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Tag: thyroid

What planet to do you live on, Oprah??

Cuz it ain’t the one WE live on, dah’ling.

For a few years now, patients have repeatedly written the Oprah show, begging her to address the thyroid scandal of decades of T4-only medication and the lousy TSH lab, both of which have left MILLIONS of patients with lingering hypo symptoms while our doctors proclaimed we were NORMAL…and about a FAR better treatment called natural desiccated thyroid and dosing by symptoms, NOT the TSH.

And when she finally has a program which somewhat addresses the thyroid issue this week, she allows her hallowed guest, Dr. Christiane Northrup, to state “your symptoms are actually your soul’s way of bringing deeper issues to your attention.” Hogwash! And thyroid patient Mary Shoman has rightly proclaimed that “thyroid disease is NOT your fault, despite what Dr. Northrup says.”

But the issue goes even further. Oprah implies, by her own experience, that taking a month vacation and eating fresh foods is enough to make one well from thyroid disease?? Double hogwash! Thyroid patients seek to live some of the healthiest lifestyles there are. All you have to do is observe the conversations in most any internet thyroid patient talk group, and you will see daily posts on the best supplements to take, healthiest foods to eat, and best ways to de-stress our lives. We are overall a VERY educated group of patients about health, and we practice it. We HAVE to be in light of how poorly educated most of our doctors are about our thyroid disease. And in spite of all the above, our thyroid condition persists.

What has CHANGED our lives is leaving the scandal of T4-only treatment in the dust, and learning about desiccated thyroid like Armour, switching to it, and dosing according to the elimination of symptoms, NOT simply labs. We have also faced the fact that at least 50% of us have adrenal fatigue, which leaves us impatient and angry, with headaches and body aches, chronic back pain and body aches, a loss of passion, and sleep issues. And we have tread new ground in our knowledge on how to treat it, when many of our doctors pooh-pooh the reality of adrenal fatigue.

I love ya, Oprah, as do millions of women out there. But taking a month vacation and eating fresh foods does NOT cure our thyroid disease. So time will tell what went on with you! So now, all we can do is hope eternal that Oprah will get on the planet that the rest of us live on, and help us to spread the word as to why millions of thyroid patients have been suffering and about a far better treatment. If you can continue to have persistence, you can email her here. STOP the thyroid madness!

P.S. Go here to read thyroid patient Anna’s humorous experience with following the same kind of advice given on Oprah’s show.

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Count on it: your doctor is going to ignore your symptoms

At the heel of Oprah’s revelation that she has a thyroid condition (see my blog post below) comes this article on September 13: Statins: Doctors ignore patients’ complaints of reactions to drugs

Boy howdy, doesn’t THAT sound familiar!

Sure, it’s about a non-thyroid drug called a statin, which has an advertised purpose of lowering your high cholesterol. But the information MIRRORS the experience of ALL thyroid patients!! Namely, the article shows that doctors rarely believe that the pill you are on is to blame for your “real – or imagined reactions”.

The article outlines a study that involved 650 patients who had complained of particular reactions after taking their statin. And the problems these patients observed are COMMON to being on statins – muscle problems, cognitive loss, and nerve pain called peripheral neuropathy (and my dear mother-in-law, who is on a statin, has all three). And what they got across the board is that their doctors either denied or barely considered that the statin could be causing the problems which the patient complained about!

And there’s a huge double whammy irony here. Namely, not only do thyroid patients have this exact experience when we are on T4-only meds and continue to have hypo symptoms that our doctors dismiss, but WE ARE A CERTAIN BODY OF THOSE ON STATINS because of one of the key continuing hypo symptoms that our doctors dismiss–high cholesterol.

Clinical presentation has gone by the wayside in favor of a lazy worship of the infallibility of pills.

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What happens to you….just happened to me

Last week, after hours, I called the office of the Nurse Practitioner I have used as my doctor for 5 years. I left my message–that I have had rising blood pressure and was curious what she would recommend. (And yes, I like her.)

I mentioned that I was slightly lowering my Armour, just in case the iodine I had been giving myself for a year was now causing my Armour amount to be too much (and contributing to my BP). I also mentioned that I had found many articles on the net about the benefit of taking CoQ10 for rising blood pressure…plus the fact that low levels of potassium and magnesium may place a role in at least 50% of those with rising blood pressure. I also asked if I could be sent lab papers so I can test my potassium and magnesium levels. I was curious.

Last Monday, the office called. It was the nurse under the physician that my NP works under, and whom I was FAR less impressed by. She explained that I would now be under his care, since blood pressure doesn’t fall under her specialty–female hormones. (first inner alarm).

Next, she says that the doc feels there is “no strong research” that CoQ10 will help me. (second inner alarm) I replied that there’s “no strong research” that Armour turns the lives around of thyroid patients, yet it does. Cough.

Finally, she stated that she doubts he will feel “comfortable” with letting me test my potassium and magnesium (final alarm). Excuse me…HE would not feel comfortable for me to know what my levels were? HE would not feel comfortable?? WHO’S BODY ARE WE TALKING ABOUT HERE?!?

And today…I received the lab papers I was to use…and all he checked were electrolytes….and TSH. Thud. Granted, there is a relationship between electrolytes and blood pressure…but I was appalled that he gave no respect to my request to know my potassium and magnesium levels….and wanted to test the WORST and most unreliable “thyroid” test there is.

I have tossed those lab papers…and I am making an appointment with a new doctor…one I have heard about from another patient….and who has a reputation of listening, not simply dictating.

p.s. I’m back on my regular amount of Armour. And..my blood pressure has fallen to a respectable level: 125/74 tonite…and 105/69 the other night. What did it? Probably the release of stress from letting go of some responsibilities. I’m also making sure I take a full spectrum of minerals, CoQ10, and I’m back to walking aerobically at least 4 times a week. And finally, I’ve been using a tablespoon of apple cider vinegar (acv) daily with 1/4 tsp baking soda for over two weeks. The acv has done wonders for my husband’s FORMERLY poor digestive issues….and there’s evidence it helps control blood pressure in two weeks!! (Remember: these blog posts are ONLY for comments. Want to talk to others? See the TALK TO OTHERS link on any STTM page.)

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