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Scandanavian thyroid patients sickened…and US thyroid patients don’t blame them!

The following was sent to several thyroid leaders and websites yesterday from Scandanavia. And if you don’t understand the full story, read what I have to say about it below…and you’ll see why thyroid patients find this disgusting:

To Whom it may concern in the matter of The H. C. Jacobaeus Lecture Prize 2012 by the Novo Nordisk Foundation

With grief we become aware that The H. C. Jacobaeus Lecture Prize 2012 will be awarded to Anthony Weetman at The International Thyroid Symposium on 29 November this year, in Gardermoen, Norway.

Anthony Weetman is painfully well known by thyroid patients worldwide in a way that is miles afar from the honor and gratitude.

Can it really be true that Novo Nordisk Foundation will honor Anthony Weetman from the UK, despite the fact that this doctor treats the majority of thyroid patients as mentally ill?

Is it a position on thyroid diseases and patients that Novo Nordisk Foundation shares with Anthony Weetman?

It is well documented that Anthony Weetman is practicing a simplistic approach to thyro-endocrinology.

Does this mean that when Novo Nordisk Foundation wants to dignify this doctor with The H. C. Jacobaeus Lecture Prize 2012, the Foundation supports Anthony Weetman’s oversimplification of thyro-endocrinology?

Considering HC Jacobaeus’ honorable contributions to the history of science, the H. C. Jacobaeus Lecture Prize 2012 to Anthony Weetman is to be considered as an affront to HC Jacobaeus and as an Novo Nordisk Foundation’s active contribution to the gap between doctors and thyroid patients that will become even wider and deeper than it is already.

Sincerely,
Administrators and users of thyroid forums in Scandinavia
Ref: http://www.sonjas-stoffskifteforum.info/showthread.php?t=15164

So what’s the story?

First, let’s look at the players: Novo Nordisk “is a global healthcare company with 89 years of innovation and leadership in diabetes care. The company also has leading positions within haemophilia care, growth hormone therapy and hormone replacement therapy.”

Anthony “Tony” Weetman has been a Professor of Medicine at the University of Sheffield in the UK for many years. Since 1991, he was also a Consultant Endocrinologist at the Sheffield Teaching Hospitals Trust. From 2005 – 2008, Weetman was President of the British Thyroid Association and presently is Chair of the Medical Schools Council and a member of Council of the Royal College of Physicians of London.

Why the disgust?  Weetman condescendingly believes the majority of thyroid patients have a somatoform disorder, which is just a medical way to say that millions of thyroid patients are no more than hypochondriacs. As a result, you are chronically exaggerating your symptoms and problems due to stress and worry. Thus what you think is wrong with you is actually the result of a MENTAL DISORDER! In 2006, Weetman revealed his true colors in an article titled “Whose Thyroid Hormone is it Anyway” (Journal of Clinical Endocrinology) by stating:

“The majority of patients who demand thyroid hormone treatment for multiple symptoms, despite normal thyroid function tests, have functional somatoform disorders…”

Bottom line, my fellow thyroid patients, Weetman is basically saying that your depression, heart problems, high blood pressure, low blood pressure, rising cholesterol, easy weight gain, hair loss, fibromyalgia pain, chronic fatigue, sluggish adrenal function, low iron, high liver enzymes, and a host of other very real hypothyroid-caused symptoms….ARE IN YOUR HEAD…especially if the TSH lab test (which patients know is a failure) says you are normal.

You can read my blog post from 2006 on Weetman here. And US thyroid patients support and understand the disgust of our friends in Denmark, Norway and Sweden!

WANTED: YOUR BEFORE AND AFTER PHOTOS OF HYPOTHYROIDISM TREATMENT

I have started a page where you can showcase how you looked before the right thyroid treatment, and afterwards, here. Combine a photo of how you looked before treatment, and after treatment, into one JPG, and use the Contact at the bottom of any page on STTM to send me the photo, your first name, age (not required) and treatment. Let’s show the world what thyroid treatment can do for your mental disorder. 😛

ARE YOUR DUCKS IN A ROW?

Have you been doing your complete thyroid treatment protocol correctly? Because for most all of us, there can be several bases to cover to feel wonderful again. You will find the following information covered on an actual page on STTM, here, as well. Using the revised STTM book can be an important in-your-hand reminder, as well, of the bases you need to cover.

