPALLING.

Yesterday, I had the first of two book signings. It was announced in the paper, and I wasn’t sure what the turnout would be. I shouldn’t have wondered. It was a great turnout. People are GETTING IT that there is SOMETHING WRONG with their treatment. Around me stood several women, all still on T4 (Synthroid, Levoxyl, et al), and ALL suffering. All but one woman had weight problems. Several had rising cholesterol. Some admitted to being on anti-depressants. Some obviously had adrenal fatigue. And ALL were being told by their doctors that their thyroid treatment was now “normal”. Where can I go beat my head against the wall?????? They were eager to get the book and the knowledge it contained to change their lives!

So far, the book has been sent to Norway, Iceland, Belgium, UK, Austria, Sweden, Switzerland, Ireland, Australia and Canada, besides all over the US. The STTM website started the wheel to turn, and the book can only move it faster. And add it to other thyroid books which had begun to mention the truth (Broda Barnes being the first) as well as other groups and websites—we’ll eventually knock some SENSE and SIGHT in doctors, don’t you think?

The Stop the Thyroid Madness book, the bible of correct thyroid and adrenal treatment, by patients for patients, can be ordered here.

P.S. I live near one town which serves a population of nearly 35,000 people, and near another of over 4000 people, and there are plenty of doctors around here. Yet, there is not ONE doctor in this area that “gets it”. I sympathize with YOU if you are in the same boat.

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If this is normal, I’m not impressed!

Screen Shot 2015-09-03 at 2.06.02 PMThis page has been updated to the present day and time. Enjoy!

In 2008, I was getting to know a 40-something relative-in-law whom I hadn’t known long, but could tell we would click! She’s one of those people who could say things in a way that I’d be on the floor, laughing.

When she found out I had written the Stop the Thyroid Madness book, she got a copy and read it. And as she read, her eyes got bigger…and bigger…and bigger. The Thyroid Stimulating Hooey chapter was especially an eye-opener for her.

Turns out she has had fatigue problems for at least 14 years (while being told she was normal), starting right after her daughter was born. And that fatigue showed in her eyes and her demeanor (while being told she was normal). But that’s not all. She’s continually gained weight all these years (while being told she was normal), even though she eats like a bird (while being told she was normal), and has enough depression to warrant an anti-depressant (while being told she was normal). She was also getting worried about her cholesterol (but of course, she’s normal). And finally, she had low cortisol symptoms (while being told she was normal).

14 years of being pronounced “NORMAL” is as crazy-making as it get, don’t you think?

Why was she continually told she was normal? Because the TSH lab result said so. It always…always fell in that crazy-making “normal” range. And like so many doctors, her doctor believed ink spots on a piece of paper over all her very clear symptoms of NOT being “normal”. Talk about bringing her to tears.

I sent her to a MUCH better and hopeful doctor.

In 2006, the World Health Organization defined health as a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity. So…if you stuck “normal” in front of that definition of health, as misinformed, TSH-obsessed doctors so routinely tell us we are, it means that we have the symptoms expected of one who is in complete physical, mental and social well-being. Then why don’t we feel that way?????

Yessirree, somewhere along the medical perspective timeline, the ability to pay attention to the obvious clinical presentation of clear hypothyroid symptoms ran right down into the sewer. And with that loss has come hundreds of millions of hypothyroid patients worldwide with the schizophrenic diagnosis of “normal” along with raging symptoms thanks to ink spots on a piece of paper called the erroneous TSH range. And that is exactly why this website is necessary, as is the book and YOUR demands for better treatment.

I was schizophrenically “normal” for nearly 20 years while I had miserable and even debilitating symptoms. My relative had been for 14. How about YOU?

JanieSignature SEIZE THE WISDOM

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The STOP THE THYROID MADNESS book is out!

UPDATE: I am pleased to announce that the most gutsy, revolutionary, comprehensive and practical book on the subject of diagnosis, treatment, and medications for hypothyroid, as well as related conditions, including low ferritin, adrenal fatigue and other problems which befall hypothyroid patients…is out! This is YOUR book as a patient-to-patient book.

The link below will take you to the Publisher’s website. On the home page, you can read about the publisher. Then click on the PRODUCTS page to see the book and information. Click on the DOUBLE GREEN ARROWS to open up the entire text plus shipping information.

www.laughinggrapepublishing.com

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Yup, it’s done. It’s complete. And I can say without a doubt that there is NO book on hypothyroid as hands-on as this one. Why can I say that? Because the book is based on YOUR EXPERIENCE and thousands like you. Because this is THE patient-to-patient book. Yes, I wrote it, but YOU wrote it, too.

