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Tag: antidepressant

If you could turn back the clock, would you have started on NDT instead of T4-only??

CLOCK turning back.bmp“If you could turn the clock back to when you were first diagnosed, would you even have bothered trying the synthetic Thyroxine (T4-only) or would you have jumped right in with NDT (Natural Desiccated Thyroid)?”

The above is an interesting real question asked by a new thyroid patient recently to other thyroid patients in a forum.

She is in the dilemma that so many NEW hypothyroid patients find themselves in when their doctors are pushing T4-only, yet patient experiences as outlined on STTM are saying that NDT was a better treatment for all too many. WHO TO BELIEVE?? Sure, some state they do well on T4-only, but is there more to the story?  Here are the answers from many different individuals in that string, plus more:

  • I would definitely go directly to NDT. NO doubt about it!!!
  • I never would have taken synthetics if I had known then what I know now. I have spent the last 15 years or so (maybe longer including the undiagnosed time) not in optimal health.
  • I agree 100% with the above two comments!
  • I would never have started on synthetic. Straight to ndt!
  • I was diagnosed 6 months ago. I switched after 2.5. I never felt any improvement on levo. If anything felt worse
  • I have been on over 9 different meds for the last 5 yrs. I found the STTM site, switched to NDT and I will never go back to all those drugs/meds! Life is actually returning to my body! The dr’s can keep you sick! Just my own personal experience!
  • I agree with the above. Had I known I would have never of taken Syncrap (Synthroid). Now I’m trying to fix the damage that has been done.
  • I have only ever been on synthetic (nine years), first Levoxyl and most recently Tirosint. If I had to do over, I would have tried NDT first no doubt.
  • On Eltroxin, heart issues were chest pains, numbness on my left arm, tachycardia, inverted t waves on the ECG which led them to believe i had a heart attack. I had a crazy fever and was doing reverse t3 clearout when that happened, but had it not been for synthetic, i believe i would not have gotten that bad. After taking synthetic for just a few months i also became thyrotoxic with large amounts of t4 pooling in my blood which ultimately meant to me i had conversion issues.
  • I’ve been on synthetic for 15 plus years. At the time I was desperate and even though I’ve done mostly natural on a lot of other fronts… I wasn’t aware there was an alternative. It seemed like a lifesaver at the time, as I was desperate. Now, with all the additional issues, which may likely be connected, I’d go with the natural for sure.
  • I took Synthroid, Levothyroxine and Cytomel… none of these synthetics helped me. I think my fibromyalgia diagnosis 15 years ago was due to an undertreated thyroid on Synthroid. I lost a LOT of hair as well! Armour’s resolved my hair loss within a week. It’ll take a while to grow back, but at least I’m not losing handfuls anymore!
  • I would have gone for Natural…I was HORRID on Synthroid
  • A year ago I got so sick I could barely walk to the bathroom. I couldn’t breath, shower, walk, and literally felt like I was dying. MY levothyroxine was raised from 225 to 275 which bought my TSH from 15 down to 2.5 which my NP thought was “great” – all the while I’m telling her I feel like I’m dying.  I will never ever go back to SYNTHETIC (T4-only)!!  Only wish I had even known there was NDT 25 years ago. I JUST heard of NDT 6 months ago through a Yahoo Group and then thank GOD I found STTM.  
  • If you have a choice ndt is a great option.
  • I would too have gone straight on NDT. I spent 2 yrs fighting with my levels (going from hypo to hyper) while taking Synthroid and Cytomel. Not one of the 5 doctors I saw could ever get me regulated. Within 3 or 4 months after I started self-treating (because I was living overseas where they don’t even have NDT) I was optimized…lost almost 40 lbs and felt wonderful.
  • I would have absolutely gone with NDT first…
  • If I had stayed on Synthroid for 6 months, I would not be here now because I would have committed suicide. I was thinking about it at 2 months. Thank God I discovered NDT (Natural Dessicated Thyroid) hormone then and switched.
  • I was on Synthroid for a good 20 years and would have said I was doing great, energy-wise. But I never realized that my rising cholesterol, need to nap and antidepressant was due to Syncrap being inadequate. I wouldn’t do it again, in spite of having better energy than others. 
  • I would not have tried synthetic thyroid first. NDT closely resembles the human thyroid hormones. NDT has T1 and T2 (which they are not even sure what the purpose of these thyroid hormones are yet), T3, T4, and Calcitonin. Calcitonin is important for bone strength. People who have taken synthetic, T4-only thyroid have eventually developed osteoporosis. Our bodies need all the ingredients in natural thyroid.
  • That’s easy. I would have started on desiccated. Why take the risk when T4 has caused so many problems for so many?
  • Yes. I am one who was started on both T4 and T3. I thought it was the right thing. When I switched to Np Thyroid, it was hugely better. It’s true what peeps say about it better even better. I do have good iron and cortisol.
  • Yes, yes, yes.