Numbers 1-6 below are key elements to feeling better again, and must be maintained, as well. You will be making a mistake if you underestimate the importance of these.
  1. Thyroid hormones: being on natural desiccated thyroid and finding the right amount, or the amount you can tolerate until you correct #2 and 3 below. (See Chapter 2 and 12 .)
  2. Adrenals: bringing cortisol to right amounts whether through the T3CM or HC ( Chapter 6 of the revised STTM book)
  3. Iron: you need optimal amounts, not just in range. (See Chapter 13)
  4. B12: should be in the upper quarter of any range. Lower and you could have symptoms which resemble hypo. (See Chapter 13)
  5. Vit. D: should be closer to 80 (We go by the Vitamin D Council. Addendum C in book)
  6. Better Absorption: Putting one tablespoon ACV or any acid in the drink you use to swallow your supplements will enhance absorption—key for the low stomach acid too many thyroid patients have.
 Once you have made SURE all the above is corrected and then maintained, and if you still have issues….then it’s time to look at these:
  1. Re-activated EBV (Epstein Barr Virus): very common for hypothyroid patients under stress. My Med Lab tests this. 
  2. Lyme disease
  3. Other viruses: get your doctor to identify and test any other potential viruses.
  4. MTHFR defect: look this up if you seem to need high doses of T3 for “resistance”, have high iron, hard time getting nutrients up, high B12….http://mthfr.net/
  5. Chronic inflammation: can be discerned by too-high ferritin or a CRP test. You need to get this down. Can affect many things in your body negatively!
  6. Candida: promotes inflammation!
  7. Blood sugar
  8. Sex Hormones: low levels can make you feel bad. Also look into PCOS.
STOP THE THYROID MADNESS book is now in SWEDISH, GERMAN and ENGLISH. Get yours here….or send one to your friend or family member and let it help change their lives!
9 replies

The shackling and gagging of Dr. Sarah Myhill of the UK

(4-30: Paula has informed me that you can download Dr. Myhill’s complete website to your computer via this zip file: www.drmyhill.co.uk.zip – Windows Live )

Today, it has been announced by the GMC (General Medical Council) of the UK that Dr. Sarah Myhill is now straitjacketed. She is forbidden to prescribe medications, is bound by other medical practice restrictions (see the details on the Support Dr. Myhill Facebook page), and most egregiously, has been ordered to remove parts of her website (thanks to Lethal Lee for pointing this out), some of which you will not see two weeks after I have posted this.

Why remove parts of her website? Because by daring to educate the public, especially if that education goes against “standard medical practice”, it seems to be deemed “harmful”. In other words, you as a patient are not allowed to discover, or are too “vulnerable to get it,  that there just might be a TOTALLY different story to the medical practice you are subjected to.

For example, here is part of a page on Dr. Myhill’s website which is completely correct, informative, and wise, and I want to see her words stay sharp and viewable, especially for thyroid patients. It fits our experience. The page is titled “Test results and what they mean”. If you want to be informed, read all the below.

http://www.drmyhill.co.uk/wiki/Category:Test_results_and_what_they_mean

Only too often people come to me with tests results which have not been properly interpreted. The reasons why this happens are as follows:

  • Test results are flagged up and considered to be abnormal if they are outside the reference range, but one’s individual normal range is not the same as the population reference range. This is a particular problem in the interpretation of thyroid tests.
  • Reference ranges for tests change. Reference ranges are based on random bloods from the population. The trouble is anyone following a Western lifestyle is not evolutionarily correct and many not normal! So labs change their reference ranges to adjust for this. So, for example, the normal range of a gamma GT used to be up to 36, it is now up to 70. This enzyme is induced by alcohol and prescription drugs and because so many people drink alcohol it is considered normal to run a high gamma GT! The lab I use has a normal reference range for thyroid hormone T4 of 12-22pmol/l but some labs give ranges of 5.6-17pmol/l!
  • Tests are often incomplete. So someone with a thyroid stimulating hormone (TSH) within reference range will be told they have no thyroid problem, when in fact one also needs a free T4 and a free T3 together with a clinical history to assess if there is a thyroid problem.
  • Drug companies influence normal ranges. The normal range for cholesterol has come down steadily since statins have been such big money earners for Big Pharma.
  • Incorrect breakdown of test results. Many people are prescribed statins on the basis of a single cholesterol level. This is faulty for many reas ons – firstly one needs a breakdown of good (HDL) and bad (LDL) cholesterol to get the ratio. If the ratio is not favourable then this is likely to be a symptom of arterial disease. Cholesterol lowering drugs are often irrelevant. See Cholesterol – the common causes of raised levels
  • Results close to the limits of normal may be abnormal for that person. For example, a high normal bilirubin may mean Gilbert’s syndrome – this means someone is a poor detoxifier. A high mean corpuscular volume (MCV) could point to hypothyroidism, B12 or folic acid deficiency.
  • Normal tests do not mean no pathology. A normal ECG at rest does not mean there is no heart disease, yet many people are told this is the case.
  • Tests may ask the wrong question. So many people come to me with severe fatigue syndromes having been told nothing is wrong because all the tests are normal! But ask the right question and do Mitochondrial Function Profile and you find gross abnormalities with respect to energy supply at the cellular level.
  • Tests for poisonings are particularly misleading. For years doctors have promoted levels of cholinesterase as a good test for organophosphate poisoning. It is a rotten test and misses the majority of cases! Much better would be Fat biopsy for pesticides or Volatile Organic Compounds

GOOD FOR YOU, Dr. Sarah Myhill!

