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The Affordable Care Act, aka Obamacare, and Thyroid Patients: How will it be for us?

Screen Shot 2016-01-05 at 3.48.46 PMUS Thyroid patients have been abuzz behind the scenes for months about what the Patient Protection and Affordable Care Act ((PPACA), aka Obamacare, will mean for them, positively or negatively.

And more discussion has been sparked by the disastrous enrollment launch since October 1st, followed by many of us going through the shock of our private insurance being cancelled, or facing much higher premiums. So questions and concerns abound.

Of course, the stated intent of this healthcare reform, says Obama Care Facts, is to “give more Americans access to affordable, quality health insurance and to reduce the growth in health care spending in the U.S.”  In other words, it’s supposed to give affordable healthcare to those who have been uninsured or improve the terms of the health insurance you already have.

But is the latter so for thyroid patients? Will we as thyroid patients be better off? Let’s look at the Affordable Care Act in general first.

Obamacare’s stated benefits and facts are:

  1. It will mostly benefit a large body of the uninsured, as well as those who don’t have employer-based or government-based health insurance.
  2. Premiums will vary depending on the state you live in, your age, health, income, and which of four plans you decide upon.
  3. You can choose between four types of medical plans with Obamacare–better plans mean higher premiums but lower out-of-pocket costs.
  4. You can still have private insurance plans instead.
  5. There will be a Medicaid expansion to cover more people in approx. 26 states
  6. Medicare recipients will have an easier time getting prescription drugs.
  7. Certain preventative medicine will be covered 100%, including health, dental and vision.
  8. You can buy Obamacare health coverage until March 31, 2014. If you don’t buy any health coverage, you may pay a tax penalty of $95 or 1% of your taxable income in 2014
  9. Larger businesses will be required to provide insurance for their employees.
  10. Your won’t be charged extra if you have to go out of your area for emergency room visits.
  11. You’ll be covered for goods and services to help you maintain a standard of living if you have a chronic disease like Multiple Sclerosis
  12. All preventative care lab tests will be covered before you are diagnosed.

Obamacare effects private insurance companies this way:

  1. All participating health insurance companies are required to cover services in ten Essential Health Benefits categories, from emergency room and hospital care to mental health and approved prescription benefits.
  2. You cannot be dropped because you have an illness or because of pre-existing conditions or charged more.
  3. Your yearly out-of-pocket costs are limite
  4. There will be no annual or lifetime limits to your insurance.
  5. You cannot be discriminated against because of your gender.
  6. Young adults can stay on their parents plan until they are 26 years old, and low budget plans until they are 30.
  7. You have the right to rapid appeal of insurance company decisions
  8. Whatever prescription meds that you pay out-of-pocket will count towards your deductible.
  9. There will be free yearly check-ups, immunizations, counseling, and screenings for all non-grandfathered plans at no out-of-pocket costs
  10. You will still have several different insurance plans in the Marketplace to choose from.

And the negatives as outlined by critics:

  1. Not all preventative tests you might want or need will be covered.
  2. It’s going to be a one-size, fits all policy created by your federal government, as if all people fall under one umbrella of needs, lifestyles and goals.
  3. Treatment goals by hospitals may end up being related to whether they are financially rewarded by the government for that treatment or not.
  4. Like an HMO, your network of doctors to choose from will be narrower if you go with Obamacare, which means you may not be able to use your current doctor.
  5. Up to 30 million still won’t be insured.
  6. A survey completed by The Doctors Company found that 60% of physicians feel their patients will get less quality of care due to the Obamacare pressure to decrease costs and improve their patient load. It will also cause 43% of doctors to go into early retirement.
  7. Private insurance premiums will probably go up for most.
  8. The higher premiums in exchange for stated better coverage will only be a good trade for those who have hefty medical expenses in any given year.

So how might thyroid patients see all this??

 1.    Obamacare says that all preventive care lab tests will be covered. This could continue to mean that the most favored test to diagnose thyroid disease will be the TSH, similar to what veterans in the VA system get, and which thyroid patients know has been an abject failure for diagnoses since its inception in the 1970s. So the thyroid madness with the TSH might sadly continue.