Another gal mentioned she would have gone to to the high iodine protocol first (on the premise that her hypothyroidism coud have been from low iodine).

Another said she didn’t do well on NDT, but she and any others in her shoes can discover why here i.e. it’s not about NDT–it’s about two common issues that NDT will reveal, and if treated correctly, one can soar on NDT!

Another felt it was a tough call due to some doing well on T4-only…but you have to consider that many aren’t as well as they claim (and are taking meds to bandaid the symptoms of a poor treatment), or they will and do see more problems crop up the longer they are on, in spite of doing well now.

Yes, if I could turn back the clock, I would have had better life experiences.

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Washington spits in your face, anti-depressant problem, and the STTM book is now in German and Swedish!

The US Government is going to confiscate your meds sent from overseas!

Fall is in the US, but as you were enjoying your summer, it happened in a flash:  last July, President Obama signed into law the FDA Safety and Innovation Act (S. 3187). And that Act includes a section that might negatively affect your life as a thyroid patient if you are among those feel forced to get your life-saving natural desiccated thyroid (NDT) or related medications from overseas (because your doctor was too clueless to either prescribe NDT or give you enough thanks to the medical stupidity about the TSH lab test).

i.e. in Section 708, the US government now has the authority to destroy a package of personally imported drugs at their point of entry to the United States…even if you badly need them. And this potentially includes NDT like Erfa coming to us from safe, reputable Canadian online pharmacies by prescription! Or your T3-only from other places. Both the latter are unclear, but it’s a possibility.

And do you know why they state they are doing this?? For your “SAFETY”.  Janie’s eyes rolling here.  Can someone tell me how they know if a thyroid med from somewhere else is “unsafe” simply because it wasn’t made in the US?? Are US-made drugs SAFE??? Give me a break. Ask that of folks whose lives paid big prices because of side effects from our FDA-approved medications like Synthroid and many other NON-thyroid related drugs pushed upon us. It’s all a bunch of Big Pharma-influenced, greedy hooey, say thyroid patients.

Now as far as we know, this isn’t going to affect anything really soon. The US Secretary of Health and Human Services has up to two years to decide how to make the new law a reality. But it may happen far sooner than later in that time frame and I would count on it.

Says Lee Graczyk, RxRights Lead Organizer, “It’s critical for people to stand up and get organized to fight against this harmful regulation!”

Anti-depressant use and your adrenals: not a helpful connection for some

Sure, having depression is not fun and it’s understandable if you want to do something about it. My own mother had depression so bad thanks to her lifelong use of Synthroid that she used anti-depressants her entire adult life. This was long before we, as thyroid patients, discovered the strong connection between low T3 levels in the brain and depression (and a connection which all too many doctors miss!)

