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Thyroid treatment success stories–read Erin’s story about T4-only problems and moving to NDT!!

peopleI love real life stories!

In fact, I think those kind of testimonies are some of the most influential ways to help others. And Erin’s story below really struck me. She spent years ignoring the idea that her T4 treatment with Synthroid and later Levoxyl just might explain all the growing problems she was having. So she finally saw the light, made a change, and is feeling so much better as she finally is working on the right issues. Enjoy her story! And if you want to read more, they are on the Stories of Others page, which anyone is invited to contribute to!

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HOW I MISREAD MY CONTINUED SYMPTOMS WHILE ON T4-ONLY…THEN GOT WISE

by Erin

I was diagnosed with Hashimotos Thyroiditis and post-partum depression after having my first baby at 23 years old.  I went to the doctor because I was so depressed and fatigued that I couldn’t get out of bed most days. I also had terrible headaches. My doctor put me on Prozac and Synthroid and I stayed on both for the next 23 years (also later used Levoxyl).

Continued problems

The Prozac did help me to be more functional; however, I still had periods of depression and fatigue, and developed other health problems as well, such as anemia, IBS, and chronic pain from TMJ.  I went back to my doctors seeking solutions, but they put me on new and different meds that didn’t help and actually caused worsening symptoms like sedation and dependence.  I was even diagnosed with bipolar at one point and on six different psych meds at one time!

I finally got off all the meds except the Levoxyl (which I had switched to from Synthroid)  and Prozac, and was able to go back to school and regain some functionality.  But I continued to struggle with chronic pain, periods of depression, fatigue, and digestive complaints.  My doctors periodically checked my TSH and told me I was optimally treated or raised my Levoxyl.  I didn’t question their testing or treatment methods, and did not connect my health problems with my hypothyroidism.

For many years, I just lived with the pain, discomfort, and fatigue.  I chalked it up to stress and aging.  But the IBS and fatigue got progressively worse until they were seriously interfering with my life.  I had bloating, constipation and pain that often kept me housebound.  I went to my doctor, and was told to change my diet, and take over-the-counter preparations for constipation.  He never suggested that my health problems could be related to my hypothyroidism.

My denial and my apathy

My mother, who began frequenting a particular thyroid website, told me that some people can not convert t4 to t3, that she was one of those people, and that I might be too. She encouraged me to go back to my doctor and ask him to test my t3 levels.  It seemed unlikely to me that my hypothyroidism was not being adequately treated! After all, I was getting my health care at a university medical center – a teaching institution.

My doctor ordered lab tests yearly and had not adjusted my Levoxyl for several years.  I think too I was just plain too exhausted to deal with it.  I barely had enough energy to get through work, let alone devote time to researching an alternative form of thyroid treatment that, in my mind, probably would not work anyway!  I think, too, the Prozac contributed to my failure to seek alternative modes of thyroid treatment by dulling the pain and keeping me apathetic.

The pain and discomfort of my IBS is what finally pushed me to take the first step to finding an alternative form of health care.  My husband had been insisting for a few years that I go to a naturopath or functional medicine doctor, but I didn’t want to pay out of pocket when I had medical insurance that I paid for each month.

My breakthrough, finally

Finally, I got on the internet and searched for a functional medicine doctor in my area, and found one not far from my house.  My new doctor, a naturopath, ordered comprehensive lab testing, which revealed that I had very low free t3 levels, severe anemia, low b12, low ferritin, high cholesterol, candida overgrowth, other digestive bacteria imbalances, and more!  He told me that my health problems were related to my hypothyroidism, which, he said, was not optimally treated on my current medications.  He advised me to reduce my Levoxyl and add .25 grain of Naturethroid each day.  He also recommended a variety of supplements.

When I first took the Naturethroid, I didn’t feel much. But about two weeks later I began to feel better than I had in years!  I could not believe how amazing I felt; it was like a miracle!  My IBS,  head and jaw pain went away, and I had feelings of well-being.  I was convinced natural desiccated thyroid was the solution to my health problems.

A bump in the road

About 10 days later, however, I started feeling anxious, restless, shaky, and having heart palpitations. I went back to my naturopath and he told me to stop the Naturethroid.  I felt intuitively this was incorrect.  I frantically searched the internet for some reason for my symptoms, and found STTM.  I learned that I couldn’t tolerate the Naturethroid because of my low iron and low cortisol.  I also felt empowered by what I learned on STTM; the site encouraged patients to make their own decisions about their healthcare.  After that, I took over management of my own health care.  I told my naturopath what I had discovered, and he agreed to adopt the treatment plan I felt was right from what I learned from STTM.  Fortunately, he was open-minded and has been willing to be my equal partner in my health care.