2.    Obamacare says that you’ll be covered for goods and services to help you maintain a standard of living if you have a chronic disease. Thyroid patient skeptics have expressed doubts that we will be covered for the chronic and debilitating low cortisol issues we tend to have–the latter usually due to undiagnosed or undertreated hypothyroidism from the use of the TSH lab test or T4-only treatment. Then think of the disability from Lyme and compromised immune function and you have a continuation of the problems we encounter today, on top of how adrenal issues keep us from working.

3.   Obamacare will have standardized kinds of treatment.  Say thyroid patient Andy: “That can certainly be a disappointment if they favor T4-only for hypothyroidism, just as government-run VA care does for my Dad”, and which leaves him with worse problems than he had when diagnosed. And a large body of thyroid patients know what an abject failure T4-only treatment has been. i.e. the failure of T4-only like Synthroid, whether from the beginning or the longer one stays on it, is not isolated.

4.    Obamacare states that because of the required Essential Health Benefits categories your insurance has to cover (preventative medicine), it will allow more people to find and treat chronic diseases before you have to go into the emergency room.  If the government believes the fantasy that the TSH is the best way to diagnose, or T4 is the best treatment, or the low cortisol problem doesn’t exist except for Addisons patients, or the only test for cortisol levels is blood testing instead of saliva (the latter which we know gives far better information)…some thyroid patients aren’t going to avoid the emergency room.

5.   Obamacare has always said you can keep your doctor. But with recent news revealing millions of people are experiencing cancellation of their insurance policies, that may not be so, which can be crushing if you finally found a doctor who isn’t obsessed with the TSH and T4-only medications, or who understand the low cortisol problem. If you aren’t able to keep your current health plan, and have to purchase another coverage, the latter may not cover your current doctor. You’ll need shop for a plan that does.

In other words, whether one is for or against Obamacare, it may continue the backwards diagnosis and treatment of hypothyroidism, plus new issues and direction that everyone will have to deal with on top of it, both positives and negatives.

Read more:

http://cbo.gov/sites/default/files/cbofiles/attachments/44190_EffectsAffordableCareActHealthInsuranceCoverage_2.pdf

http://obamacarefacts.com/obamacare-facts.php

http://obamacarefacts.com/insurance-exchange/health-insurance-plans.php

http://www.washingtonpost.com/blogs/wonkblog/wp/2013/09/30/%3Fp%3D63297/

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The Good, the Bad and the Ugly: 2012 in perspective for thyroid patients worldwide

2012 represented my tenth year as an activist, which has given me great perspective of where we are today as to compared to where we were ten years ago. And it’s huge. We had NO Stop the Thyroid Madness compilation of successful patient experiences to learn from and very few patient groups. We’ve come a long way, baby and the fight for better thyroid treatment and wisdom continues!

To summarize, Clint Eastwood couldn’t have said it better as to the mix of what 2012 gave us as informed thyroid patients!

THE GOOD: 

  • Armour returns to a softer tablet  After Forest Labs disastrous reformulation of Armour natural desiccated thyroid in 2009, which made the tablets harder and caused a return of our hypothyroid symptoms, we started to see Armour tablets becoming softer again in mid-2012. And that meant we could choose to do Armour sublingually once again. In the meantime, this disaster allowed many patients to discover NP Thyroid by Acella, which has turned out to be a great product.
  • More doctors are getting it! I probably see this in a more widespread way than individual patients do thanks to all the emails I get, but it’s clear that a growing body of doctors are finally understanding the efficacy of natural desiccated thyroid and the idiocy of the TSH lab test in diagnosing and dosing NDT. Sure, the field of Endocrinology is still as backwards as it gets, as are many other doctors, but others are listening here or there. (But do note that even the best doctors aren’t caught up in other areas, so become informed and expect to guide them as to patient experience! STTM book helps you do that.)
  • STTM book now in German and Swedish  I was proud and excited to offer these two translations to help spread the word to those who may not speak English.
  • Study being done comparing NDT with Synthroid Walter Reed National Military Medical Center in Bethesda, Maryland is doing a study, and seeking participants from the military, to compare the results of natural desiccated thyroid (which they call Natural Desiccated Extract or NDE, and will be Armour) and T4-only aka levothyroxine (and will be the infamous Synthroid). But there is a clear bad…..see below 
  • Wichita, Kansas says no to Fluoride in their waterConsidering that many of us suspect that the fluoride we are constantly exposed to could explain the huge influx of thyroid disease, this is extremely good news and we can only hope that other cities get this smart.
  • Thyroid Change In an attempt to unite all thyroid websites, leaders and focuses came this new website, Thyroid Change.