She also had an extremely “emotionally apathetic” personality, which I assumed was solely due to the electric shock treatment she had while in her early 40’s in an attempt to reverse the depression. But turns out her impassive and flat personality could have also been from the nasty side-effects of my mother’s long-term antidepressant use. i.e. while they made her “happy”, they also made her more dull, flat and detached. This has been reported by all-too-many patients

But now we are seeing the problems that anti-depressant use can cause for your adrenals. A study done in September 2011 titled Antidepressant use and salivary cortisol in depressive and anxiety disorders reveals that

  1. Tricyclics* flatten your cortisol awakening response
  2. SSRI users** had higher evening cortisol levels
  3. Most antidepressants are associated with distinct alterations of the HPA axis (hypothalamus, pituitary and adrenal feedback loop)

*A common form of Tricyclics is Elavil (Amitriptyline).  **Common examples of SSRI antidepressant (Selective serotonin re-uptake inhibitors or serotonin-specific reuptake inhibitor) include Lexapro, Prozac, Celexa, Paxil, Zoloft, etc) 

The alternation of your HPA axis is a common finding when you peruse several research studies. And it’s even more obvious when thyroid patients with adrenal fatigue start using the T3 Circadian Method. i.e. it can take longer to get the right response from the T3. ***Please note that this is simply providing information in the name of being informed patients, not a recommendation to get off your antidepressant!  Talk to your doctor.

(Speaking of mood issues, a study was done showing cherries help with mood. Who would’ve guessed. You can read about it here.)

The revised Stop the Thyroid Madness book is now in German and Swedish! 

You can read about the translations here and I included an autobiography of each translator!  Please do not comment asking if a particular language is coming. I’ll announce them when the day comes.  If you know someone in Germany or Sweden who could badly use the patient-to-patient information in this book, go here.

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How LDN, Baking Soda and ALA cured her cancer–very remarkable story!

I meet many amazing individuals via the internet who have struggled with thyroid problems and clueless doctors. And my latest internet thyroid friend is Francie.

Francie  is the owner of an Multiple Schlerosis group that uses LDN (Low Dose Naltrexone) in their treatment.  And besides having dealt with MS, she is a thyroid patient who had half her thyroid removed due to a cancer threat.  Afterwards, her doctors never suggested that her fatigue, feeling cold, and weight gain was anything except in her head while pushing SSRI anti-depressants on her. She asks “Why can we not keep it simple? Why do they think that we need powerful prescription drugs when a simple hormone can do wonders? “

But Francie’s story goes beyond her thyroid issue. She played a huge role in CURING HER UTERINE CANCER through the use of LDN, Baking Soda, and ALA (Alpha Lipoic Acid). I was SO amazed that she gave me permission to post it here. Read this!

I have found three cheap, easy and safe suggestions to combat cancer: LDN, Baking Soda and ALA.

LDN is Low Dose Naltrexone. I originally started to use it for my Multiple Sclerosis and it honestly gave me my life back. I kept reading about others who were using it for cancers (and other auto-immune diseases, too, like Hashimotos), but that did not affect me, so paid little attention other than to note that the treatment adds Alpha Lipoic Acid, which is a very powerful antioxidant, among other things.

Then in September, I was diagnosed with uterine cancer. Upon examination, it had apparently spread to the cervix, since that area was white and not good looking. Since I could not get an appointment for a couple of weeks (we have no insurance and the only option in this country was the University of Louisville teaching hospital) I decided to do all that I could to combat it during the wait.

I added the ALA (two 300mg capsules daily on an empty stomach) and along with that, infusions of baking soda in the uterus and then a soaked tampax next to the cervix. Within two weeks, the cervical lesions were gone.

Two weeks later, when I went to Mexico for surgery (I really did not need that uterus at age 62), the pathology showed that there was no evidence of cancer on the cervix or surrounding tissue. I attribute that to the constant sodium bicarbonate environment.

There was also no evidence of cancer in the adjacent lymph nodes or pelvic fluid. I attribute that to the LDN and ALA. It was obvious that the cancer predated my use of the LDN, which enormously improves the body’s own immune system, and there was no indication that it had metastasized outside the uterus. Inside the uterus is very hard for anything to penetrate as it is designed to be walled off from the body’s immune system, since it is made to hold what is recognized as a parasite to the host (baby in a mother.) So it is not surprising that the tumor was not killed in the uterus.

I also refused chemo and radiation. With the clean pathology, all of the Mexican doctors recommended that I take care of myself stay as healthy as possible. All of the US doctors recommended chemo at $10,000-15,000 per treatment. If they don’t recommend it and something happens, they can be sued. If they do recommend it and they kill you with it, they cannot be sued. That does not say much about my part in the equation.