I learned from the STTM site, book and forums that recovering from years of untreated hypothyroidism from staying on T4 meds is more complicated than simply getting on NDT.  It takes a lot of work to stay informed, investigate, identify and treat the root causes of my health problems with natural remedies.  It is far easier to remain passive and allow my doctors to dictate my treatment. However, my apathy kept me sick for a long time, and I cannot afford to lose anymore time being sick!  Treating the root causes of my health problems is well worth it, as it leads to longer-lasting and better results than simply covering the symptoms with harmful pharmaceuticals.

Success and confidence for the future

While I still have work do to, I have come a long way and feel better than I have in years.  The progress I have achieved in recovering my health has made me confident that I will ultimately achieve optimal health with the tools I have learned on STTM.

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NEWS FROM LAUGHING GRAPE PUBLISHING: 

  • The STTM **SPANISH EDITION** book is on sale for a limited time only thanks to an overstock! Only at the LGP site!
  • All English books from LGP still include a 4-page handout about Herbs for Thyroid! Take advantage of this now. 

Washington spits in your face, anti-depressant problem, and the STTM book is now in German and Swedish!

The US Government is going to confiscate your meds sent from overseas!

Fall is in the US, but as you were enjoying your summer, it happened in a flash:  last July, President Obama signed into law the FDA Safety and Innovation Act (S. 3187). And that Act includes a section that might negatively affect your life as a thyroid patient if you are among those feel forced to get your life-saving natural desiccated thyroid (NDT) or related medications from overseas (because your doctor was too clueless to either prescribe NDT or give you enough thanks to the medical stupidity about the TSH lab test).

i.e. in Section 708, the US government now has the authority to destroy a package of personally imported drugs at their point of entry to the United States…even if you badly need them. And this potentially includes NDT like Erfa coming to us from safe, reputable Canadian online pharmacies by prescription! Or your T3-only from other places. Both the latter are unclear, but it’s a possibility.

And do you know why they state they are doing this?? For your “SAFETY”.  Janie’s eyes rolling here.  Can someone tell me how they know if a thyroid med from somewhere else is “unsafe” simply because it wasn’t made in the US?? Are US-made drugs SAFE??? Give me a break. Ask that of folks whose lives paid big prices because of side effects from our FDA-approved medications like Synthroid and many other NON-thyroid related drugs pushed upon us. It’s all a bunch of Big Pharma-influenced, greedy hooey, say thyroid patients.

Now as far as we know, this isn’t going to affect anything really soon. The US Secretary of Health and Human Services has up to two years to decide how to make the new law a reality. But it may happen far sooner than later in that time frame and I would count on it.

Says Lee Graczyk, RxRights Lead Organizer, “It’s critical for people to stand up and get organized to fight against this harmful regulation!”

Anti-depressant use and your adrenals: not a helpful connection for some

Sure, having depression is not fun and it’s understandable if you want to do something about it. My own mother had depression so bad thanks to her lifelong use of Synthroid that she used anti-depressants her entire adult life. This was long before we, as thyroid patients, discovered the strong connection between low T3 levels in the brain and depression (and a connection which all too many doctors miss!)

She also had an extremely “emotionally apathetic” personality, which I assumed was solely due to the electric shock treatment she had while in her early 40’s in an attempt to reverse the depression. But turns out her impassive and flat personality could have also been from the nasty side-effects of my mother’s long-term antidepressant use. i.e. while they made her “happy”, they also made her more dull, flat and detached. This has been reported by all-too-many patients

But now we are seeing the problems that anti-depressant use can cause for your adrenals. A study done in September 2011 titled Antidepressant use and salivary cortisol in depressive and anxiety disorders reveals that

  1. Tricyclics* flatten your cortisol awakening response
  2. SSRI users** had higher evening cortisol levels
  3. Most antidepressants are associated with distinct alterations of the HPA axis (hypothalamus, pituitary and adrenal feedback loop)

*A common form of Tricyclics is Elavil (Amitriptyline).  **Common examples of SSRI antidepressant (Selective serotonin re-uptake inhibitors or serotonin-specific reuptake inhibitor) include Lexapro, Prozac, Celexa, Paxil, Zoloft, etc) 

The alternation of your HPA axis is a common finding when you peruse several research studies. And it’s even more obvious when thyroid patients with adrenal fatigue start using the T3 Circadian Method. i.e. it can take longer to get the right response from the T3. ***Please note that this is simply providing information in the name of being informed patients, not a recommendation to get off your antidepressant!  Talk to your doctor.

(Speaking of mood issues, a study was done showing cherries help with mood. Who would’ve guessed. You can read about it here.)

The revised Stop the Thyroid Madness book is now in German and Swedish! 

You can read about the translations here and I included an autobiography of each translator!  Please do not comment asking if a particular language is coming. I’ll announce them when the day comes.  If you know someone in Germany or Sweden who could badly use the patient-to-patient information in this book, go here.