THE BAD:

  •  John C. Lowe dies  It was a terrible shock to lose this helpful medical professional in January due to the effects of a head injury the previous year. And his websites went with him for awhile due to probate. He will be sorely missed, as he was a champion for the use of NDT and understood SO much about better thyroid care.
  • The passing of Edna Kyrie  Edna of the UK worked hard on the website Thyroid History, aka Thyroid Research, compiling everything she could find pertaining to thyroid research and science, even while dealing with the effects of MS (multiple sclerosis).
  • US now confiscates medications if they come into the country  In July, Obama passed a bill called the FDA Safety and Innovation Act (S. 3187) which allows the government to destroy a package of personally imported drugs at their point of entry to the United States…even if some patients feel they need them when they can’t find any doctor wise enough to prescribe NDT, or enough NDT thanks to the poor use of the TSH lab test. And several patients have already had this happen to them.
  • Walter Reed National Military Medical Center study will sadly be using the TSH  i.e. though it looks exciting to see a study comparing NDT to Synthroid, they are going “to keep TSH in normal range” (which for the majority can mean they are still hypothyroid) and aren’t even testing the FREE T3, just using the total T3, total T4, free T4, T3 resin uptake, sex hormone binding globulin (SHBG), and a lipid panel.  Give me a break….
THE UGLY:

Good thyroid patient discussion groups here.

Things we have learned here.

What’s new on STTM here.

What your Road to Recovery can look like here.

The revised STTM book here.

Washington spits in your face, anti-depressant problem, and the STTM book is now in German and Swedish!

The US Government is going to confiscate your meds sent from overseas!

Fall is in the US, but as you were enjoying your summer, it happened in a flash:  last July, President Obama signed into law the FDA Safety and Innovation Act (S. 3187). And that Act includes a section that might negatively affect your life as a thyroid patient if you are among those feel forced to get your life-saving natural desiccated thyroid (NDT) or related medications from overseas (because your doctor was too clueless to either prescribe NDT or give you enough thanks to the medical stupidity about the TSH lab test).

i.e. in Section 708, the US government now has the authority to destroy a package of personally imported drugs at their point of entry to the United States…even if you badly need them. And this potentially includes NDT like Erfa coming to us from safe, reputable Canadian online pharmacies by prescription! Or your T3-only from other places. Both the latter are unclear, but it’s a possibility.

And do you know why they state they are doing this?? For your “SAFETY”.  Janie’s eyes rolling here.  Can someone tell me how they know if a thyroid med from somewhere else is “unsafe” simply because it wasn’t made in the US?? Are US-made drugs SAFE??? Give me a break. Ask that of folks whose lives paid big prices because of side effects from our FDA-approved medications like Synthroid and many other NON-thyroid related drugs pushed upon us. It’s all a bunch of Big Pharma-influenced, greedy hooey, say thyroid patients.

Now as far as we know, this isn’t going to affect anything really soon. The US Secretary of Health and Human Services has up to two years to decide how to make the new law a reality. But it may happen far sooner than later in that time frame and I would count on it.

Says Lee Graczyk, RxRights Lead Organizer, “It’s critical for people to stand up and get organized to fight against this harmful regulation!”

Anti-depressant use and your adrenals: not a helpful connection for some

Sure, having depression is not fun and it’s understandable if you want to do something about it. My own mother had depression so bad thanks to her lifelong use of Synthroid that she used anti-depressants her entire adult life. This was long before we, as thyroid patients, discovered the strong connection between low T3 levels in the brain and depression (and a connection which all too many doctors miss!)