Where is the STTM book available? It will FIRST be available right here on the site in approximately two weeks. It’s about 300 pages and will sell for 19.95. So keep coming back here.

Is the STTM book a copy of the website? Not exactly. Yes, you will see some things in the book that ARE on the website. That was important. But….you will also find a chapter totally on T3. You will learn some history that’s not on the website. You will get more details on adrenal support. You will have new stories of others. You will read a chapter totally written for and about doctors. And there’s much more that is not right on the STTM site…little details inserted here and inserted there.

Why did I write it? Because though the STTM website has done WONDERS to reach people, MORE is needed. There are folks out there who are NOT coming to the web, or even know to look for answers, and this book will reach them. And….it can simply be more productive to have a BOOK to refer to and a BOOK to read when you are traveling in the airplane or waiting in the doctor’s office. AND…..FINALLY, we have something to HAND THE DOCTOR when he or she doesn’t get what we are talking about…or to our family or friends when they don’t get it, either.

Get ready. I’m excited. I hope you are too. img_0261.JPG

P.S. Guess what Oprah Winfrey may be drinking daily?? Soy milk. And since soy is a known thyroid inhibitor, guess what she’s doing to her thyroid? Quoted directly from her site: Thanks to all the yogurt and calcium-enriched soymilk she consumes, she’s getting an average of about 1,100 mg of calcium daily OOPS.

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Has progress been made with thyroid treatment??

Sometimes I ponder: the current movement away from Synthroid & Levoxyl and all other T4-only meds to desiccated thyroid like Armour (as well as the understanding of the high prevalence of adrenal fatigue with thyroid patients), has been going on for ALL of the 21st century. In other words, patients were starting to talk about desiccated thyroid like Armour by the year 1999, and Yahoo’s Natural Thyroid Hormones group was started in 2002. Other patient groups sprung up around the same time. The latter group is also where the knowledge about adrenal fatigue in thyroid patients grew, which was further added to on STTM. So….has there there been any changes in the way thyroid patients are treated for their hypothyroid and related conditions?

The YES

Sometimes I can say a resounding yes! There are many doctors around the world who are looking at Stop the Thyroid Madness (STTM) and listening to what is says. STTM is about the real life changing experience of patients! Some doctors tell me outright, either via the Contact Me form or by responding to my blog posts here, that they are reading it and approving the information. Or, I find out about other doctors second hand by patients who tell me their doctor TOLD THE PATIENT to read STTM. The latter definitely makes me chuckle when so many doctors tell patients that information on the internet is DANGEROUS! 😆

I can also say yes when I read the comments of patients on various thyroid patient groups on the internet. Because of the information patients have learned from STTM, which is in turn passed into the groups, patients all over the world are making demands in their doctor’s offices, and some progress is being made all over the world.

And a final yes can be uttered by me when I see a few but growing number of websites promote desiccated thyroid.

The NO

But there are so many situations where I have to say no. 1) When doctors on internet forums TO THIS DAY continue to give lousy advice to thyroid patients, it’s disheartening. 2) When patients on thyroid patient groups TO THIS DAY continue to have doctors state each and every ridiculous give me a break comment, it’s sad. 3) When a famous female talk show host continues to ignore each and every email sent to her for years about the deplorable situation across the world with thyroid patients, as well as seem to misunderstand her OWN thyroid and potential adrenal problem, it’s maddening. 4) And when I can run into patients DAILY when I go to the grocery store, or to the gas station, or to any public place, who are still on Synthroid or Levoxyl and coping with innumerable symptoms of a poor treatment, not excluding adrenal fatigue, it’s scandalous.

So the complete answer? Yes and no. The ball has definitely been rolling for better treatment. Some doctors out there are truly listening. Many patients out there are learning and demanding change. It’s happening. But baby, we have a LONG WAY TO GO. And the power will be in the hand of patients who question their treatment, find answers via STTM and other websites and patient forums, and continue to demand change from their doctors and the entire medical establishment. I just hope to see more change sooner than later, don’t you?!

p.s. Want to spread the word?? Go HERE to order a t-shirt or bumper stickers. You CAN make a difference!

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