There are excellent videos that explain these treatments. Doing a Google for “LDN ALA and cancer” will get lots of info. There is also a yahoo group called lowdosenaltrexone with more than 9000 members, including very knowledgeable doctors to help.

To do some research, one cannot do better than get Dr. Berkson’s book: “The Alpha Lipoic Acid Breakthrough”. He has cured even pancreatic cancers and has the scientific research to prove it. You can see his speech on YouTube here: http://www.youtube.com/watch?v=WqRwXEnPYKk

Like me, you probably want to really beat the bushes and use anything and everything that seems logical, makes sense and CAN DO NO HARM, especially when they are cheap as well. That is what baking soda, LDN and ALA all promise.

Not one of my US doctors suggested any of these, and yet there are people who know that they have cured or stopped the progression of horrible diseases with just these cheap and available products. Our American medical system is drug and money driven. We are sadly, not much healthier for it, in my opinion.

My best wishes to all,
Francie
http://LDN-for-MS.com

AND A FOLLOW-UP SHE MADE TO SOMEONE WHOSE GIRLFRIEND NOW HAS CERVICAL CANCER:

Changing the pH factor makes a huge difference in most living things on earth. We all live in a very narrow pH range.

For this reason, I am always shocked that people are willing to take expensive and life threatening drugs for toe nail fungus, like the one sold on TV for instance. Soaking the feet a couple of times per week in a vinegar solution (1/3 vinegar to 2/3 water) will kill it right away. It can take a year of soaking while the big toe nail grows back, but at least you are not taking powerful drugs in the whole body to affect a small area. Same thing with fingernail fungus. Just keep a pill bottle of diluted vinegar near where you work or sleep and dip the finger in each day or so.

So, it was no surprise that changing the pH factor might inhibit cancer. My main hesitation was the leap to believing that cancer is actually a fungus. I am not so sure that it is.  HOWEVER, I can imagine that fungus sets in with an unhealthy environment and I can also imagine that fast growing cells (cancer) would be more affected by a pH change than normal cells. So, I don’t have to even believe that cancer is fungus to give a change of pH a try. It is cheap and easy and the main question to me is, “why wouldn’t you?” We are talking your life. It is worth saving.

I think that cervical cancer and skin cancer would be the BEST ones to try and probably the most successful for exactly the same reason listed above. You are directly treating the affected area rather than having to change the whole body environment, like with brain or lung cancer.

The cervix is the opening to the uterus. So, if they said cervical cancer, then it is not the same as uterine cancer (I am hoping it is not both, as it was with me.)

If I were your girlfriend. I would douche with a sodium bicarbonate solution. In Mexico, it is sold in drug stores as bicarsol, which is a 5% sterile solution. This is what I had my doctors rinse the pelvic region out with before closing my incision from my hysterectomy.

I don’t think that you need sterile for douching. I used a much more concentrated solution, but after talking with a doctor that I trust, he feels that a VERY concentrated solution could burn the healthy tissue in such a delicate region, as opposed to on the skin, where I read that patients use a baking soda paste.  As a suggestion, I would dissolve a tablespoon full in a cup of water, which should give a nicely basic solution. After douching, do not rinse out the solution, but leave it with that high pH all day.

No matter what else the doctors recommend, you can still do this. My cancer was also in the uterus, so we did infusions of baking soda solution directly inside the uterus. We have medical backgrounds and were not intimidated by this, although I apologize to any who are offended by talking about private areas 🙂 . I don’t know if it helped there, as the tumor was already quite large and I only had a couple of weeks between diagnosis and the surgery to remove it.

I am personally opposed to chemo and radiation and was determined to not go that route. With my use of LDN and ALA (low dose naltrexone and alpha lipoic acid), I feel comfortable that I am doing more and living a healthier life than if I poisoned myself as recommended by western doctors. I believe that in future decades, we will look back on that practice with bafflement and horror, like we look back on bleeding people to cure the plague in the dark ages.