She also had an extremely “emotionally apathetic” personality, which I assumed was solely due to the electric shock treatment she had while in her early 40’s in an attempt to reverse the depression. But turns out her impassive and flat personality could have also been from the nasty side-effects of my mother’s long-term antidepressant use. i.e. while they made her “happy”, they also made her more dull, flat and detached. This has been reported by all-too-many patients

But now we are seeing the problems that anti-depressant use can cause for your adrenals. A study done in September 2011 titled Antidepressant use and salivary cortisol in depressive and anxiety disorders reveals that

  1. Tricyclics* flatten your cortisol awakening response
  2. SSRI users** had higher evening cortisol levels
  3. Most antidepressants are associated with distinct alterations of the HPA axis (hypothalamus, pituitary and adrenal feedback loop)

*A common form of Tricyclics is Elavil (Amitriptyline).  **Common examples of SSRI antidepressant (Selective serotonin re-uptake inhibitors or serotonin-specific reuptake inhibitor) include Lexapro, Prozac, Celexa, Paxil, Zoloft, etc) 

The alternation of your HPA axis is a common finding when you peruse several research studies. And it’s even more obvious when thyroid patients with adrenal fatigue start using the T3 Circadian Method. i.e. it can take longer to get the right response from the T3. ***Please note that this is simply providing information in the name of being informed patients, not a recommendation to get off your antidepressant!  Talk to your doctor.

(Speaking of mood issues, a study was done showing cherries help with mood. Who would’ve guessed. You can read about it here.)

The revised Stop the Thyroid Madness book is now in German and Swedish! 

You can read about the translations here and I included an autobiography of each translator!  Please do not comment asking if a particular language is coming. I’ll announce them when the day comes.  If you know someone in Germany or Sweden who could badly use the patient-to-patient information in this book, go here.

I met hundreds of millions of women today…in one woman

bunny Michelle, 40-or-50-something, came over to my house today to go over some paperwork. I hadn’t taken my Armour yet, and I said “Excuse me, I need to pop my thyroid meds under my tongue.”

“Oh, I take thyroid meds, too.  Synthroid” she explained as she was writing on the papers with her pencil.

Now when I hear something like that, being who I am, I’m like a bear in a china cabinet who suddenly smells honey.  So as not to overwhelm,  I casually say “Oh, I used be on Synthroid.” And after a long pause while we are going over the paperwork, I say “Did you know there’s a worldwide patient revolution going on against medications like Synthroid?”

At the point, she raises her head in curiosity.

I then stick my paw in the honey: “You and I and millions have been put on meds like Synthroid and then told we are “normal” because the TSH says so. But all of us have continuing symptoms of hypothyroidism.  It’s a lousy medication. “

And when I laid out what those continuing symptoms were, her eyes got as big as saucers and she was shaking her head up and down in recognition. “Depression, rising cholesterol and blood pressure, easy weight gain, fatigue, less stamina than others, dry hair and skin, feeling cold, etc”, I told her.

And the most profound aspect of Michelle? She lives her life like the Energizer Bunny, going and going and going. She told me she often doesn’t get home until 6 pm doing her job, and she clearly has a lot of professional responsibilities.

But does an active Michelle mean that Synthroid works and is just as good a thyroid treatment as desiccated thyroid? You know the answer. She revealed that she’s quite tired when she comes home, wishes she had more energy, and still has issues with her weight, even though she lost some when she got on Synthroid.

And reading between the lines, it was clear that Michelle is probably on an anti-depressant, a statin, and a blood pressure medication.  And…she clearly has an adrenal problem that’s only going to get worse. She has a terrible time falling asleep at night (high cortisol), and is very sensitive to light and noise (high or low cortisol).

Suddenly it dawned on me. I am sitting across hundreds of millions of women, and some men. I am listening to how millions live their lives–making a living, maintaining a home, loving their spouses and children, interacting with people.  But underneath it all, it’s not a pretty picture. They cope, and they cope again.  And they dish out their money for more medications to treat the very symptoms caused by an inferior medication. And as they age, they’ll pay each of their millions of prices, just as my mother did, and as I was headed.  Energizer bunnies with faulty batteries.

P.S. Barack Obama has a health care reform plan. Will it change the lives of those 50 million with thyroid disease in the US, or will it only continue this T4-only travesty and health care scandal?  Are we headed in the same insane direction as the UK when it comes to T4-only?  Express your opinion.