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Tag: potassium

Thyroid Patients and their Doctors: all the information you need

DoctorI’m so glad I wasn’t yet into hypothyroidism when I was a child. I had a doctor named Dr. Roach. Yes. Really. And he was quite tall and very serious. Not the kind of guy who should have been a pediatrician. So when my mother took me into the office for my required childhood vaccinations, I was SCARED…TO…DEATH…of him. I would hide behind the chairs as if I could really escape this nightmare. It didn’t work…lol.

So IF I had to see Dr. very-tall-very-serious-Roach for hypothyroidism, I shudder to think how it would have gone. lol.

INEFFECTIVE DOCTORS

As adults, we have somewhat more choices on who we see. And even so, it’s not always an easy issue. Thyroid patients report far too many doctors who they feel are missing the mark in their thyroid disease treatment.

And I get that!! When I was on Synthroid and later Levoxyl and suffering miserably, I remember going to at LEAST 20 doctors over those years, trying desperately to get help for what was debilitating me…and failing!

And boy oh boy, are there some bad memories. One doctor decided to use me for his “experiments” and I was put on a medication which really had nothing to do with what I went in there for. In retrospect, I think he was using me for a medical article he wanted to write, which he did then and still does today.

Another doctor put his foot down in arrogance when I asked if I could please get my potassium, sodium and magnesium tested to see why I was getting blood pressure problems. “That’s not your problem”, he swiftly said. i.e. he came across as “I’m the doctor; you are not. Don’t ask for anything”.

And there were many doctors who, in light of my hypothyroid-caused depression due to being inadequately treated thanks to T4-only, told me I need to see a psychologist or get on anti-depressants. NOT the right answer when natural desiccated thyroid would have ended that depression!

Yes, I finally found a couple of medical professionals who have been wonderful! And that’s because they have started listening to our experiences, and are willing to learn from me, as well.

A better direction

Today, patients have a lot more help and a sense of proactivity in their treatment thanks to the education and support that Stop the Thyroid Madness offers. Here are pages related to doctors that may help:

  • TAKE A SURVEY as to your experiences with the majority of your doctors over the years. This will become important information which STTM will use in the future. Please contribute by answering the five questions! 
  • Here’s where you can see how patients find a good doctor. It can take a little work, but the end results will be much better. 
  • Don’t know how to say things to your doctor? Here’s a letter to your doctor which can help. 
  • And of course, YOU need to become informed somewhat ahead of time, because there will probably be some areas you’ll need to guide your doctor about. Here’s a summary of what patients have learned. 
  • Also helpful is to take a copy of the revised STTM book with you. You can have it bookmarked and read to open, if needed, in the discussion with your doctor. 
  • What if your doctor is the kind that needs research proof? STTM has a medical research page you can print out and hand to him. 
  • And to make you feel empowered, here is a page which outlines the areas doctors need to change in their thinking. 
  • Finally, get support from patients. 

Bottom line about working with your doctor

Yes, thyroid patients may be disgusted and angry about the lack of good care they’ve received, but it still helps to to interact respectfully and tactfully. And definitely be INFORMED. That will give you the edge and your doctor’s respect in return. If not, move on to much better doctor! Be our OWN best advocate!

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  • Want to receive these blog posts right in your email?? Sign up to the left of this blog post on the STTM blog page. 
  • Take the Survey Monkey STTM SURVEY as to your experiences with the majority of the doctors you have seen. 
  • Want to talk to Janie and learn about patient experiences and wisdom concerning your issues? Go to the Talk to Others page. 
2 replies

Electrolytes, Stress, A1C and diabetes, FDA, Las Vegas and more!

I’m amazed at lingering problems since being on T4: Though I’ve been on desiccated thyroid for 8 years, and do quite well since correcting low ferritin twice thanks to the lousy T4-only treatment, I discovered that my RBC magnesium is low, as I suspect my RBC potassium is, as well–all probably down due to chronic economic stress from this lousy economy.  But it underscores that we all have to be vigilant and not hesitate to periodically get minerals and electrolytes tested, especially RBC (Red Blood Cells), as well as anything else your doctor recommends, or you read about. Labs you can do yourself are here, then share with your doc. You can read about potassium issues here.