I and many other thyroid patients, struggling to fight the inane thyroid treatment protocols, have a strong feeling that though this progressive doctor may be restricted as a physician, we’re going to hear a lot more good information from the courageous and wise Sarah Myhill.

21 replies

Guess who I’m going to be talking with next week on Talkshoe??

If you read my recent blog post about it (click on link below or just scroll down on the STTM blog), or if you saw NBC’s Today Show, you’ll know that Dr. Kent Holtorf correctly diagnosed a clearly-hypothyroid woman, Nurse Practitioner Eola Force, by not going just by the TSH, and changed her life. He was criticized by an Endocrinologist as having “no real scientific basis”  for what he does in his practice, and it was equivalent to the “laying on of hands”.  (chuckle)

//www.stopthethyroidmadness.com/2010/01/28/endocrinologists-tsh-lab-test/

Well, it’s time to hear what Dr. Holtorf has to say!

Join us as I chat with him about this incident next WEDNESDAY, FEB. 17th at 6 pm Pacific, 7 pm Mountain, 8 pm Central, and 9 pm Eastern, right on your computer’s audio on STTM’s Talkshoe Call webpage (below). Call in to ask questions, too. MARK YOUR CALENDER! SET YOUR CELL PHONE ALARM! This is one introduction that I’m going to have fun with, don’t ya think??

http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&cmd=tc

***Note that we moved it to Wednesday nights. That should help with any dropped calls that were happening on busy Thursdays.

By the way,  Dr. Holtorf recently launched his new website, called The Non-Profit National Academy of Hypothyroidism in an attempt to reach doctors about appropriate diagnosis and treatment of hypothyroidism, which patients know does NOT include just the lousy TSH lab test.  Will doctors, and especially Endocrinologists, ever figure out this clear and easy truth?  Don’t we hope so.

Have something to say? Use the Comment function at the bottom of this blog post. If you are reading this via an email notification, just click on the title of this blog post to take you directly to the actual blog post.

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Gee golly bazooka: guess who started a conversation with me?

SumoWrestlersYesterday, I was meandering through a small biking/river runners store, exchanging a vest I got my son for Christmas that turned out to be too large, and looking intently for a replacement gift he’d like.

The only other shopper left—a tall, dark and handsome young man. And almost as quickly, he re-entered,  approached me, and asked if that was my car out there.

“My car?” I replied. “Yes, why?”

“I’m curious about the sticker you have on your back window,” he stated with a friendly but curious smile.

The sticker is of Calvin peeing on the word of a particular T4-only medication.  I give these away free if someone requests it with their current order of the STTM book.  And this was not the first time I’ve been asked about that attention-getting sticker.

So I proceeded to tell him that I’m a Thyroid Patient Activist, owner of Stop the Thyroid Madness, about the history of T4, how lousy many patients have reported doing on it for nearly 60 years with their own variety and intensity of lingering hypo symptoms, and how much better natural desiccated thyroid has been for patients all over the world.

I then innocently asked: “Are you on Synthroid?” I just knew I had one more victim of this treatment who needed enlightenment.

“Nope”,  he said with a confident and defiant air.  “I have until recently been a pharmaceutical rep with Abbott Labs.”

THWACK.   Standing before me stood a mighty well-trained Big Pharma champion for Synthroid who was going to reveal and defend his propaganda like a master. And that led to the most heated and piercing give-and-take I’ve ever experienced, right in front of the chagrined and wide-eyed sales person at the checkout desk. We were like sumo wrestlers butting our words against each other.

When I explained the slew of continuing symptoms reported by patients worldwide who have been on T4, and no matter how high they raised it…his response?  “Those symptoms can be the result of many issues other than hypothyroidism.”

I responded: “Well isn’t it odd that those who are hypo and on Synthroid, and who get on desiccated thyroid, find those symptoms completely removed.”

His reply?? “Heroin can do the same thing”.  Groan. I simply had to laugh at him. How many times have we heard the same kind of baloney.