Don’t let your girlfriend be traumatized or intimidated by her doctors. I found the US doctors cavalier, haughty and offended that I had my own ideas and did not instantly treat them like gods. They were horrified that I would go to Mexico for surgery at 1/10th the price that they wanted to charge for the same thing. Not one of them offered something that I could do while waiting for them to wave their magic wands, as if they have any cure other than surgery, chemo and radiation. They did not mention healthy eating, pH factor or immune system improvement or anti-oxident supplementation. They were close minded and dogmatic.

Francie  http://LDN-for-MS.com

From Janie: please note that I am not posting this for you to take things into your hands, or to direct you against radiation or chemo. Each person, along with working with a trusted and good doctor, has to make their own decision. But I found it VERY impressive and worth educating you about.

You can read more about Low Dose Naltrexone here.

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The story of one little bumper sticker about depression and a life potentially changed!

Reading and responding to my daily emails is a huge job that takes a lot of time. My 92 year old mother-in-law thinks I’m obsessed with my computer. ha!  If only she knew.  But some of those emails stand out in my mind.

As a recent example, one gal wrote to tell me she had suffered from depression for so many years due to her poorly diagnosed and inadequately treated thyroid condition. And because her use of desiccated thyroid had hugely improved her mood, she was inspired by and had purchased the STTM bumper sticker about depression. You can see it here.

And unbeknown to her innocent husband, the bumper sticker went on HIS car.

And just two days later, she explains what happened:  My husband was coming from his cardiac rehab exercises to the shopping center locally, and when he got out of his car,  another car pulled behind him, blocking the lane.

Turns out that the other driver, a man, jumped out and wanted to know what the bumper sticker means.

She continued: My husband figured the guy meant his Marine Corps stickers but no, he meant the thyroid sticker. So my husband says, bewildered ‘What Thyroid sticker’?

After realizing it was there, the other man explains how his wife has been diagnosed with thyroid disease and her dr. wants her on antidepressants.

She said: “My poor hubby only knew that I feel so much better on Natural hormones and I am not as depressed as I was before. All he could tell him was “she got it off the internet”.

I’ll bet he saw the URL on the sticker, and his wife is going to get some life-changing information from Stop the Thyroid Madness.  So we can never underestimate how little things we say, or show, or do are going to make a difference in someone’s life.

I hope each and every one of you are being “thyroid patient advocates” and spreading the word to others. If you like using bumper stickers or t-shirts, go here.

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ABOUT PROBLEMS WITH THE STTM SITE: There have been numerous problems with folks getting on STTM the last few weeks. The first problem was due to a software installed by my web designer to prevent attacks by spam bots. That was fixed. But if you visited during that time and use IE, just clear your caches. Others may need to use a different browser.  You then may be able to go back to your original browser.

But since then, more problems have creeped up. It’s called GROWING PAINS. i.e. STTM has become so popular that more problems pop up. And since we have limited resources, we just have to deal with them, one at a time. So please announce on all your groups that STTM has not gone away, that we are working to fix problems related to growing pains,  and to try again if they at first can’t get on. If you want to contribute to the hosting fees, go here:  http://www.dreamhost.com/donate.cgi?id=8074

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TWO SITES YOU NEED TO REGISTER WITH:

1)  http://www.tpa-uk.org.uk/register_of_counterexamples.php A Register of Counterexamples to levothyroxine-only-therapy, set up by Sheila of TPA-UK.  “Counterexamples” means all those symptoms which proved that T4-only meds do NOT work.  She will be using this to get the attention of doctors and authorities in order to re-examine the use of T4-only for all forms and degrees of hypothyroidism.

PLEASE NOTE: This questionnaire is only for those prescribed levothyroxine (T4-only) and who failed to get relief for the elimination of their symptoms, and who then started using a T3 containing hormone (either synthetic or natural). It’s also for those who were denied a diagnosis and treatment, and tried a T3 hormone containing product and found your symptoms became less.

2) http://www.worldthyroidregister.com/ A site established by Dr Gorder Skinner to gather as many signatures as possible to establish a Worldwide standard treatment for thyroid sufferers.

Is Cellulose the real problem in desiccated thyroid meds for many?

Screen Shot 2015-08-05 at 12.53.55 PM(This blog post is updated to the current day and time. Enjoy!)