Under stress with the economy or the holidays? When stressed, I love and use the herb Ashwagandha. It’s been used for thousands of years in Ayurvedic healing, helping your immune system and stress response.  High dose B-vitamins are said to help counter anxiety and depression. Vitamin C is huge for your adrenals like the B’s, and has been known for years to counter the effects of stress. In fact, stress depletes it, so they state you are wise to raise it when under stress.  (Is Vit. C why I never got adrenal fatigue when I deserved to get it? I always took a lot.) Also recommended include the herbs Valerian Root, Marshmallow, Lemon Balm, Chamomile tea, Passionflower, and more. But first do research on any herbs and talk to your doc.

Hypothyroidism can falsely raise your A1C, implying you have diabetes even with normal blood glucose. Just got word from thyroid/adrenal patient Jackie about this study concerning the A1C test, here.  In turn, those on thyroid treatment saw their A1C fall.  We don’t know what the thyroid meds used were, but imagine even better results if on desiccated thyroid, which many patients report does a much better job than T4, especially in the presence of optimal ferritin/iron and adrenal function.

Don’t be complacent: register yourself: Sheila of TPA-UK is working to create a register of patients who have had continuing hypothyroid symptoms while on T4.  After she creates this register of patients, which right now only involves a couple of questions, she will create the a  Worldwide Register of Counterexamples to Levothyroxine (T4)-Only Therapy for. Register yourself here. This will also run alongside Dr. Gordon Skinner’s Worldwide Register, which you can also be a part of here.

Listen to a new video produced by the FDA about drug shortages here. I wonder what our own 2009 shortages with Armour and Naturethroid played a role in this video? Wonder if the FDA will ever admit that they were partly to blame for this shortage by shutting down the 2009 generics? Has anything been left out of this video?

No, Las Vegas Review-Journal. Hypo get undiagnosed because of the lousy TSH, not “subtle” symptoms. Yes, this journal did a recent article, quoting AACE as stating half of thyroid patients remain undiagnosed. The article then states it’s probably due to symptoms being very “subtle” or “very similar to other health problems such as anemia, fatigue, depression, slow metabolism and a wide array of other diseases.”  GROAN. It would be nice if these articles on hypo got it straight: hypo remains undiagnosed because of the lousy TSH lab test, which too many Endocrinologists worship, and because they fail to noticed the obvious symptoms of a hypothyroid state, which include anemia, fatigue, depression, slow metabolism and a wide array of other diseases. i.e. those ARE the symptoms of hypo, not “other health problems”.  When oh when will reporters DARE to state what patients have learned??  (Oh, and guess who included a link to this article in their email Thyroid Weekly? The Endocrinologist-loving, TSH-loving American Thyroid Association.)

Have a great holiday season!!

Janie

P.S. HO! HO! HO! The publishing company will send a book for you to a friend or loved one for a Christmas present. Go here.

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New addition to STTM: audio shorts

Because you requested it….now you can listen to me explaining certain subjects here: //www.stopthethyroidmadness.com/audio-shorts/ For slower connections, it may take up to 3 minutes to download each short.  For faster connections, it’s a breeze.

Know someone who you think has hypothyroidism but they have a “normal” diagnosis? Send them to the above page.

Know someone who’s on T4 who might listen to a new idea? Send them to the above link.

Know someone who has had problems with desiccated thyroid and threw in the towel? Send them to the above link.

*If you’re afraid of the newly formulated Armour, check out the post below about Naturethroid.  Below that, read about the Royal College of Physicians in the UK, desiccated thyroid in Denmark, Germany and Italy, and why you may need Potassium.

*Want to be informed of my blog posts? Curious what’s on my mind? Use the Notifications on the bottom left of the links.

*Have you read the STTM book?? It can be much easier to refer to than this website!

2 replies

I just proved an incredibly important way to measure your blood pressure!

bloodpressure

Last week, I had found my blood pressure quite high for me! Upper 140’s and some 150’s for my Systolic, and upper 90’s and lower 100’s for my Diastolic.   Stage One hypertension!  I was pretty sure my 4 grains may suddenly be a tad too high since entering meno.  My temps and heartrate implied that, too.

I got off Armour for two days to use up some excess, got back on one, then on 2 grains multi-dosed.  My plan is to make my way back up to 3 1/2 grains by a week or slightly more…and see.

In the meantime, I have been using some blood pressure lowering supplements (high dose potassium, grape seed extract, Braggs Apple Cider Vinegar in juice, more CoQ10 than normal, plus my regular supplements).  I was more faithful to my treadmill walking (thanks to an April that still thinks it’s winter), and meditating. The latter two definitely helped lower both the Systolic and Diastolic, even if not low enough for my ideal.

For the last five days, my BP readings have still been too high. All those days, I had been seated on our couch. I put a pillow in my lap, laying my arm on that pillow, which meant my arm was slightly downward.  Sometimes my wrist would hang off the pillow.