He proceeded to tell me in great detail with each point he made that:

  1. He has worked with many patients and they do well on Synthroid (A rep has worked with many patients? And what in the world does “well” mean?)
  2. Clinical trials have proven that Synthroid works. (Ah! You mean those financed by Abbott Labs and which are contrary to the reported experience of millions of patients around the world? Those??)
  3. The TSH lab test gives proof about the efficacy of T4 (Funny how patients all over the world have proven by their continuing symptoms that the TSH lab test for the diagnosis and treatment of hypothyroidism belongs at the bottom of a trash heap)
  4. There are many differences in the efficacy of T4 brands to explain any issues in patients (Funny how not ONE brand of T4 has been exempt from leaving continuing symptoms according to the global rexperience of a huge body of patients) 
  5. Blaming T4 for the amount of adrenal fatigue that “supposedly” some T4-treated patients find themselves with is silly since there can be other reasons for it. (Another laugh on my part.  Clearly, when someone isn’t adequately treated on T4, something has to kick in to keep them going, and voila–it’s those trusty dusty adrenals which eventually just poop out thanks to T4 and the TSH.)

There were much more machine gun stances between us, but that would make this blog post far too long.

One truth we did agree on? That “some” patients do get benefit from using T4. He specifically referred to the elderly. And my quick response? Why accept “some” when patients all over the world report getting rid of that “some” with desiccated thyroid (and especially for certain ones who also treat their low cortisol, low ferritin, and other issues most likely related to an inferior treatment.)

Clearly, we were each deadlocked in our positions.  And he concluded, looking at the sales associate, that neither of us were wrong; we just represented two sides.

And I turned my head, looked him straight in the eye, and said:  Uhhh, no. YOU are completely and totally wrong.

P.S. After he left, the sales gal said she was totally in tune with what I was saying, and wrote down the name of this website. lol lol

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See the blog post below about favored Canadian pharmacies, plus many more comments by patients.

What the heck is going on with desiccated thyroid and current shortages? Read about it here.

28 replies

Dr. Lowe wants to talk to you more directly this Thursday–post your questions here!

Dr.JohnCLowe

Please note: Dr. Lowe is NOT an MD or DO who see’s patients and can prescribe. He’s a thyroid and fibro “researcher” with good knowledge about T3,  fibro, metabolism, supplements etc. Many questions have been coming in which are already answered on STTM, or are more targeted to a practicing physician, not a researcher. FYI.
🙂
1-14-08: COMMENTS with your QUESTIONS ARE NOW CLOSED TO POSTING.  There are more than he can answer right now. See you tonite!

On the heels of an informative and wonderful THYROID PATIENT COMMUNITY CALL on Talkshoe last week with Dr. John C. Lowe (see posts below), we’re going to do it again this coming Thursday, January 14th.  Join us for Part 2!

Dr. Lowe is a fibromyalgia, thyroid, and metabolism researcher who has always been such a champion for better diagnosis and treatment in thyroid patients. He is Editor-in-Chief of the open access journal www.thyroidscience.com as well as his own www.drlowe.com

And this time, Dr. Lowe is going to spend more time answering  your specific questions. Check out his websites above to get an idea what his expertise is, which includes the use of T3,  Hashimotos autoimmune thyroid disease, iodine, fibromyalgia, the tyranny of the TSH lab test, good supplements, the FDA, and more.

So here’s your chance: think of one or two questions you’d like to hear him answer. Please, if you have more more than two,  narrow them down to the two most important, and keep them brief.  No exceptions. Two max only, and brief.  Then use the Comments below to post them.  Be sure and check out if your questions have already been asked in other comments.

I’ll be collecting the questions ahead of time and will let him preview them. He wants to give you his best.

TIPS ABOUT TALKSHOE: Some reported being booted off and having to quickly rejoin. One step that may help is to download the Talk Shoe Live Pro ahead of time (takes 25 minutes for some) and use that software during the call, since it gives you far more stability.  Also, make SURE you have everything else closed and/or not running on your computer at the same time you are in the Talkshoe call. I will also be chatting with Talkshoe support and will get more ideas.

Also, don’t wait until the call occurs to mention your question. We found it difficult to try collecting them on the Chat. Ask now!!

Yes, you can also call in live during the Call, but it’s good to first let me know your question here.

And finally, at a certain point of those who join (after 300 on chat), Talkshoe participants are automatically unable to post on the chat. You can listen, but no chatting. So if you want to chat, join as soon as the Call opens up, which is 15 minutes before the actual audio begins. Times for the audio are 9 pm Eastern, 8 pm Central, 7 Mountain, and 6 pm Pacific.

The Stop the Thyroid Madness Talkshoe page: http://www.talkshoe.com/talkshoe/web/talkCast.jsp?masterId=62603&cmd=tc

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See the blog post below those about Lowe for a very insightful Guest Blog Post by Amy about her role as an Undercover Thyroid Advocate. Below that, you can read how I was wrong about what it was like to be thyroidless, and several great comments.

63 replies