When Forest Labs reformulated Armour desiccated thyroid in early 2009, they stated they increased the filler Microcrystalline Cellulose, and decreased the Sucrose (sugar). And all of sudden, the tablets became impossible to do sublingually–a method so many of us loved and which seemed to give even more of a punch.

And we were left wondering in 2009 why they would change a particular quality (being able to do the tablets sublingually) that thyroid patients praised so heavily?  Positive opinion among patients for Forest Labs back then slipped several notches. (Forest Labs was bought out by Actavis in 2014)

But the real cuckoo’s nest for many thyroid patients still on Armour in 2009, who knew firsthand the life-changing benefits of natural desiccated thyroid, was a maddening return of serious hypo symptoms on the 2009 Armour with its increase in cellulose, and subsequent new stress on their adrenals, sooner…or later! You can read several horror stories in the comments of the post below, or go here.

So patients turned to other alternatives, which at the time was Naturethroid and Westhroid by RLC Labs. (Naturethroid stopped working as well in 2018)

So what has been the common thread in the most problematic desiccated thyroid products?

It has always been CELLULOSE, a plant fiber, and more commonly known by the trade name Avicel. And what does fiber do in your stomach? Inhibits absorption. Armour’s cellulose was raised, and bamm…problems.  Compounded desiccated thyroid, with cellulose as a filler, has been problematic for many patients with a return of hypo symptoms, especially if it was Methyl Cellulose, a larger particle size product. But some have even had problems with compounded containing Microcrystalline Cellulose, the smaller cellular product. And a certain body of patients even had problems with Naturethroid back then before it became scarce for awhile. And Naturethroid used cellulose as a filler.

Note: With all the complaints, Forest Labs did change something about Armour by mid–to-late 2010. Though it never returned to what it was before 2009, it did become a softer tablet and patients did better on it. But we certainly learned a big lesson about cellulose in our NDT pills..

Is this problem true with T3-only products?

Yes. Patients noted that generic T3 was far less effective than the brand name Cytomel (both Liothyronine Sodium)  And what filler is up to 70% in the generic T3?  CELLULOSE.  

What does literature say about the use of Cellulose as a filler in medications?

Plenty. Cellulose is from wood. Wood is fiber. And fiber in your gut affects absorption. From http://www.umm.edu/altmed/articles/fiber-000303.htm we get this:

* Dietary fiber has been reported to lower the blood levels and effectiveness of tricyclic antidepressant medications…Reduced dietary fiber intake increased the blood levels and improved symptoms in these patients.

* While fiber supplements may help to regulate blood sugar levels, they may also interfere with the absorption of anti-diabetic medications….Therefore, fiber supplements should not be taken at the same time as these medications.

* Taking soluble fiber such as psyllium with carbamazepine (Tegretol), a medication used to treat seizure disorders, may decrease the absorption and effectiveness of carbamazepine.

* Fiber in the form of pectin (from fruit) and oat bran reportedly reduces the body’s ability to absorb cholesterol-lowering medications known as “statins,”… and could lead to decreased effectiveness of these medications.

* Fiber supplements may reduce the body’s ability to absorb digoxin (Lanoxin), a medication used to regulate heart function.

* Clinical reports suggest that psyllium or other soluble fibers may lower lithium levels in the blood, reducing the effectiveness of this medication.

* In one clinical study, the fiber supplement guar gum reduced blood levels of penicillin.

Fast forward to the present

If you are using a compounded desiccated thyroid medication, it’s strongly recommended to request powdered acidophiles, also spelled acidophilus, as your filler.  One gal states her compounding pharmacy uses powdered Ginger (but beware of too much Ginger if you have Mitral Valve Prolapse. It can cause palps if you take too much–my experience).  Others might use powdered Vitamin C.  See what other fillers your compounder can offer.

Another possibility is Cellulase, an enzyme which helps the splitting and breakdown of cellulose, It’s found on most supplement websites.

JanieSignature SEIZE THE WISDOM

*Join the STTM Facebook page for information, tips and inspiration!

* Become an informed thyroid patient! //www.laughinggrapepublishing.com

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