Today, I decided I wanted to test something I have read. Namely, it’s actually quite important how you place your arm. The recommended way is placing your arm perpendicular to your body and at the height of your heart or a tad higher, all while comfortable resting on something.  Elbow can be flexed, but your arm must still be perpendicular to your body and about heart height or slightly higher.

Below are four of my most recent afternoon BP readings with pulse: two with the Left arm, then two with the Right arm.

L:  139/106   98  (arm hanging down and resting on seated leg)
L:  122/88 89  (arm up, perpendicular to my body, supported by pillows)
R:  141/87     92  (arm hanging down and resting on pillow)
R:  123/85 89 (arm up, perpendicular to my body, supported by pillows)

What you should note is that the first L reading, and the first R reading, were with the arm relaxed on a pillow but lower than my heart.  The second of each is with the arm on two pillows, putting it perpendicular to my heart,  with elbow flexed, and all of arm completely supported.

I was shocked! Putting my arms in what research is saying is the CORRECT position gave me much better readings. I am VERY pleased with the 122 and 123.  Much better. And though the 88 and 83 Diastolics are not to my liking yet, and tell me I need more work, the difference between the arm positions was stunning….as is the difference in what I’ve been getting for five days.

More info: it was brought to my attention that taking a second BP reading is usually always lower anyway. Ah, I thought, that’s correct! So to test this information based on research, I went back last night before bedtime. First took my BP with my arm in the upper correct position. Then the second time, took it with my arm down.

138/89 (up perpendicular to body; level with heart) pulse 80
146/100 (arm down) pulse 82

The second did NOT go down. It went UP! Interesting.

*Want to be informed of the STTM blog postings?? Curious what’s on my mind? Just use the Notifications to the left at the bottom of the links.

**Are you in the US and want to help make sure we don’t end up like the UK, having our Armour taken away?? In the post below, I have given you SEVEN STEPS that I hope you will follow through on!  YOU can make a difference.

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What happens to you….just happened to me

Last week, after hours, I called the office of the Nurse Practitioner I have used as my doctor for 5 years. I left my message–that I have had rising blood pressure and was curious what she would recommend. (And yes, I like her.)

I mentioned that I was slightly lowering my Armour, just in case the iodine I had been giving myself for a year was now causing my Armour amount to be too much (and contributing to my BP). I also mentioned that I had found many articles on the net about the benefit of taking CoQ10 for rising blood pressure…plus the fact that low levels of potassium and magnesium may place a role in at least 50% of those with rising blood pressure. I also asked if I could be sent lab papers so I can test my potassium and magnesium levels. I was curious.

Last Monday, the office called. It was the nurse under the physician that my NP works under, and whom I was FAR less impressed by. She explained that I would now be under his care, since blood pressure doesn’t fall under her specialty–female hormones. (first inner alarm).

Next, she says that the doc feels there is “no strong research” that CoQ10 will help me. (second inner alarm) I replied that there’s “no strong research” that Armour turns the lives around of thyroid patients, yet it does. Cough.

Finally, she stated that she doubts he will feel “comfortable” with letting me test my potassium and magnesium (final alarm). Excuse me…HE would not feel comfortable for me to know what my levels were? HE would not feel comfortable?? WHO’S BODY ARE WE TALKING ABOUT HERE?!?

And today…I received the lab papers I was to use…and all he checked were electrolytes….and TSH. Thud. Granted, there is a relationship between electrolytes and blood pressure…but I was appalled that he gave no respect to my request to know my potassium and magnesium levels….and wanted to test the WORST and most unreliable “thyroid” test there is.

I have tossed those lab papers…and I am making an appointment with a new doctor…one I have heard about from another patient….and who has a reputation of listening, not simply dictating.

p.s. I’m back on my regular amount of Armour. And..my blood pressure has fallen to a respectable level: 125/74 tonite…and 105/69 the other night. What did it? Probably the release of stress from letting go of some responsibilities. I’m also making sure I take a full spectrum of minerals, CoQ10, and I’m back to walking aerobically at least 4 times a week. And finally, I’ve been using a tablespoon of apple cider vinegar (acv) daily with 1/4 tsp baking soda for over two weeks. The acv has done wonders for my husband’s FORMERLY poor digestive issues….and there’s evidence it helps control blood pressure in two weeks!! (Remember: these blog posts are ONLY for comments. Want to talk to others? See the TALK TO OTHERS link on any STTM page.)

4 replies